abcd_tbi01 - Data Structure

Data Structure

ABCD Sum Scores Traumatic Brain Injury

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Short Name: abcd_tbi01

Data Type: Clinical Assessments

Categories: Trauma

Traumatic brain injury of youth summary scores (baseline)

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Name	Type	Required	Description	Value Range	Notes
subjectkey	GUID	Required	The NDAR Global Unique Identifier (GUID) for research subject	NDAR*
src_subject_id	String	Required	Subject ID how it's defined in lab/project
interview_date	Date	Required	Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age	Integer	Required	Age in months at the time of the interview/test/sampling/imaging.	0::1440	Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex	String	Required	Sex of subject at birth	M;F; O; NR	M = Male; F = Female; O=Other; NR = Not reported
eventname	String	Required	The event name for which the data was collected
tbi_ss_ntbiloc	Integer	Recommended	Number of TBI-LOC (number of TBIs with loss consciousness): SUM(AND([tbi_1]=1,[tbi_1b]>0), AND([tbi_2]=1,[tbi_2b]>0,AND([tbi_3]=1,[tbi_3b]>0),AND([tbi_4]=1,[tbi_4b]>0),AND([tbi_5]=1,[tbi_5b]>0),[tbi_6p], AND([tbi_7a]=1,[tbi_7c1]>0), AND([tbi_7g]=1,[tbi_7i]=1), AND([tbi_8g]=1,[tbi_8i]=1)); Validation: No minimum		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_ntbiloc_nm	Integer	Recommended	Number of TBI-LOC: Number Missing Answers
tbi_ss_ntbiloc30	Integer	Recommended	Number of TBI-LOC >= 30 (number of TBIs with loss of conscioiusness >= 30 minutes): SUM(AND([tbi_1]=1,[tbi_1b]>1), AND([tbi_2]=1,[tbi_2b]>1)AND(tbi_3]=1,[tbi_3b]>1), AND([tbi_4]=1,[tbi_4b]>1),AND([tbi_5]=1,[tbi_5b]>1),[tbi_6r], AND([tbi_7a]=1,[7c1]>1)); Validation: No minimum		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_ntbiloc30_nm	Integer	Recommended	Number of TBI_LOC >= 30: Number Missing Answers
tbi_ss_nmrpi	Integer	Recommended	Number of periods with multiple or repeated injuries: SUM([tbi_7a],[tbi_7g],[tbi_8g]); Validation: No minimum		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_nmrpi_nm	Integer	Recommended	Number of periods with multiple or repeated injuries: Number Missing Answers
tbi_ss_agefirst	Float	Recommended	Age at first TBI-LOC: IF(OR(AND([tbi_1]=1,[tbi_1b]>0),AND([tbi_2]=1,[tbi_2b]>0),AND([tbi_3]=1,[tbi_3b]>0), AND([tbi_4]=1,[tbi_4b]>0),AND([tbi_5]=1,[tbi_5b]>0),[tbi_6o]=1,AND([tbi_7a]=1,[tbi_7c1]>0), AND([tbi_7g]=1,[tbi_7i]=1),AND([tbi_8g]=1,[tbi_8i]=1)), MIN([tbi_1d],[tbi_2d],[tbi_3d],[tbi_4d],[tbi_5d],[tbi_6s],[tbi_7e],[tbi_7k],[tbi_8k]),""); Validation: No minimum		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_agefirst_nm	Integer	Recommended	Age at first TBI-LOC: Number Missing Answers
tbi_ss_before15	Integer	Recommended	TBI-LOC before age 15	0;1	Bogner, J. A., G. G. Whiteneck, et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_worst1	Integer	Recommended	Worst injury1: improbable TBI (No TBI)		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_worst1b	Integer	Recommended	Worst injury1b: improbable TBI complex (TBI without LOC or memory loss)		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_worst2	Integer	Recommended	Worst Injury2: possible mild TBI (TBI without LOC but memory loss)		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_worst3	Integer	Recommended	Worst Injury3: Mild TBI (TBI with LOC less than or equal to 30 m)		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_worst4	Integer	Recommended	Worst Injury4: moderate TBI (TBI with LOC 30 m - 24 h)		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_worst5	Integer	Recommended	Worst Injury5: Severe TBI (TBI with LOC greater than or equal to 24 h)		Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.
tbi_ss_worst_overall	Integer	Recommended	Worst Injury Overall: Worst TBI - 1, Improbable TBI (no TBI or TBI w/o LOC or memory loss); 2, Possible mild TBI (TBI w/o LOC but memory loss); 3, Mild TBI (TBI w/LOC ≤ 30 min); 4, Moderate TBI (TBI w/LOC 30 min - 24 hrs); 5, Severe TBI (TBI w/ LOC ≥ 24 hrs)	1 ; 2 ; 3 ; 4 ; 5	Bogner, J. A., Whiteneck, G. G., et al. (2017) Test-Retest Reliability of Traumatic Brain Injury Outcome Measures: A Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32(5): E1-E16.