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Frequently Asked Questions

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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Fidelity to Treatment and Shared Decision-Making

58 Shared Subjects

N/A
Clinical Assessments
Treatment
07/16/2015
tf01
07/16/2015
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project newid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query tf1a Integer Recommended Help you practice how to handle real life situations you care about 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1b Integer Recommended Help you get along better with your friends 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1c Integer Recommended Help you talk with your family about your thoughts and feelings 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1d Integer Recommended Talk with you about how you would like your family or other important people in your life involved with your treatment 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1e Integer Recommended Talk with you about how your family or other important people in your life could help support you in reaching your goals 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1f Integer Recommended Talk with you about any concerns you might have about your use of drugs or alcohol 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1g Integer Recommended Pay attention to your preferences regarding a job and or school 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1h Integer Recommended Help you to get or keep a job or go to or stay in school 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1i Integer Recommended Go with you to your job or school 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1j Integer Recommended Help you figure out your finances, including getting any benefits you may beentitled to 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1k Integer Recommended Talk with you about whether you have had thoughts of harming or killing yourself 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1l Integer Recommended Help you make a plan to stay safe 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf1m Integer Recommended Respond as quickly as you wanted 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf2 Integer Recommended When you and your team have talked about your treatment, how much did you feel that decisions about your treatment were joint decisions between you and your team? 1::4 1 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
Query tf3 Integer Recommended Have you met with your team psychiatrist since last interview 0;1 0=No; 1=Yes
Query tf4 Integer Recommended How often does the topic of medication side effects come up 1::4 1 = Not at all;2 = At a few of our meetings;3 = At about half of our meetings;4 = At most or every meeting
Query tf5 Integer Recommended How often does your psychiatrist involve you in decision about what medications to take 1::4 1 = Not at all;2 = At a few of our meetings;3 = At about half of our meetings;4 = At most or every meeting
Query tf_omnibus Float Recommended Omnibus sum score Mean of TF1A,TF1B,TF1C,TF1D,TF1E,TF1G,TF1H,TF1K,TF2;
Query tf_family Float Recommended Treatment Fidelity about Family Involvement: score Mean of TF1C,TF1D,TF1E
Query tf_work Float Recommended Treatment Fidelity about the IPS Specialist Mean of TF1G,TF1H
Query tf_psychiatrics Float Recommended Shared Decision Making with the Psychiatrist Mean of TF4,TF5
Query tf_shared Integer Recommended Shared decision making TF2
Query tf_rc Float Recommended Treatment Fidelity about Recovery Coach Mean of TF1A,TF1B
site String 101 Recommended Site Study Site
Query days_baseline Integer Recommended Days since baseline tfdays
visit String 50 Recommended Visit name timept
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.