NDA Help Center

Collection - General Tab

Fields available for edit on the top portion of the page include:

  • Collection Title
  • Investigators
  • Collection Description
  • Collection Phase
  • Funding Source
  • Clinical Trials

Collection Status: The visibility status of an NDA Collection.  Collection Status can be Shared or Private.  Collections in Shared status are visible to all users and can be searched in the NDA Query Tool. Private Collections are not visible to NDA users.  The Status of an NDA Collection only affects the visibility of information about the Collection (metadata) and does not relate to the status of the record-level research data in the NDA Collection.

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.
 

  • Pre-Enrollment: The default entry made when the NDA Collection is created.
     
  • Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
     
  • Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection.  The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
     
  • Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
     
    • The Data Expected Subphase indicates that NDA expects more data will be submitted
    • The Closeout Subphase indicates the data submission is complete.
    • The Sharing Not Met Subphase indicates that data submission was not completed as expected. 

Blinded Clinical Trial Status:

  • This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial.  When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
     
  • Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
     
  • When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/about/sharing-regimen.html), the embargo on Data Expected information is released.
     

Funding Source

The organization(s) responsible for providing the funding is listed here. 

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program  Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only. 

Grant Information 

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH. 

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials. 

Frequently Asked Questions

  • When a Collection is created by NDA staff and marked as Shared, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.

  • During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.

  • The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.

  • In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

  • Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.

  • A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users. 

  • Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.

  • The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different.  Collection users with Administrative Privileges are encouraged to edit the Collection Phase.  The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page.  This field is sortable alphabetically in ascending or descending order. Collection Phase options include: 

    • Pre-Enrollment:  A grant/project has started, but has not yet enrolled subjects.
    • Enrolling:  A grant/project has begun enrolling subjects.  Data submission is likely ongoing at this point.
    • Data Analysis:  A grant/project has completed enrolling subjects and has completed all data submissions.
    • Funding Completed:  A grant/project has reached the project end date.
  • The Collection State indicates whether the Collection is viewable and searchable.  Collections can be either Private, Shared, or an Ongoing Study.  A Collection that is shared does not necessarily have shared data as the Collection State and state of data are independent of each other.  This field can be edited by Collection users with Administrative Privileges and the Program Officer as listed in eRA (for NIH funded grants). Changes must be saved by clicking the Save button at the bottom of the page.

  • An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.

  • Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.

  • Provides the grant number(s) for the grant(s) associated with the Collection.  The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.

  • A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims. 

  • NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements. 

  • Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.

  • Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.

  • Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.  

  • The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

NDA Help Center

Collection - Shared Data Tab

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

 

Frequently Asked Questions

  • To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection.  Alternatively, you may review an NDA Study Attribution Report available on the General tab.  

  • Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.

  • Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges.  Please contact a program staff member at the appropriate funding institution for more information.

Glossary

  • A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points.  Data structures that have been defined in the NDA Data Dictionary are available at https://ndar.nih.gov/data_dictionary.html. 

  • A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.

  • The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared.  A Shared NDA Collection or NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account.  A Shared Collection or NDA Study does not necessarily mean that data submitted to the Collection or used in the NDA Study have been shared as this is independently determined.  Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions.  Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared, but will only be viewable and accessible if the Collection is Shared.

NDA Help Center

fMRi

fMRI stands for functional magnetic resonance imaging. fMRI tests measure blood flow, providing detailed functional images of the brain or body. 

Acquisition
The Acquisition parameters needed for an experiment include the following:

The name of the experiment is required. Please be concise and specific as possible.
Following experiment name, selection boxes are provided for the Equipment, Software, or other items specific to the experiment type. At least one selection is required for each. If NDAR does not have the appropriate listing, select Add New to add the information provided. Following the selection boxes, provide additional information may be required depending on the experiment type. Any required items are denoted by an asterisk (*).

Block/Event Design
At least one block/event is required. Note that any fields denoted with an asterisk (*) are required. All data must be devoid of personally identifiable data, including the contents of any files attached to the experiment.

Note: To simplify the definition of multiple events, we provide an Import from XML function. This function supports importing data from all three experiment sections (Acquisition, Block/Event Design, and Post Processing), at this time files cannot be uploaded from XML A test format is provided here and our XML Schema Definition (xsd) can be found here.

Post Processing
If you have completed any post-processing on your data, please choose 'Yes' for Has Postprocessing? If not, select 'No'. Depending on this selection the remaining post-processing fields will be enabled (some of which will be required). If you are initially providing data you can select 'No', then return to the experiment to add post-processing steps at a later date when the data are being provided.

Please provide information about post-processing manipulations, i.e. artifact detection algorithms, segmentation used for post data collection, items denoted with an asterisk (*) are required.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Collection - Submissions Tab

Users with permission to access Shared data in the Collection’s assigned Permission Group may use this tab. 

Here, you can:

  • Review your uploads to your Collection, monitor their status, and download them individually to verify their contents.
  • Download individual datasets as a secondary user of the data approved for access.
  • Identify and download datasets containing errors identified by NDA's QA/QC process for review and resolution.
  • Report suspected or discovered Personally Identifiable Information in a submission via the Actions column.

Frequently Asked Questions

Glossary

  • The default view of Datasets within a Collection's Submission tab.

  • A Submission Loading Status on a Collection's Submission Tab that indicates that an issue has prevented the successful loading of the submission.  Users should contact the NDA Help Desk for assistance at NDAHelp@mail.nih.gov.

  • The NDA has two Submission Cycles per year - January 15 and July 15.

  • An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.  

  • The unique and sequentially assigned ID for a submission (e.g. a discrete upload via the Validation and Upload Tool), which may contain any number of datafiles, Data Structures and/or Data Types, regardless of the Submission Loading Status. A single submission may be divided into multiple Datasets, which are based on Data Type.

  • The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

  • The total number of unique subjects for whom data have been submitted, which includes data in both a Private State and a Shared State.

NDA Help Center

Collection - Publications Tab

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab. 

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column. 

 

Frequently Asked Questions

  • Publications are considered relevant to a collection when the data shared is directly related to the project or collection.

  • PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM). 

Glossary

  • A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.

  • Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.

  • A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.

  • PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.

  • The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.  

  • A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

NDA Help Center

EEG

EEG stands for electroencencephalogram and is a test used to measure electrical activity in the brain.

Acquisition
The Acquisition parameters needed for an experiment include the following:

Name of the experiment is required. Please be concise and specific as possible.
Following experiment name, selection boxes are provided for the Equipment, Software, or other items specific to experiment type. At least one selection is required for each. If NDAR does not have the appropriate listing, select Add New to add the information provided. Following the selection boxes, provide additional information may be required depending on experiment type. Any required items are denoted by an asterisk (*).

Block/Event Design
At least one block/event is required. Note that any fields denoted with an asterisk (*) are required. All data must be devoid of personally identifiable data, including the contents of any files attached to the experiment.

Note: To simplify definition of multiple events, we provide an Import from XML function. This function supports importing data from all three experiment sections (Acquisition, Block/Event Design, and Post Processing), at this time files cannot be uploaded from XML A test format is provided here and our XML Schema Definition (xsd) can be found here.

Post Processing
If you have completed any post processing on your data, please choose 'Yes' for Has Postprocessing? If not, select 'No'. Depending on this selection the remaining post processing fields will be enabled (some of which will be required). If you are initially providing data you can select 'No', then return to the experiment to add post processing steps at a later date when the data are being provided.

Please provide information about post-processing manipulations, i.e. artifact detection algorithms, segmentation used for post data collection, items denoted with an asterisk (*) are required.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Contributing researchers just getting started on their project will need to define this list by adding all of the items they are collecting under their grant and setting their schedule according to the NDA Data Sharing Regimen. If you fall into this category, you can begin by clicking "add new Data Expected" and selecting which data structures you will be using, saving the page after each change, or requesting new structures by adding and naming a new item, providing any materials NDA Data Dictionary Curators can use to help define your structure. For more information see the tutorial on creating Data Expected.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

  • Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
  • If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
  • Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

 

Frequently Asked Questions

  • An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.

  • The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

  • Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.

  • Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.

  • A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points.  Data structures that have been defined in the NDA Data Dictionary are available at https://ndar.nih.gov/data_dictionary.html. 

  • An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).

  • A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more. 

  • A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database.  Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.

  • Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.

  • Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.

  • Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.

  • An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.

  • The NDA has two Submission Cycles per year - January 15 and July 15.

  • An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.  

NDA Help Center

Collection - Permissions Tab

Collection Owners, Program Officers, and users with Administrator privileges may view this tab.

The available permission groups include:

  • Query: This read-only access is generally for NIH Program Officers
  • Submission: This will grant read access and allow the user to upload data and create experiment definitions. This is for the typical contributing personnel member.
  • Administrator: In addition to the access provided to Query and Submission users, Admins can also edit the Collection itself, create or edit the Data Expected list, and edit user permissions. This access is for the PI, data managers, and anyone they wish to delegate this to.

The PI has a special designation as the Collection Owner in addition to administrator access.

Frequently Asked Questions

  • Collection Owners and Admins may assign Collection Privileges to anyone.

  • Yes, you can assign various Privileges to other users with an NDA account.

  • If you are the Collection Owner or have Admin privileges, you can view and make changes to the list of individuals who have access to the Collection on the Collection's Permissions tab.  Information on users who have access to data Shared in your Collection because they were granted access to a Permission Group is not available.

  • Staff/collaborators who are working submitting data to the Collection, checking the quality of the data, and/or analyzing data should have access for the duration of the project until all data have been submitted, NDA Studies have been created for data used in publications, and/or a collaborative relationship with the user exists.  

  • The individual listed as an Investigator on the General tab of the NDA Collection will generally be able to provide a user access to the NDA Collection.  Additional users may also have this ability if granted Administrator access to an NDA Collection; however, these users are not viewable unless your account has access to the NDA Collection.  Given this, it is best to contact the Investigator to request access to the Collection.

  • Privileges that can be assigned to a user include:
    Submission allows a user to submit data to Collection
    Query allows the user to download data from Collection even when in a Private state
    Admin is both the Submission and Query Privilege + the ability to give privileges to other users.

  • You may have staff who are working on the submission of data or other activities associated with data sharing such as the definition of the Data Expected list or NDA Experiment creation.  Also, many projects have multiple performance sites and wish to share data among the site PIs.  Submitting to the NDA facilitates access by all investigators working on a project even before data have been shared with other users.  You can control who gets access to data while in a Private state.

Glossary

  • A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users. 

  • Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.

NDA Help Center

Eye Tracking

EyeTracking tests follow the movement of the eye. The visual trajectory or focus can help determine predictions and assist in diagnoses. 

Acquisition
The Acquisition parameters needed for an experiment include the following:

The name of the experiment is required. Please be concise and specific as possible.
Following experiment name, selection boxes are provided for the Equipment, Software, or other items specific to the experiment type. At least one selection is required for each. If NDAR does not have the appropriate listing, select Add New to add the information provided. Following the selection boxes, provide additional information may be required depending on the experiment type. Any required items are denoted by an asterisk (*).

Block/Event Design
At least one block/event is required. Note that any fields denoted with an asterisk (*) are required. All data must be devoid of personally identifiable data, including the contents of any files attached to the experiment.

Note: To simplify the definition of multiple events, we provide an Import from XML function. This function supports importing data from all three experiment sections (Acquisition, Block/Event Design, and Post Processing), at this time files cannot be uploaded from XML A test format is provided here and our XML Schema Definition (xsd) can be found here.

Post Processing
If you have completed any post-processing on your data, please choose 'Yes' for Has Postprocessing? If not, select 'No'. Depending on this selection the remaining post-processing fields will be enabled (some of which will be required). If you are initially providing data you can select 'No', then return to the experiment to add post-processing steps at a later date when the data are being provided.

Please provide information about post-processing manipulations, i.e. artifact detection algorithms, segmentation used for post data collection, items denoted with an asterisk (*) are required.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Collection - Experiments Tab

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

  • Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:

    1. Copy the experiment with intent for modifications.  
    2. Associate the experiment to the collection. No modifications can be made to the experiment.

     

Glossary

  • An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.

  • The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.

NDA Help Center

Omics

Omics is a collective group of technologies, related to a field of study in Biology such as Genomics or proteomics. 

Experiment Parameters

To define an Omics experiment, provide a meaningful name and select a single molecule. The standard molecules are listed. However, if you are doing proteomic or environmental experiments, simply “Add New” and the new selection will be created. Only one value for molecule is permitted.

Next the technology (box 2) associated with the molecule will be presented along with its application. Again, only one selection is possible. If you wish to see all of NDAR’s options for any one box, Select “Show All”.

Platform

Continue to select the Platform (box 3).

Extraction

Next, the Extraction Protocol (box 4) and Kits (box 5) are presented based upon the Molecule selected and the Processing Protocol (box 6) and Kits (box 7) are presented based upon the Molecule and Technology Application (Box 1 and 2)

Processing

Note that for each of these (boxes 4, 5, 6, and 7) multiple selections are possible.

Additional Information

Lastly, the Software (box 8) and Equipment (box 9) is expected.

 

Once saved, the experiment will be associated with the Collection and by using the returned Experiment_ID, the NDA makes it possible to associate the experiment meta data directly with the data from the experiment.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner. 

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data. 

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public. 

Frequently Asked Questions

  • Studies are associated to the Collection automatically when the data is defined in the Study. 

Glossary

  • A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
1869RRAY fMRI ScanfMRI11/27/2021
1867Resting StatefMRI11/22/2021
1866MNA fMRIfMRI11/16/2021
1865Motion AftereffectsEye Tracking11/05/2021
1864Tilt Aftereffects (TAE)Eye Tracking11/05/2021
1863Negative Afterimages (AI)Eye Tracking11/05/2021
1862Face-Matching TaskfMRI11/03/2021
1861Resting StatefMRI11/03/2021
1860CARIT (Go/NoGo Task)fMRI11/03/2021
1859PCR-free sequencingOmics10/29/2021
1858GNG Anger, Gender, Happy Tasks- EEGEEG10/15/2021
1857PVDM, imaging sessionEye Tracking10/14/2021
1856PVDM, imaging sessionfMRI10/13/2021
1855PVDM, behavioral sessionEye Tracking10/13/2021
1854Cerebellar Dysfunction in Autism: resting state fMRIfMRI10/13/2021
1852snRNAseq_controls_DLPFC/sgACCOmics09/30/2021
1851Reappraisal Emotion Regulation Task - V2fMRI09/22/2021
1850Reappraisal Emotion Regulation Task - V1fMRI09/22/2021
1849Stop-Signal Arrows - Randomization BfMRI09/22/2021
1848Stop-Signal Arrows - Randomization AfMRI09/22/2021
1847NPU Threat Countdown Short - V2fMRI09/22/2021
1846NPU Threat Countdown Short - V1fMRI09/22/2021
1836Alcohol Cue ReactivityEEG09/02/2021
1835Doors Reward ParadigmEEG08/30/2021
1834Flanker ArrowsEEG08/30/2021
1833Transcriptomic data of Clozapine-treated Ngn2-induced Human Excitatory NeuronsOmics08/20/2021
1830Illumina Global Screening ArrayOmics08/02/2021
1829Single-cell multiome sequencing: ATAC-seqOmics07/26/2021
1828Single-cell multiome sequencing - RNA-seqOmics07/26/2021
1827scATACseqOmics07/26/2021
1826scRNAseqOmics07/26/2021
1825Fetal Resting-state fMRI Brain MasksfMRI07/23/2021
1824Apex of Cognitive ControlfMRI07/22/2021
1823Face adaptationEye Tracking07/21/2021
1822Presaccadic AttentionEye Tracking07/21/2021
1821templefMRI07/19/2021
1820parvizi_eeg_145EEG07/16/2021
1819parvizi_eeg_166EEG07/16/2021
1818parvizi_eeg_164EEG07/16/2021
1817parvizi_eeg_165EEG07/16/2021
1816parvizi_eeg_162EEG07/16/2021
1815parvizi_eeg_161EEG07/16/2021
1814eeg_parvizi_160EEG07/16/2021
1813parvizi_eeg_159EEG07/16/2021
1812Singleton distractor rejectionEEG07/16/2021
1810InterlayerfMRI07/15/2021
1809Alpha, BOLD, experience, and expectancy during associative learningEEG07/14/2021
1808Alpha, BOLD, experience, and expectancy during associative learningfMRI07/14/2021
1807Correlating concurrent EEG/BOLD in occipital cortex while presenting Gabor patch steadily increasing in contrastEEG07/14/2021
1806Correlating concurrent EEG/BOLD in occipital cortex while presenting Gabor patch steadily increasing in contrastfMRI07/14/2021
Collection - Add Experiment
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Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Longitudinal Assessment of Post-traumatic Syndromes. AURORA Project
Samuel Mclean 
Each year, more than 40 million Americans present to US emergency departments EDs for evaluation after trauma exposure TE. While the majority of these individuals recover, an important subset develops adverse posttraumatic neuropsychiatric sequel ae APNS. These APNS include traditionally categorized outcomes such as posttraumatic stress disorder PTSD, depression, minor traumatic brain injury MTBI, and regional or widespread pain. However, these previous definitions of outcome have limited progress, and we now appreciate that the actual trajectories of APNS are multidimensional, incorporating a range of specific outcomes that may be best understood, and optimally targeted for intervention, by dividing across specific domains of functioning. This application, submitted in response to RFA-MH-16-500, proposes to identify and characterize the trajectories of the most common trauma-induced APNS within these domains of functioning using the RDoC classification system. 5,000 patients presenting to the ED after trauma will be screened, recruited, and will receive initial baseline evaluation in the ED, including blood collection and psychophysical, survey, and neurocognitive evaluation. They will be closely monitored over the next 8 weeks using innovative technologies a wrist wearable for continuous-time monitoring of daytime physiology and sleep a smart phone app for continuous-time monitoring of GPS and daily flash surveys weekly web-based neurocognitive tests periodic mixed-mode surveys serial saliva collection deep phenotyping blood collection, fMRI, psychophysical evaluation and then followed less intensively using similar procedures including deep phenotyping over the remainder of a 52-week follow-up period. Adaptive sampling and state-of-the-art statistical methods will be used to 1 optimize precision in characterizing RDoC construct trajectories and 2 test theoretically-guided, high yield hypotheses evaluating the effects of pre-trauma, peritraumatic, and recovery-related factors on these trajectories and on multivariate RDoC construct trajectory profiles. The longitudinal schedule of rich, granular, multidimensional data collection in the study has been specifically designed to evaluate those constructs most important to post-TE outcomes and to test the proposed hypotheses. Ensemble machine learning methods will be used to develop tiered-targeted clinical decision support models to identify individuals at high risk of specific, common APNS outcomes. The close-knit ED research network that will undertake the study has a strong track record of prospective research on APNS and is ideally suited to carry out this exceedingly complex study. The study has been designed to be a resource for the entire field for example, it has been designed and budgeted to collect and store a great many more biological samples at the NIMH Biorespository than we can analyze, for use by other investigators.
NIMH Data Archive
NIMH Data Archive
Funding Completed
Close Out
Shared
No
$16,378,753.00
2,101
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NIH - Extramural None

Aurora_Neurocognitive_Test_Descriptions.pdf Software Neurocognitive test descriptions from Test My Brain. Qualified Researchers
Aurora_Startle_Raw_Files_Specifications_001.docx Software AURORA's Startle raw (and intermediate analysis files), scripts Qualified Researchers

U01MH110925-01 Longitudinal Assessment of Post-traumatic Syndromes 09/23/2016 07/31/2021 4965 3430 UNIV OF NORTH CAROLINA CHAPEL HILL $16,378,753.00

IDNameCreated DateStatusType
1204AURORA_fMRI_Emory02/11/2019ApprovedfMRI
1205AURORA_fMRI_Mclean02/11/2019ApprovedfMRI
1206AURORA_fMRI_Temple02/11/2019ApprovedfMRI
1207AURORA_fMRI_Wayne02/11/2019ApprovedfMRI
1519AURORA _fMRI_WashU01/28/2020ApprovedfMRI

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

AURORA Big Five Inventory Clinical Assessments 651
AURORA Survey Clinical Assessments 1714
Adult ADHD Self-Report Scale Screener Clinical Assessments 594
Anxiety Sensitivity Index Clinical Assessments 654
Attitudes Towards Risk Questionnaire Clinical Assessments 1487
Belmont Emotion Sensitivity Test Clinical Assessments 456
Berlin Questionnaire Sleep Apnea Clinical Assessments 651
Car Crash Assessment Clinical Assessments 873
Childhood Trauma Questionnaire Clinical Assessments 651
Choice Reaction Time Clinical Assessments 694
Circadian Energy Scale Clinical Assessments 651
Clinician-Administered PTSD Scale Clinical Assessments 873
Cognitive Bias Test Clinical Assessments 458
Composite International Diagnostic Interview Clinical Assessments 873
Connor Davidson Resilience Scale Clinical Assessments 651
Delay Discounting Task Clinical Assessments 508
Digit Symbol Substitution Test Clinical Assessments 493
Dissociative Experiences Scale Clinical Assessments 873
Drug Screen Clinical Assessments 855
Electro-dermal Activity Clinical Assessments 700
Emergency Room Chief Complaint Clinical Assessments 855
Emergency Room Diagnosis Clinical Assessments 855
Emergency Room Injuries Assessment Clinical Assessments 855
Emergency Room Medical History Clinical Assessments 855
Emergency Room Medications Clinical Assessments 1701
Emergency Room Radiology Clinical Assessments 855
Emergency Room Trauma Assessment Clinical Assessments 873
Family History Research Diagnostic Criteria Interview Clinical Assessments 594
Five Facet Mindfulness Questionnaire Clinical Assessments 651
Forward Digit Span Clinical Assessments 471
Go No Go Task Clinical Assessments 507
Health Service Utilization Clinical Assessments 1241
Image Imaging 136
Implicit Association Test Clinical Assessments 444
Insomnia Severity Index Clinical Assessments 873
Life Events Checklist Clinical Assessments 594
List of Threatening Experiences Questionnaire Clinical Assessments 348
Medications Clinical Assessments 366
Michigan Critical Events Perception Scale Clinical Assessments 873
Military Service Questionnaire Clinical Assessments 651
Mindstrong Flash Surveys Clinical Assessments 818
PROMIS Emotional Distress - Depression Clinical Assessments 873
PROMIS Emotional Distress-Anxiety Clinical Assessments 873
PROMIS Self-Efficacy for Managing Emotions Clinical Assessments 651
PROMIS Sleep-Related Impairment Clinical Assessments 873
PROMIS Support Clinical Assessments 651
PTSD Checklist - Civilian Clinical Assessments 873
Pain Survey Clinical Assessments 1714
Pain Tasks Clinical Assessments 126
Penn Emotion Recognition Task Clinical Assessments 496
Pennebaker Inventory of Limbic Languidness Clinical Assessments 1714
Perceived Stress Scale Clinical Assessments 873
Perception of Severity of Stress Clinical Assessments 873
Peritraumatic Distress Inventory Clinical Assessments 873
PhenX Demographics Clinical Assessments 909
PhenX Substance Use Clinical Assessments 873
Pittsburgh Sleep Quality Index Clinical Assessments 873
Probabilistic Reward Task Clinical Assessments 464
Reaction Time Clinical Assessments 698
Religiosity Form Clinical Assessments 651
Research Subject Clinical Assessments 873
Rumination-Reflection Questionnaire Clinical Assessments 1694
Screener Clinical Assessments 873
Sheehan Disability Scales Clinical Assessments 873
Short Form Health Survey Clinical Assessments 873
Startle Testing Summary Imaging 185
Ten Item Personality Measure Clinical Assessments 651
Traumatic Brain Injury Clinical Assessments 873
UPPS Impulsive Behavior Scale Clinical Assessments 651
Verbal Paired Associates Memory Clinical Assessments 495
Vital Signs Clinical Assessments 855
Vocabulary Series Clinical Assessments 562

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
34611129Create StudyNeural contributors to trauma resilience: a review of longitudinal neuroimaging studies.Translational psychiatryRoeckner, Alyssa R; Oliver, Katelyn I; Lebois, Lauren A M; van Rooij, Sanne J H; Stevens, Jennifer SOctober 5, 2021Not Determined
34304036Create StudyThalamic volume and fear extinction interact to predict acute posttraumatic stress severity.Journal of psychiatric researchSteuber, Elizabeth R; Seligowski, Antonia V; Roeckner, Alyssa R; Reda, Mariam; Lebois, Lauren A M; van Rooij, Sanne J H; Murty, Vishnu P; Ely, Timothy D; Bruce, Steven E; House, Stacey L; Beaudoin, Francesca L; An, Xinming; Zeng, Donglin; Neylan, Thomas C; Clifford, Gari D; Linnstaedt, Sarah D; Germine, Laura T; Rauch, Scott L; Lewandowski, Christopher; Sheikh, Sophia; Jones, Christopher W; Punches, Brittany E; Swor, Robert A; McGrath, Meghan E; Hudak, Lauren A; Pascual, Jose L; Chang, Anna M; Pearson, Claire; Peak, David A; Domeier, Robert M; O'Neil, Brian J; Rathlev, Niels K; Sanchez, Leon D; Pietrzak, Robert H; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Elliott, James M; Kessler, Ronald C; Koenen, Karestan C; McLean, Samuel A; Ressler, Kerry J; Jovanovic, Tanja; Harnett, Nathaniel G; Stevens, Jennifer SSeptember 1, 2021Not Determined
34270341Create StudyStructural Racism as a Proximal Cause for Race-Related Differences in Psychiatric Disorders.The American journal of psychiatryHarnett, Nathaniel G; Ressler, Kerry JJuly 1, 2021Not Determined
34188182Create StudyTranscriptome-wide association study of post-trauma symptom trajectories identified GRIN3B as a potential biomarker for PTSD development.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyLori, Adriana; Schultebraucks, Katharina; Galatzer-Levy, Isaac; Daskalakis, Nikolaos P; Katrinli, Seyma; Smith, Alicia K; Myers, Amanda J; Richholt, Ryan; Huentelman, Matthew; Guffanti, Guia; Wuchty, Stefan; Gould, Felicia; Harvey, Philip D; Nemeroff, Charles B; Jovanovic, Tanja; Gerasimov, Ekaterina S; Maples-Keller, Jessica L; Stevens, Jennifer S; Michopoulos, Vasiliki; Rothbaum, Barbara O; Wingo, Aliza P; Ressler, Kerry JSeptember 1, 2021Not Determined
33481725Create StudyClassification and Prediction of Post-Trauma Outcomes Related to PTSD Using Circadian Rhythm Changes Measured via Wrist-Worn Research Watch in a Large Longitudinal Cohort.IEEE journal of biomedical and health informaticsCakmak, Ayse S; Alday, Erick A Perez; Da Poian, Giulia; Rad, Ali Bahrami; Metzler, Thomas J; Neylan, Thomas C; House, Stacey L; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Linnstaedt, Sarah D; Jovanovic, Tanja; Germine, Laura T; Bollen, Kenneth A; Rauch, Scott L; Lewandowski, Christopher A; Hendry, Phyllis L; Sheikh, Sophia; Storrow, Alan B; Musey, Paul I; Haran, John P; Jones, Christopher W; Punches, Brittany E; Swor, Robert A; Gentile, Nina T; McGrath, Meghan E; Seamon, Mark J; Mohiuddin, Kamran; Chang, Anna M; Pearson, Claire; Domeier, Robert M; Bruce, Steven E; O'Neil, Brian J; Rathlev, Niels K; Sanchez, Leon D; Pietrzak, Robert H; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Harte, Steven E; Elliott, James M; Kessler, Ronald C; Koenen, Karestan C; Ressler, Kerry J; Mclean, Samuel A; Li, Qiao; Clifford, Gari DAugust 1, 2021Relevant
33479509Create StudyPrognostic neuroimaging biomarkers of trauma-related psychopathology: resting-state fMRI shortly after trauma predicts future PTSD and depression symptoms in the AURORA study.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyHarnett, Nathaniel G; van Rooij, Sanne J H; Ely, Timothy D; Lebois, Lauren A M; Murty, Vishnu P; Jovanovic, Tanja; Hill, Sarah B; Dumornay, Nathalie M; Merker, Julia B; Bruce, Steve E; House, Stacey L; Beaudoin, Francesca L; An, Xinming; Zeng, Donglin; Neylan, Thomas C; Clifford, Gari D; Linnstaedt, Sarah D; Germine, Laura T; Bollen, Kenneth A; Rauch, Scott L; Lewandowski, Christopher; Hendry, Phyllis L; Sheikh, Sophia; Storrow, Alan B; Musey Jr, Paul I; Haran, John P; Jones, Christopher W; Punches, Brittany E; Swor, Robert A; McGrath, Meghan E; Pascual, Jose L; Seamon, Mark J; Mohiuddin, Kamran; Chang, Anna M; Pearson, Claire; Peak, David A; Domeier, Robert M; Rathlev, Niels K; Sanchez, Leon D; Pietrzak, Robert H; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Sheridan, John F; Harte, Steven E; Elliott, James M; Kessler, Ronald C; Koenen, Karestan C; Mclean, Samuel; Ressler, Kerry J; Stevens, Jennifer SJune 1, 2021Relevant
33458880Create StudyPain after a motor vehicle crash: The role of socio-demographics, crash characteristics and peri-traumatic stress symptoms.European journal of pain (London, England)Beaudoin, Francesca L; Kessler, R C; Hwang, I; Lee, S; Sampson, N A; An, X; Ressler, K J; Koenen, K C; McLean, S A; AURORA Study GroupMay 1, 2021Relevant
33449965Create StudyAssociations of intimate partner violence and financial adversity with familial homelessness in pregnant and postpartum women: A 7-year prospective study of the ALSPAC cohort.PloS oneChan, Caitlin S; Sarvet, Aaron L; Basu, Archana; Koenen, Karestan; Keyes, Katherine MJanuary 1, 2021Not Relevant
33169525Create StudyMultimodal structural neuroimaging markers of risk and recovery from posttrauma anhedonia: A prospective investigation.Depression and anxietyHarnett, Nathaniel G; Stevens, Jennifer S; van Rooij, Sanne J H; Ely, Timothy D; Michopoulos, Vasiliki; Hudak, Lauren; Jovanovic, Tanja; Rothbaum, Barbara O; Ressler, Kerry J; Fani, NegarJanuary 1, 2021Not Relevant
33118917Create StudySocio-demographic and trauma-related predictors of depression within eight weeks of motor vehicle collision in the AURORA study.Psychological medicineJoormann, Jutta; McLean, Samuel A; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Neylan, Thomas C; Clifford, Gari; Linnstaedt, Sarah D; Germine, Laura T; Rauch, Scott L; Musey, Paul I; Hendry, Phyllis L; Sheikh, Sophia; Jones, Christopher W; Punches, Brittany E; Fermann, Gregory; Hudak, Lauren A; Mohiuddin, Kamran; Murty, Vishnu; McGrath, Meghan E; Haran, John P; Pascual, Jose; Seamon, Mark; Peak, David A; Pearson, Claire; Domeier, Robert M; Sergot, Paulina; Merchant, Roland; Sanchez, Leon D; Rathlev, Niels K; Peacock, William F; Bruce, Steven E; Barch, Deanna; Pizzagalli, Diego A; Luna, Beatriz; Harte, Steven E; Hwang, Irving; Lee, Sue; Sampson, Nancy; Koenen, Karestan C; Ressler, Kerry J; Kessler, Ronald COctober 29, 2020Relevant
33077855Create StudySocio-demographic and trauma-related predictors of PTSD within 8 weeks of a motor vehicle collision in the AURORA study.Molecular psychiatryKessler, Ronald C; Ressler, Kerry J; House, Stacey L; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Neylan, Thomas C; Linnstaedt, Sarah D; Germine, Laura T; Musey Jr, Paul I; Hendry, Phyllis L; Sheikh, Sophia; Storrow, Alan B; Jones, Christopher W; Punches, Brittany E; Datner, Elizabeth M; Mohiuddin, Kamran; Gentile, Nina T; McGrath, Meghan E; van Rooij, Sanne J; Hudak, Lauren A; Haran, John P; Peak, David A; Domeier, Robert M; Pearson, Claire; Sanchez, Leon D; Rathlev, Niels K; Peacock, William F; Bruce, Steven E; Miller, Mark W; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Sheridan, John F; Smoller, Jordan W; Pace, Thaddeus W W; Harte, Steven E; Elliott, James M; Harnett, Nathaniel G; Lebois, Lauren A M; Hwang, Irving; Sampson, Nancy A; Koenen, Karestan C; McLean, Samuel AJuly 1, 2021Relevant
33012681Create StudyAcute Posttraumatic Symptoms Are Associated With Multimodal Neuroimaging Structural Covariance Patterns: A Possible Role for the Neural Substrates of Visual Processing in Posttraumatic Stress Disorder.Biological psychiatry. Cognitive neuroscience and neuroimagingHarnett, Nathaniel G; Stevens, Jennifer S; Fani, Negar; van Rooij, Sanne J H; Ely, Timothy D; Michopoulos, Vasiliki; Hudak, Lauren; Rothbaum, Alex O; Hinrichs, Rebecca; Winters, Sterling J; Jovanovic, Tanja; Rothbaum, Barbara O; Nickerson, Lisa D; Ressler, Kerry JAugust 7, 2020Not Relevant
32975289Create StudyPrior sleep problems and adverse post-traumatic neuropsychiatric sequelae of motor vehicle collision in the AURORA study.SleepNeylan, Thomas C; Kessler, Ronald C; Ressler, Kerry J; Clifford, Gari; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Linnstaedt, Sarah D; Germine, Laura T; Sheikh, Sophia; Storrow, Alan B; Punches, Brittany E; Mohiuddin, Kamran; Gentile, Nina T; McGrath, Meghan E; van Rooij, Sanne J H; Haran, John P; Peak, David A; Domeier, Robert M; Pearson, Claire; Sanchez, Leon D; Rathlev, Niels K; Peacock, William F; Bruce, Steven E; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Sheridan, John F; Harte, Steven E; Elliott, James M; Hwang, Irving; Petukhova, Maria V; Sampson, Nancy A; Koenen, Karestan C; McLean, Samuel AMarch 12, 2021Relevant
32114783Create StudyTranslating Across Circuits and Genetics Toward Progress in Fear- and Anxiety-Related Disorders.The American journal of psychiatryRessler, Kerry JMarch 2020Not Relevant
31991282Create StudyPost-trauma anhedonia is associated with increased substance use in a recently-traumatized population.Psychiatry researchFani, Negar; Jain, Jahnvi; Hudak, Lauren A; Rothbaum, Barbara O; Ressler, Kerry J; Michopoulos, VasilikiJanuary 9, 2020Not Relevant
31863020Create StudyLiterature review and methodological considerations for understanding circulating risk biomarkers following trauma exposure.Molecular psychiatryLinnstaedt, Sarah D; Zannas, Anthony S; McLean, Samuel A; Koenen, Karestan C; Ressler, Kerry JSeptember 2020Not Relevant
31745239Create StudyThe AURORA Study: a longitudinal, multimodal library of brain biology and function after traumatic stress exposure.Molecular psychiatryMcLean, Samuel A; Ressler, Kerry; Koenen, Karestan Chase; Neylan, Thomas; Germine, Laura; Jovanovic, Tanja; Clifford, Gari D; Zeng, Donglin; An, Xinming; Linnstaedt, Sarah; Beaudoin, Francesca; House, Stacey; Bollen, Kenneth A; Musey, Paul; Hendry, Phyllis; Jones, Christopher W; Lewandowski, Christopher; Swor, Robert; Datner, Elizabeth; Mohiuddin, Kamran; Stevens, Jennifer S; Storrow, Alan; Kurz, Michael Christopher; McGrath, Meghan E; Fermann, Gregory J; Hudak, Lauren A; Gentile, Nina; Chang, Anna Marie; Peak, David A; Pascual, Jose L; Seamon, Mark J; Sergot, Paulina; Peacock, W Frank; Diercks, Deborah; Sanchez, Leon D; Rathlev, Niels; Domeier, Robert; Haran, John Patrick; Pearson, Claire; Murty, Vishnu P; Insel, Thomas R; Dagum, Paul; Onnela, Jukka-Pekka; Bruce, Steven E; Gaynes, Bradley N; Joormann, Jutta; Miller, Mark W; Pietrzak, Robert H; Buysse, Daniel J; Pizzagalli, Diego A; Rauch, Scott L; Harte, Steven E; Young, Larry J; Barch, Deanna M; Lebois, Lauren A M; van Rooij, Sanne J H; Luna, Beatriz; Smoller, Jordan W; Dougherty, Robert F; Pace, Thaddeus W W; Binder, Elisabeth; Sheridan, John F; Elliott, James M; Basu, Archana; Fromer, Menachem; Parlikar, Tushar; Zaslavsky, Alan M; Kessler, RonaldFebruary 2020Not Relevant
31601363Create StudyAugmentation of Exposure Therapy With Cholinergic Blockade: Promising Novel Approach or Too Early to Tell?Biological psychiatryRothbaum, Barbara O; Ressler, Kerry JNovember 1, 2019Not Relevant
31181391Create StudyStructural connectivity and risk for anhedonia after trauma: A prospective study and replication.Journal of psychiatric researchFani, Negar; Michopoulos, Vasiliki; van Rooij, Sanne J H; Clendinen, Cherita; Hardy, Raven A; Jovanovic, Tanja; Rothbaum, Barbara O; Ressler, Kerry J; Stevens, Jennifer SSeptember 2019Not Relevant
31048727Create StudyThe critical importance of basic animal research for neuropsychiatric disorders.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyBale, Tracy L; Abel, Ted; Akil, Huda; Carlezon Jr, William A; Moghaddam, Bita; Nestler, Eric J; Ressler, Kerry J; Thompson, Scott MJuly 2019Not Relevant
30946827Create StudyDeconstructing the Gestalt: Mechanisms of Fear, Threat, and Trauma Memory Encoding.NeuronMaddox, Stephanie A; Hartmann, Jakob; Ross, Rachel A; Ressler, Kerry JApril 2019Not Relevant
29734224Create StudyIntroduction.Harvard review of psychiatryRessler, Kerry J2018Not Relevant
28117048Create StudyAmygdala Reactivity and Anterior Cingulate Habituation Predict Posttraumatic Stress Disorder Symptom Maintenance After Acute Civilian Trauma.Biological psychiatryStevens JS, Kim YJ, Galatzer-Levy IR, Reddy R, Ely TD, Nemeroff CB, Hudak LA, Jovanovic T, Rothbaum BO, Ressler KJDecember 2016Not Relevant

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
33481725Create StudyClassification and Prediction of Post-Trauma Outcomes Related to PTSD Using Circadian Rhythm Changes Measured via Wrist-Worn Research Watch in a Large Longitudinal Cohort.IEEE journal of biomedical and health informaticsCakmak, Ayse S; Alday, Erick A Perez; Da Poian, Giulia; Rad, Ali Bahrami; Metzler, Thomas J; Neylan, Thomas C; House, Stacey L; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Linnstaedt, Sarah D; Jovanovic, Tanja; Germine, Laura T; Bollen, Kenneth A; Rauch, Scott L; Lewandowski, Christopher A; Hendry, Phyllis L; Sheikh, Sophia; Storrow, Alan B; Musey, Paul I; Haran, John P; Jones, Christopher W; Punches, Brittany E; Swor, Robert A; Gentile, Nina T; McGrath, Meghan E; Seamon, Mark J; Mohiuddin, Kamran; Chang, Anna M; Pearson, Claire; Domeier, Robert M; Bruce, Steven E; O'Neil, Brian J; Rathlev, Niels K; Sanchez, Leon D; Pietrzak, Robert H; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Harte, Steven E; Elliott, James M; Kessler, Ronald C; Koenen, Karestan C; Ressler, Kerry J; Mclean, Samuel A; Li, Qiao; Clifford, Gari DAugust 1, 2021
33479509Create StudyPrognostic neuroimaging biomarkers of trauma-related psychopathology: resting-state fMRI shortly after trauma predicts future PTSD and depression symptoms in the AURORA study.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyHarnett, Nathaniel G; van Rooij, Sanne J H; Ely, Timothy D; Lebois, Lauren A M; Murty, Vishnu P; Jovanovic, Tanja; Hill, Sarah B; Dumornay, Nathalie M; Merker, Julia B; Bruce, Steve E; House, Stacey L; Beaudoin, Francesca L; An, Xinming; Zeng, Donglin; Neylan, Thomas C; Clifford, Gari D; Linnstaedt, Sarah D; Germine, Laura T; Bollen, Kenneth A; Rauch, Scott L; Lewandowski, Christopher; Hendry, Phyllis L; Sheikh, Sophia; Storrow, Alan B; Musey Jr, Paul I; Haran, John P; Jones, Christopher W; Punches, Brittany E; Swor, Robert A; McGrath, Meghan E; Pascual, Jose L; Seamon, Mark J; Mohiuddin, Kamran; Chang, Anna M; Pearson, Claire; Peak, David A; Domeier, Robert M; Rathlev, Niels K; Sanchez, Leon D; Pietrzak, Robert H; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Sheridan, John F; Harte, Steven E; Elliott, James M; Kessler, Ronald C; Koenen, Karestan C; Mclean, Samuel; Ressler, Kerry J; Stevens, Jennifer SJune 1, 2021
33458880Create StudyPain after a motor vehicle crash: The role of socio-demographics, crash characteristics and peri-traumatic stress symptoms.European journal of pain (London, England)Beaudoin, Francesca L; Kessler, R C; Hwang, I; Lee, S; Sampson, N A; An, X; Ressler, K J; Koenen, K C; McLean, S A; AURORA Study GroupMay 1, 2021
33118917Create StudySocio-demographic and trauma-related predictors of depression within eight weeks of motor vehicle collision in the AURORA study.Psychological medicineJoormann, Jutta; McLean, Samuel A; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Neylan, Thomas C; Clifford, Gari; Linnstaedt, Sarah D; Germine, Laura T; Rauch, Scott L; Musey, Paul I; Hendry, Phyllis L; Sheikh, Sophia; Jones, Christopher W; Punches, Brittany E; Fermann, Gregory; Hudak, Lauren A; Mohiuddin, Kamran; Murty, Vishnu; McGrath, Meghan E; Haran, John P; Pascual, Jose; Seamon, Mark; Peak, David A; Pearson, Claire; Domeier, Robert M; Sergot, Paulina; Merchant, Roland; Sanchez, Leon D; Rathlev, Niels K; Peacock, William F; Bruce, Steven E; Barch, Deanna; Pizzagalli, Diego A; Luna, Beatriz; Harte, Steven E; Hwang, Irving; Lee, Sue; Sampson, Nancy; Koenen, Karestan C; Ressler, Kerry J; Kessler, Ronald COctober 29, 2020
33077855Create StudySocio-demographic and trauma-related predictors of PTSD within 8 weeks of a motor vehicle collision in the AURORA study.Molecular psychiatryKessler, Ronald C; Ressler, Kerry J; House, Stacey L; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Neylan, Thomas C; Linnstaedt, Sarah D; Germine, Laura T; Musey Jr, Paul I; Hendry, Phyllis L; Sheikh, Sophia; Storrow, Alan B; Jones, Christopher W; Punches, Brittany E; Datner, Elizabeth M; Mohiuddin, Kamran; Gentile, Nina T; McGrath, Meghan E; van Rooij, Sanne J; Hudak, Lauren A; Haran, John P; Peak, David A; Domeier, Robert M; Pearson, Claire; Sanchez, Leon D; Rathlev, Niels K; Peacock, William F; Bruce, Steven E; Miller, Mark W; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Sheridan, John F; Smoller, Jordan W; Pace, Thaddeus W W; Harte, Steven E; Elliott, James M; Harnett, Nathaniel G; Lebois, Lauren A M; Hwang, Irving; Sampson, Nancy A; Koenen, Karestan C; McLean, Samuel AJuly 1, 2021
32975289Create StudyPrior sleep problems and adverse post-traumatic neuropsychiatric sequelae of motor vehicle collision in the AURORA study.SleepNeylan, Thomas C; Kessler, Ronald C; Ressler, Kerry J; Clifford, Gari; Beaudoin, Francesca L; An, Xinming; Stevens, Jennifer S; Zeng, Donglin; Linnstaedt, Sarah D; Germine, Laura T; Sheikh, Sophia; Storrow, Alan B; Punches, Brittany E; Mohiuddin, Kamran; Gentile, Nina T; McGrath, Meghan E; van Rooij, Sanne J H; Haran, John P; Peak, David A; Domeier, Robert M; Pearson, Claire; Sanchez, Leon D; Rathlev, Niels K; Peacock, William F; Bruce, Steven E; Joormann, Jutta; Barch, Deanna M; Pizzagalli, Diego A; Sheridan, John F; Harte, Steven E; Elliott, James M; Hwang, Irving; Petukhova, Maria V; Sampson, Nancy A; Koenen, Karestan C; McLean, Samuel AMarch 12, 2021

You can use "Add New Data Expected" to add exsiting structures and create your project's list. However, this is also the method you can use to request new structures be created for your project. When adding the Data Expected item, if the structure already exists you can locate it and specify your dates and enrollment. To add a new structure and request it be defined in the Data Dictionary, select Upload Definition and attach the definition or material needed to create it, including manual, codebooks, forms, etc. If you have multiple files, please upload a zipped archive containing them all.

Expected dates should be selected based on the standard Data Sharing Regimen and are restricted to within date ranges based on the project start and end dates.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Life Events Checklist info icon
5,00002/28/2019
594
Approved
Perceived Stress Scale info icon
5,00007/15/2018
873
Approved
Penn Emotion Recognition Task-40 info icon
5,00007/15/2018
496
Approved
Childhood Trauma Questionnaire info icon
5,00007/15/2018
651
Approved
Medical History info icon
5,00007/15/2018
1,024
Approved
Demographics info icon
5,00007/15/2018
909
Approved
Vital Signs Assessment info icon
5,00007/15/2018
855
Approved
Big Five Inventory info icon
5,00007/15/2018
651
Approved
Medications info icon
5,00007/15/2018
366
Approved
Substance Use Survey info icon
5,00007/15/2018
873
Approved
Pittsburgh Sleep Quality Index info icon
5,00007/15/2018
873
Approved
Research Subject and Pedigree info icon
5,00001/15/2020
873
Approved
Screening Form info icon
5,00007/15/2018
873
Approved
PTSD Checklist - Civilian info icon
5,00007/15/2018
873
Approved
Sheehan Disability Scale info icon
5,00007/15/2018
873
Approved
Drug Screen info icon
5,00007/15/2018
855
Approved
Imaging (Structural, fMRI, DTI, PET, microscopy) info icon
80002/28/2019
136
Approved
Anxiety Sensitivity Index info icon
5,00007/15/2018
654
Approved
Startle Testing Summary info icon
80007/15/2018
185
Approved
Probabilistic Reward Task info icon
5,00007/15/2018
464
Approved
UPPS Impulsive Behavior Scale info icon
5,00007/15/2018
651
Approved
Peritraumatic Distress Inventory info icon
5,00007/15/2018
873
Approved
Emotional Distress-Anxiety info icon
5,00007/15/2018
873
Approved
Emotional Distress - Depression info icon
5,00007/15/2018
873
Approved
Digit Symbol Substitution Test info icon
5,00007/15/2018
493
Approved
Short Form Health Survey info icon
5,00007/15/2018
873
Approved
Connor Davidson Resiliency Scale info icon
5,00007/15/2018
651
Approved
Delay Discounting Task info icon
5,00007/15/2018
508
Approved
Berlin Apnea Questionnaire info icon
5,00007/15/2018
651
Approved
Composite International Diagnostic Interview info icon
5,00007/15/2018
873
Approved
Dot Probe Task info icon
5,00007/15/2018
0
Approved
Adult ADHD Self-Report Scale info icon
5,00007/15/2018
594
Approved
Traumatic Brain Injury info icon
5,00007/15/2018
873
Approved
Reaction Time Task info icon
5,00007/15/2018
698
Approved
Go-No Go Variant Task info icon
5,00001/15/2019
507
Approved
Insomnia Severity Index info icon
5,00007/15/2018
873
Approved
Electro-dermal Activity info icon
5,00001/15/2019
700
Approved
Sleep-Related Impairment info icon
5,00001/15/2020
873
Approved
Wearable Data info icon
5,00007/15/2018
0
Approved
Task Based info icon
5,00007/15/2018
0
Approved
Emergency Room Diagnosis info icon
5,00007/15/2018
855
Approved
Circadian Energy Scale info icon
5,00007/15/2018
651
Approved
Car Crash Assessment info icon
5,00007/15/2018
873
Approved
Belmont Emotion Sensitivity Test info icon
5,00002/28/2020
456
Approved
PROMIS Support info icon
5,00007/15/2018
651
Approved
List of Threatening Experiences Questionnaire info icon
5,00002/28/2019
348
Approved
Pain Survey info icon
5,00007/15/2018
1,714
Approved
Attitudes Towards Risk info icon
5,00007/15/2018
1,487
Approved
Perception of Severity of Stress info icon
5,00007/15/2018
873
Approved
Verbal Paired Associates Memory info icon
5,00007/15/2018
495
Approved
Clinician Administered PTSD Severity Scale info icon
5,00007/15/2018
873
Approved
Rumination-Reflection Questionnaire info icon
5,00007/15/2018
1,694
Approved
Emergency Room Chief Complaint info icon
5,00007/15/2018
855
Approved
Pain Tasks info icon
80001/15/2019
126
Approved
Military Service Questionnaire info icon
98407/15/2018
651
Approved
Cognitive Bias Test info icon
5,00002/28/2020
458
Approved
Religiosity Form info icon
98407/15/2018
651
Approved
Threat Neutral Sternberg info icon
5,00007/15/2018
0
Approved
Vocabulary Series info icon
5,00007/15/2018
562
Approved
Ten Item Personality Measure info icon
5,00007/15/2018
651
Approved
Pennebaker Inventory of Limbic Languidness info icon
5,00007/15/2018
1,714
Approved
Health Service Utilization info icon
5,00007/15/2018
1,241
Approved
Forward Digit Span info icon
5,00007/15/2018
471
Approved
Dissociative Experiences Scale info icon
5,00007/15/2018
873
Approved
Five Facet Mindfulness Questionnaire info icon
5,00007/15/2018
651
Approved
Emergency Room Radiology info icon
5,00007/15/2018
855
Approved
PROMIS Self-Efficacy for Managing Emotions info icon
5,00007/15/2018
651
Approved
Emergency Room Injuries Assessment info icon
5,00007/15/2018
855
Approved
Emergency Room Trauma Assessment info icon
5,00007/15/2018
873
Approved
Exit Form info icon
5,00007/15/2018
1,714
Approved
Mindstrong Flash Survey info icon
5,00007/15/2018
818
Approved
NCA_cRT_Raw_001 info icon
5,00001/15/2020
694
Approved
Implicit Association Test info icon
5,00002/28/2020
444
Approved
Michigan Critical Events Perception Scale info icon
5,00007/15/2018
873
Approved
Emergency Room Medications info icon
1,09007/15/2018
1,701
Approved
AURORA_Flash_Discrimination info icon
2,00007/31/2021
0
Requested
Deep Phenotyping Session info icon
80002/28/2020
0
Approved
AURORA_genomics_raw info icon
4,00007/31/2021
0
Requested
AURORA_FLASH_COVID info icon
5,00008/28/2020
0
Approved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
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