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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Research Subject

ndar_subject

01

Basic information about a study subject including demographics, pedigree, and diagnosis/phenotype

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Element NameData TypeSizeRequiredConditionDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*CandidateGUID, candidateguid, guid, pseudo_guid, subject_key
src_subject_idString20RequiredSubject ID how it's defined in lab/projectIBISID, child_id_full, clinical_barcode, demo_study_id, ibisid, participant_id, participantid, pid, record_id, subject_id
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldDate_taken, assessment_dt, bl_visit_date, consentdate, consented_study, date_demographics, date_interview_ses, date_taken, interviewdate, intvdate, pp_date, profile_date, testing_date, visit_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.Candidate_Age_in_Months, age_a, age_m_consent, ch_age, demo_age, demqage, intvage, profile_age, test_age, total_age_in_months
sexString20RequiredSex of the subject
M;F
M = Male; F = Femalech_sex, demo_sex, demqsex, gender, genderid, sex, sex_a
raceString30RequiredRace of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
demo_race, demo_white, demqrea2, race_dem
ethnic_groupString255RecommendedEthnic groupdemo_ethnicity, demqrea1, ethnicity_dem, hispanic
phenotypeString200RequiredPhenotype/diagnosis for the subjectCohort, SubprojectID, ados_scoresumm_adosdiag, diagnosis, genderid, group, p1selectdiagnosis, project_category, race_dem, scoresumm_overalldiag
phenotype_descriptionString4,000RequiredDescription of the phenotype for the subjectdevelopmental_diff_sib_1, fmr1_status, p2whatisyourlevelofcertainty
twins_studyString100RequiredIs this study of twins?
Yes;No
sibling_studyString50RequiredWas it sibling study? Study of sibling(s) of autistic child.
Yes;No
family_studyString100RequiredWas it family study? Study of biological mother, biological father and/or sibling of proband.
Yes;No
family_user_def_idString20Conditionalfamily_study == 'Yes'Family Pedigree User-Defined IDid
subjectkey_motherGUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's biological motherNDAR*subject_key_mother
src_mother_idString100ConditionalnotNull(subjectkey_mother)site specific mother IDbiomother, mat_id, src_subject_id_mother
subjectkey_fatherGUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's biological fatherNDAR*subject_key_father
src_father_idString100ConditionalnotNull(subjectkey_father)site specific father IDpat_id, src_subject_id_father
subjectkey_sibling1GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*ProbandGUID
src_sibling1_idString100ConditionalnotNull(subjectkey_sibling1)site specific sibling1 IDprobandid
sibling_type1String255ConditionalnotNull(subjectkey_sibling1)Type of Sibling
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
ProbandGender, relationship_sib_1
subjectkey_sibling2GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*
src_sibling2_idString100Recommendedsite specific sibling2 ID
sibling_type2String255Recommendedsibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
subjectkey_sibling3GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*
src_sibling3_idString100Recommendedsite specific sibling3 ID
sibling_type3String255Recommendedsibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
subjectkey_sibling4GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*
src_sibling4_idString100Recommendedsite specific sibling4 ID
sibling_type4String255Recommendedsibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
zygosityString255Conditionaltwins_study == 'Yes'Zygosity
monozygous; dizygous; trizygotic
sample_takenString50RequiredWas a sample taken at this interview/during this project time
Yes;No
dna_sample_collected
sample_id_originalString100Conditionalsample_taken == 'Yes'Original, user-defined Sample ID
sample_descriptionString3,500Conditionalsample_taken == 'Yes'Sample description: tissue type, i.e. blood, saliva, brain etc.whole blood; saliva; brain; urine; serum; plasma; CSF; IPS; Fibroblast; Neuronal Progenitor; skin biopsy; temporal cortex; lymphoblastoid cell line; unknown; semen; frontal cortex; parietal cortex; basal ganglia; Placenta; hair; occipital visual cortex; cerebellum; spleen; stool; muscle
biorepository_nameString100Conditionalsample_taken == 'Yes'Biorepository where sample is stored
sample_id_biorepositoryString100Conditionalsample_taken == 'Yes'Biorepository Sample IDbiospc_rutgers_id
patient_id_biorepositoryString100ConditionalnotNull(biorepository_name)Biorepository Patient ID
cell_id_originalString100RecommendedOriginal, user-defined cell line ID
cell_id_biorepositoryString100RecommendedBiorepository cell line ID
agre_subject_idString100RecommendedAGRE subject ID
sfari_subject_idString100RecommendedSFARI subject ID
cpea_siteString100RecommendedCPEA/STAART site name
cpea_idString100RecommendedCPEA/STAART subject ID
blood_idString100Recommendedblood IDdna_sample_lab_id
adi_dxString15RecommendedADI: Diagnosis
ados_dxString15RecommendedADOS Diagnosis
agp_family_idString100RecommendedAGP family ID
agp_subject_idString100RecommendedAGP subject ID
siteString101RecommendedSiteStudy Sitefxs_site_name_other
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datademo_comments, dna_comments, fspgod, pi_staff, visit
weekFloatRecommendedWeek in level/study99=week 10-week 14
studyString100RecommendedStudydna_sample_usable, visit
reg_eduIntegerRecommendedEducation1::30; 9991=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 999=Unknown
reg_mother_eduIntegerRecommendedMothter Education1::30; 9991=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 999=Unknowndemqmom2
ca243IntegerRecommendedWhat handedness do you consider yourself?1::31=Right; 2=Left; 3=Mixedoverall_handedness, reg_handedness
ccc2englishIntegerRecommendedDoes the subject speak English as a primary language?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value
primary_languageString255RecommendedSubject's Primary Languagedemqlangchild1
physiological_responses_typeString100RecommendedDescription of monitored physiological responses
reg_father_eduIntegerRecommendedFather Education1::30; 9991=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 999=Unknowndemqdad2
employ_statusIntegerRecommendedCurrent employment status1::101=Unemployed; 2=Unemployed Stay-at-home parent; 3=Part-Time Student; 4=Full-Time Student; 5=Disability/Unemployed; 6=Disability/Part-Time Employment; 7=Employed Part Time; 8=Employed Full Time; 9=Retired/Part-Time Employment; 10=Retired/Unemployed.
bkgrnd_medString255RecommendedMedication informationmedication
demo_logfincFloatRecommendedlog of family income from wave one of the study
demo_wt_n_nrFloatRecommendedsampling weights used to account for sample design and non response rate
demo_stratumFloatRecommendedstratum
gradeString50RecommendedCurrent Grade
service_specialedString5RecommendedSpecial Education
Yes; No
special_education
asispedString200RecommendedSpecify special education servicesspecial_education_spc
brain_injuryIntegerRecommendedBrain Injury?1::31=Yes; 2=No; 3=NA
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ndar_subject01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.