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Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
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Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

ABCD Twin Zygosity Rating

0 Shared Subjects

Ratings by interviewer of twins' physical characteristics and similarity, and estimate of zygosity based on these (not based on genetic data which should be used for accurate zygosity determination).
Clinical Assessments
Phys Characteristics
01/12/2019
abcd_tztab01
10/27/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Recommended The event name for which the data was collected
zyg_ss_fam_no Float Recommended Fam. No.
zyg_ss_rater String 30 Recommended Rater
zyg_ss_age Float Recommended Twin's Age
zyg_ss_consent_photos Integer Recommended Your Twin Consented to Twin Photos? 0 ; 1 1 = Yes; 0 = No
zyg_ss_photos_y_n Integer Recommended Photos taken? 0 ; 1 1 = Yes; 0 = No
zyg_ss_fac Integer Recommended Facial Appearance 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_eye_col Integer Recommended Eye Color 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_cmplxn Integer Recommended Complexion 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_hair_col Integer Recommended Hair color 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_hair_txtr Integer Recommended Hair texture 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_hair_crly Integer Recommended Hair curliness 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_hair_pttrn Integer Recommended Hair pattern 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_hair_amt Integer Recommended Amount of hair 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_ear_app Integer Recommended Ear appearance 0 ; 1 ; 2 ; 3 ; 4 ; 5 0 = 0 Not Observed; 1 = 1 Very similar; 2 = 2; 3 = 3; 4 = 4; 5 = 5 Not at All Similar
zyg_ss_t1_hair_col Integer Recommended Hair color: 0 ; 1 ; 2 ; 3 ; 4 0 = light blond; 1 = blond; 2 = red; 3 = brown; 4 = black
zyg_ss_t1_hair_dark Integer Recommended Hair darkness: 0 ; 1 ; 2 0 = light; 1 = medium; 2 = dark
zyg_ss_t1_hair_txtr Integer Recommended Hair texture: 0 ; 1 ; 2 0 = coarse; 1 = medium; 2 = fine
zyg_ss_t1_hair_amt Integer Recommended Amount of hair: 0 ; 1 ; 2 0 = lots; 1 = some; 2 = little
zyg_ss_t1_hair_type Integer Recommended Hair type: 0 ; 1 ; 2 0 = curly; 1 = wavy; 2 = straight
zyg_ss_t1_eye_col Integer Recommended Eye Color: 0 ; 1 ; 2 ; 3 ; 4 0 = blue; 1 = gray; 2 = green; 3 = hazel; 4 = brown
zyg_ss_t2_hair_col Integer Recommended Hair color: 0 ; 1 ; 2 ; 3 ; 4 0 = light blond; 1 = blond; 2 = red; 3 = brown; 4 = black
zyg_ss_t2_hair_dark Integer Recommended Hair darkness: 0 ; 1 ; 2 0 = light; 1 = medium; 2 = dark
zyg_ss_t2_hair_txtr Integer Recommended Hair texture: 0 ; 1 ; 2 0 = coarse; 1 = medium; 2 = fine
zyg_ss_t2_hair_amt Integer Recommended Amount of hair: 0 ; 1 ; 2 0 = lots; 1 = some; 2 = little
zyg_ss_t2_hair_type Integer Recommended Hair type: 0 ; 1 ; 2 0 = curly; 1 = wavy; 2 = straight
zyg_ss_t2_eye_col Integer Recommended Eye Color: 0 ; 1 ; 2 ; 3 ; 4 0 = blue; 1 = gray; 2 = green; 3 = hazel; 4 = brown
zyg_ss_r1_judgement Integer Recommended Rating: 1 ; 2 1 = DZ; 2 = MZ
zyg_ss_twin2_pguid String 20 Recommended Co-Twin's pGUID: Copy and pasted from REDCap by RAs
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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