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subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
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Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
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Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
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Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
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Required |
Sex of subject at birth |
M;F; O; NR
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M = Male; F = Female; O=Other; NR = Not reported
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gender |
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bflex01 |
Integer |
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Recommended |
My child resists having to change the way he usually does things |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex02 |
Integer |
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Recommended |
My child takes a long time to get comfortable in new situations |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex03 |
Integer |
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Recommended |
My child gets suck on particular activities or topics |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex04 |
Integer |
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Recommended |
My family must instruct others how to interact with my child because he is so rigid |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex05 |
Integer |
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Recommended |
My child insists on eating certain foods at mealtimes |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex06 |
Integer |
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Recommended |
My child dislikes changes to his surroundings |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex07 |
Integer |
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Recommended |
My child has trouble coming up with new ways of doing things even when the situation calls for it |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex08 |
Integer |
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Recommended |
My child has difficulty transitioning between activities |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex09 |
Integer |
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Recommended |
My child can be hard to redirect from things he is doing |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex10 |
Integer |
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Recommended |
My family limits community outings because my child is rigid |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex11 |
Integer |
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Recommended |
My child dislikes changes in the appearance of others who are around him |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex12 |
Integer |
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Recommended |
My child is "rule-driven" or "rule-bound |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex13 |
Integer |
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Recommended |
My child has difficulty interacting with peers because he insists that the interaction go a certain way |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex14 |
Integer |
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Recommended |
My family changes the way we do things to avoid disrupting my child's routine |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex15 |
Integer |
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Recommended |
My child reacts negatively when unexpected things happen |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex16 |
Integer |
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Recommended |
My child insists we use specific routes when we go places |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex17 |
Integer |
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Recommended |
My child becomes upset if you interrupt what he is doing |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex18 |
Integer |
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Recommended |
My family needs extra time to get things done because my child must do things in a specific order |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex19 |
Integer |
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Recommended |
My child insists that certain items or objects are available to him |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex20 |
Integer |
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Recommended |
My child needs things to remain the same |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex21 |
Integer |
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Recommended |
My child is reluctant to try new things |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex22 |
Integer |
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Recommended |
My child prefers to do things the same way even if we show him an easier way to do something |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex23 |
Integer |
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Recommended |
My child has trouble tolerating changes in the daily routine |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex24 |
Integer |
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Recommended |
My child has to keep things in the same place |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex25 |
Integer |
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Recommended |
My family avoids trying new things because my child tends to react negatively |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex26 |
Integer |
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Recommended |
My child is bothered by changes in plans |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex27 |
Integer |
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Recommended |
My child has trouble leaving play or leisure activities before he is able to finish them |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex28 |
Integer |
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Recommended |
My child insists that other people play in a certain way |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex29 |
Integer |
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Recommended |
My child insists on wearing certain items of clothing |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex30 |
Integer |
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Recommended |
My child wants to complete specific routines or rituals |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex31 |
Integer |
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Recommended |
My child has rigid or routine ways that he engages in play or leisure activities |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex32 |
Integer |
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Recommended |
My child gets upset by changes that seem minor to others |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex33 |
Integer |
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Recommended |
My child prefers to stick with one topic or activity even when it is clear that others are not interested |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex34 |
Integer |
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Recommended |
My family has to maintain a consistent routine because that is what my child requires |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex35 |
Integer |
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Recommended |
My child seems to have a very particular way of doing most things |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex36 |
Integer |
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Recommended |
My child insists that the order of events or activities stay the same |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex37 |
Integer |
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Recommended |
My child dislikes when things are unpredictable |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bflex38 |
Integer |
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Recommended |
My child has trouble tolerating new experiences |
0::5
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0= Not at all a problem; 1= Very Mild Problem; 2= Mild Problem; 3= Moderate Problem; 4= Severe Problem; 5= Very Severe Problem or Extreme Problem
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bissum |
Integer |
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Recommended |
BIS Sum Score |
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biscifreq |
Integer |
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Recommended |
Frequency score |
0::4;999
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bisciinth |
Integer |
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Recommended |
Interference at home score |
0::4;999
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bisciints |
Integer |
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Recommended |
Interference with social relationships score |
0::4;999
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bisciinta |
Integer |
|
Recommended |
Interference with activities away from home score |
0::4;999
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bisciacco |
Integer |
|
Recommended |
Accomodation score |
0::4;999
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bisciavoi |
Integer |
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Recommended |
Avoidance score |
0::4;999
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biscidist |
Integer |
|
Recommended |
Child distress score |
0::4;999
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bisciscor |
Integer |
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Recommended |
Overall score |
0::28;999
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respondent |
String |
20
|
Recommended |
Respondent |
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
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race |
String |
30
|
Recommended |
Race of study subject |
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
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otherrace |
String |
100
|
Recommended |
specify other race |
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The following questions are about you or the child's family.
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comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
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informant_gender |
String |
5
|
Recommended |
Sex of the respondent |
M; F
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M = Male; F = Female
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sub_changes |
Integer |
|
Recommended |
If T1a or T2, has a significant change in circumstance (education placement, moving, family event) occurred since last interview? |
0;1
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0= No; 1= Yes
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bisci2_1 |
Integer |
|
Recommended |
How often does s/he engage in these kind of behaviors? |
0::4;999
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0=Behavior occurs monthly (or less than once a month); 1= Occurs weekly; 2=Occurs several times per week; 3=Occurs daily; 4=Occurs hourly; 999=Missing or not reported
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bisci2_2 |
Integer |
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Recommended |
How often do these behaviors affect his/her ability to accomplish daily activities or tasks at home (or where s/he lives) (e.g., completing homework assignments, getting dressed, eating meals together as a family, etc.)? |
0::4;999
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0=No interference with daily activities; 1=Rarely interferes with daily activities; 2=Sometimes interferes with daily activities; 3=Most of the time interferes with daily activities; 4=Almost always interferes with daily activities; 999=Missing or not reported
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bisci2_3 |
Integer |
|
Recommended |
How often do these types of behaviors affect his/her ability to interact with adults, peers or siblings? |
0::4;999
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0=No impact on social relationships; 1=Rarely affects the child's ability to relate to adult OR peers/siblings; 2=Sometimes affects the child's ability to relate to adults OR peers/siblings; 3=Most of the time affects the child's ability to relate to adults OR peers/siblings; 4=Almost always affects the child's ability to relate to adults AND peers/siblings; 999=Missing or not reported
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bisci2_4 |
Integer |
|
Recommended |
How often do these behaviors occur in other contexts, such as at school or in the community? |
0::4;999
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0=Behavior only occurs at home; 1=Rarely occurs at school OR in community settings; 2=Sometimes occurs at school OR in community settings; 3=Most of the time occurs at school OR in community settings; 4=Almost always occurs at school AND in community settings; 999=Missing or not reported
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bisci2_5 |
Integer |
|
Recommended |
How often do you or other members of your family have to change the way you typically do things because of these kinds of behaviors? |
0::4;999
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0=No accommodation needed; 1=Rarely has to change things; 2=Sometimes has to change things; 3=Most of the time has to change things; 4=Almost always has to change things; 999=Missing or not reported
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bisci2_6 |
Integer |
|
Recommended |
How often has your child had to avoid certain things, or going certain places, because of these behaviors? |
0::4;999
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0=Does not avoid any situations; 1=Rarely has to avoid certain activities/events/occasions; 2=Sometimes has to avoid certain activities/events/occasions; 3=Most of the time has to avoid certain activities/events/occasions; 4=Almost always has to avoid certain activities/events/occasions; 999=Missing or not reported
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bisci2_7 |
Integer |
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Recommended |
How often does your child become distressed when s/he can?t engage in these types of behaviors? |
0::4;999
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0=No child distress; 1=Rarely becomes distressed; 2=Sometimes becomes distressed; 3=Most of the time becomes distressed; 4=Almost always becomes distressed; 999=Missing or not reported
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