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Education and Treatment Services

328 Shared Subjects

N/A
Clinical Assessments
Treatment
12/02/2019
ed_tx01
06/23/2023
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subnum
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY idate, sdate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
prompt Integer Recommended Has the child received or is he/she currently receiving any non-medical treatments such as therapy, behavior modification, early intervention, etc. (that have not already reported to study staff)? 0;1 0= No; 1= Yes
treat_num Integer Recommended Number of Treatments used during study participation
treatment_type Integer Recommended Type of Treatment 1::15; 97 1 = Counseling: family, child, or parent; 2 = Parent Training; 3 = ABA school; 4 = Tutoring; 5 = Neurofeedback; 6 = Music/Audio Therapy; 7 = Sensory Integration Therapy; 8 = Play Therapy/Floor time (DIR); 9 = Animal Therapy; 10 = Gluten Free/Cassein Free Diet; 11 = Hyperbaric Oxygen Treatment; 12 = Relationship Development; 13 = Speech Therapy; 14 = Occupational Therapy; 15 = Physical Therapy; 97 = Other
freq_treat Integer Recommended Frequency of Treatment 1::5; 97 1 = Daily; 2 = Weekly; 3 = Twice a Month; 4 = Monthly; 5 = Every Other Month; 97 = Other (Please Specific in Comments Section)
discontinuation Integer Recommended Reason treatment discontinued 1::6;97 1 = Lack of Efficacy; 2 = Intervention Completed Successfully; 3 = Financial Impediments; 4 = Accessibility Impediments; 5 = Dislike of Therapist/Therapy; 6 = No Longer Needed; 97 = Other (Please Specify in Comments Section)
tx_start_date Date Recommended Treatment start date
tx_end_date Date Recommended Treatment end date
continuing Integer Recommended Treatment not ended? 0;1 0= Unchecked; 1= Checked
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
session Integer Recommended Session
validity String 13 Recommended Validity rating Yes;No;Questionnable
site String 101 Recommended Site Study Site
resp_source Integer Recommended Respondent Source 1::6 1= subject; 2= parent; 3= clinician; 4= teacher; 5= trainer; 6= fidelity reviewer source
c_oth_cond_02 Integer Recommended Does this child have any of the following? Serious difficulty walking or climbing stairs. 0;1 0= No; 1= Yes other_cond_02
c_school_type_01 Integer Recommended What kind of school is this? (Childs Current Educational Setting) Public school 0;1 0= No; 1= Yes school_type_01
c_school_type_02 Integer Recommended What kind of school is this? (Childs Current Educational Setting) Charter school 0;1 0= No; 1= Yes school_type_02
c_school_type_03 Integer Recommended What kind of school is this? (Childs Current Educational Setting) Private school 0;1 0= No; 1= Yes school_type_03
c_school_type_04 Integer Recommended What kind of school is this? (Childs Current Educational Setting) In-home schooling/home-school 0;1 0= No; 1= Yes school_type_04
c_school_type_05 Integer Recommended What kind of school is this? (Childs Current Educational Setting) Residential school 0;1 0= No; 1= Yes school_type_05
c_school_type_06 Integer Recommended What kind of school is this? (Childs Current Educational Setting) Institutional setting (e.g., hospital) 0;1 0= No; 1= Yes school_type_06
c_school_type_07 Integer Recommended What kind of school is this? (Childs Current Educational Setting) Other (describe) 0;1 0= No; 1= Yes school_type_07
c_school_type_oth Integer Recommended Other, Kind of School, please describe school_type_other
c_class_size Integer Recommended How many children are in the classroom?? Number of Children class_size
c_class_type_01 Integer Recommended What kind of classroom is your child in? Full inclusion/general education/regular classroom (same classroom all day) 0;1 0= No; 1= Yes class_type_01
c_oth_cond_03 Integer Recommended Does this child have any of the following? Difficulty dressing or bathing. 0;1 0= No; 1= Yes other_cond_03
c_class_type_02 Integer Recommended What kind of classroom is your child in? Partial inclusion- in a regular classroom but is sometimes pulled out for special learning opportunities (e.g., resource room) 0;1 0= No; 1= Yes class_type_02
c_class_type_03 Integer Recommended What kind of classroom is your child in? Self-contained or substantially separate classroom with special education students 0;1 0= No; 1= Yes class_type_03
c_class_type_04 Integer Recommended What kind of classroom is your child in? Autism classroom or ABA classroom-special education classroom with children who require services for autism or require ABA 0;1 0= No; 1= Yes class_type_04
c_class_type_05 Integer Recommended What kind of classroom is your child in? Language-based classroom (smaller ratio of students in the class) 0;1 0= No; 1= Yes class_type_05
c_class_type_06 Integer Recommended What kind of classroom is your child in? Other 0;1 0= No; 1= Yes class_type_06
c_class_type_oth String 250 Recommended Other class type, please describe:? class_type_other
c_para_prof Integer Recommended Does your child have a 1-1 aide or paraprofessional? 0 :: 2 0= No; 1= Yes; 2= Other para_prof
c_para_prof_oth String 250 Recommended Other, paraprofessional, please describe para_prof_other
c_out_special_serv Integer Recommended Does your child leave the classroom to receive any special services? 0;1 0= No; 1= Yes out_special_serv
c_special_serv_out_class String 250 Recommended If yes, specify special services? special_serv_out_class
c_oth_cond_04 Integer Recommended Does this child have any of the following? Deafness or problems with hearing. 0;1 0= No; 1= Yes other_cond_04
c_com_serv Integer Recommended Since your child turned 3, have they EVER received any home-based or community services, not including school services? 0;1 0= No; 1= Yes comm_serv
c_com_serv_desc String 250 Recommended If yes, to any home-based or community services, please list them comm_serv_desc
c_com_serv_now Integer Recommended Are they currently receiving this/these service(s)? 0;1 0= No; 1= Yes comm_serv_now
c_pa_com_serv Integer Recommended Did your child receive these services in (current state)? 0;1 0= No; 1= Yes pa_comm_serv
c_aba Integer Recommended Ever receive Insurance-funded Applied Behavior Analysis (ABA) 0;1 0= No; 1= Yes aba
c_pa_aba Integer Recommended Ever receive Insurance-funded Applied Behavior Analysis (ABA) in (current state) 0;1 0= No; 1= Yes pa_aba
c_aba_now Integer Recommended Currently receive Insurance-funded Applied Behavior Analysis (ABA) 0;1 0= No; 1= Yes aba_now
c_pa_aba_now Integer Recommended Currently receive Insurance-funded Applied Behavior Analysis (ABA) in (current state) 0;1 0= No; 1= Yes pa_aba_now
c_waiver Integer Recommended Ever receive Autism Waiver 0;1 0= No; 1= Yes waiver
c_waiver_now Integer Recommended Currently receive Autism Waiver 0;1 0= No; 1= Yes waiver_now
c_oth_cond_05 Integer Recommended Does this child have any of the following? Blindness or problems with seeing, even when wearing glasses. 0;1 0= No; 1= Yes other_cond_05
c_cbhi Integer Recommended Ever receive Children's Behavior Health Initiative (CBHI): 0;1 0= No; 1= Yes cbhi
c_cbhi_now Integer Recommended Currently receive Children's Behavior Health Initiative (CBHI): 0;1 0= No; 1= Yes cbhi_now
c_iht Integer Recommended Ever receive In-home therapy (IHT), (family therapy at home) 0;1 0= No; 1= Yes iht
c_iht_now Integer Recommended Currently receive In-home therapy (IHT), (family therapy at home) 0;1 0= No; 1= Yes iht_now
c_outpt Integer Recommended Ever receive Outpatient therapy (individual therapy in an office or virtual) 0;1 0= No; 1= Yes outpt
c_outpt_now Integer Recommended Currently receive Outpatient therapy (individual therapy in an office or virtual) 0;1 0= No; 1= Yes outpt_now
c_icc Integer Recommended Ever receive Intensive Care Coordination (ICC) 0;1 0= No; 1= Yes icc
c_icc_now Integer Recommended Currently receive Intensive Care Coordination (ICC) 0;1 0= No; 1= Yes icc_now
c_tm Integer Recommended Ever receive Therapeutic Mentoring (TM) 0;1 0= No; 1= Yes tm
c_tm_now Integer Recommended Currently Therapeutic Mentoring (TM) 0;1 0= No; 1= Yes tm_now
c_beh_prob Integer Recommended Has a doctor or other health care provider EVER told you that this child has behavioral or conduct problems?? 0;1 0= No; 1= Yes beh_prob
c_fp Integer Recommended Ever receive Family Support and Training (Family Partners) 0;1 0= No; 1= Yes fp
c_fp_now Integer Recommended Currently receive Family Support and Training (Family Partners) 0;1 0= No; 1= Yes fp_now
c_ihbs Integer Recommended Ever receive In-Home Behavior Health Services (IHBS) 0;1 0= No; 1= Yes ihbs
c_ihbs_now Integer Recommended Currently receive In-Home Behavior Health Services (IHBS) 0;1 0= No; 1= Yes ihbs_now
c_mci Integer Recommended Ever receive Have you had to access Mobile Crisis Intervention (MCI) 0;1 0= No; 1= Yes mci
c_mci_now Integer Recommended Currently receive Have you had to access Mobile Crisis Intervention (MCI) 0;1 0= No; 1= Yes mci_now
c_dds Integer Recommended Ever receive Department of Developmental Services (DDS)? 0;1 0= No; 1= Yes dds
c_dds_now Integer Recommended Currently receive Department of Developmental Services (DDS) 0;1 0= No; 1= Yes dds_now
c_skills_group Integer Recommended Ever receive Social skills group 0;1 0= No; 1= Yes skills_group
c_skills_group_now Integer Recommended Currently receive Social skills group 0;1 0= No; 1= Yes skills_group_now
c_beh_now Integer Recommended If yes, does this child CURRENTLY have the condition (behavioral or conduct problems)? 0;1 0= No; 1= Yes beh_now
c_speech_thrpy Integer Recommended Ever receive Speech therapy ? 0;1 0= No; 1= Yes speech_therapy
c_speech_thrpy_now Integer Recommended Currently receive Speech therapy ? 0;1 0= No; 1= Yes speech_therapy_now
c_ot Integer Recommended Ever receive Occupational Therapy ? 0;1 0= No; 1= Yes ot
c_ot_now Integer Recommended Currently receive Occupational Therapy ? 0;1 0= No; 1= Yes ot_now
c_pt Integer Recommended Ever receive Physical Therapy 0;1 0= No; 1= Yes pt
c_pt_now Integer Recommended Currently receive Physical Therapy 0;1 0= No; 1= Yes pt_now
c_oth_com_serv_yes Integer Recommended Ever receive Other community service 0;1 0= No; 1= Yes other_comm_serv_yes
c_pa_oth_com_serv_yes Integer Recommended Ever receive Other community service in (current state). 0;1 0= No; 1= Yes pa_other_comm_serv_yes
c_oth_com_serv_now Integer Recommended Currently receiving Other community service 0;1 0= No; 1= Yes other_comm_serv_now
c_pa_oth_com_serv_now Integer Recommended Currently receiving Other community service in (current state). 0;1 0= No; 1= Yes pa_other_comm_serv_now
c_beh_severity Integer Recommended If yes, is it (behavioral or conduct problems): 1 :: 3 1= Mild; 2= Moderate; 3= Severe beh_severity
c_oth_com_serv_hrs Integer Recommended Number of hrs received of other community service Number of Hours other_comm_serv_hrs
c_pa_oth_com_serv_hrs Integer Recommended Number of hrs received of other community service in (current state). Number of Hours pa_other_comm_serv_hrs
c_aba_hrs Integer Recommended ABA; Number of hours Number of Hours aba_hrs
c_pa_aba_hrs Integer Recommended ABA; Number of hours in (current state) Number of Hours pa_aba_hrs
c_waiver_hrs Integer Recommended Autism waiver; Number of hours Number of Hours waiver_hrs
c_iht_hrs String 50 Recommended In-home therapy (IHT), (family therapy at home) how often? iht_hrs
c_outpt_hrs String 50 Recommended Outpatient therapy (individual therapy in an office or virtual), how often? outpt_hrs
c_ihbs_hrs Integer Recommended In-Home Behavior Health Services (IHBS), Number of hours. Number of Hours ihbs_hrs
c_mci_when String 50 Recommended Access Mobile Crisis Intervention (MCI)??When? Date mci_when
c_pa_med Integer Recommended Ever received Medical Assistance/Medicaid Insurance in (current state). 0;1 0= No; 1= Yes pa_med
c_dd Integer Recommended Has a doctor or other health care provider EVER told you that this child has developmental delay?? 0;1 0= No; 1= Yes dd
c_pa_med_now Integer Recommended Currently receive Medical Assistance/Medicaid Insurance in (current state). 0;1 0= No; 1= Yes pa_med_now
c_pa_wrap Integer Recommended Ever receive Wraparound Services (BSC, TSS, Mobile Therapy) in (current state). 0;1 0= No; 1= Yes pa_wrap
c_pa_wrap_now Integer Recommended Currently receive Wraparound Services (BSC, TSS, Mobile Therapy) in (current state). 0;1 0= No; 1= Yes pa_wrap_now
c_pa_wrap_hrs Integer Recommended Wraparound Services (BSC, TSS, Mobile Therapy) Number of hours in (current state). Number of Hours pa_wrap_hrs
c_pa_ibhs Integer Recommended Ever receive Intensive Behavioral Health Services (IBHS) in (current state). 0;1 0= No; 1= Yes pa_ibhs
c_pa_ibhs_now Integer Recommended Currently receive Intensive Behavioral Health Services (IBHS) in (current state). 0;1 0= No; 1= Yes pa_ibhs_now
c_pa_ibhs_hrs Integer Recommended Intensive Behavioral Health Services (IBHS) Number of hours in (current state). Number of Hours pa_ibhs_hrs
c_pa_casemgt Integer Recommended Ever receive Case Management Services in (current state). 0;1 0= No; 1= Yes pa_casemgt
c_pa_casemgt_now Integer Recommended Currently receive Case Management Services in (current state). 0;1 0= No; 1= Yes pa_casemgt_now
c_pa_casemgt_hrs Integer Recommended Case Management Services Number of hours in (current state). Number of Hours pa_casemgt_hrs
c_dd_now Integer Recommended If yes, does this child CURRENTLY have the condition (developmental delay)? 0;1 0= No; 1= Yes dd_now
c_com_serv_sat Integer Recommended How satisfied are you with these outside-of-school services? 1 :: 5 1= Very unsatisfied; 2= Unsatisfied; 3= Neutral; 4= Satisfied; 5= Very satisfied comm_serv_sat
c_covid_serv Integer Recommended How were your childs services affected by COVID-19? 1 :: 4 1= They were Not affected at all; 2= They were affected a little bit (stopped briefly, or modified a bit); 3= They were moderately affected; 4= They were severely affected (they were very limited or were stopped for a long time, etc.) covid_serv
c_covid_learn Integer Recommended How was your childs learning and development affected by COVID-19? 1 :: 4 1= Not at all - my childs learning was about the same during COVID-19 as it was before.; 2= A little; 3= Somewhat; 4= Very Much covid_learn
c_dd_severity Integer Recommended If yes, is it (developmental delay): 1 :: 3 1= Mild; 2= Moderate; 3= Severe dd_severity
c_int_dis Integer Recommended Has a doctor or other health care provider EVER told you that this child has intellectual disability?? 0;1 0= No; 1= Yes int_dis
c_int_dis_now Integer Recommended If yes, does this child CURRENTLY have the condition (intellectual disability)? 0;1 0= No; 1= Yes int_dis_now
c_int_dis_severity Integer Recommended If yes, is it (intellectual disability): 1 :: 3 1= Mild; 2= Moderate; 3= Severe int_dis_severity
c_speech Integer Recommended Has a doctor or other health care provider EVER told you that this child has speech or other language disorder?? 0;1 0= No; 1= Yes speech
c_speech_now Integer Recommended If yes, does this child CURRENTLY have the condition (speech or other language disorder)? 0;1 0= No; 1= Yes speech_now
c_speech_severity Integer Recommended If yes, is it (speech or other language disorder): 1 :: 3 1= Mild; 2= Moderate; 3= Severe speech_severity
c_learn_dis Integer Recommended Has a doctor or other health care provider EVER told you that this child has a learning disability? ? 0;1 0= No; 1= Yes learn_dis
c_learn_dis_now Integer Recommended If yes, does this child CURRENTLY have the condition (learning disability)? 0;1 0= No; 1= Yes learn_dis_now
c_learn_dis_severity Integer Recommended If yes, is it (learning disability): 1 :: 3 1= Mild; 2= Moderate; 3= Severe learn_dis_severity
c_asd Integer Recommended Has a doctor or other health care provider EVER told you that this child has Autism or Autism Spectrum Disorder (ASD)? Include diagnoses of Aspergers Disorder or Pervasive Developmental Disorder (PDD).? 0;1 0= No; 1= Yes asd
state_services String 50 Recommended State/Territory Services are being provided
c_asd_now Integer Recommended If yes, does this child CURRENTLY have the condition (Autism Spectrum Disorder (ASD), Aspergers Disorder or Pervasive Developmental Disorder (PDD))? 0;1 0= No; 1= Yes asd_now
c_asd_severity Integer Recommended If yes, is it (Autism Spectrum Disorder (ASD), Aspergers Disorder or Pervasive Developmental Disorder (PDD)): 1 :: 3 1= Mild; 2= Moderate; 3= Severe asd_severity
c_asd_age Integer Recommended How old was this child when a doctor or other health care provider FIRST told you that they had Autism, ASD, Aspergers Disorder or PDD?? Age in Years asd_age
c_who_diagnosed Integer Recommended What type of doctor or other health care provider was the FIRST to tell you that this child had Autism, ASD, Aspergers Disorder or PDD? Select one option 1::6 1= Primary Care Physician; 2= Specialist; 3= School Psychologist/Counselor; 4= Other Psychologist (Non-School); 5= Psychiatrist; 6= Other: who_diagnosed
c_oth_diagnosed String 100 Recommended Other diagnosed, please specify other_diagnosed
c_asd_meds Integer Recommended Is this child CURRENTLY taking medication for Autism, ASD, Aspergers Disorder or PDD?? 0;1 0= No; 1= Yes asd_meds
c_asd_beh_tx Integer Recommended At any time DURING THE PAST 12 MONTHS, did this child receive behavioral treatment for Autism, ASD, Aspergers Disorder or PDD, such as training or an intervention that you or this child received to help with their behavior? 0;1 0= No; 1= Yes asd_beh_tx
c_adhd Integer Recommended Has a doctor or other health care provider EVER told you that this child has Attention Deficit Disorder or Attention Deficit/Hyperactivity Disorder, that is, ADD or ADHD?? 0;1 0= No; 1= Yes adhd
c_adhd_now Integer Recommended If yes, does this child CURRENTLY have the condition (ADD or ADHD)? 0;1 0= No; 1= Yes adhd_now
c_adhd_severity Integer Recommended If yes, is it (ADD or ADHD): 1 :: 3 1= Mild; 2= Moderate; 3= Severe adhd_severity
child_health Integer Recommended In general, how would you describe this childs health?? 1 :: 5 1= Excellent; 2= Very good; 3= Good; 4= Fair; 5= Poor
c_adhd_tx Integer Recommended At any time DURING THE PAST 12 MONTHS, did this child receive behavioral treatment for ADD or ADHD, such as training or an intervention that you or this child received to help with their behavior? 0;1 0= No; 1= Yes adhd_tx
c_adhd_meds Integer Recommended Is this child CURRENTLY taking medication for ADD or ADHD?? 0;1 0= No; 1= Yes adhd_meds
c_mh Integer Recommended DURING THE PAST 12 MONTHS, has this child received any treatment or counseling from a mental health professional? Mental health professionals include psychiatrists, psychologists, psychiatric nurses, and clinical social workers. 1 :: 3 1= No, but this child needed to see a mental health professional; 2= No, but this child did Not need to see a mental health professional; 3= Yes, specify services: mh
c_mh_services String 500 Recommended Please specify services?(if your child is receiving any treatment or counseling from a mental health professional) mh_services
c_mh_tx_access Integer Recommended How difficult was it to get the mental health treatment or counseling that this child needed?? 1 :: 4 1= Not difficult; 2= Somewhat difficult; 3= Very difficult; 4= It was Not possible to obtain care mh_tx_access
c_oth_meds Integer Recommended DURING THE PAST 12 MONTHS, has this child taken any medication because of difficulties with their emotions, concentration, or behavior? 0;1 0= No; 1= Yes other_meds
c_alt_med Integer Recommended DURING THE PAST 12 MONTHS, did this child use any type of alternative health care or treatment? Alternative health care can include acupuncture, chiropractic care, relaxation therapies, herbal supplements, and others. Some therapies involve seeing a health care provider, while others can be done on your own. 0;1 0= No; 1= Yes alt_med
c_alt_med_specify String 500 Recommended Please specify alternative treatments alt_med_specify
c_frustration_services Integer Recommended DURING THE PAST 12 MONTHS, how often were you frustrated in your efforts to get services for this child? 1 :: 4 1= Never; 2= Sometimes; 3= Usually; 4= Always frustration_services
c_services_elig Integer Recommended 1. This child was not eligible for the services 0;1 0= No; 1= Yes services_elig
c_height_ft_in String 25 Recommended What is this childs CURRENT height? ? Feet and Inches height_ft_in
c_services_avai Integer Recommended 2. The services this child needed were not available in your area 0;1 0= No; 1= Yes services_avai
c_services_appt Integer Recommended 3. There were problems getting an appointment when this child needed one 0;1 0= No; 1= Yes services_appt
c_services_tran Integer Recommended 4. There were problems with getting transportation or child care 0;1 0= No; 1= Yes services_tran
c_services_sched Integer Recommended 5. The clinic or doctors office was not open when this child needed care 0;1 0= No; 1= Yes services_sched
c_services_cost Integer Recommended 6. There were issues related to cost 0;1 0= No; 1= Yes services_cost
c_dev_services Integer Recommended Has this child EVER received special services to meet their developmental needs such as speech, occupational, or behavioral therapy? 0;1 0= No; 1= Yes dev_services
c_services_now_01 Integer Recommended Check if currently receiving: Early Intervention 0;1 0= No; 1= Yes services_now_01
c_services_now_02 Integer Recommended Check if currently receiving: Occupational Therapy 0;1 0= No; 1= Yes services_now_02
c_services_now_03 Integer Recommended Check if currently receiving: Speech Therapy 0;1 0= No; 1= Yes services_now_03
c_services_now_04 Integer Recommended Check if currently receiving: Physical Therapy 0;1 0= No; 1= Yes services_now_04
c_weight_lb Float Recommended How much does this child CURRENTLY weigh? Lbs weight_lb
c_services_now_05 Integer Recommended Check if currently receiving: Group Therapy 0;1 0= No; 1= Yes services_now_05
c_services_now_06 Integer Recommended Check if currently receiving: Individual Therapy 0;1 0= No; 1= Yes services_now_06
c_services_now_07 Integer Recommended Check if currently receiving: Autism-specific services such as ABA, Floortime, etc 0;1 0= No; 1= Yes services_now_07
c_yr_dev_services Integer Recommended How old (years) was this child when they began receiving these special services? ? Age in Years yr_dev_services
c_mo_dev_services_2 Integer Recommended How old (months) was this child when they began receiving these special services? ? Age in Months mo_dev_services_2
c_ei_referral String 100 Recommended Who referred to Early Intervention? ei_referral
c_ei_referral_date String 50 Recommended When was the child referred to Early Intervention? ei_referral_date
c_yr_ei_end Integer Recommended How old (years) was this child when their Early Intervention services ended? Age in Years yr_ei_end
c_mo_ei_end Integer Recommended How old (months) was this child when their Early Intervention services ended? Age in Months mo_ei_end
c_after_ei String 500 Recommended What did your child do after Early Intervention services ended? after_ei
c_vision Integer Recommended DURING THE PAST 12 MONTHS, has this child had their vision tested, such as with pictures, shapes, or letters? 0;1 0= No; 1= Yes vision
c_ei_pa Integer Recommended Did your child receive Early Intervention services in (current state)?? 0;1 0= No; 1= Yes ei_pa
c_after_ei2_01 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. A full-day preschool program (specify public or private) 0;1 0= No; 1= Yes after_ei2_01
c_after_ei2_02 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Attended preschool program part-time 0;1 0= No; 1= Yes after_ei2_02
c_after_ei2_03 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. A head-start program 0;1 0= No; 1= Yes after_ei2_03
c_after_ei2_04 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Services through a public school less than 5 days/week - (e.g., specialized services - go to school to get speech but not enrolled in pre-K) 0;1 0= No; 1= Yes after_ei2_04
c_after_ei2_05 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Private therapies (e.g., speech, OT etc.) 0;1 0= No; 1= Yes after_ei2_05
c_after_ei2_06 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Home or center-based ASD services (e.g., ABA) 0;1 0= No; 1= Yes after_ei2_06
c_after_ei2_07 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Nothing 0;1 0= No; 1= Yes after_ei2_07
c_after_ei_pa_01 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Attended a typical child care setting 0;1 0= No; 1= Yes after_ei_pa_01
c_after_ei_pa_02 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Attended an autism specialized classroom 0;1 0= No; 1= Yes after_ei_pa_02
c_oral_health Integer Recommended DURING THE PAST 12 MONTHS, did this child see a dentist or other oral health care provider for any kind of dental or oral health care? 0;1 0= No; 1= Yes oral_health
c_after_ei_pa_03 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Attended a non-specialized classroom 0;1 0= No; 1= Yes after_ei_pa_03
c_after_ei_pa_04 Integer Recommended Check all that apply based on above response to, what did your child do after Early Intervention. Received services in the home (e.g., speech) 0;1 0= No; 1= Yes after_ei_pa_04
c_ei_tran_satisfied Integer Recommended How satisfied were you with the transition process from Early Intervention to after Early Intervention services? 1 :: 5 1= Very Unsatisfied; 2= Unsatisfied; 3= Neutral; 4= Satisfied; 5= Very Satisfied ei_tran_satisfied
c_iep_plan Integer Recommended Has this child EVER had a special education or early intervention plan? Children receiving these services often have an Individualized Education Plan (IEP). 0;1 0= No; 1= Yes iep_plan
c_yr_iep_plan Integer Recommended If yes, how old was this child at the time of the FIRST IEP plan (i.e., preschool/kindergarten plan)?? Age in Years yr_iep_plan
c_iep_serv_now Integer Recommended Is this child CURRENTLY receiving services under one of these plans?? 0;1 0= No; 1= Yes iep_serv_now
c_iep_know_why Integer Recommended Do you know what your child has an IEP/services for?? 0;1 0= No; 1= Yes iep_know_why
c_iep_reason_01 Integer Recommended Here are some categories why a child may qualify for an IEP. Autism 0;1 0= No; 1= Yes iep_reason_01
c_iep_reason_02 Integer Recommended Here are some categories why a child may qualify for an IEP. Developmental Delay 0;1 0= No; 1= Yes iep_reason_02
c_iep_reason_03 Integer Recommended Here are some categories why a child may qualify for an IEP. Intellectual Impairment 0;1 0= No; 1= Yes iep_reason_03
c_oth_cond_01 Integer Recommended Does this child have any of the following? Serious difficulty concentrating, remembering, or making decisions because of a physical, mental, or emotional condition. 0;1 0= No; 1= Yes other_cond_01
c_iep_reason_04 Integer Recommended Here are some categories why a child may qualify for an IEP. Communication 0;1 0= No; 1= Yes iep_reason_04
c_iep_reason_05 Integer Recommended Here are some categories why a child may qualify for an IEP. Neurological Impairment 0;1 0= No; 1= Yes iep_reason_05
c_iep_reason_06 Integer Recommended Here are some categories why a child may qualify for an IEP. Sensory Impairment (hearing, vision impairment) 0;1 0= No; 1= Yes iep_reason_06
c_iep_reason_07 Integer Recommended Here are some categories why a child may qualify for an IEP. Emotional Impairment 0;1 0= No; 1= Yes iep_reason_07
c_iep_reason_08 Integer Recommended Here are some categories why a child may qualify for an IEP. Specific Learning Disability (SED) 0;1 0= No; 1= Yes iep_reason_08
c_iep_reason_09 Integer Recommended Here are some categories why a child may qualify for an IEP. Physical Impairment (e.g., mobility etc.) 0;1 0= No; 1= Yes iep_reason_09
c_iep_reason_10 Integer Recommended Here are some categories why a child may qualify for an IEP. Other Health Impairments 0;1 0= No; 1= Yes iep_reason_10
c_iep_reason_11 Integer Recommended Here are some categories why a child may qualify for an IEP. Other Classification 0;1 0= No; 1= Yes iep_reason_11
c_iep_reason_oth String 250 Recommended Other classification, why a child may qualify for an IEP: (please describe) iep_reason_other
c_iep_satisfy Integer Recommended How satisfied are you with the school services on your childs current IEP? 1 :: 5 1= Very unsatisfied; 2= Unsatisfied; 3= Neutral; 4= Satisfied; 5= Very Satisfied iep_satisfy
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.