NIMH Data Archive - Data

Genomics

Neuroimaging

Phenotype¹

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Clinical Trial

¹ Numbers reported are subjects by age

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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

Select	Experiment Id	Experiment Name	Experiment Type	Created On

24	HI-NGS_R1	Omics	02/16/2011
475	MB1-10 (CHOP)	Omics	06/07/2016
490	Illumina Infinium PsychArray BeadChip Assay	Omics	07/07/2016
501	PharmacoBOLD Resting State	fMRI	07/27/2016
506	PVPREF	Omics	08/05/2016
509	ABC-CT Resting v2	EEG	08/18/2016
13	Comparison of FI expression in Autistic and Neurotypical Homo Sapiens	Omics	12/28/2010
18	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	01/06/2011
22	Stitching PCR Sequencing	Omics	02/14/2011
26	ASD_Methylation	Omics	03/01/2011
29	Microarray family 03 (father, mother, sibling)	Omics	03/24/2011
37	Standard paired-end sequencing of BCRs	Omics	04/19/2011
38	Illumina Mate-Pair BCR sequencing	Omics	04/19/2011
39	Custom Jumping Libraries	Omics	04/19/2011
40	Custom CapBP	Omics	04/19/2011
41	Immunofluorescence	Omics	05/11/2011
43	Autism brain sample genotyping, Illumina	Omics	05/16/2011
47	ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 System	Omics	08/01/2011
53	AGRE Omni1-quad	Omics	10/11/2011
59	AGP genotyping	Omics	04/03/2012
60	Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controls	Omics	06/23/2012
63	Microemulsion PCR and Targeted Resequencing for Variant Detection in ASD	Omics	07/20/2012
76	Whole Genome Sequencing in Autism Families	Omics	01/03/2013
519	Resting	fMRI	11/08/2016
90	Genotyped IAN Samples	Omics	07/09/2013
91	NJLAGS Axiom Genotyping Array	Omics	07/16/2013
93	AGP genotyping (CNV)	Omics	09/06/2013
106	Longitudinal Sleep Study. H20 200. Channel set 2	EEG	11/07/2013
107	Longitudinal Sleep Study. H20 200. Channel set 3	EEG	11/07/2013
108	Longitudinal Sleep Study. AURA 200	EEG	11/07/2013
105	Longitudinal Sleep Study. H20 200. Channel set 1	EEG	11/07/2013
109	Longitudinal Sleep Study. AURA 400	EEG	11/07/2013
116	Gene Expression Analysis WG-6	Omics	01/07/2014
131	Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1	Eye Tracking	02/27/2014
132	Jeste Lab UCLA ACEii: Animacy - Project 1	Eye Tracking	02/27/2014
133	Jeste Lab UCLA ACEii: Mom Stranger - Project 2	Eye Tracking	02/27/2014
134	Jeste Lab UCLA ACEii: Face Emotion - Project 3	Eye Tracking	02/27/2014
145	AGRE/FMR1_Illumina.JHU	Omics	04/14/2014
146	AGRE/MECP2_Sanger.JHU	Omics	04/14/2014
147	AGRE/MECP2_Junior.JHU	Omics	04/14/2014
151	Candidate Gene Identification in familial Autism	Omics	06/09/2014
152	NJLAGS Whole Genome Sequencing	Omics	07/01/2014
154	Math Autism Study - Vinod Menon	fMRI	07/15/2014
155	Resting	fMRI	07/25/2014
156	Speech	fMRI	07/25/2014
159	Emotion	fMRI	07/25/2014
160	syllable contrast	EEG	07/29/2014
167	School-age naturalistic stimuli	Eye Tracking	09/19/2014
44	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	06/27/2011
45	Exome Sequencing of 20 Sporadic Cases of Autism Spectrum Disorder	Omics	07/15/2011

Collection - Add Experiment

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URL:

To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

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Eating Disorders Genetics Initiative (EDGI) #3310

General
Experiments (0)
Shared Data
Publications (81)
Data Expected (13)
Associated Studies (0)

Collection Title	Collection Investigators	Collection Description
Collection Title:	Eating Disorders Genetics Initiative (EDGI)
Collection Investigators:	Cynthia Bulik
Collection Description:	We propose the Eating Disorders Genetics Initiative EDGI to rapidly and efficiently advance genomic discovery across the three major eating disorders EDs AN anorexia nervosa, BN bulimia nervosa, and BED binge-eating disorder. We propose a testable conceptualization of EDs as arising from a shared genetic vulnerability to a core trait e.g., dysregulated appetite that is further differentiated across clinical presentations of AN, BN, and or BED by differing genetic predispositions to dimensional ED behaviors e.g., binge eating, vomiting, excessive exercise, BMI, personality, comorbid psychopathology, physical activity, and metabolic traits. We propose that this palette of genetic risk is further influenced by environmental factors that affect emergence, course, and outcome of the ED. EDGI will empirically test and refine this model. Importantly, we will ascertain ancestrally diverse cases reflecting known epidemiological distributions of EDs. Using an efficient online ascertainment approach, EDGI will Aim 1 obtain deep phenotyping on course of illness, comorbid psychiatric conditions, treatment response, healthcare utilization, and quality of life on 4000 participants in the Anorexia Nervosa Genetics Initiative ANGI from the US, Australia AUS, and New Zealand NZ Aim 2 ascertain, phenotype, and genotype 4500 new AN cases US, AUS, NZ, and Denmark DK identified in national records an genotypes from PKU cards from birth 5950 BN cases US, AUS, NZ, DK 4050 BED cases US, AUS, NZ and 1500 controls Aim 3 conduct pre-planned genome-wide association studies GWAS for AN, BN, BED, any ED, and component behaviors, with external replications with Swedish and Icelandic data, plus a specific set of post-GWAS analyses Aim 4 apply advanced analytic strategies to test and refine our etiological model of EDs to explicate within-ED heterogeneity, explore the genetic relation between EDs and a broad array of psychiatric, metabolic, anthropometric, physical activity, educational phenotypes and the forces that shape those relationships, and preliminarily explore polygenic risk PRS x environmental interactions. EDGI represents the next logical step in ED genomics. Our scientific team recently completed ANGI, yielding compelling genetic findings for AN including the identification of 8 significant loci and intriguing genetic correlations with both psychiatric and metabolic traits strongly suggesting that AN is a metabo-psychiatric disorder. EDGI will expand to include BN and BED. Deliverables include a rich phenotypic and genotypic data on large AN, BN, and BED samples b clarification of the nature of genetic relationship among EDs and between EDs and other target traits c an empirical model of ED risk and differentiation d preliminary insight into how genes and environment interact in EDs e sample and data deposit per current legal and regulatory standards and publicly available summary statistics. Our ultimate goal aligns with the Psychiatric Genomics Consortium PGC by delivering actionable findings that will be transformable into biologically, clinically, and therapeutically meaningful insights on EDs.
Data Repository:	NIMH Data Archive
Permission Group:
Collection Creation Date:	10/01/2019
NIH Research Initiative:	NIMH Repository & Genomics Resource (NRGR)
Collection Phase:	Enrolling
Blinded Clinical Trial:	No
Total Funded Amount:	$7,223,955.00
Subjects Shared:	0

{"values":[]}

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Funding Sources:

Funding Source Name	Funding Source URL
NIH - Extramural	None

Supporting Documentation:

Grant Information:

Project Number	Project Title	Start Date	End Date	Planned Enrollment	Actual Enrollment	Organization	Funds Obligated
R01MH120170-01	Eating Disorders Genetics Initiative (EDGI)	09/11/2019	06/30/2025	16000	18217	UNIV OF NORTH CAROLINA CHAPEL HILL	$7,223,955.00

Clinical Trials:

helpcenter.collection.general-tab

Collection - General Tab

Fields available for edit on the top portion of the page include:

Collection Title
Investigators
Collection Description
Collection Phase
Funding Source
Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

Pre-Enrollment: The default entry made when the NDA Collection is created.
Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
- The Data Expected Subphase indicates that NDA expects more data will be submitted
- The Closeout Subphase indicates the data submission is complete.
- The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?

During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
How do I know when a NDA Collection has been created?

When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
Is a single grant number ever associated with more than one Collection?

The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
Why is there sometimes more than one grant included in a Collection?

In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

Administrator Privilege

A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
Collection Owner

Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
Collection Phase
The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
- Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
- Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
- Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
- Funding Completed: A grant/project has reached the project end date.
Collection Title

An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
Grant

Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
Supporting Documentation

Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
NIH Research Initiative

NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
Permission Group

Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
Planned Enrollment

Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
Actual Enrollment

Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
NDA Collection

A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
Data Use Limitations

Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
Total Subjects Shared

The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

Contact NDA Help Desk

ID	Name	Created Date	Status	Type
No records found.

helpcenter.collection.experiments-tab

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

Can an Experiment be associated with more than one Collection?
Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:
1. Copy the experiment with intent for modifications.
2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

Experiment Status

An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
Experiment ID

The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.

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helpcenter.collection.shared-data-tab

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?

To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
Can I get a supplement to share data from a completed research project?

Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
Can I get a supplement to share data from a research project that is still ongoing?

Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Type

A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
Shared

The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

Contact NDA Help Desk

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed ID	Study	Title	Journal	Authors	Date	Status
39473346	Create Study	Eating Problems Among Adolescent Boys and Girls Before and During the Covid-19 Pandemic.	The International journal of eating disorders	Pettersen, Johanne H; Hegemann, Laura; Gustavson, Kristin; Lund, Ingunn Olea; Jensen, Pia; Bulik, Cynthia M; Andreassen, Ole A; Havdahl, Alexandra; Brandlistuen, Ragnhild E; Hannigan, Laurie; Ask, Helga	October 30, 2024	Not Determined
39308203	Create Study	Disordered eating and cardiometabolic risk factors in Chinese women: evidence from the China Health and Nutrition Survey.	The British journal of nutrition	Qi, Baiyu; Cooper, Gabrielle E; Thornton, Laura M; Zhang, Ruyue; Yao, Shuyang; Howard, Annie Green; Gordon-Larsen, Penny; Du, Shufa; Wang, Huijun; Zhang, Bing; Bulik, Cynthia M; North, Kari E; Munn-Chernoff, Melissa A	September 14, 2024	Not Determined
39281730	Create Study	Descriptives and genetic correlates of eating disorder diagnostic transitions and presumed remission in the Danish registry.	medRxiv : the preprint server for health sciences	Abdulkadir, Mohamed; Larsen, Janne Tidselbak; Clausen, Loa; Hübel, Christopher; Albiñana, Clara; Thornton, Laura M; Vilhjálmsson, Bjarni J; Bulik, Cynthia M; Yilmaz, Zeynep; Petersen, Liselotte Vogdrup	September 8, 2024	Not Determined
39115175	Create Study	Assessing Avoidant/Restrictive Food Intake Disorder (ARFID) Symptoms Using the Nine Item ARFID Screen in >9000 Swedish Adults With and Without Eating Disorders.	The International journal of eating disorders	Presseller, Emily K; Cooper, Gabrielle E; Thornton, Laura M; Birgegård, Andreas; Abbaspour, Afrouz; Bulik, Cynthia M; Forsén Mantilla, Emma; Dinkler, Lisa	August 8, 2024	Not Determined
39070652	Create Study	The role of co-occurring conditions and genetics in the associations of eating disorders with attention-deficit/hyperactivity disorder and autism spectrum disorder.	Research square	Petersen, Liselotte; Christiansen, Gitte; Chatwin, Hannah; Yilmaz, Zeynap; Schendel, Diana; Bulik, Cynthia; Grove, Jakob; Brikell, Isabell; Semark, Birgitte; Holde, Katrine; Abdulkadir, Mohamed; Hubel, Christopher; Albiñana, Clara; Vilhjálmsson, Bjarni; Borglum, Anders; Demontis, Ditte; Mortensen, Preben	July 17, 2024	Not Determined
38989135	Create Study	Identification of State Markers in Anorexia Nervosa: Replication and Extension of Inflammation-Associated Biomarkers Using Multiplex Profiling.	Biological psychiatry global open science	Breithaupt, Lauren; Holsen, Laura M; Ji, Chunni; Hu, Jie; Petterway, Felicia; Rosa-Caldwell, Megan; Nilsson, Ida A K; Thomas, Jennifer J; Williams, Kyle A; Boutin, Regine; Slattery, Meghan; Bulik, Cynthia M; Arnold, Steven E; Lawson, Elizabeth A; Misra, Madhusmita; Eddy, Kamryn T	September 1, 2024	Not Determined
38988473	Create Study	Building Confidence in Discussing Genetics With Patients With Eating Disorders and Their Families.	Focus (American Psychiatric Publishing)	Bulik, Cynthia M	July 1, 2024	Not Determined
38558975	Create Study	Co-existing mental and somatic conditions in Swedish children with the avoidant restrictive food intake disorder phenotype.	medRxiv : the preprint server for health sciences	Wronski, Marie-Louis; Kuja-Halkola, Ralf; Hedlund, Elin; Martini, Miriam I; Lichtenstein, Paul; Lundström, Sebastian; Larsson, Henrik; Taylor, Mark J; Micali, Nadia; Bulik, Cynthia M; Dinkler, Lisa	March 15, 2024	Not Determined
38523413	Create Study	A comprehensive analysis of age of onset and cumulative incidence of mental disorders: A Danish register study.	Acta psychiatrica Scandinavica	Beck, Christoffer; Pedersen, Carsten Bøcker; Plana-Ripoll, Oleguer; Dalsgaard, Søren; Debost, Jean-Christophe Philippe; Laursen, Thomas Munk; Musliner, Katherine Louise; Mortensen, Preben Bo; Pedersen, Marianne Giørtz; Petersen, Liselotte Vogdrup; Yilmaz, Zeynep; McGrath, John; Agerbo, Esben	June 1, 2024	Not Determined
38347808	Create Study	Interplay of polygenic liability with birth-related, somatic, and psychosocial factors in anorexia nervosa risk: a nationwide study.	Psychological medicine	Papini, Natalie M; Presseller, Emily; Bulik, Cynthia M; Holde, Katrine; Larsen, Janne T; Thornton, Laura M; Albiñana, Clara; Vilhjálmsson, Bjarni J; Mortensen, Preben B; Yilmaz, Zeynep; Petersen, Liselotte V	July 1, 2024	Not Determined
38282367	Create Study	Shared genetic risk between anorexia nervosa and cardiovascular disease events: Evidence from genome-wide association studies.	Brain and behavior	Qi, Baiyu; Graff, Mariaelisa; Eating Disorders Working Group Of The Psychiatric Genomics Consortium; Bulik, Cynthia M; North, Kari E; Munn-Chernoff, Melissa A	January 28, 2024	Not Determined
38260575	Create Study	A Burden of Rare Copy Number Variants in Obsessive-Compulsive Disorder.	Research square	Halvorsen, Matthew; de Schipper, Elles; Boberg, Julia; Strom, Nora; Hagen, Kristen; Lindblad-Toh, Kerstin; Karlsson, Elinor; Pedersen, Nancy; Bulik, Cynthia; Fundín, Bengt; Landén, Mikael; Kvale, Gerd; Hansen, Bjarne; Haavik, Jan; Mattheisen, Manuel; Rück, Christian; Mataix-Cols, David; Crowley, James	January 3, 2024	Not Determined
38116117	Create Study	The correlates of neonatal complement component 3 and 4 protein concentrations with a focus on psychiatric and autoimmune disorders.	Cell genomics	Borbye-Lorenzen, Nis; Zhu, Zhihong; Agerbo, Esben; Albiñana, Clara; Benros, Michael E; Bian, Beilei; Børglum, Anders D; Bulik, Cynthia M; Debost, Jean-Christophe Philippe Goldtsche; Grove, Jakob; Hougaard, David M; McRae, Allan F; Mors, Ole; Mortensen, Preben Bo; Musliner, Katherine L; Nordentoft, Merete; Petersen, Liselotte V; Privé, Florian; Sidorenko, Julia; Skogstrand, Kristin; Werge, Thomas; Wray, Naomi R; Vilhjálmsson, Bjarni J; McGrath, John J	December 13, 2023	Not Determined
38097525	Create Study	Prevalence and recurrence of pica behaviors in early childhood within the ALSPAC birth cohort.	The International journal of eating disorders	Papini, Natalie M; Bulik, Cynthia M; Chawner, Samuel J R A; Micali, Nadia	February 1, 2024	Not Determined
38051153	Create Study	Differential genetic associations between dimensions of eating disorders and alcohol involvement in late adolescent twins.	Alcohol, clinical & experimental research	Qi, Baiyu; Thornton, Laura M; Breiner, Courtney E; Kuja-Halkola, Ralf; Baker, Jessica H; Lichtenstein, Paul; Lundström, Sebastian; Agrawal, Arpana; Bulik, Cynthia M; Munn-Chernoff, Melissa A	September 1, 2023	Not Determined
38030607	Create Study	The impact of genetic risk for schizophrenia on eating disorder clinical presentations.	Translational psychiatry	Zhang, Ruyue; Kuja-Halkola, Ralf; Borg, Stina; Leppä, Virpi; Thornton, Laura M; Birgegård, Andreas; Bulik, Cynthia M; Bergen, Sarah E	November 29, 2023	Not Determined
37932836	Create Study	Avoidant/restrictive food intake disorder (ARFID) in New Zealand and Australia: a scoping review.	Journal of eating disorders	Kennedy, Hannah L; Hitchman, Leonie M; Pettie, Michaela A; Bulik, Cynthia M; Jordan, Jennifer	November 6, 2023	Not Determined
37658054	Create Study	Genome-wide analysis of anorexia nervosa and major psychiatric disorders and related traits reveals genetic overlap and identifies novel risk loci for anorexia nervosa.	Translational psychiatry	Bang, Lasse; Bahrami, Shahram; Hindley, Guy; Smeland, Olav B; Rødevand, Linn; Jaholkowski, Piotr P; Shadrin, Alexey; Connell, Kevin S O'; Frei, Oleksandr; Lin, Aihua; Rahman, Zillur; Cheng, Weiqiu; Parker, Nadine; Fan, Chun C; Dale, Anders M; Djurovic, Srdjan; Bulik, Cynthia M; Andreassen, Ole A	September 1, 2023	Not Determined
37333309	Create Study	Prevalence and Recurrence of Pica Behaviors in Early Childhood: Findings from the ALSPAC Birth Cohort.	medRxiv : the preprint server for health sciences	Papini, Natalie M; Bulik, Cynthia M; Chawner, Samuel Jra; Micali, Nadia	June 5, 2023	Not Determined
37310331	Create Study	Involuntary treatment in patients with anorexia nervosa: utilization patterns and associated factors.	Psychological medicine	Mac Donald, Benjamin; Bulik, Cynthia M; Larsen, Janne T; Carlsen, Anders H; Clausen, Loa; Petersen, Liselotte V	April 1, 2023	Not Determined
37232007	Create Study	Risk factors for anorexia nervosa: A population-based investigation of sex differences in polygenic risk and early life exposures.	The International journal of eating disorders	Chatwin, Hannah; Holde, Katrine; Yilmaz, Zeynep; Larsen, Janne Tidselbak; Albiñana, Clara; Vilhjálmsson, Bjarni Jóhann; Mortensen, Preben Bo; Thornton, Laura M; Bulik, Cynthia M; Petersen, Liselotte Vogdrup	September 1, 2023	Not Determined
36792583	Create Study	Genetic correlates of vitamin D-binding protein and 25-hydroxyvitamin D in neonatal dried blood spots.	Nature communications	Albiñana, Clara; Zhu, Zhihong; Borbye-Lorenzen, Nis; Boelt, Sanne Grundvad; Cohen, Arieh S; Skogstrand, Kristin; Wray, Naomi R; Revez, Joana A; Privé, Florian; Petersen, Liselotte V; Bulik, Cynthia M; Plana-Ripoll, Oleguer; Musliner, Katherine L; Agerbo, Esben; Børglum, Anders D; Hougaard, David M; Nordentoft, Merete; Werge, Thomas; Mortensen, Preben Bo; Vilhjálmsson, Bjarni J; McGrath, John J	February 15, 2023	Not Determined
36772968	Create Study	If we build it, will they come? Commentary on "Preventing eating disorders and disordered eating in high-risk families".	The International journal of eating disorders	Bulik, Cynthia M	March 1, 2023	Not Determined
36723946	Create Study	Etiology of the Broad Avoidant Restrictive Food Intake Disorder Phenotype in Swedish Twins Aged 6 to 12 Years.	JAMA psychiatry	Dinkler, Lisa; Wronski, Marie-Louis; Lichtenstein, Paul; Lundström, Sebastian; Larsson, Henrik; Micali, Nadia; Taylor, Mark J; Bulik, Cynthia M	March 1, 2023	Not Determined
36650575	Create Study	Eating disorders, disordered eating, and body image research in New Zealand: a scoping review.	Journal of eating disorders	Cleland, Lana; Kennedy, Hannah L; Pettie, Michaela A; Kennedy, Martin A; Bulik, Cynthia M; Jordan, Jennifer	January 17, 2023	Not Determined
36633106	Create Study	Shared Genetic Factors Contributing to the Overlap between Attention-Deficit/Hyperactivity Disorder Symptoms and Overweight/Obesity in Swedish Adolescent Girls and Boys.	Twin research and human genetics : the official journal of the International Society for Twin Studies	Javaras, Kristin N; Munn-Chernoff, Melissa A; Diemer, Elizabeth W; Thornton, Laura M; Bulik, Cynthia M; Yilmaz, Zeynap; Lichtenstein, Paul; Larsson, Henrik; Baker, Jessica H	December 1, 2022	Not Determined
36574733	Create Study	Perceptions and experiences with eating disorder treatment in the first year of COVID-19: A longitudinal qualitative analysis.	The International journal of eating disorders	Goode, Rachel W; Godoy, Sarah M; Wolfe, Hannah; Olson, Katie; Agbozo, Bridgette; Mueller, Abigail; Noem, Taylor; Malian, Hannah; Peat, Christine M; Watson, Hunna; Thornton, Laura M; Gwira, Rebecca; Bulik, Cynthia M	January 1, 2023	Not Determined
36524675	Create Study	Psychiatric visits during the postpartum year in women with eating disorders who continue or discontinue antidepressant treatment in pregnancy.	The International journal of eating disorders	Trinh, Nhung T H; Semark, Birgitte Dige; Munk-Olsen, Trine; Liu, Xiaoqin; Rø, Øyvind; Bulik, Cynthia M; Torgersen, Leila; Lupattelli, Angela; Petersen, Liselotte Vogdrup	March 1, 2023	Not Determined
36508290	Create Study	Course and predictors of eating disorder symptoms, anxiety symptoms, and pandemic-related eating disorder concerns among adults with eating disorders during the first year of the COVID-19 pandemic.	The International journal of eating disorders	Thompson, Katherine A; Hedlund, Elin L; Sun, Quan; Peat, Christine M; Goode, Rachel W; Termorshuizen, Jet D; Thornton, Laura M; Borg, Stina; van Furth, Eric F; Birgegård, Andreas; Bulik, Cynthia M; Watson, Hunna J	January 1, 2023	Not Determined
36484893	Create Study	Associations Between Attention Deficit Hyperactivity Disorder Symptom Dimensions and Disordered Eating Symptoms in Adolescence: A Population-Based Twin Study.	Behavior genetics	Yilmaz, Zeynep; Quattlebaum, Mary J; Pawar, Pratiksha S; Thornton, Laura M; Bulik, Cynthia M; Javaras, Kristin N; Yao, Shuyang; Lichtenstein, Paul; Larsson, Henrik; Baker, Jessica H	March 1, 2023	Not Determined
36398862	Create Study	Reproducible changes in the anorexia nervosa gut microbiota following inpatient therapy remain distinct from non-eating disorder controls.	Gut microbes	Fouladi, Farnaz; Bulik-Sullivan, Emily C; Glenny, Elaine M; Thornton, Laura M; Reed, Kylie K; Thomas, Stephanie; Kleiman, Susan; Watters, Ashlie; Oakes, Judy; Huh, Eun-Young; Tang, Quyen; Liu, Jintong; Djukic, Zorka; Harper, Lauren; Trillo-Ordoñez, Yesel; Sun, Shan; Blakely, Ivory; Mehler, Philip S; Fodor, Anthony A; Tarantino, Lisa M; Bulik, Cynthia M; Carroll, Ian M	January 1, 2022	Not Determined
36379077	Create Study	Pharmacotherapy in anorexia nervosa: A Danish nation-wide register-based study.	Journal of psychosomatic research	Clausen, Loa; Semark, Birgitte D; Helverskov, Janne; Bulik, Cynthia M; Petersen, Liselotte V	January 1, 2023	Not Determined
36364778	Create Study	Development and Validation of an Eating-Related Eco-Concern Questionnaire.	Nutrients	Qi, Baiyu; Presseller, Emily K; Cooper, Gabrielle E; Kapadia, Avantika; Dumain, Alexis S; Jayawickreme, Shantal M; Bulik-Sullivan, Emily C; van Furth, Eric F; Thornton, Laura M; Bulik, Cynthia M; Munn-Chernoff, Melissa A	October 27, 2022	Not Determined
36237128	Create Study	Longer-term impact of COVID-19 among individuals with self-reported eating disorders in the United States, the Netherlands, and Sweden.	The International journal of eating disorders	Termorshuizen, Jet D; Sun, Quan; Borg, Stina; Mantilla, Emma F; Goode, Rachel W; Peat, Christine M; Thornton, Laura M; Watson, Hunna; van Furth, Eric F; Birgegård, Andreas; Bulik, Cynthia M	January 1, 2023	Not Determined
36084848	Create Study	Treatment of eating disorders: A systematic meta-review of meta-analyses and network meta-analyses.	Neuroscience and biobehavioral reviews	Monteleone, Alessio Maria; Pellegrino, Francesca; Croatto, Giovanni; Carfagno, Marco; Hilbert, Anja; Treasure, Janet; Wade, Tracey; Bulik, Cynthia M; Zipfel, Stephan; Hay, Phillipa; Schmidt, Ulrike; Castellini, Giovanni; Favaro, Angela; Fernandez-Aranda, Fernando; Il Shin, Jae; Voderholzer, Ulrich; Ricca, Valdo; Moretti, Davide; Busatta, Daniele; Abbate-Daga, Giovanni; Ciullini, Filippo; Cascino, Giammarco; Monaco, Francesco; Correll, Christoph U; Solmi, Marco	November 1, 2022	Not Determined
35981487	Create Study	Examination of perfectionism and self-concept constructs across stages of eating disorder recovery in men: An exploratory study.	Eating behaviors	Bardone-Cone, Anna M; White, Jennifer P; Thompson, Katherine A; Zucker, Nancy; Watson, Hunna J; Bulik, Cynthia M	August 1, 2022	Not Determined
35864298	Create Study	Influence of eating disorder psychopathology and general psychopathology on the risk of involuntary treatment in anorexia nervosa.	Eating and weight disorders : EWD	Mac Donald, Benjamin; Bulik, Cynthia M; Petersen, Liselotte V; Clausen, Loa	December 1, 2022	Not Determined
35855524	Create Study	Association of autism diagnosis and polygenic scores with eating disorder severity.	European eating disorders review : the journal of the Eating Disorders Association	Zhang, Ruyue; Birgegård, Andreas; Fundín, Bengt; Landén, Mikael; Thornton, Laura M; Bulik, Cynthia M; Dinkler, Lisa	September 1, 2022	Not Determined
35809040	Create Study	Associations between parental socioeconomic-, family-, and sibling status and risk of eating disorders in offspring in a Danish national female cohort.	The International journal of eating disorders	Koch, Susanne Vinkel; Larsen, Janne Tidselbak; Plessen, Kerstin J; Thornton, Laura M; Bulik, Cynthia M; Petersen, Liselotte Vogdrup	August 1, 2022	Not Determined
35785430	Create Study	Recommendations to encourage participation of individuals from diverse backgrounds in psychiatric genetic studies.	American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics	MacDermod, Casey; Pettie, Michaela A; Carrino, Emily A; Garcia, Susana Cruz; Padalecki, Sophie; Finch, Jody E; Sanzari, Christina; Kennedy, Hannah L; Pawar, Pratiksha S; Mcgough, Makenna M; Iwashita, Ava; Takgbajouah, Mary; Coan, Danielle; Szakasits, Lindsey; Goode, Rachel W; Wu, Ya-Ke; Reyes-Rodríguez, Mae Lynn; Vacuán, Eva María Trujillo Chi; Kennedy, Martin A; Cleland, Lana; Jordan, Jennifer; Maguire, Sarah; Guintivano, Jerry D; Giusti-Rodríguez, Paola; Baker, Jessica H; Thornton, Laura M; Bulik, Cynthia M	July 1, 2022	Not Determined
35780037	Create Study	Exploring the clinical and genetic associations of adult weight trajectories using electronic health records in a racially diverse biobank: a phenome-wide and polygenic risk study.	The Lancet. Digital health	Xu, Jiayi; Johnson, Jessica S; Signer, Rebecca; Eating Disorders Working Group of the Psychiatric Genomics Consortium; Birgegård, Andreas; Jordan, Jennifer; Kennedy, Martin A; Landén, Mikael; Maguire, Sarah L; Martin, Nicholas G; Mortensen, Preben Bo; Petersen, Liselotte V; Thornton, Laura M; Bulik, Cynthia M; Huckins, Laura M	August 1, 2022	Not Determined
35705101	Create Study	The impact of anorexia nervosa and BMI polygenic risk on childhood growth: A 20-year longitudinal population-based study.	American journal of human genetics	Abdulkadir, Mohamed; Hübel, Christopher; Herle, Moritz; Loos, Ruth J F; Breen, Gerome; Bulik, Cynthia M; Micali, Nadia	July 7, 2022	Not Determined
35595976	Create Study	What next for eating disorder genetics? Replacing myths with facts to sharpen our understanding.	Molecular psychiatry	Huckins, Laura M; Signer, Rebecca; Johnson, Jessica; Wu, Ya-Ke; Mitchell, Karen S; Bulik, Cynthia M	October 1, 2022	Not Determined
35524137	Create Study	Genetics and neurobiology of eating disorders.	Nature neuroscience	Bulik, Cynthia M; Coleman, Jonathan R I; Hardaway, J Andrew; Breithaupt, Lauren; Watson, Hunna J; Bryant, Camron D; Breen, Gerome	May 1, 2022	Not Determined
35428338	Create Study	How genetic analysis may contribute to the understanding of avoidant/restrictive food intake disorder (ARFID).	Journal of eating disorders	Kennedy, Hannah L; Dinkler, Lisa; Kennedy, Martin A; Bulik, Cynthia M; Jordan, Jennifer	April 15, 2022	Not Determined
35379376	Create Study	Mapping anorexia nervosa genes to clinical phenotypes.	Psychological medicine	Johnson, Jessica S; Cote, Alanna C; Dobbyn, Amanda; Sloofman, Laura G; Xu, Jiayi; Cotter, Liam; Charney, Alexander W; Eating Disorders Working Group of the Psychiatric Genomics Consortium; Birgegård, Andreas; Jordan, Jennifer; Kennedy, Martin; Landén, Mikaél; Maguire, Sarah L; Martin, Nicholas G; Mortensen, Preben Bo; Thornton, Laura M; Bulik, Cynthia M; Huckins, Laura M	April 1, 2023	Not Determined
35331490	Create Study	Intake and adherence to energy and nutrient recommendations among women and men with binge-type eating disorders and healthy controls.	Clinical nutrition ESPEN	Wiklund, Camilla A; Igudesman, Daria; Kuja-Halkola, Ralf; Bälter, Katarina; Thornton, Laura M; Bulik, Cynthia M	April 1, 2022	Not Determined
35301358	Create Study	Binge eating disorder.	Nature reviews. Disease primers	Giel, Katrin E; Bulik, Cynthia M; Fernandez-Aranda, Fernando; Hay, Phillipa; Keski-Rahkonen, Anna; Schag, Kathrin; Schmidt, Ulrike; Zipfel, Stephan	March 17, 2022	Not Determined
35292104	Create Study	Psychosocial and financial impacts for carers of those with eating disorders in New Zealand.	Journal of eating disorders	Surgenor, Lois J; Dhakal, Shistata; Watterson, Roma; Lim, Brendan; Kennedy, Martin; Bulik, Cynthia; Wilson, Nicki; Keelan, Karen; Lawson, Rachel; Jordan, Jennifer	March 15, 2022	Not Determined
35243971	Create Study	Predicting eating disorder and anxiety symptoms using disorder-specific and transdiagnostic polygenic scores for anorexia nervosa and obsessive-compulsive disorder.	Psychological medicine	Yilmaz, Zeynep; Schaumberg, Katherine; Halvorsen, Matthew; Goodman, Erica L; Brosof, Leigh C; Crowley, James J; Anorexia Nervosa Genetics Initiative; Eating Disorders Working Group of the Psychiatric Genomics Consortium; Tourette Syndrome/Obsessive-Compulsive Disorder Working Group of the Psychiatric Genomics Consortium; Mathews, Carol A; Mattheisen, Manuel; Breen, Gerome; Bulik, Cynthia M; Micali, Nadia; Zerwas, Stephanie C	May 1, 2023	Not Determined
35219872	Create Study	The role of early-life family composition and parental socio-economic status as risk factors for obsessive-compulsive disorder in a Danish national cohort.	Journal of psychiatric research	Yilmaz, Zeynep; Larsen, Janne Tidselbak; Nissen, Judith Becker; Crowley, James J; Mattheisen, Manuel; Bulik, Cynthia M; Petersen, Liselotte Vogdrup	May 1, 2022	Not Determined
35178801	Create Study	Eating disorder symptoms and their associations with anthropometric and psychiatric polygenic scores.	European eating disorders review : the journal of the Eating Disorders Association	Abdulkadir, Mohamed; Hübel, Christopher; Herle, Moritz; Loos, Ruth J F; Breen, Gerome; Bulik, Cynthia M; Micali, Nadia	May 1, 2022	Not Determined
35084057	Create Study	Comorbidity between eating disorders and psychiatric disorders.	The International journal of eating disorders	Momen, Natalie C; Plana-Ripoll, Oleguer; Yilmaz, Zeynep; Thornton, Laura M; McGrath, John J; Bulik, Cynthia M; Petersen, Liselotte Vogdrup	April 1, 2022	Not Determined
35049471	Create Study	Comorbidity between types of eating disorder and general medical conditions.	The British journal of psychiatry : the journal of mental science	Momen, Natalie C; Plana-Ripoll, Oleguer; Bulik, Cynthia M; McGrath, John J; Thornton, Laura M; Yilmaz, Zeynep; Petersen, Liselotte Vogdrup	July 23, 2021	Not Determined
34799693	Create Study	Novel disease associations with schizophrenia genetic risk revealed in ~400,000 UK Biobank participants.	Molecular psychiatry	Zhang, Ruyue; Sjölander, Arvid; Ploner, Alexander; Lu, Donghao; Bulik, Cynthia M; Bergen, Sarah E	March 1, 2022	Not Determined
34789012	Create Study	The Genetic Architecture of Obsessive-Compulsive Disorder: Contribution of Liability to OCD From Alleles Across the Frequency Spectrum.	The American journal of psychiatry	Mahjani, Behrang; Klei, Lambertus; Mattheisen, Manuel; Halvorsen, Matthew W; Reichenberg, Abraham; Roeder, Kathryn; Pedersen, Nancy L; Boberg, Julia; de Schipper, Elles; Bulik, Cynthia M; Landén, Mikael; Fundín, Bengt; Mataix-Cols, David; Sandin, Sven; Hultman, Christina M; Crowley, James J; Buxbaum, Joseph D; Rück, Christian; Devlin, Bernie; Grice, Dorothy E	March 1, 2022	Not Determined
34769915	Create Study	Comparison of Dual-Energy X-ray Absorptiometry and Bioelectrical Impedance Analysis in the Assessment of Body Composition in Women with Anorexia Nervosa upon Admission and Discharge from an Inpatient Specialist Unit.	International journal of environmental research and public health	Abbaspour, Afrouz; Reed, Kylie K; Hübel, Christopher; Bulik-Sullivan, Emily C; Tang, Quyen; Bulik, Cynthia M; Carroll, Ian M	October 29, 2021	Not Determined
34683161	Create Study	Associations of Stress and Appetite Hormones with Binge Eating in Females with Anorexia Nervosa after Weight Restoration: A Longitudinal Study.	Journal of personalized medicine	Wu, Ya-Ke; Brownley, Kimberly A; Bardone-Cone, Anna M; Bulik, Cynthia M; Baker, Jessica H	October 12, 2021	Not Determined
34534875	Create Study	Eating disorder behaviors and treatment seeking in self-identified military personnel and veterans: Results of the National Eating Disorders Association online screening.	Eating behaviors	Flatt, Rachael E; Norman, Elliott; Thornton, Laura M; Fitzsimmons-Craft, Ellen E; Balantekin, Katherine N; Smolar, Lauren; Mysko, Claire; Wilfley, Denise E; Taylor, C Barr; Bulik, Cynthia M	December 1, 2021	Not Determined
34458645	Create Study	The intestinal microbiota and anorexia nervosa: cause or consequence of nutrient deprivation.	Current opinion in endocrine and metabolic research	Reed, Kylie K; Abbaspour, Afrouz; Bulik, Cynthia M; Carroll, Ian M	August 1, 2021	Not Determined
34426039	Create Study	Reframing anorexia nervosa as a metabo-psychiatric disorder.	Trends in endocrinology and metabolism: TEM	Bulik, Cynthia M; Carroll, Ian M; Mehler, Phil	October 1, 2021	Not Determined
34127697	Create Study	Childhood overeating is associated with adverse cardiometabolic and inflammatory profiles in adolescence.	Scientific reports	Hübel, Christopher; Herle, Moritz; Santos Ferreira, Diana L; Abdulkadir, Mohamed; Bryant-Waugh, Rachel; Loos, Ruth J F; Bulik, Cynthia M; Lawlor, Deborah A; Micali, Nadia	June 14, 2021	Not Determined
34117156	Create Study	Gut Microbiota in Psychiatric Disorders: A Systematic Review.	Psychosomatic medicine	Chen, Long Long; Abbaspour, Afrouz; Mkoma, George F; Bulik, Cynthia M; Rück, Christian; Djurfeldt, Diana	September 1, 2021	Not Determined
33955041	Create Study	Evaluating disorders of gut-brain interaction in eating disorders.	The International journal of eating disorders	Wiklund, Camilla A; Rania, Marianna; Kuja-Halkola, Ralf; Thornton, Laura M; Bulik, Cynthia M	June 1, 2021	Not Determined
33947359	Create Study	The Eating Disorders Genetics Initiative (EDGI): study protocol.	BMC psychiatry	Bulik, Cynthia M; Thornton, Laura M; Parker, Richard; Kennedy, Hannah; Baker, Jessica H; MacDermod, Casey; Guintivano, Jerry; Cleland, Lana; Miller, Allison L; Harper, Lauren; Larsen, Janne T; Yilmaz, Zeynep; Grove, Jakob; Sullivan, Patrick F; Petersen, Liselotte V; Jordan, Jennifer; Kennedy, Martin A; Martin, Nicholas G	May 4, 2021	Not Determined
33942917	Create Study	Psychosocial etiology of maladaptive exercise and its role in eating disorders: A systematic review.	The International journal of eating disorders	Gorrell, Sasha; Flatt, Rachael E; Bulik, Cynthia M; Le Grange, Daniel	August 1, 2021	Not Determined
33926592	Create Study	Association of family history of schizophrenia and clinical outcomes in individuals with eating disorders.	Psychological medicine	Zhang, Ruyue; Kuja-Halkola, Ralf; Birgegård, Andreas; Larsson, Henrik; Lichtenstein, Paul; Bulik, Cynthia M; Bergen, Sarah E	January 1, 2023	Not Determined
33824142	Create Study	Association and Familial Coaggregation of Type 1 Diabetes and Eating Disorders: A Register-Based Cohort Study in Denmark and Sweden.	Diabetes care	Tate, Ashley E; Liu, Shengxin; Zhang, Ruyue; Yilmaz, Zeynep; Larsen, Janne T; Petersen, Liselotte V; Bulik, Cynthia M; Svensson, Ann-Marie; Gudbjörnsdottir, Soffia; Larsson, Henrik; Butwicka, Agnieszka; Kuja-Halkola, Ralf	May 1, 2021	Not Determined
33769200	Create Study	Gut microbial communities from patients with anorexia nervosa do not influence body weight in recipient germ-free mice.	Gut microbes	Glenny, Elaine M; Fouladi, Farnaz; Thomas, Stephanie A; Bulik-Sullivan, Emily C; Tang, Quyen; Djukic, Zorka; Trillo-Ordonez, Yesel S; A Fodor, Anthony; Tarantino, Lisa M; M Bulik, Cynthia; M Carroll, Ian	January 1, 2021	Not Determined
33644868	Create Study	One size does not fit all. Genomics differentiates among anorexia nervosa, bulimia nervosa, and binge-eating disorder.	The International journal of eating disorders	Hübel, Christopher; Abdulkadir, Mohamed; Herle, Moritz; Loos, Ruth J F; Breen, Gerome; Bulik, Cynthia M; Micali, Nadia	May 1, 2021	Not Determined
33605055	Create Study	Psychiatric genomics research during the COVID-19 pandemic: A survey of Psychiatric Genomics Consortium researchers.	American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics	Guintivano, Jerry; Dick, Danielle; Bulik, Cynthia M	January 1, 2021	Not Determined
33583449	Create Study	Genetics of eating disorders in the genome-wide era.	Psychological medicine	Watson, Hunna J; Palmos, Alish B; Hunjan, Avina; Baker, Jessica H; Yilmaz, Zeynep; Davies, Helena L	October 1, 2021	Not Determined
33483693	Create Study	Genome-wide association study of patients with a severe major depressive episode treated with electroconvulsive therapy.	Molecular psychiatry	Clements, Caitlin C; Karlsson, Robert; Lu, Yi; Juréus, Anders; Rück, Christian; Andersson, Evelyn; Boberg, Julia; Pedersen, Nancy L; Bulik, Cynthia M; Nordenskjöld, Axel; Pålsson, Erik; Sullivan, Patrick F; Landén, Mikael	June 1, 2021	Not Determined
33349947	Create Study	Eating disorders genetics in Asia.	The International journal of eating disorders	Bulik, Cynthia M	December 17, 2020	Not Determined
33252150	Create Study	Comparing eating disorder characteristics and treatment in self-identified competitive athletes and non-athletes from the National Eating Disorders Association online screening tool.	The International journal of eating disorders	Flatt, Rachael E; Thornton, Laura M; Fitzsimmons-Craft, Ellen E; Balantekin, Katherine N; Smolar, Lauren; Mysko, Claire; Wilfley, Denise E; Taylor, C Barr; DeFreese, J D; Bardone-Cone, Anna M; Bulik, Cynthia M	March 1, 2021	Not Determined
33205495	Create Study	Emotion dysregulation and suicidality in eating disorders.	The International journal of eating disorders	Rania, Marianna; Monell, Elin; Sjölander, Arvid; Bulik, Cynthia M	March 1, 2021	Not Determined
33191528	Create Study	Screen-detected disordered eating and related traits in a large population sample of females in mainland China: China Health and Nutrition Survey.	The International journal of eating disorders	Yao, Shuyang; Zhang, Ruyue; Thornton, Laura M; Peat, Christine M; Qi, Baiyu; Du, Shufa; Wang, Huijun; Zhang, Bing; Bulik, Cynthia M	January 1, 2021	Not Determined
33139082	Create Study	Alternative Frameworks for Advancing the Study of Eating Disorders.	Trends in neurosciences	Stern, Sarah A; Bulik, Cynthia M	December 1, 2020	Not Determined
32735068	Create Study	Identifying research priorities for the study of atypical anorexia nervosa: A Delphi study.	The International journal of eating disorders	Strand, Mattias; Zvrskovec, Johan; Hübel, Christopher; Peat, Christine M; Bulik, Cynthia M; Birgegård, Andreas	October 1, 2020	Not Determined
32720399	Create Study	Early impact of COVID-19 on individuals with self-reported eating disorders: A survey of ~1,000 individuals in the United States and the Netherlands.	The International journal of eating disorders	Termorshuizen, Jet D; Watson, Hunna J; Thornton, Laura M; Borg, Stina; Flatt, Rachael E; MacDermod, Casey M; Harper, Lauren E; van Furth, Eric F; Peat, Christine M; Bulik, Cynthia M	November 1, 2020	Not Determined
32359125	Create Study	Severe and enduring anorexia nervosa: Update and observations about the current clinical reality.	The International journal of eating disorders	Wonderlich, Stephen A; Bulik, Cynthia M; Schmidt, Ulrike; Steiger, Howard; Hoek, Hans W	August 1, 2020	Not Determined

helpcenter.collection.publications-tab

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

How can I determine if a publication is relevant?

Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
Where does the NDA get the publications?

PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

Create Study

A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
Not Determined Publication

Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
Not Relevant Publication

A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
PubMed

PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
PubMed ID

The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
Relevant Publication

A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

Contact NDA Help Desk

Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
Research Subject and Pedigree	4,000	06/01/2023	0	01/01/2025	0	Approved
NIMH CDE - PHQ-9	4,000	06/01/2023	0	01/01/2025	0	Approved

To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.

Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data Expected	Targeted Enrollment	Initial Submission	Initial Share	Status
Life Events Checklist	4,000	06/01/2023	01/01/2025	Approved
Mood Disorder Questionnaire	4,000	06/01/2023	01/01/2025	Approved
Obsessive-Compulsive Inventory - Revised (OCI-R)	4,000	12/15/2022	01/01/2025	Approved
Substance Use Survey	4,000	06/01/2023	01/01/2025	Approved
Treatment History Inventory	4,000	06/01/2023	01/01/2025	Approved
Medical Outcomes Survey	4,000	06/01/2023	01/01/2025	Approved
Eating Disorder Quality of Life	4,000	06/01/2023	01/01/2025	Approved
Eating Disorder Examination Questionnaire	4,000	06/01/2023	01/01/2025	Approved
ED100K	4,000	06/01/2023	01/01/2025	Approved
Multidimensional Perfectionism Scale	4,000	06/01/2023	01/01/2025	Approved
Compulsive Exercise Test	4,000	06/01/2023	01/01/2025	Approved

Structure not yet defined

No Status history for this Data Expected has been recorded yet

helpcenter.collection.data-expected-tab

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

What is an NDA Data Structure?

An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
What is the NDA Data Dictionary?

The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

Analyzed Data

Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
Data Item

Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Structure Category

An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
Data Structure Group

A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
Evaluated Data

A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
Imaging Data

Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
Initial Share Date

Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
Initial Submission Date

Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
Research Subject and Pedigree

An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
Submission Cycle

The NDA has two Submission Cycles per year - January 15 and July 15.
Submission Exemption

An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameFilter by Study Name	AbstractFilter by Abstract	Collection/Study SubjectsFilter by Collection/Study Subjects	Data UsageFilter by Data Usage	StateFilter by State
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helpcenter.collection.associated-studies-tab

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

How do I associate a study to my collection?

Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

Associated Studies Tab

A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

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Frequently Asked Questions

Glossary