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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Demographics and Medical History

548 Shared Subjects

Defined by Dr Sukhodolsky lab at Yale Child Study Center
Clinical Assessments
Demographics
01/12/2015
demrdoc01

View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project bid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field interviewyear
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. dema1
sex String 20 Required Sex of the subject
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported dema2, gender
Query respondent String 20 Recommended Respondent
Mother;Father;Both;Other;Parent;Teacher;Child
respondent_other_specify String 50 Recommended Respondent: Other (specify)
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Query handedness String 29 Required handedness
R;L;B;999
R = Right; L = Left; B = Both
Query motherocccat Integer Recommended Mother's occupation 1::10; 999 1=homemaker, 2=laborer, 3=clerical, 4=craftsman or artist, 5=technical, 6=professional, 7=farmer, 8=self-employed, 9=other(mother specify), 10=other (father)
Query momoccuc String 100 Recommended mother's current occupation motherocc_notes
Query fatherocccat Integer Recommended Father's occupation 1::10; 999 1=homemaker, 2=laborer, 3=clerical, 4=craftsman or artist, 5=technical, 6=professional, 7=farmer, 8=self-employed, 9=other(mother specify), 10=other (father)
Query fatherocup String 100 Recommended Father' occupation fatherocc_notes
Query mothered Integer Recommended Mother's years of education 1::5; 999 1=partial high school, 2=high school degree, 3=technical school/partial college, 4=college degree, 5=graduate school degree
motheredu_specify1 String 100 Recommended Mother Other education= specify mothered_notes
Query fathered Integer Recommended Father's years of education 1::5; 999 1=partial high school, 2=high school degree, 3=technical school/partial college, 4=college degree, 5=graduate school degree
fatheredu_specify1 String 200 Recommended Father Other education= specify fathered_notes
Query demo_siblingscount Integer Recommended Number of siblings 888 = not applicable; 999 = missing siblings
Query otherchildren Integer Recommended Number of children living with participant (include adopted and step siblings)
Query living Integer Recommended Living arrangements 1::4; 999 1=lives with both parents (same residence), 2=lives with both parents (different residence), 3=lives with one parent, 4= other
Query living_notes String 255 Recommended Living arrangements (specify)
Query lifedx_peri_1 Integer Recommended 1. Perinatal insult or serious neonatal illness (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_pulm_2 Integer Recommended 2. Pulmonary (including asthma) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_cardio_3 Integer Recommended 3. Cardiovascular (including high blood pressure) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga3, mhxa4, mxha19
Query lifedx_heart_4 Integer Recommended 4. Heart Murmur (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_renal_5 Integer Recommended 5. Renal (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga7, mhxa8
Query lifedx_hepatic_6 Integer Recommended 6. Hepatic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga6, mhxa7
Query lifedx_gi_7 Integer Recommended 7. Gastrointestinal (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga5, mhxa6
Query lifedx_endo_8 Integer Recommended 8. Endocrine/Metabolic (including diabetes) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga10, mhxa11
Query lifedx_opth_9 Integer Recommended 9. Ophthalmologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_derm_10 Integer Recommended 10. Dermatologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga8, mhxa9
Query lifedx_neuro_11 Integer Recommended 11. Neurologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga1, mhxa2, mxha23
Query lifedx_head_12 Integer Recommended 12. Head Injury (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_migr_13 Integer Recommended 13. Migraine Headaches (diagnosed) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_uro_14 Integer Recommended 14. Urologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_gyn_15 Integer Recommended 15. Gynecologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_psych_16 Integer Recommended 16. Psychiatric (known previous diagnosis) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_surg_17 Integer Recommended 17. Major Surgeries (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_allg_18 Integer Recommended 18. Allergies (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga12, mhxa14
Query lifedx_musc_19 Integer Recommended 19. Musculoskeletal (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga9, mhxa10
Query lifedx_enceph_20 Integer Recommended 20. Encephalitis (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_mening_21 Integer Recommended 21. Meningitis (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data lifedx_22_comments
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query fseqno Integer Recommended Sequence Number 0::999 The FSEQNO variable in the ADJ form has a special interpretation compared to other forms. For example, ADJ FSEQNO of '1' can be thought of as being '001', FSEQNO of '2' can be thought of as being '002', and FSEQNO of '3' can be thought of as being '003'. The first digit of FSEQNO relates to the corresponding ENF sequence number at that visit and the third digit relates to the specific adjudicator who completed the adjudication form.
Query visday Integer Recommended Number of days from study baseline to date of visit mdga0b, mhxa0b
Query mdga2 Integer Recommended Eye, Ears, Nose or Throat 0;1 1=Yes; 0=No mhxa3
Query othresp Integer Recommended Other respiratory abnormality 1;2 1=No; 2=Yes mdga4, mhxa5
Query hi_7e Integer Recommended Past two years. Osteoporosis 0;1 0=No; 1=Yes mdga9a, mhxa11a
Query baseline_k_005 Integer Recommended Has she/he ever been to a doctor for any of these things…Diabetes /Diabetes 0;1; -888; -999;-7 0=No; 1=Yes; -888=Not Applicable; -999=Missing/NK; -7=Refused //Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life. mdga10a
Query mdga10b Integer Recommended If Yes, now on insulin 0;1 1=Yes; 0=No mhxa11b
Query mdga10c Integer Recommended Is patient now on oral hypoglycemic agent 0;1 1=Yes; 0=No mhxa11c
Query mdga11 Integer Recommended Hematologic 0;1 1=Yes; 0=No mhxa12
Query hi_11l Integer Recommended Past two years. HIV Positive or AIDS 0;1 0=No; 1=Yes mdga13, mxha15
Query mdga14 Integer Recommended Other 0;1 1=Yes; 0=No
version_form String 121 Recommended Form used/assessment name
Query mhxa1a Integer Recommended Is the patient entering the study in an exacerbated state (i.e. current psychiatric hospitalization, crisis intervention, or increase in medication)? 0;1 1=Yes; 0=No
Query mhxa1b Integer Recommended Date crisis resolved (physician determination):
Query mhxa13 String 20 Recommended Drug induced leukopenia/neutropenia A;P;N A=Yes Active; P=Yes Past; N=No
Query mxha16 String 20 Recommended Other A;P;N A=Yes Active; P=Yes Past; N=No
Query mxha17 String 20 Recommended General Appearance/Skin A;N A=Abnormal; N=Normal
Query mxha18 String 20 Recommended HEENT A;N A=Abnormal; N=Normal
Query mxha20 String 20 Recommended Chest A;N A=Abnormal; N=Normal
Query abdompan Integer Recommended abdominal pain 0;1;-7 0=No; 1=Yes; -7=Refused mxha21
Query mxha22 String 20 Recommended Extremities/Joints A;N A=Abnormal; N=Normal
allergies String 300 Recommended allergies
Query smoker Integer Recommended Smoker? 0;1; 9 0=No; 1=Yes; 9=NK/missing
Query start_smoke String 50 Recommended Start date of smoking (MM/YY) If unknown, describe briefly
Query cig_smoke String 200 Recommended The amount of cigarettes you smoke and ages you have smoked
otherrace String 100 Recommended specify other race The following questions are about you or the child's family.
Query diagnosis_majorpsy String 50 Recommended Major psychiatric Axis I diagnosis
Query diagnosis_psycom String 50 Recommended Psychiatric comorbid diagnoses
Query diagnosis_medcom String 500 Recommended Medical comorbid diagnoses
Query asaps01g Integer Recommended Suicide attempt 0;1 0 = No;1 = Yes
Query sub_use_disorder Integer Recommended Substance Use Disorder 0::4 0=None; 1=Current; 2=Past; 3=Both Current and Lifetime; 4=Lifetime
Query findrisc_8 Integer Recommended Have any members of your patient's immediate family or other relatives (only blood relatives) been diagnosed with diabetes (type 1 or type 2)? 0;3;5 0=No; 3=Yes; grandparent, aunt, uncle, or first cousin; 5=Yes: parent, brother, sister, or own child
Query visit String 60 Recommended Visit name
Query site String 101 Recommended Site Study Site
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.