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The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

Select	Experiment Id	Experiment Name	Experiment Type	Created On

24	HI-NGS_R1	Omics	02/16/2011
475	MB1-10 (CHOP)	Omics	06/07/2016
490	Discovery and CRISPR validation of genetic factors associated with antipsychotic-induced weight gain and cardiometabolic risk	Omics	07/07/2016
501	PharmacoBOLD Resting State	fMRI	07/27/2016
506	PVPREF	Omics	08/05/2016
509	ABC-CT Resting v2	EEG	08/18/2016
13	Comparison of FI expression in Autistic and Neurotypical Homo Sapiens	Omics	12/28/2010
18	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	01/06/2011
22	Stitching PCR Sequencing	Omics	02/14/2011
26	ASD_Methylation	Omics	03/01/2011
29	Microarray family 03 (father, mother, sibling)	Omics	03/24/2011
37	Standard paired-end sequencing of BCRs	Omics	04/19/2011
38	Illumina Mate-Pair BCR sequencing	Omics	04/19/2011
39	Custom Jumping Libraries	Omics	04/19/2011
40	Custom CapBP	Omics	04/19/2011
41	Immunofluorescence	Omics	05/11/2011
43	Autism brain sample genotyping, Illumina	Omics	05/16/2011
47	ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 System	Omics	08/01/2011
53	AGRE Omni1-quad	Omics	10/11/2011
59	AGP genotyping	Omics	04/03/2012
60	Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controls	Omics	06/23/2012
63	Microemulsion PCR and Targeted Resequencing for Variant Detection in ASD	Omics	07/20/2012
76	Whole Genome Sequencing in Autism Families	Omics	01/03/2013
519	Resting	fMRI	11/08/2016
90	Genotyped IAN Samples	Omics	07/09/2013
91	NJLAGS Axiom Genotyping Array	Omics	07/16/2013
93	AGP genotyping (CNV)	Omics	09/06/2013
106	Longitudinal Sleep Study. H20 200. Channel set 2	EEG	11/07/2013
107	Longitudinal Sleep Study. H20 200. Channel set 3	EEG	11/07/2013
108	Longitudinal Sleep Study. AURA 200	EEG	11/07/2013
105	Longitudinal Sleep Study. H20 200. Channel set 1	EEG	11/07/2013
109	Longitudinal Sleep Study. AURA 400	EEG	11/07/2013
116	Gene Expression Analysis WG-6	Omics	01/07/2014
131	Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1	Eye Tracking	02/27/2014
132	Jeste Lab UCLA ACEii: Animacy - Project 1	Eye Tracking	02/27/2014
133	Jeste Lab UCLA ACEii: Mom Stranger - Project 2	Eye Tracking	02/27/2014
134	Jeste Lab UCLA ACEii: Face Emotion - Project 3	Eye Tracking	02/27/2014
145	AGRE/FMR1_Illumina.JHU	Omics	04/14/2014
146	AGRE/MECP2_Sanger.JHU	Omics	04/14/2014
147	AGRE/MECP2_Junior.JHU	Omics	04/14/2014
151	Candidate Gene Identification in familial Autism	Omics	06/09/2014
152	NJLAGS Whole Genome Sequencing	Omics	07/01/2014
154	Math Autism Study - Vinod Menon	fMRI	07/15/2014
155	Resting	fMRI	07/25/2014
156	Speech	fMRI	07/25/2014
159	Emotion	fMRI	07/25/2014
160	syllable contrast	EEG	07/29/2014
167	School-age naturalistic stimuli	Eye Tracking	09/19/2014
44	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	06/27/2011
45	Exome Sequencing of 20 Sporadic Cases of Autism Spectrum Disorder	Omics	07/15/2011

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Neural mechanisms of perceptual abnormalities and their malleability in body dysmorphic disorder. #3607

General
Experiments (0)
Shared Data
Publications (28)
Data Expected (7)
Associated Studies (0)

Collection Title	Collection Investigators	Collection Description
Collection Title:	Neural mechanisms of perceptual abnormalities and their malleability in body dysmorphic disorder.
Collection Investigators:	Jamie Feusner
Collection Description:	Individuals with body dysmorphic disorder BDD misperceive specific aspects of their appearance to be conspicuously flawed or defective, despite these being unnoticeable or appearing miniscule to others. With convictions of disfigurement and ugliness, they typically have poor insight or delusional beliefs, obsessive thoughts and compulsive behaviors, anxiety, and depression. These result in significant difficulties in functioning, depression, suicide attempts 25 percent, and psychiatric hospitalization 50 percent. Despite this, relatively few studies of the neurobiology, and few treatment studies, have been conducted. This underscores a critical need for research to identify novel targets for intervention based on a comprehensive understanding of the pathophysiological mechanisms. Neuropsychological, behavioral, and neurobiological research by our group and others have uncovered mechanisms that may contribute to perceptual distortions, including prominent abnormalities in visual processing systems. These have contributed to a model of diminished global/holistic processing and enhanced local detailed processing, attributed to bottom-up and top-down disturbances in perception. Using psychophysical experiments and novel visual modulation techniques, we have probed the brains visual systems responsible for global and local processing and found early evidence that they may be modifiable in BDD. These techniques include a top-down attentional modulation and a bottom-up perceptual modulation strategy. Abnormal eye gaze and emotional arousal when viewing faces may further contribute to abnormal perception. Whether these brain and behavior abnormalities are directly linked to abnormal perception remains to be understood. Accordingly, this study will determine a if abnormalities in neural activation and connectivity in BDD when viewing ones appearance are directly associated with abnormalities in perceptual functioning and b if changes in neural activation and connectivity from these visual modulation strategies are linked to changes in perceptual functioning, thus representing potential biomarkers. We will also determine how attentional systems, eye gaze behaviors and emotional arousal interact with brain functioning in visual systems, and with global and local perceptual functioning. We will enroll 80 participants with BDD, 40 with subclinical BDD, and 40 healthy controls who will undergo functional magnetic resonance imaging while viewing photographs of their, and others, faces. We will obtain measures of global and local visual processing, emotional arousal while viewing their face, and eye gaze behaviors using eye tracking. To understand the malleability of global/local perception, and the neural mechanisms of these changes, we will determine whether repeated visual modulation using top-down and bottom-up strategies results in alterations of perceptual functioning and brain activity connectivity, and relationships between them. Results will provide a comprehensive mechanistic model of abnormal visual information processing underlying the core symptom domain of misperceptions of appearance. This will lay the groundwork for next-step translational approaches.
Data Repository:	NIMH Data Archive
Permission Group:
Collection Creation Date:	07/27/2020
Collection Phase:	Enrolling
Blinded Clinical Trial:	No
Total Funded Amount:	$2,302,663.00
Subjects Shared:	89
Collection DOI:	10.15154/bqbh-g419

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Funding Sources:

Funding Source Name	Funding Source URL
NIH - Extramural	None

Supporting Documentation:

Grant Information:

Project Number	Title	Start Date	Original End Date	End Date	Planned Enrollment	Actual Enrollment	Organization	Funds Obligated
R01MH121520-01	Neural mechanisms of perceptual abnormalities and their malleability in body dysmorphic disorder	07/23/2020	05/31/2025	05/31/2026	410	337	CENTRE FOR ADDICTION AND MENTAL HEALTH	$2,302,663.00

Clinical Trials:

Brief Summary	Status	Clinical Trial ID	Study ID	Principal Investigator	Start Date	End Date
A core symptom of body dysmorphic disorder (BDD) is perceptual distortions for appearance, which contributes to poor insight and delusionality, limits engagement in treatment, and puts individuals at risk for relapse. Results from this study will provide a comprehensive mechanistic model of brain, behavioral, and emotional contributors to abnormal perceptual processing, as well as how malleable it is with visual modulation techniques. This will lay the groundwork for next-step translational perceptual retraining approaches.	Recruiting	NCT04373629	R01MH121520-01A1	Jamie D Feusner, M.D.	December 1, 2020	June 1, 2026

helpcenter.collection.general-tab

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The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
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ID	Name	Created Date	Status	Type
No records found.

helpcenter.collection.experiments-tab

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Shared Data:

Title	Type	Number of Subjects
Body Image States Scale	Clinical Assessments	82
Brown Assessment of Beliefs Scale	Clinical Assessments	61
Dysmorphic Concern Questionnaire	Clinical Assessments	89
Hamilton Anxiety Rating Scale	Clinical Assessments	89
Montgomery-Asberg Depression Rating Scale	Clinical Assessments	89
Research Subject	Clinical Assessments	89
State-Trait Anxiety Inventory for Adults	Clinical Assessments	82

helpcenter.collection.shared-data-tab

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

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Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

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Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed ID	Study	Title	Journal	Authors	Date	Status
41478439	Create Study	Neural correlates of body size estimation: A systematic review and narrative synthesis.	Behavioural brain research	Peel, Hayden J; Naraindas, Akansha M; Guo, Joyce; Cazzato, Valentina; Feusner, Jamie D	March 12, 2026	Not Determined
40766654	Create Study	Functional Brain Mapping of Body Size Estimation Using a 3D Avatar.	bioRxiv : the preprint server for biology	Peel, Hayden J; Diaz-Fong, Joel P; Karsan, Sameena; Kumar, Rajay; Hellemann, Gerhard; Feusner, Jamie D	July 30, 2025	Not Determined
40458078	Create Study	Single-dose psilocybin alters resting state functional networks in patients with body dysmorphic disorder.	Psychedelics	Zhu, Xi; Zhang, Chen; Hellerstein, David; Feusner, Jamie D; Wheaton, Michael G; Gomez, Gloria J; Schneier, Franklin	January 1, 2025	Not Determined
40221123	Create Study	Task-based neural correlates of self-focused attention associated with cognitive behavioral therapy response.	Biological psychology	Iannazzi, Emily M; Grennan, Gillian; Zhao, Yuchen; Chang, Kelly; Feusner, Jamie D; Wilhelm, Sabine; Manoach, Dara S; Fang, Angela	April 1, 2025	Not Determined
39639018	Create Study	Body dysmorphic disorder.	Nature reviews. Disease primers	Rück, Christian; Mataix-Cols, David; Feusner, Jamie D; Shavitt, Roseli Gedanke; Veale, David; Krebs, Georgina; Fernández de la Cruz, Lorena	December 5, 2024	Not Determined
39241374	Create Study	Quantifying body size estimation accuracy and body dissatisfaction in body dysmorphic disorder using a digital avatar.	Comprehensive psychiatry	Karsan, Sameena; Diaz-Fong, Joel P; Ly, Ronald; Hellemann, Gerhard; Feusner, Jamie D	November 1, 2024	Not Determined
39147869	Create Study	Democratizing technologies in psychiatry: non-human primate neuroanatomy paves the way for accessible neurofeedback in the wild.	Neuropsychopharmacology : official publication of the American College of Neuropsychopharmacology	Trambaiolli, Lucas R; Feusner, Jamie D	November 1, 2024	Not Determined
39071433	Create Study	Visual system structural and functional connections during face viewing in body dysmorphic disorder.	bioRxiv : the preprint server for biology	Wong, Wan-Wa; Peel, Hayden; Cabeen, Ryan; Diaz-Fong, Joel P; Feusner, Jamie D	July 16, 2024	Not Determined
38691313	Create Study	Visual Perceptual Processing Abnormalities in Body Dysmorphic Disorder.	Current topics in behavioral neurosciences	Diaz-Fong, Joel P; Feusner, Jamie D	January 1, 2025	Not Determined
38266332	Create Study	Self-focused brain predictors of cognitive behavioral therapy response in a transdiagnostic sample.	Journal of psychiatric research	Fang, Angela; Baran, Bengi; Feusner, Jamie D; Phan, K Luan; Beatty, Clare C; Crane, Jessica; Jacoby, Ryan J; Manoach, Dara S; Wilhelm, Sabine	March 1, 2024	Not Determined
37671039	Create Study	Toward personalized circuit-based closed-loop brain-interventions in psychiatry: using symptom provocation to extract EEG-markers of brain circuit activity.	Frontiers in neural circuits	Zrenner, Brigitte; Zrenner, Christoph; Balderston, Nicholas; Blumberger, Daniel M; Kloiber, Stefan; Laposa, Judith M; Tadayonnejad, Reza; Trevizol, Alisson Paulino; Zai, Gwyneth; Feusner, Jamie D	January 1, 2023	Not Determined
37131072	Create Study	The functional connectome in obsessive-compulsive disorder: resting-state mega-analysis and machine learning classification for the ENIGMA-OCD consortium.	Molecular psychiatry	Bruin, Willem B; Abe, Yoshinari; Alonso, Pino; Anticevic, Alan; Backhausen, Lea L; Balachander, Srinivas; Bargallo, Nuria; Batistuzzo, Marcelo C; Benedetti, Francesco; Bertolin Triquell, Sara; Brem, Silvia; Calesella, Federico; Couto, Beatriz; Denys, Damiaan A J P; Echevarria, Marco A N; Eng, Goi Khia; Ferreira, Sónia; Feusner, Jamie D; Grazioplene, Rachael G; Gruner, Patricia; Guo, Joyce Y; Hagen, Kristen; Hansen, Bjarne; Hirano, Yoshiyuki; Hoexter, Marcelo Q; Jahanshad, Neda; Jaspers-Fayer, Fern; Kasprzak, Selina; Kim, Minah; Koch, Kathrin; Bin Kwak, Yoo; Kwon, Jun Soo; Lazaro, Luisa; Li, Chiang-Shan R; Lochner, Christine; Marsh, Rachel; Martínez-Zalacaín, Ignacio; Menchon, Jose M; Moreira, Pedro S; Morgado, Pedro; Nakagawa, Akiko; Nakao, Tomohiro; Narayanaswamy, Janardhanan C; Nurmi, Erika L; Zorrilla, Jose C Pariente; Piacentini, John; Picó-Pérez, Maria; Piras, Fabrizio; Piras, Federica; Pittenger, Christopher; Reddy, Janardhan Y C; Rodriguez-Manrique, Daniela; Sakai, Yuki; Shimizu, Eiji; Shivakumar, Venkataram; Simpson, Blair H; Soriano-Mas, Carles; Sousa, Nuno; Spalletta, Gianfranco; Stern, Emily R; Evelyn Stewart, S; Szeszko, Philip R; Tang, Jinsong; Thomopoulos, Sophia I; Thorsen, Anders L; Yoshida, Tokiko; Tomiyama, Hirofumi; Vai, Benedetta; Veer, Ilya M; Venkatasubramanian, Ganesan; Vetter, Nora C; Vriend, Chris; Walitza, Susanne; Waller, Lea; Wang, Zhen; Watanabe, Anri; Wolff, Nicole; Yun, Je-Yeon; Zhao, Qing; van Leeuwen, Wieke A; van Marle, Hein J F; van de Mortel, Laurens A; van der Straten, Anouk; van der Werf, Ysbrand D; ENIGMA-OCD Working Group; Thompson, Paul M; Stein, Dan J; van den Heuvel, Odile A; van Wingen, Guido A	October 1, 2023	Not Determined
37004409	Create Study	Pilot study of single-dose psilocybin for serotonin reuptake inhibitor-resistant body dysmorphic disorder.	Journal of psychiatric research	Schneier, Franklin R; Feusner, Jamie; Wheaton, Michael G; Gomez, Gloria J; Cornejo, Giselle; Naraindas, Akansha Mahesh; Hellerstein, David J	May 1, 2023	Not Determined
36515406	Create Study	Therapeutic uses of psychedelics for eating disorders and body dysmorphic disorder.	Journal of psychopharmacology (Oxford, England)	Ledwos, Nicole; Rodas, Justyne D; Husain, M Ishrat; Feusner, Jamie D; Castle, David J	January 1, 2023	Not Determined
36410261	Create Study	Psychotherapies and digital interventions for OCD in adults: What do we know, what do we need still to explore?	Comprehensive psychiatry	Castle, David; Feusner, Jamie; Laposa, Judith M; Richter, Peggy M A; Hossain, Rahat; Lusicic, Ana; Drummond, Lynne M	January 1, 2023	Not Determined
35948537	Create Study	Neural and behavioral effects of modification of visual attention in body dysmorphic disorder.	Translational psychiatry	Wong, Wan-Wa; Rangaprakash, D; Diaz-Fong, Joel P; Rotstein, Natalie M; Hellemann, Gerhard S; Feusner, Jamie D	August 10, 2022	Not Determined
35689978	Create Study	Neurocircuit dynamics of arbitration between decision-making strategies across obsessive-compulsive and related disorders.	NeuroImage. Clinical	Seok, Darsol; Tadayonnejad, Reza; Wong, Wan-Wa; O'Neill, Joseph; Cockburn, Jeff; Bari, Ausaf A; O'Doherty, John P; Feusner, Jamie D	January 1, 2022	Not Determined
35685771	Create Study	Dynamic Effective Connectivity Patterns During Rapid Face Stimuli Presentation in Body Dysmorphic Disorder.	Frontiers in neuroscience	Wong, Wan-Wa; Rangaprakash, D; Moody, Teena D; Feusner, Jamie D	January 1, 2022	Not Determined
35272208	Create Study	Obsessive-compulsive disorder during the COVID-19 pandemic.	Journal of psychiatric research	Van Ameringen, M; Patterson, B; Turna, J; Lethbridge, G; Goldman Bergmann, C; Lamberti, N; Rahat, M; Sideris, B; Francisco, A P; Fineberg, N; Pallanti, S; Grassi, G; Vismara, M; Albert, U; Gedanke Shavitt, R; Hollander, E; Feusner, J; Rodriguez, C I; Morgado, P; Dell'Osso, B	May 1, 2022	Not Determined
35190533	Create Study	The thalamus and its subnuclei-a gateway to obsessive-compulsive disorder.	Translational psychiatry	Weeland, Cees J; Kasprzak, Selina; de Joode, Niels T; Abe, Yoshinari; Alonso, Pino; Ameis, Stephanie H; Anticevic, Alan; Arnold, Paul D; Balachander, Srinivas; Banaj, Nerisa; Bargallo, Nuria; Batistuzzo, Marcelo C; Benedetti, Francesco; Beucke, Jan C; Bollettini, Irene; Brecke, Vilde; Brem, Silvia; Cappi, Carolina; Cheng, Yuqi; Cho, Kang Ik K; Costa, Daniel L C; Dallaspezia, Sara; Denys, Damiaan; Eng, Goi Khia; Ferreira, Sónia; Feusner, Jamie D; Fontaine, Martine; Fouche, Jean-Paul; Grazioplene, Rachael G; Gruner, Patricia; He, Mengxin; Hirano, Yoshiyuki; Hoexter, Marcelo Q; Huyser, Chaim; Hu, Hao; Jaspers-Fayer, Fern; Kathmann, Norbert; Kaufmann, Christian; Kim, Minah; Koch, Kathrin; Bin Kwak, Yoo; Kwon, Jun Soo; Lazaro, Luisa; Li, Chiang-Shan R; Lochner, Christine; Marsh, Rachel; Martínez-Zalacaín, Ignacio; Mataix-Cols, David; Menchón, Jose M; Minnuzi, Luciano; Moreira, Pedro Silva; Morgado, Pedro; Nakagawa, Akiko; Nakamae, Takashi; Narayanaswamy, Janardhanan C; Nurmi, Erika L; Ortiz, Ana E; Pariente, Jose C; Piacentini, John; Picó-Pérez, Maria; Piras, Fabrizio; Piras, Federica; Pittenger, Christopher; Reddy, Y C Janardhan; Rodriguez-Manrique, Daniela; Sakai, Yuki; Shimizu, Eiji; Shivakumar, Venkataram; Simpson, Helen Blair; Soreni, Noam; Soriano-Mas, Carles; Sousa, Nuno; Spalletta, Gianfranco; Stern, Emily R; Stevens, Michael C; Stewart, S Evelyn; Szeszko, Philip R; Takahashi, Jumpei; Tanamatis, Tais; Tang, Jinsong; Thorsen, Anders Lillevik; Tolin, David; van der Werf, Ysbrand D; van Marle, Hein; van Wingen, Guido A; Vecchio, Daniela; Venkatasubramanian, G; Walitza, Susanne; Wang, Jicai; Wang, Zhen; Watanabe, Anri; Wolters, Lidewij H; Xu, Xiufeng; Yun, Je-Yeon; Zhao, Qing; ENIGMA OCD Working Group; White, Tonya; Thompson, Paul M; Stein, Dan J; van den Heuvel, Odile A; Vriend, Chris	February 21, 2022	Not Determined
34875086	Create Study	Maladaptive self-focused attention and default mode network connectivity: a transdiagnostic investigation across social anxiety and body dysmorphic disorders.	Social cognitive and affective neuroscience	Fang, Angela; Baran, Bengi; Beatty, Clare C; Mosley, Jennifer; Feusner, Jamie D; Phan, K Luan; Wilhelm, Sabine; Manoach, Dara S	July 2, 2022	Not Determined
34688924	Create Study	Cytoarchitectonically Defined Volumes of Early Extrastriate Visual Cortex in Unmedicated Adults With Body Dysmorphic Disorder.	Biological psychiatry. Cognitive neuroscience and neuroimaging	Feusner, Jamie D; Kurth, Florian; Luders, Eileen; Ly, Ronald; Wong, Wan-Wa	September 1, 2023	Not Determined
34354139	Create Study	White matter tracts characteristics in habitual decision-making circuit underlie ritual behaviors in anorexia nervosa.	Scientific reports	Tadayonnejad, Reza; Pizzagalli, Fabrizio; Murray, Stuart B; Pauli, Wolfgang M; Conde, Geena; Bari, Ausaf A; Strober, Michael; O'Doherty, John P; Feusner, Jamie D	August 5, 2021	Not Determined
34339891	Create Study	Can excitatory neuromodulation change distorted perception of one''s appearance?	Brain stimulation	Wong, Wan-Wa; Rangaprakash, D; Larson, Myra S; Diaz-Fong, Joel P; Tadayonnejad, Reza; Leuchter, Andrew F; Feusner, Jamie D	September 1, 2021	Not Determined
34112818	Create Study	Visual mapping of body image disturbance in anorexia nervosa reveals objective markers of illness severity.	Scientific reports	Ralph-Nearman, Christina; Arevian, Armen C; Moseman, Scott; Sinik, Megan; Chappelle, Sheridan; Feusner, Jamie D; Khalsa, Sahib S	June 10, 2021	Not Determined
34050267	Create Study	Effects of visual attention modulation on dynamic functional connectivity during own-face viewing in body dysmorphic disorder.	Neuropsychopharmacology : official publication of the American College of Neuropsychopharmacology	Wong, Wan-Wa; Cabral, Joana; Rane, Riddhi; Ly, Ronald; Kringelbach, Morten L; Feusner, Jamie D	October 1, 2021	Not Determined
32875486	Create Study	Brain activation and connectivity in anorexia nervosa and body dysmorphic disorder when viewing bodies: relationships to clinical symptoms and perception of appearance.	Brain imaging and behavior	Moody, Teena D; Morfini, Francesca; Cheng, Gigi; Sheen, Courtney L; Kerr, Wesley T; Strober, Michael; Feusner, Jamie D	June 1, 2021	Not Determined
32154629	Create Study	An overview of the first 5 years of the ENIGMA obsessive-compulsive disorder working group: The power of worldwide collaboration.	Human brain mapping	van den Heuvel, Odile A; Boedhoe, Premika S W; Bertolin, Sara; Bruin, Willem B; Francks, Clyde; Ivanov, Iliyan; Jahanshad, Neda; Kong, Xiang-Zhen; Kwon, Jun Soo; O'Neill, Joseph; Paus, Tomas; Patel, Yash; Piras, Fabrizio; Schmaal, Lianne; Soriano-Mas, Carles; Spalletta, Gianfranco; van Wingen, Guido A; Yun, Je-Yeon; Vriend, Chris; Simpson, H Blair; van Rooij, Daan; Hoexter, Marcelo Q; Hoogman, Martine; Buitelaar, Jan K; Arnold, Paul; Beucke, Jan C; Benedetti, Francesco; Bollettini, Irene; Bose, Anushree; Brennan, Brian P; De Nadai, Alessandro S; Fitzgerald, Kate; Gruner, Patricia; Grünblatt, Edna; Hirano, Yoshiyuki; Huyser, Chaim; James, Anthony; Koch, Kathrin; Kvale, Gerd; Lazaro, Luisa; Lochner, Christine; Marsh, Rachel; Mataix-Cols, David; Morgado, Pedro; Nakamae, Takashi; Nakao, Tomohiro; Narayanaswamy, Janardhanan C; Nurmi, Erika; Pittenger, Christopher; Reddy, Y C Janardhan; Sato, João R; Soreni, Noam; Stewart, S Evelyn; Taylor, Stephan F; Tolin, David; Thomopoulos, Sophia I; Veltman, Dick J; Venkatasubramanian, Ganesan; Walitza, Susanne; Wang, Zhen; Thompson, Paul M; Stein, Dan J; ENIGMA-OCD working group	January 1, 2022	Not Determined

helpcenter.collection.publications-tab

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

How can I determine if a publication is relevant?

Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
Where does the NDA get the publications?

PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

Create Study

A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
Not Determined Publication

Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
Not Relevant Publication

A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
PubMed

PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
PubMed ID

The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
Relevant Publication

A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

Contact NDA Help Desk

Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
Research Subject and Pedigree	160	01/15/2022	133	05/15/2022	89	Approved

To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.

Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
State-Trait Anxiety Inventory for Adults	160	01/15/2022	125	05/15/2022	82	Approved
Montgomery-Asberg Depression Rating Scale	160	01/15/2022	133	05/15/2022	89	Approved
Hamilton Anxiety Rating Scale	160	01/15/2022	133	05/15/2022	89	Approved
Brown Asessment of Beliefs Scale	160	01/15/2022	105	05/15/2022	61	Approved
Dysmorphic Concern Questionnaire	160	01/15/2022	133	05/15/2022	89	Approved
Body Image States Scale	160	01/15/2022	125	05/15/2022	82	Approved

Structure not yet defined

No Status history for this Data Expected has been recorded yet

helpcenter.collection.data-expected-tab

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

What is an NDA Data Structure?

An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
What is the NDA Data Dictionary?

The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

Analyzed Data

Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
Data Item

Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Structure Category

An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
Data Structure Group

A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
Evaluated Data

A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
Imaging Data

Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
Initial Share Date

Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
Initial Submission Date

Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
Research Subject and Pedigree

An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
Submission Cycle

The NDA has two Submission Cycles per year - January 15 and July 15.
Submission Exemption

An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

Contact NDA Help Desk

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameFilter by Study Name	DOIFilter by DOI	AbstractFilter by Abstract	Collection/Study SubjectsFilter by Collection/Study Subjects	Data UsageFilter by Data Usage	StateFilter by State
No records found.

helpcenter.collection.associated-studies-tab

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

How do I associate a study to my collection?

Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

Associated Studies Tab

A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

Contact NDA Help Desk

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