NIMH Data Archive - Data

Genomics

Neuroimaging

Phenotype¹

New Trial
Clinical Trial

¹ Numbers reported are subjects by age

New Project
Grant/Project Number

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

Select	Experiment Id	Experiment Name	Experiment Type	Created On

24	HI-NGS_R1	Omics	02/16/2011
475	MB1-10 (CHOP)	Omics	06/07/2016
490	Discovery and CRISPR validation of genetic factors associated with antipsychotic-induced weight gain and cardiometabolic risk	Omics	07/07/2016
501	PharmacoBOLD Resting State	fMRI	07/27/2016
506	PVPREF	Omics	08/05/2016
509	ABC-CT Resting v2	EEG	08/18/2016
13	Comparison of FI expression in Autistic and Neurotypical Homo Sapiens	Omics	12/28/2010
18	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	01/06/2011
22	Stitching PCR Sequencing	Omics	02/14/2011
26	ASD_Methylation	Omics	03/01/2011
29	Microarray family 03 (father, mother, sibling)	Omics	03/24/2011
37	Standard paired-end sequencing of BCRs	Omics	04/19/2011
38	Illumina Mate-Pair BCR sequencing	Omics	04/19/2011
39	Custom Jumping Libraries	Omics	04/19/2011
40	Custom CapBP	Omics	04/19/2011
41	Immunofluorescence	Omics	05/11/2011
43	Autism brain sample genotyping, Illumina	Omics	05/16/2011
47	ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 System	Omics	08/01/2011
53	AGRE Omni1-quad	Omics	10/11/2011
59	AGP genotyping	Omics	04/03/2012
60	Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controls	Omics	06/23/2012
63	Microemulsion PCR and Targeted Resequencing for Variant Detection in ASD	Omics	07/20/2012
76	Whole Genome Sequencing in Autism Families	Omics	01/03/2013
519	Resting	fMRI	11/08/2016
90	Genotyped IAN Samples	Omics	07/09/2013
91	NJLAGS Axiom Genotyping Array	Omics	07/16/2013
93	AGP genotyping (CNV)	Omics	09/06/2013
106	Longitudinal Sleep Study. H20 200. Channel set 2	EEG	11/07/2013
107	Longitudinal Sleep Study. H20 200. Channel set 3	EEG	11/07/2013
108	Longitudinal Sleep Study. AURA 200	EEG	11/07/2013
105	Longitudinal Sleep Study. H20 200. Channel set 1	EEG	11/07/2013
109	Longitudinal Sleep Study. AURA 400	EEG	11/07/2013
116	Gene Expression Analysis WG-6	Omics	01/07/2014
131	Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1	Eye Tracking	02/27/2014
132	Jeste Lab UCLA ACEii: Animacy - Project 1	Eye Tracking	02/27/2014
133	Jeste Lab UCLA ACEii: Mom Stranger - Project 2	Eye Tracking	02/27/2014
134	Jeste Lab UCLA ACEii: Face Emotion - Project 3	Eye Tracking	02/27/2014
145	AGRE/FMR1_Illumina.JHU	Omics	04/14/2014
146	AGRE/MECP2_Sanger.JHU	Omics	04/14/2014
147	AGRE/MECP2_Junior.JHU	Omics	04/14/2014
151	Candidate Gene Identification in familial Autism	Omics	06/09/2014
152	NJLAGS Whole Genome Sequencing	Omics	07/01/2014
154	Math Autism Study - Vinod Menon	fMRI	07/15/2014
155	Resting	fMRI	07/25/2014
156	Speech	fMRI	07/25/2014
159	Emotion	fMRI	07/25/2014
160	syllable contrast	EEG	07/29/2014
167	School-age naturalistic stimuli	Eye Tracking	09/19/2014
44	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	06/27/2011
45	Exome Sequencing of 20 Sporadic Cases of Autism Spectrum Disorder	Omics	07/15/2011

Collection - Add Experiment

Add Supporting Documentation

Funding Source:
URL:

To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

Use/Modify Existing Data Structure

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Data Structures:

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The Data Expected list for this Collection shows some raw data as missing. Contact the NDA Help Desk with any questions.

Please confirm that you will not be enrolling any more subjects and that all raw data has been collected and submitted.

Collection Updated

Your Collection is now in Data Analysis phase and exempt from biannual submissions. Analyzed data is still expected prior to publication or no later than the project end date.

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[CMS]

Unable to change collection phase where targeted enrollment is less than 90%

You have requested to move the sharing dates for the following assessments:

Data Expected Item	Original Sharing Date	New Sharing Date

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The Center for Neuroscience-based Mental Health Assessment and Prediction (NeuroMAP) #5305

General
Experiments (14)
Shared Data
Publications (91)
Data Expected (129)
Associated Studies (0)

Collection Title	Collection Investigators	Collection Description
Collection Title:	The Center for Neuroscience-based Mental Health Assessment and Prediction (NeuroMAP)
Collection Investigators:	Martin Paulus
Collection Description:	PROJECT SUMMARY: Overall Mood and Anxiety Disorders are the most prevalent and disabling mental health conditions worldwide, yet there are limited explanatory and predictive disease models available for these conditions. The theme of the Neuroscience-based Mental Health Assessment and Prediction (NeuroMAP) CoBRE is based on the premise that experimental designs that use transdiagnostic approaches (i.e., processes that cut across disease categories) with multiple levels of analyses (symptoms & behavior, circuits & physiology, cells & molecules) can identify disease modifying processes that can become targets of interventions. Phase I of NeuroMAP recruited 8 RPLs and 8 PPIs. As of 6/2022, they applied for 99 extramural grants, received 8 federal grants, and published 130 papers linked to the P20. Two underrepresented minority investigators using NeuroMAP Core data received prestigious Maximizing Opportunities for Scientific and Academic Independent Careers (MOSAIC) K99/R00 awards. Prior to the NeuroMAP CoBRE (funded 9/15/2017) the annual NIH funding for LIBR was $662,104 (NIH Reporter accessed 6/17/2022), for 2021/22 the annual funding is $7,555,510 ($5,368,214 without the CoBRE), which is a 11.4 (8.1)-fold increase. The goal for Phase II of the NeuroMAP is to maintain and expand the infrastructure for RPLs. The Specific Aims of NeuroMAP are: (1) To expand the critical mass of investigators that are focused on Neuroscience-based Mental Health Assessment and Prediction approaches to mood and anxiety disorders. (2) To provide an operational infrastructure that provides the tools necessary to conduct research projects, standardize assessments, and provide a data repository for future pilot projects. (3) To provide a mentoring and career development infrastructure to junior investigators to conduct studies focused on targetable, disease modifying processes in mood or anxiety disorders. NeuroMAP will consists of: (a) an Administrative Core (Paulus); a Recruitment and Assessment Core (Aupperle & Khalsa), a Circuit and Molecules Core (Rohan & Savitz), and a Data Management and Statistics Core (Kuplicki & Thompson). There are three proposed projects: (1) Transcranial Direct Current Stimulation: Threat Sensitivity target (Ironside) - External Mentor: Monique Ernst, NIMH; Internal Mentor: Robin Aupperle, LIBR. (2) The effects of aversive interoceptive states on the computations and associated neural basis of avoidance behavior (Smith) - External Mentor: Philip Corlett, Yale University; Internal Mentor: Jennifer Stewart, LIBR. (3) Modulating repetitive negative thinking related brain networks in young adults with depression (Tsuchiyagaito) - External Mentor: Kate Fitzgerald, University of Michigan; Internal Mentor: Jonathan Savitz, LIBR. The goal of Phase II is to expand research in mood and anxiety disorders, build a bigger base of funded investigators, and to attract more young talent to delineate the processes that contribute to individuals developing, recovering from, and relapsing to mood and anxiety disorders.
Data Repository:	NIMH Data Archive
Permission Group:
Collection Creation Date:	06/20/2024
Collection Phase:	Enrolling
Blinded Clinical Trial:	No
Total Funded Amount:	$9,852,777.00
Subjects Shared:	205
Collection DOI:	10.15154/rs4b-vr24

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Funding Sources:

Funding Source Name	Funding Source URL
NIH - Extramural	None

Supporting Documentation:

Grant Information:

Project Number	Title	Start Date	Original End Date	End Date	Planned Enrollment	Actual Enrollment	Organization	Funds Obligated
P20GM121312-06	The Center for Neuroscience-based Mental Health Assessment and Prediction (NeuroMAP)	08/01/2023	06/30/2028	06/30/2028	1118	610	LAUREATE INSTITUTE FOR BRAIN RESEARCH	$9,852,777.00

Clinical Trials:

helpcenter.collection.general-tab

Collection - General Tab

Fields available for edit on the top portion of the page include:

Collection Title
Investigators
Collection Description
Collection Phase
Funding Source
Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

Pre-Enrollment: The default entry made when the NDA Collection is created.
Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
- The Data Expected Subphase indicates that NDA expects more data will be submitted
- The Closeout Subphase indicates the data submission is complete.
- The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?

During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
How do I know when a NDA Collection has been created?

When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
Is a single grant number ever associated with more than one Collection?

The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
Why is there sometimes more than one grant included in a Collection?

In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

Administrator Privilege

A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
Collection Owner

Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
Collection Phase
The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
- Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
- Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
- Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
- Funding Completed: A grant/project has reached the project end date.
Collection Title

An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
Grant

Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
Supporting Documentation

Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
NIH Research Initiative

NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
Permission Group

Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
Planned Enrollment

Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
Actual Enrollment

Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
NDA Collection

A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
Data Use Limitations

Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
Total Subjects Shared

The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

Contact NDA Help Desk

ID	Name	Created Date	Status	Type
1749	Rest - 8 min - LIBR	05/11/2021	Approved	fMRI
2361	Flight Initiation Distance (FID) Task	08/21/2023	Approved	fMRI
2760	Adjective Task - LIBR	12/16/2024	Approved	fMRI
2803	VIA- LIBR	01/07/2025	Approved	fMRI
2946	Tap-To-Safety Task	05/29/2025	Approved	fMRI
2947	Three Armed Bandit - LIBR	05/29/2025	Approved	fMRI
2948	Repetitive Negative Thinking Task - LIBR	05/29/2025	Approved	fMRI
2949	Self-Regulate Task	05/29/2025	Approved	fMRI
2950	Neurofeedback Task - LIBR	05/29/2025	Approved	fMRI
2953	Rest Mood	06/03/2025	Approved	fMRI
3122	fMRI NPU-Threat Task	01/02/2026	Approved	fMRI
3132	Emotional Dynamics Rest LIBR	01/13/2026	Approved	fMRI
3133	TReAT LIBR	01/13/2026	Approved	fMRI
3316	Emotional Conflict LIBR	06/24/2026	Approved	fMRI

helpcenter.collection.experiments-tab

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

Can an Experiment be associated with more than one Collection?
Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:
1. Copy the experiment with intent for modifications.
2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

Experiment Status

An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
Experiment ID

The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.

Contact NDA Help Desk

Shared Data:

Title	Type	Number of Subjects
Adult ADHD Self-Report Scale Screener	Clinical Assessments	185
Adverse Childhood Experience	Clinical Assessments	185
Anxiety Sensitivity Index (ASI) Version III	Clinical Assessments	185
Autism Spectrum Quotient - 10 Question Survey	Clinical Assessments	46
Behavioral Inhibition Scale/Behavioral Activation Scale	Clinical Assessments	47
Big Five Inventory 44 Items	Clinical Assessments	185
Childhood Trauma Questionnaire	Clinical Assessments	185
Cognition Composite Scores	Clinical Assessments	168
Columbia Suicide Severity Rating Scale	Clinical Assessments	185
Current Menstrual State and Menstrual History	Clinical Assessments	40
Customary Drinking and Drug Use Record	Clinical Assessments	185
Difficulties in Emotion Regulation Scale	Clinical Assessments	185
Dimensional Change Card Sort Test (DCCS)	Clinical Assessments	182
Dimensional Obsessive Compulsive Scale	Clinical Assessments	47
Eating Disorder Examination Questionnaire	Clinical Assessments	185
Edinburgh Handedness Inventory	Clinical Assessments	178
Emotional Regulation Questionnaire	Clinical Assessments	58
Everyday Discrimination Questionnaire	Clinical Assessments	179
Experiences of Discrimination Measure	Clinical Assessments	177
Flanker Task	Clinical Assessments	182
General Self-Efficacy Scale	Clinical Assessments	183
Hamilton Anxiety Rating Scale	Clinical Assessments	41
Image	Imaging	176
International Physical Activity Questionnaire	Clinical Assessments	185
Intolerance of Uncertainty Scale	Clinical Assessments	47
Montgomery-Asberg Depression Rating Scale	Clinical Assessments	45
Multigroup Ethnic Identity Measure Revised	Clinical Assessments	178
NIH Toolbox List Sorting Working Memory Test	Clinical Assessments	182
NIH Toolbox Loneliness	Clinical Assessments	182
NIH Toolbox Oral Reading Recognition Test	Clinical Assessments	182
NIH Toolbox Picture Vocabulary Test	Clinical Assessments	182
NIH Toolbox Sensation Domain	Clinical Assessments	180
Obsessional Beliefs Questionnaire	Clinical Assessments	47
Obsessive-Compulsive Inventory - Revised (OCI-R)	Clinical Assessments	47
Oral Symbol Digit Test	Clinical Assessments	182
PROMIS Ability to Participate in Social Roles and Activities	Clinical Assessments	180
PROMIS Alcohol Use	Clinical Assessments	180
PROMIS Anger	Clinical Assessments	181
PROMIS Applied Cognition - Abilities	Clinical Assessments	181
PROMIS Applied Cognition-General Concerns	Clinical Assessments	182
PROMIS Emotional Distress - Depression	Clinical Assessments	182
PROMIS Emotional Distress-Anxiety	Clinical Assessments	182
PROMIS Fatigue	Clinical Assessments	180
PROMIS Nicotine Dependence	Clinical Assessments	181
PROMIS Sleep Disturbance	Clinical Assessments	184
PROMIS Sleep-Related Impairment	Clinical Assessments	184
PROMIS Social Isolation	Clinical Assessments	180
PROMIS Support	Clinical Assessments	180
Patient Health Questionnaire - 9	Clinical Assessments	165
Pattern Comparison Processing Speed	Clinical Assessments	182
Peer Substance Use	Clinical Assessments	181
Peer Tolerance of Substance Use	Clinical Assessments	181
Perseverative Thinking Questionnaire	Clinical Assessments	54
PhenX Demographics	Clinical Assessments	183
PhenX Substance Use	Clinical Assessments	181
Picture Sequence Memory	Clinical Assessments	168
Pittsburgh Sleep Quality Index	Clinical Assessments	46
Quality of Life Enjoyment and Satisfaction Questionnaire	Clinical Assessments	185
Quick Inventory of Depressive Symptomatology	Clinical Assessments	185
Rapid Eating Assessment for Participants Shortened (REAP-S)	Clinical Assessments	185
Repetitive Negative Thinking 10	Clinical Assessments	54
Research Subject	Clinical Assessments	204
Rey Auditory Verbal Learning Test	Clinical Assessments	182
Rumination Scale	Clinical Assessments	185
Satisfaction with Social Roles and Activities	Clinical Assessments	180
Sheehan Disability Scales	Clinical Assessments	50
Snaith-Hamilton Pleasure Scale	Clinical Assessments	185
State-Trait Anxiety Inventory for Adults	Clinical Assessments	4
Temporal Experience Pleasure Scale	Clinical Assessments	4
The Penn State Worry Questionnaire	Clinical Assessments	188
The Positive and Negative Affect Schedule Adult Version	Clinical Assessments	185
Toronto Alexithymia Scale	Clinical Assessments	185
UPPS Impulsive Behavior Scale	Clinical Assessments	185
Wender Utah Scale	Clinical Assessments	69
World Health Organization Health and Performance Questionnaire	Clinical Assessments	185
Yale-Brown Obsessive Compulsive Scale	Clinical Assessments	29
Young Mania Rating Scale	Clinical Assessments	4

helpcenter.collection.shared-data-tab

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?

To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
Can I get a supplement to share data from a completed research project?

Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
Can I get a supplement to share data from a research project that is still ongoing?

Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Type

A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
Shared

The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

Contact NDA Help Desk

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed ID	Study	Title	Journal	Authors	Date	Status
42203972	Create Study	Anxiety sensitivity and intolerance of uncertainty track distinct neurobehavioral dimensions of avoidance in anxiety-related disorders.	Molecular psychiatry	Berg, Hannah; Emich, Abigail; Cooper, Samuel E; Hunt, Christopher; Webler, Ryan D; Manbeck, Adrienne B; Hammell, Abbey; Burton, Philip C; Sponheim, Scott R; Kushner, Matt G; Kay, Kendrick N; Lissek, Shmuel	May 27, 2026	Not Determined
41882257	Create Study	Computational mechanisms of learning and forgetting differentiate affective and substance use disorders.	Molecular psychiatry	Hakimi, Navid; Chou, Ko-Ping; Stewart, Jennifer L; Paulus, Martin P; Smith, Ryan	August 1, 2026	Not Determined
41693243	Create Study	The Tap-to-Safety Task: A Novel fMRI Paradigm Assessing Repetitive Threat-Neutralization.	Human brain mapping	Berg, Hannah; Rozniarek, Riley; Robinson, Aardron; Kuplicki, Rayus; Rostel, Annette; Mungunkhet, Nate; Smith, Ryan; Simpson, H Blair; Paulus, Martin P; Aupperle, Robin L	February 15, 2026	Not Determined
41507365	Create Study	Age differences in neural discriminability of rumination and worry.	Communications biology	Misaki, Masaya; Tsuchiyagaito, Aki; Guinjoan, Salvador M; Paulus, Martin P	January 8, 2026	Not Determined
41500325	Create Study	Stimulant use disorder indicative of increased serum soluble intercellular adhesion molecule-1 concentrations with altered brain reward and interoceptive processing.	Brain, behavior, and immunity	Burrows, Kaiping; McNaughton-Long, Breanna A; Yakshin, Angela K; Coussa, Valerio; Kuplicki, Rayus; Aupperle, Robin L; Savitz, Jonathan B; Paulus, Martin P; Stewart, Jennifer L; Figueroa-Hall, Leandra K	March 1, 2026	Not Determined
41332869	Create Study	Decomposing genetic effects of social connectedness and depression on youth behaviors and long-term clinical outcomes.	medRxiv : the preprint server for health sciences	Shao, Lucy; Pakala, Shreya; Xu, Bohan; Loughnan, Robert; Ahern, Johnathan; Zheng, Haixia; Thompson, Wesley K; Paulus, Martin; Fan, Chun Chieh	November 23, 2025	Not Determined
41308442	Create Study	Attenuated learning rates for negative outcomes in substance use disorders: A replication and extension of prior longitudinal computational modeling results.	Drug and alcohol dependence	Hodson, Rowan; Mehta, Marishka; Taylor, Samual; Lavalley, Claire A; Stewart, Jennifer L; Guinjoan, Salvador M; Ironside, Maria; White, Evan J; Kuplicki, Rayus; Paulus, Martin P; Smith, Ryan	January 1, 2026	Not Determined
41238117	Create Study	Frontal Cortex Stimulation Modulates Attentional Circuits and Increases Anxiety-Potentiated Startle in Anxious Depression.	Biological psychiatry. Cognitive neuroscience and neuroimaging	Poplin, Tate; Kuplicki, Rayus; Walker, Ebony A; Goldman, Kyle; Ramsey, Cheldyn; Balderston, Nicholas; Aupperle, Robin L; Paulus, Martin P; Ironside, Maria	November 15, 2025	Not Determined
41194661	Create Study	Depression''s double hit: immune dysfunction and viral reactivation.	Philosophical transactions of the Royal Society of London. Series B, Biological sciences	Savitz, Jonathan	November 6, 2025	Not Determined
41107239	Create Study	Pavlovian bias is associated with symptom severity but not diagnostic status in individuals with both anxious and non-anxious depression.	Translational psychiatry	Goldman, Carter M; Hakimi, Navid; Mehta, Marishka M; Ironside, Maria; Paulus, Martin P; Smith, Ryan	October 17, 2025	Not Determined
40999237	Create Study	Reversible modulation of a deep white matter surgical target for depression with low-intensity focused ultrasound.	Neuropsychopharmacology : official publication of the American College of Neuropsychopharmacology	Tsuchiyagaito, Aki; Kuplicki, Rayus; Misaki, Masaya; Edwards, Landon; Camprodon, Joan A; Fitzgerald, Kate; Khalsa, Sahib S; Philip, Noah S; Paulus, Martin P; Guinjoan, Salvador M	February 1, 2026	Not Determined
40936343	Create Study	Increased insular functional connectivity during repetitive negative thinking in major depression and healthy volunteers.	Psychological medicine	Edwards, Landon S; Ganesan, Saampras; Tay, Jolene; Elliott, Eli S; Misaki, Masaya; White, Evan J; Paulus, Martin P; Guinjoan, Salvador M; Tsuchiyagaito, Aki	September 12, 2025	Not Determined
40935332	Create Study	Major Depressive Disorder and Serum Inflammatory Biomarkers as Predictors of Reward-Processing Dysfunction in an American Indian Sample.	Biological psychiatry. Cognitive neuroscience and neuroimaging	Rojas, Lizbeth; Mann, Eric; Ren, Xi; Bethel, Danielle; Baughman, Nicole; Burrows, Kaiping; Kuplicki, Rayus; Figueroa-Hall, Leandra K; Aupperle, Robin L; Stewart, Jennifer L; Guinjoan, Salvador M; Khalsa, Sahib S; Savitz, Jonathan; Paulus, Martin P; Wilhelm, Ricardo A; John-Henderson, Neha A; Yeh, Hung-Wen; White, Evan J	September 9, 2025	Not Determined
40811240	Create Study	Multivariate Optimization of k for k-Nearest-Neighbor Feature Selection With Dichotomous Outcomes: Complex Associations, Class Imbalance, and Application to RNA-Seq in Major Depressive Disorder.	IEEE transactions on computational biology and bioinformatics	Dawkins, Bryan A; McKinney, Brett A	January 1, 2025	Not Determined
40775619	Create Study	Repetitive negative thinking, self-reflection, and perceived cognitive dysfunction in older adults: a cross-sectional study.	BMC psychiatry	Ren, Xi; Edwards, Landon; Mann, Eric; Horiuchi, Satoshi; Tsuchiyagaito, Aki	August 7, 2025	Not Determined
40651959	Create Study	Posterior cingulate cortex downregulation training using fMRI neurofeedback in adolescents with early life adversity exposure: a randomized, single-blind trial.	Translational psychiatry	Yu, Xiaoqian; Tsuchiyagaito, Aki; Misaki, Masaya; Cochran, Gabe; Cohen, Zsofia P; Singh, Manpreet K; Paulus, Martin P; Aupperle, Robin L; Kirlic, Namik	July 13, 2025	Not Determined
40645528	Create Study	Treatment resistant depression: Socio-demographic characteristics, comorbidity and treatment patterns from the All of Us Research Program.	Journal of affective disorders	Forthman, Katherine L; Kuplicki, Rayus; Thompson, Wesley K; Nemeroff, Charles B; Si, Yajuan; Fan, Chun Chieh; Paulus, Martin P	December 1, 2025	Not Determined
40545383	Create Study	Data-driven approach to understand associations between dietary patterns, sleep problems, and mental health in adolescents.	Sleep health	Zhao, Yihong; Han, Xuewei; Feldstein Ewing, Sarah W; St-Onge, Marie-Pierre; Paulus, Martin P	October 1, 2025	Not Determined
40540776	Create Study	Reliability and clinical utility of heroin craving questionnaire factors in treatment-enrolled individuals with opioid use disorder.	Drug and alcohol dependence	May, April C; McNaughton-Long, Breanna A; Davis, Chrysantha B; Pleiman, Abigail J; Buchfink, Carmen; Kuplicki, Rayus; Yeh, Hung-Wen; Paulus, Martin P; Stewart, Jennifer L	September 1, 2025	Not Determined
40483324	Create Study	Individuals with methamphetamine use disorder show reduced directed exploration and learning rates independent of an aversive interoceptive state induction.	Communications psychology	Goldman, Carter M; Takahashi, Toru; Lavalley, Claire A; Li, Ning; Taylor, Samuel M; Chuning, Anne E; Hodson, Rowan; Stewart, Jennifer L; Wilson, Robert C; Khalsa, Sahib S; Paulus, Martin P; Smith, Ryan	June 7, 2025	Not Determined
40413170	Create Study	Computational mechanisms underlying multi-step planning deficits in methamphetamine use disorder.	Translational psychiatry	Lavalley, Claire A; Mehta, Marishka M; Taylor, Samuel; Chuning, Anne E; Stewart, Jennifer L; Huys, Quentin J M; Khalsa, Sahib S; Paulus, Martin P; Smith, Ryan	May 24, 2025	Not Determined
40346141	Create Study	Examining measurement discrepancies in adolescent screen media activity with insights from the ABCD study.	Npj mental health research	Zhao, Yihong; Han, Xuewei; Bagot, Kara S; Tapert, Susan F; Potenza, Marc N; Paulus, Martin P	May 10, 2025	Not Determined
40264292	Create Study	Systemic Inflammation and Anhedonic Responses to an Inflammatory Challenge in Adults With Major Depressive Disorder: A Randomized Controlled Trial.	The American journal of psychiatry	Savitz, Jonathan; Figueroa-Hall, Leandra K; Teague, T Kent; Yeh, Hung-Wen; Zheng, Haixia; Kuplicki, Rayus; Burrows, Kaiping; El-Sabbagh, Nour; Thomas, MacGregor; Ewers, Isaac; Cha, Yoon-Hee; Guinjoan, Salvador; Khalsa, Sahib S; Paulus, Martin P; Irwin, Michael R	June 1, 2025	Not Determined
40196245	Create Study	Encoding of pretrained large language models mirrors the genetic architectures of human psychological traits.	medRxiv : the preprint server for health sciences	Xu, Bohan; Obradovich, Nick; Zheng, Wenjie; Loughnan, Robert; Shao, Lucy; Misaki, Masaya; Thompson, Wesley K; Paulus, Martin; Fan, Chun Chieh	March 27, 2025	Not Determined
40185906	Create Study	Directed exploration is reduced by an aversive interoceptive state induction in healthy individuals but not in those with affective disorders.	Molecular psychiatry	Li, Ning; Lavalley, Claire A; Chou, Ko-Ping; Chuning, Anne E; Taylor, Samuel; Goldman, Carter M; Torres, Taylor; Hodson, Rowan; Wilson, Robert C; Stewart, Jennifer L; Khalsa, Sahib S; Paulus, Martin P; Smith, Ryan	September 1, 2025	Not Determined

helpcenter.collection.publications-tab

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

How can I determine if a publication is relevant?

Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
Where does the NDA get the publications?

PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

Create Study

A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
Not Determined Publication

Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
Not Relevant Publication

A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
PubMed

PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
PubMed ID

The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
Relevant Publication

A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

Contact NDA Help Desk

Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
Research Subject and Pedigree	500	01/15/2025	255	05/15/2025	204	Approved
NIMH CDE - GAD-7	1	01/15/2025	10	05/15/2025	0	Approved
NIMH CDE - PHQ-9	500	01/15/2025	171	05/15/2025	165	Approved
NIMH CDE - DSM-5 Crosscutting Adults	1	01/15/2025	0	05/15/2025	0	Approved
NIMH CDE - WHODAS 2.0	1	01/15/2025	0	05/15/2025	0	Approved

To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.

Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
Perceived Stress Scale	500	07/15/2026	10	01/15/2027	0	Approved
Mania Rating Scale	500	01/15/2025	18	05/15/2025	4	Approved
Positive and Negative Affect Schedule	500	01/15/2025	234	05/15/2025	185	Approved
Childhood Trauma Questionnaire	500	01/15/2025	234	05/15/2025	185	Approved
Medical History	500	01/15/2025	48	05/15/2025	40	Approved
Obsessive-Compulsive Inventory - Revised (OCI-R)	500	01/15/2025	61	05/15/2025	47	Approved
Demographics	500	01/15/2025	229	05/15/2025	183	Approved
Visual Analog Scale (VAS)	500	01/15/2025	0	05/15/2025	0	Approved
Multigroup Ethnic Identity Measure	500	01/15/2025	222	05/15/2025	178	Approved
Big Five Inventory	500	01/15/2025	233	05/15/2025	185	Approved
Substance Use Survey	500	01/15/2025	227	05/15/2025	181	Approved
Satisfaction with Participation in Social Roles	500	01/15/2025	225	05/15/2025	180	Approved
Physical Exam	500	01/15/2025	222	05/15/2025	178	Approved
Pittsburgh Sleep Quality Index	500	01/15/2025	61	05/15/2025	46	Approved
Stress Questionnaires	500	01/15/2026	0	11/15/2026	0	Approved
Difficulties in Emotion Regulation Scale	500	01/15/2025	234	05/15/2025	185	Approved
Picture Sequence Memory	500	01/15/2025	168	05/15/2025	168	Approved
Cognition Composite Scores	500	01/15/2025	168	05/15/2025	168	Approved
Pattern Comparison Processing Speed	500	01/15/2025	221	05/15/2025	182	Approved
List Sorting Working Memory Test	500	01/15/2025	221	05/15/2025	182	Approved
Auditory Verbal Learning Task	500	01/15/2025	221	05/15/2025	182	Approved
Fatigue	500	01/15/2025	227	05/15/2025	180	Approved
International Physical Activity Questionnaire	500	01/15/2025	232	05/15/2025	185	Approved
Intolerance of Uncertainty Scale	500	01/15/2025	61	05/15/2025	47	Approved
State-Trait Anxiety Inventory for Adults	500	01/15/2025	14	05/15/2025	4	Approved
Sheehan Disability Scale	500	01/15/2025	79	05/15/2025	50	Approved
Temporal Experience Pleasure Scale	500	01/15/2025	19	05/15/2025	4	Approved
Imaging (Structural, fMRI, DTI, PET, microscopy)	500	01/15/2025	214	05/15/2025	176	Approved
Anxiety Sensitivity Index (ASI) Version 3	500	01/15/2025	234	05/15/2025	185	Approved
Dimensional Change Card Sort Test	500	01/15/2025	221	05/15/2025	182	Approved
UPPS Impulsive Behavior Scale	500	01/15/2025	233	05/15/2025	185	Approved
Emotional Distress-Anxiety	500	01/15/2025	229	05/15/2025	182	Approved
Applied Cognition - Abilities	500	01/15/2025	228	05/15/2025	181	Approved
Applied Cognition-General Concerns	500	01/15/2025	229	05/15/2025	182	Approved
Emotional Distress - Depression	500	01/15/2025	229	05/15/2025	182	Approved
Social Isolation	500	01/15/2025	225	05/15/2025	180	Approved
Quick Inventory of Depressive Symptomatology	500	01/15/2025	235	05/15/2025	185	Approved
Quality of Life Enjoyment and Satisfaction Questionnaire	500	01/15/2025	232	05/15/2025	185	Approved
Behavioral Inhibition Scale/Behavioral Activation Scale	500	01/15/2025	61	05/15/2025	47	Approved
Emotion Regulation Questionnaire	500	01/15/2025	73	05/15/2025	58	Approved
The Penn State Worry Questionnaire	500	01/15/2025	237	05/15/2025	188	Approved
Snaith-Hamilton Pleasure Scale	500	01/15/2025	232	05/15/2025	185	Approved
EEG	500	01/15/2025	0	05/15/2025	0	Approved
Montgomery-Asberg Depression Rating Scale	500	01/15/2025	59	05/15/2025	45	Approved
Positive Affect Scale Self-Rated	500	01/15/2025	228	05/15/2025	0	Approved
Hamilton Anxiety Rating Scale	500	01/15/2025	41	05/15/2025	41	Approved
Flanker Task	500	01/15/2025	221	05/15/2025	182	Approved
Anger	500	01/15/2025	228	05/15/2025	181	Approved
Sleep Disturbance	500	01/15/2025	231	05/15/2025	184	Approved
Adult ADHD Self-Report Scale	500	01/15/2025	235	05/15/2025	185	Approved
NIH Toolbox Oral Reading Recognition Test	500	01/15/2025	221	05/15/2025	182	Approved
Picture Vocabulary Test	500	01/15/2025	221	05/15/2025	182	Approved
NIH Toolbox Sensation Domain	500	01/15/2025	225	05/15/2025	180	Approved
Dimensional Obsessive Compulsive Scale	500	01/15/2025	61	05/15/2025	47	Approved
Sleep-Related Impairment	500	01/15/2025	229	05/15/2025	184	Approved
Yale Brown Obsessive Compulsive Scale and Symptom Checklist	500	01/15/2025	43	05/15/2025	29	Approved
Trauma History Questionnaire	500	01/15/2026	10	11/15/2026	0	Approved
Toronto Alexithymia Scale	500	01/15/2025	233	05/15/2025	185	Approved
Experiences of Discrimination Measure	500	01/15/2025	221	05/15/2025	177	Approved
PROMIS Support	500	01/15/2025	225	05/15/2025	180	Approved
NIH Toolbox Loneliness	500	01/15/2025	221	05/15/2025	182	Approved
Peer Substance Use	500	01/15/2025	227	05/15/2025	181	Approved
PROMIS Nicotine Dependence	500	01/15/2025	226	05/15/2025	181	Approved
Adverse Childhood Experience	500	01/15/2025	234	05/15/2025	185	Approved
Eating Disorder Examination Questionnaire	500	01/15/2025	235	05/15/2025	185	Approved
PROMISE Social Roles and Activities Scale	500	01/15/2025	225	05/15/2025	180	Approved
REAP-S Rapid Eating Assessment for Participants (shortened)	500	01/15/2025	235	05/15/2025	185	Approved
Cognitive Emotion Regulation Questionnaire	500	01/15/2026	9	11/15/2026	0	Approved
Everyday Discrimination Questionnaire	500	01/15/2025	223	05/15/2025	179	Approved
Customary Drinking and Drug Use Record	500	01/15/2025	234	05/15/2025	185	Approved
Repetitive Negative Thinking 10	500	01/15/2025	54	05/15/2025	54	Approved
General Self-Efficacy Scale	500	01/15/2025	229	05/15/2025	183	Approved
Columbia Suicide Severity Rating Scale	500	01/15/2025	234	05/15/2025	185	Approved
Impact of Event Scale	500	01/15/2026	9	11/15/2026	0	Approved
PROMIS Alcohol Use	500	01/15/2025	225	05/15/2025	180	Approved
Obsessional Beliefs Questionnaire	500	01/15/2025	61	05/15/2025	47	Approved
Oral Symbol Digit Test	500	01/15/2025	221	05/15/2025	182	Approved
World Health Organization Health and Performance Questionnaire	500	01/15/2025	233	05/15/2025	185	Approved
Rumination Scale	500	01/15/2025	234	05/15/2025	185	Approved
Perseverative Thinking Questionnaire	500	01/15/2025	54	05/15/2025	54	Approved
PTSD Checklist for DSM-5	500	01/15/2026	10	11/15/2026	0	Approved
Peer Tolerance of Substance Use	500	01/15/2025	227	05/15/2025	181	Approved
Activity Questionnaire - Tap-To-Safety	500	01/15/2025	61	05/15/2025	0	Approved
Desire For Drug Questionnaire (DDQ)	500	01/15/2025	72	05/15/2025	0	Approved
Stress-Arousal Checklist	500	01/15/2025	220	05/15/2025	0	Approved
PROMIS Smoking Social Motivations	500	01/15/2025	225	05/15/2025	0	Approved
PROMIS Smoking Health Expectancies	500	01/15/2025	225	05/15/2025	0	Approved
Impulsive-Compulsive Behaviors Checklist (ICBC)	500	01/15/2025	61	05/15/2025	0	Approved
Short Almost Perfect Scale	500	01/15/2025	61	05/15/2025	0	Approved
Post-Task Questionnaire for Horizon Task and EEfRT Task	500	01/15/2025	51	05/15/2025	0	Approved
Autobiographical Memory Recalling	500	01/15/2025	72	05/15/2025	0	Approved
Tap To Safety Task Part 1 Behavioral	500	01/15/2025	50	05/15/2025	0	Approved
Autism Spectrum Quotient 10	500	01/15/2025	60	05/15/2025	46	Approved
PROMIS Bank Physical Function	500	01/15/2025	225	05/15/2025	0	Approved
Methamphetamine Withdrawal Questionnaire (MAWQ)	500	01/15/2025	72	05/15/2025	0	Approved
Post Neuro Feedback Questionnaire	500	01/15/2025	42	05/15/2025	0	Approved
Stimulant Craving Questionnaire (STCQ)	500	01/15/2025	72	05/15/2025	0	Approved
PhenX Family History of Substance Use Problems - Alcohol	500	01/15/2025	227	05/15/2025	0	Approved
Desire for Speed Questionnaire (DSQ)	500	01/15/2025	72	05/15/2025	0	Approved
Amphetamine Withdrawal Questionnaire (AWQ)	500	01/15/2025	72	05/15/2025	0	Approved
Protective and Compensatory Experiences	500	01/15/2025	234	05/15/2025	0	Approved
Shock Workup Form	500	01/15/2025	61	05/15/2025	0	Approved
Post-Task Questionnaire for Tap-To-Safety Task	500	01/15/2025	52	05/15/2025	0	Approved
Wender Utah Scale	500	01/15/2025	72	05/15/2025	69	Approved
Brief State Rumination Inventory	500	01/15/2025	61	05/15/2025	0	Approved
Mini-Cog Task	500	01/15/2025	72	05/15/2025	0	Approved
PhenX Family History of Substance Use Problems - Drugs	500	01/15/2025	226	05/15/2025	0	Approved
PROMIS Smoking Emotional and Sensory Expectancies	500	01/15/2025	225	05/15/2025	0	Approved
PROMIS Global Satisfaction with Sex Life	500	01/15/2025	225	05/15/2025	0	Approved
Interoceptive Accuracy Scale	500	01/15/2025	222	05/15/2025	0	Approved
PROMIS Smoking Coping Expectancies	500	01/15/2025	226	05/15/2025	0	Approved
PROMIS Interest in Sexual Activity	500	01/15/2025	225	05/15/2025	0	Approved
Interoceptive Attention Scale (IATS)	500	01/15/2025	222	05/15/2025	0	Approved
PhenX Self-report of Human Immunodeficiency Virus (HIV) Testing	500	01/15/2025	228	05/15/2025	0	Approved
Three-armed bandit task	500	01/15/2025	180	05/15/2025	0	Approved
Negative Trait Word List	500	01/15/2025	42	05/15/2025	0	Approved
PhenX Occupational History	500	01/15/2025	4	05/15/2025	0	Approved
PROMIS Smoking Psychosocial Expectancies	500	01/15/2025	225	05/15/2025	0	Approved
Karolinska Sleepiness Scale - MRI	500	01/15/2025	59	05/15/2025	0	Approved
Inbody Test	500	01/15/2025	222	05/15/2025	0	Approved
Moral Injury and Distress Scale (MIDS)	500	07/15/2026	0	11/15/2026	0	Requested New
EMA Stressors Questionnaire	500	07/15/2026	0	11/15/2026	0	Requested New
Regulation of Emotion Systems-EMA (RESS-EMA)	500	07/15/2026	0	11/15/2026	0	Requested New
Secondary Traumatic Stress Scale (STSS)	500	07/15/2026	0	11/15/2026	0	Requested New

Structure not yet defined

No Status history for this Data Expected has been recorded yet

helpcenter.collection.data-expected-tab

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

What is an NDA Data Structure?

An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
What is the NDA Data Dictionary?

The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

Analyzed Data

Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
Data Item

Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Structure Category

An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
Data Structure Group

A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
Evaluated Data

A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
Imaging Data

Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
Initial Share Date

Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
Initial Submission Date

Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
Research Subject and Pedigree

An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
Submission Cycle

The NDA has two Submission Cycles per year - January 15 and July 15.
Submission Exemption

An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameFilter by Study Name	DOIFilter by DOI	AbstractFilter by Abstract	Collection/Study SubjectsFilter by Collection/Study Subjects	Data UsageFilter by Data Usage	StateFilter by State
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Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

How do I associate a study to my collection?

Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

Associated Studies Tab

A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

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