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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Behavioral Inflexibility Scale

1,407 Shared Subjects

N/A
Clinical Assessments
Behavior
12/17/2018
bflex01
04/28/2020
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
bflex01 Integer Recommended My child resists having to change the way he usually does things 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex02 Integer Recommended My child takes a long time to get comfortable in new situations 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex03 Integer Recommended My child gets suck on particular activities or topics 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex04 Integer Recommended My family must instruct others how to interact with my child because he is so rigid 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex05 Integer Recommended My child insists on eating certain foods at mealtimes 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex06 Integer Recommended My child dislikes changes to his surroundings 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex07 Integer Recommended My child has trouble coming up with new ways of doing things even when the situation calls for it 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex08 Integer Recommended My child has difficulty transitioning between activities 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex09 Integer Recommended My child can be hard to redirect from things he is doing 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex10 Integer Recommended My family limits community outings because my child is rigid 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex11 Integer Recommended My child dislikes changes in the appearance of others who are around him 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex12 Integer Recommended My child is "rule-driven" or "rule-bound 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex13 Integer Recommended My child has difficulty interacting with peers because he insists that the interaction go a certain way 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex14 Integer Recommended My family changes the way we do things to avoid disrupting my child's routine 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex15 Integer Recommended My child reacts negatively when unexpected things happen 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex16 Integer Recommended My child insists we use specific routes when we go places 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex17 Integer Recommended My child becomes upset if you interrupt what he is doing 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex18 Integer Recommended My family needs extra time to get things done because my child must do things in a specific order 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex19 Integer Recommended My child insists that certain items or objects are available to him 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex20 Integer Recommended My child needs things to remain the same 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex21 Integer Recommended My child is reluctant to try new things 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex22 Integer Recommended My child prefers to do things the same way even if we show him an easier way to do something 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex23 Integer Recommended My child has trouble tolerating changes in the daily routine 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex24 Integer Recommended My child has to keep things in the same place 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex25 Integer Recommended My family avoids trying new things because my child tends to react negatively 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex26 Integer Recommended My child is bothered by changes in plans 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex27 Integer Recommended My child has trouble leaving play or leisure activities before he is able to finish them 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex28 Integer Recommended My child insists that other people play in a certain way 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex29 Integer Recommended My child insists on wearing certain items of clothing 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex30 Integer Recommended My child wants to complete specific routines or rituals 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex31 Integer Recommended My child has rigid or routine ways that he engages in play or leisure activities 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex32 Integer Recommended My child gets upset by changes that seem minor to others 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex33 Integer Recommended My child prefers to stick with one topic or activity even when it is clear that others are not interested 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex34 Integer Recommended My family has to maintain a consistent routine because that is what my child requires 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex35 Integer Recommended My child seems to have a very particular way of doing most things 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex36 Integer Recommended My child insists that the order of events or activities stay the same 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex37 Integer Recommended My child dislikes when things are unpredictable 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bflex38 Integer Recommended My child has trouble tolerating new experiences 0::5 0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
bissum Integer Recommended BIS Sum Score
biscifreq Integer Recommended Frequency score 0::4;999
bisciinth Integer Recommended Interference at home score 0::4;999
bisciints Integer Recommended Interference with social relationships score 0::4;999
bisciinta Integer Recommended Interference with activities away from home score 0::4;999
bisciacco Integer Recommended Accomodation score 0::4;999
bisciavoi Integer Recommended Avoidance score 0::4;999
biscidist Integer Recommended Child distress score 0::4;999
bisciscor Integer Recommended Overall score 0::28;999
respondent String 20 Recommended Respondent Mother;Father;Both;Other;Parent;Teacher;Child
race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
otherrace String 100 Recommended specify other race The following questions are about you or the child's family.
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
informant_gender String 5 Recommended Sex of the respondent M; F M = Male; F = Female
sub_changes Integer Recommended If T1a or T2, has a significant change in circumstance (education placement, moving, family event) occurred since last interview? 0;1 0= No; 1= Yes
bisci2_1 Integer Recommended How often does s/he engage in these kind of behaviors? 0::4;999 0=Behavior occurs monthly (or less than once a month); 1= Occurs weekly; 2=Occurs several times per week; 3=Occurs daily; 4=Occurs hourly; 999=Missing or not reported
bisci2_2 Integer Recommended How often do these behaviors affect his/her ability to accomplish daily activities or tasks at home (or where s/he lives) (e.g., completing homework assignments, getting dressed, eating meals together as a family, etc.)? 0::4;999 0=No interference with daily activities; 1=Rarely interferes with daily activities; 2=Sometimes interferes with daily activities; 3=Most of the time interferes with daily activities; 4=Almost always interferes with daily activities; 999=Missing or not reported
bisci2_3 Integer Recommended How often do these types of behaviors affect his/her ability to interact with adults, peers or siblings? 0::4;999 0=No impact on social relationships; 1=Rarely affects the child's ability to relate to adult OR peers/siblings; 2=Sometimes affects the child's ability to relate to adults OR peers/siblings; 3=Most of the time affects the child's ability to relate to adults OR peers/siblings; 4=Almost always affects the child's ability to relate to adults AND peers/siblings; 999=Missing or not reported
bisci2_4 Integer Recommended How often do these behaviors occur in other contexts, such as at school or in the community? 0::4;999 0=Behavior only occurs at home; 1=Rarely occurs at school OR in community settings; 2=Sometimes occurs at school OR in community settings; 3=Most of the time occurs at school OR in community settings; 4=Almost always occurs at school AND in community settings; 999=Missing or not reported
bisci2_5 Integer Recommended How often do you or other members of your family have to change the way you typically do things because of these kinds of behaviors? 0::4;999 0=No accommodation needed; 1=Rarely has to change things; 2=Sometimes has to change things; 3=Most of the time has to change things; 4=Almost always has to change things; 999=Missing or not reported
bisci2_6 Integer Recommended How often has your child had to avoid certain things, or going certain places, because of these behaviors? 0::4;999 0=Does not avoid any situations; 1=Rarely has to avoid certain activities/events/occasions; 2=Sometimes has to avoid certain activities/events/occasions; 3=Most of the time has to avoid certain activities/events/occasions; 4=Almost always has to avoid certain activities/events/occasions; 999=Missing or not reported
bisci2_7 Integer Recommended How often does your child become distressed when s/he can?t engage in these types of behaviors? 0::4;999 0=No child distress; 1=Rarely becomes distressed; 2=Sometimes becomes distressed; 3=Most of the time becomes distressed; 4=Almost always becomes distressed; 999=Missing or not reported
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.