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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Research Subject

317,004 Shared Subjects

Basic information about a study subject including demographics, pedigree, and diagnosis/phenotype
Clinical Assessments
Resolve Identifiers
04/06/2011
ndar_subject01
06/26/2019
View Change History
01
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* CandidateGUID, candidateguid, guid, pseudo_guid, subject_key
src_subject_id String 20 Required Subject ID how it's defined in lab/project IBISID, child_id_full, clinical_barcode, demo_study_id, hcpa_id, ibisid, participant_id, participantid, pid, record_id, subject_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field Date_taken, assessment_dt, bl_visit_date, consentdate, consented_study, date_demographics, date_interview_ses, date_of_interview_contact, date_taken, interviewdate, intvdate, pp_date, profile_date, testing_date, visit_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. Candidate_Age_in_Months, age, age_a, age_m_consent, ch_age, demo_age, demqage, intvage, profile_age, test_age, total_age_in_months
sex String 20 Required Sex of the subject
M;F
M = Male; F = Female ch_sex, demo_sex, demqsex, gender, genderid, sex, sex_a
Query race String 30 Required Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
demo_race, demo_white, demqrea2, race_dem
ethnic_group String 255 Recommended Ethnic group demo_ethnicity, demqrea1, ethnicity_dem, hispanic
Query phenotype String 200 Required Phenotype/diagnosis for the subject Cohort, SubprojectID, ados_scoresumm_adosdiag, cohort, diagnosis, genderid, group, p1selectdiagnosis, project_category, race_dem, scoresumm_overalldiag, subprojectid
Query phenotype_description String 4,000 Required Description of the phenotype for the subject developmental_diff_sib_1, fmr1_status, p2whatisyourlevelofcertainty
Query twins_study String 100 Required Is this study of twins?
Yes;No
Query sibling_study String 50 Required Was it sibling study? Study of sibling(s) of autistic child.
Yes;No
Query family_study String 100 Required Was it family study? Study of biological mother, biological father and/or sibling of proband.
Yes;No
family_user_def_id String 20 Conditional family_study == 'Yes' Family Pedigree User-Defined ID id
subjectkey_mother GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological mother NDAR* subject_key_mother
src_mother_id String 100 Conditional notNull(subjectkey_mother) site specific mother ID biomother, mat_id, src_subject_id_mother
subjectkey_father GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological father NDAR* subject_key_father
src_father_id String 100 Conditional notNull(subjectkey_father) site specific father ID pat_id, src_subject_id_father
subjectkey_sibling1 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR* ProbandGUID
src_sibling1_id String 100 Conditional notNull(subjectkey_sibling1) site specific sibling1 ID probandid
Query sibling_type1 String 255 Conditional notNull(subjectkey_sibling1) Type of Sibling
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
ProbandGender, relationship_sib_1
subjectkey_sibling2 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling2_id String 100 Recommended site specific sibling2 ID
Query sibling_type2 String 255 Recommended sibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
subjectkey_sibling3 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling3_id String 100 Recommended site specific sibling3 ID
Query sibling_type3 String 255 Recommended sibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
subjectkey_sibling4 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling4_id String 100 Recommended site specific sibling4 ID
Query sibling_type4 String 255 Recommended sibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
Query zygosity String 255 Conditional twins_study == 'Yes' Zygosity
monozygous; dizygous; trizygotic
Query sample_taken String 50 Required Was a sample taken at this interview/during this project time
Yes;No
dna_sample_collected
sample_id_original String 100 Conditional sample_taken == 'Yes' Original, user-defined Sample ID
Query sample_description String 3,500 Conditional sample_taken == 'Yes' Sample description: tissue type, i.e. blood, saliva, brain etc. whole blood; saliva; brain; urine; serum; plasma; CSF; IPS; Fibroblast; Neuronal Progenitor; skin biopsy; temporal cortex; lymphoblastoid cell line; unknown; semen; frontal cortex; parietal cortex; basal ganglia; Placenta; hair; occipital visual cortex; cerebellum; spleen; stool; muscle; kidney; liver; heart
Query biorepository_name String 100 Conditional sample_taken == 'Yes' Biorepository where sample is stored
sample_id_biorepository String 100 Conditional sample_taken == 'Yes' Biorepository Sample ID biospc_rutgers_id
patient_id_biorepository String 100 Conditional notNull(biorepository_name) Biorepository Patient ID
cell_id_original String 100 Recommended Original, user-defined cell line ID
cell_id_biorepository String 100 Recommended Biorepository cell line ID
agre_subject_id String 100 Recommended AGRE subject ID
sfari_subject_id String 100 Recommended SFARI subject ID
cpea_site String 100 Recommended CPEA/STAART site name
Query cpea_id String 100 Recommended CPEA/STAART subject ID
blood_id String 100 Recommended blood ID dna_sample_lab_id
Query adi_dx String 15 Recommended ADI: Diagnosis
ados_dx String 15 Recommended ADOS Diagnosis
agp_family_id String 100 Recommended AGP family ID
agp_subject_id String 100 Recommended AGP subject ID
Query site String 101 Recommended Site Study Site fxs_site_name_other
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data demo_comments, dna_comments, fspgod, pi_staff, visit
Query week Float Recommended Week in level/study 99=week 10-week 14
study String 100 Recommended Study dna_sample_usable, visit
Query reg_edu Integer Recommended Education 1::30; 999 1=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 999=Unknown
Query reg_mother_edu Integer Recommended Mothter Education 1::30; 999 1=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 999=Unknown demqmom2
Query ca243 Integer Recommended What handedness do you consider yourself? 1::3 1=Right; 2=Left; 3=Mixed overall_handedness, reg_handedness
Query ccc2english Integer Recommended Does the subject speak English as a primary language?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value
primary_language String 255 Recommended Subject's Primary Language demqlangchild1
physiological_responses_type String 100 Recommended Description of monitored physiological responses
Query reg_father_edu Integer Recommended Father Education 1::30; 999 1=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 999=Unknown demqdad2
Query employ_status Integer Recommended Current employment status 1::10 1=Unemployed; 2=Unemployed Stay-at-home parent; 3=Part-Time Student; 4=Full-Time Student; 5=Disability/Unemployed; 6=Disability/Part-Time Employment; 7=Employed Part Time; 8=Employed Full Time; 9=Retired/Part-Time Employment; 10=Retired/Unemployed.
bkgrnd_med String 1,000 Recommended Medication information medication
Query demo_logfinc Float Recommended log of family income from wave one of the study
Query demo_wt_n_nr Float Recommended sampling weights used to account for sample design and non response rate
Query demo_stratum Float Recommended stratum
grade String 50 Recommended Current Grade
service_specialed String 5 Recommended Special Education
Yes; No
special_education
asisped String 200 Recommended Specify special education services special_education_spc
Query brain_injury Integer Recommended Brain Injury? 1::3 1=Yes; 2=No; 3=NA
trt_grp String 10 Recommended Treatment Group Assignment 1;1AO;1CT;2;3 1=Group 1 first 8 weeks; 1AO=Group 1 8 week add on; 1CT=Group 1 8 week cross taper; 2=Group 2; 3=Group 3 treatment
version_form String 100 Recommended Form used/assessment name redcap_event_name
visit String 50 Recommended Visit name visit_checklist
reason_nint Integer Recommended Reason for not conducting interview 0::9 0=Conducted interview; 1=Withdrawn by CPI; 2=Withdrawn voluntarily; 3=Incoherent speech for any cause; 4=Poverty of content or too little speech; 5=Disturbance of consciousness; 6=Lost to follow-up; 7=Refused; 8=Other reasons [specify...] reason
reason_nint_other String 4,000 Recommended Reason Other - Please specify reason_other
liv_sit Integer Recommended Living Situation 1=Hospital inpatient; 2=Supported housing; 3=Independent living
height_met Float Recommended Height - Metric Unit height
weight_met Float Recommended Weight - Metric Unit weight
bmi Float Recommended body mass index of subject
q013 Integer Recommended Adverse Events: assessment completed? 0; 1 0=no, 1=yes adverse
medchng Integer Recommended Changes made to meds 0;1;-7 0=No; 1=Yes; -7=Refused medication
capacity Integer Recommended Ongoing capacity to consent 0=No; 1=Yes
blood_1 Integer Recommended Consented to blood collection 0=No; 1=Yes
blood_2 Integer Recommended Taken for blood collection 0=No; 1=Yes
country Integer Recommended Personal details. Country of origin 1::6 1=UK; 2=West Indies; 3=India and Asia; 4=Africa; 5=Other European; 6=Other demo_5a
country_origin String 100 Recommended Country of Origin demo_5b
demo_6 Integer Recommended Are you currently employed or in school? 0;1; 9999 1= Yes; 0= No; 9999= no data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.