Data Sharing Expectations

Notice of Grant Award

The Notice of Grant Award (NOA) marks the beginning of the submission process for most data contributors/grantees. If your project is expected to share data, it is likely an item regarding data sharing will be included in the Terms and Conditions of your award.

Following the issuance of this award, you will receive a Welcome Email directly from NDA providing information on the initial steps you need to take.  The Welcome Email is your first direct interaction with NDA. Once NDA reaches out to initiate the Data Sharing Process, an NDA Collection will be created for you (this is the virtual container for all your research data in NDA), and you will be asked to:

  • Complete an NDA Data Submission Agreement.
  • Set up a tracking list of data, called the Data Expected List, of the data you expect to collect and when it will be deposited and shared.
  • Begin preparing for eventual data upload and sharing.

NIAAADA Data Sharing Terms and Conditions

Last modified on Aug 5, 2019

Informed Consent Plan

All participants whose data are to be shared through NDA must provide appropriate informed consent. A plain language description of NDA for use in crafting informed consent documents is available for download from the link below. Please be advised that NDA does not provide feedback on specific informed consent language.

NIAAADA Sample Informed Consent Language

Last modified on Aug 5, 2019

Global Unique Identifiers

When data are uploaded to NDA, each participant will have to have an associated Global Unique ID, or GUID. This identifier is created using a free tool maintained by NDA and your NDA user account. To create a GUID you need to collect a specific set of information as listed on the participant's birth certificate, and account for this in your Informed Consent documents and with your IRB. For information on what needs to be collected and how to tool is used please visit our full page on the NDA GUID.