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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Gilliam Autism Rating Scale (GARS)

0 Shared Subjects

Gilliam Autism Rating Scale (GARS) - Summary/Response Form (1995). Provided by Dr.A.Thurm
Clinical Assessments
Cognitive
12/05/2011
gars01
12/22/2011
View Change History
01
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query stereot_behav_q1 Integer Recommended Avoids establishing eye contact (i.e., looks away when eye contact is made). 0::3;9 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed; 9 = N/A
Query stereot_behav_q2 Integer Recommended Stares at hands, objects, or items in the environment for at least 5 seconds. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q3 Integer Recommended Rapidly flicks fingers or hands in front of eyes for periods of 5 seconds or more. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q4 Integer Recommended Eats specific foods and refuses to eat what most people will usually eat. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q5 Integer Recommended Licks inedible objects (e.g., person's hand, toys, books, etc.). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q6 Integer Recommended Smells or sniffs objects (e.g., toys, person's hand, hair, etc.). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q7 Integer Recommended Whirls, turns in circles. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q8 Integer Recommended Spins objects not designed for spinning (e.g., saucers, cups, glasses, etc.). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q9 Integer Recommended Rocks back and forth while seated or standing. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q10 Integer Recommended Makes rapid lunging, darting movement when moving from place to place. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q11 Integer Recommended Prances (walks on tiptoes) when moving or while standing in place. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q12 Integer Recommended Flaps hands or fingers in front of face or at sides. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q13 Integer Recommended Makeschigh-pitched sounds (e.g., eee-eee-eee-eee) or other vocalizations for self-stimulation. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_q14 Integer Recommended Slaps, hits, or bites self or in other ways attempts to injure self. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query stereot_behav_rawscore Integer Required Stereotyped Behaviors Total 0::42
communication_general String 50 Required How does this person communicate? Talks; Signs; Doesnt Talk or Sign
Query communication_q15 Integer Conditional communication_general != 'Doesnt Talk or Sign' Repeats (echoes) words verbally or with signs. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q16 Integer Conditional communication_general != 'Doesnt Talk or Sign' Repeats words out of context (repeats words heard at an earlier time e.g., repeats words heard more than 1 minute earlier). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q17 Integer Conditional communication_general != 'Doesnt Talk or Sign' Repeats words or phrases over and over. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q18 Integer Conditional communication_general != 'Doesnt Talk or Sign' Speaks (or signs) with flat affect or with dysrhythmic patterns. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q19 Integer Conditional communication_general != 'Doesnt Talk or Sign' Responds inappropriately to simple commands (e.g., sit down, stand up, etc.). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q20 Integer Conditional communication_general != 'Doesnt Talk or Sign' Looks away or avoids looking at speaker when name is called. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q21 Integer Conditional communication_general != 'Doesnt Talk or Sign' Avoids asking for things he or she wants. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q22 Integer Conditional communication_general != 'Doesnt Talk or Sign' Fails to initiate conversations with peers or adults. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q23 Integer Conditional communication_general != 'Doesnt Talk or Sign' Uses "yes" and "no" inappropriately. Says "yes" when asked if he or she wants an aversive stimulus or says "no" when asked if he or she wants a favorite toy or treat. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q24 Integer Conditional communication_general != 'Doesnt Talk or Sign' Uses pronouns inappropriately (refers to self as he, you, she, etc.). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q25 Integer Conditional communication_general != 'Doesnt Talk or Sign' Uses the word "I" inappropriately (does not say "I" to refer to self). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q26 Integer Conditional communication_general != 'Doesnt Talk or Sign' Repeats unintelligible sounds (babbles) over and over. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q27 Integer Conditional communication_general != 'Doesnt Talk or Sign' Uses gestures instead of speech or signs to obtain objects. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_q28 Integer Conditional communication_general != 'Doesnt Talk or Sign' Inappropriately answers questions about a statement or brief story. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query communication_rawscore Integer Conditional communication_general != 'Doesnt Talk or Sign' Communication Total 0::45
Query social_interact_q29 Integer Recommended Avoids eye contact (looks away when someone looks at him- or her). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q30 Integer Recommended Stares or looks unhappy or unexcited when praised, humored, or entertained. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q31 Integer Recommended Resists physical contact from others (doesn't seem to like hugs, pats, being held, or other close contact). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q32 Integer Recommended Non-imitative of other people when playing. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q33 Integer Recommended In group situations the person withdraws or remains aloof or standoffish. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q34 Integer Recommended Behaves in an unreasonably fearful, frightened manner. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q35 Integer Recommended Is unaffectionate doesn't give affectionate responses (e.g., hugs and kisses). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q36 Integer Recommended Looks through people (i.e., shows no recognition that a person is present). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q37 Integer Recommended Laughs, giggles, cries inappropriately. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q38 Integer Recommended Uses toys or objects inappropriately (e.g., spins cars, takes toys apart). 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q39 Integer Recommended Does certain thing repetitively, ritualistically. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q40 Integer Recommended Becomes upset when routines are changed. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q41 Integer Recommended Responds negatively or with temper tantrums when given commands, requests, or directions. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_q42 Integer Recommended Lines up objects in precise, orderly fashion and becomes upset when the order is disturbed. 0::3 0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
Query social_interact_rawscore Integer Required Social Interaction Total 0::42
dev_disturb_q43 String 20 Recommended Did the child sit up, stand, and walk in that sequence?
Yes; No
dev_disturb_q44 String 20 Recommended Did the child walk within the first 15 months of life?
Yes; No
dev_disturb_q45 String 20 Recommended Did the child develop a skill (e.g., walking) and then regress (e.g., stop walking and return to crawling)?
Yes; No
dev_disturb_q46 String 20 Recommended Did the child spend a great amount of time rocking when awake (i.e., did the child rock for 5 minutes or more, several times a day)?
Yes; No
dev_disturb_q47 String 20 Recommended Did the child exhibit or was the child diagnosed as having any developmental delays before 36 months?
Yes; No
dev_disturb_q48 String 20 Recommended Did the child reach out or prepare to be picked up when the parent attempted to lift the child?
Yes; No
dev_disturb_q49 String 20 Recommended Did the child smile at parents or siblings when played with?
Yes; No
dev_disturb_q50 String 20 Recommended Did the child cry when approached by unfamiliar persons during the first year?
Yes; No
dev_disturb_q51 String 20 Recommended Did the child imitate another person before age 3 (e.g., played pat-a-cake, peek-a-boo, made imitative sounds, etc.)?
Yes; No
dev_disturb_q52 String 20 Recommended Did the child show pleasure when hugged, held, or caressed during the first 36 months?
Yes; No
dev_disturb_q53 String 20 Recommended Did the child use speech to communicate within the first 36 months?
Yes; No
dev_disturb_q54 String 20 Recommended Did the child appear to be deaf to some sounds but hear others?
Yes; No
dev_disturb_q55 String 20 Recommended Did the child follow simple commands (e.g., stand up, sit down, come here, etc.)?
Yes; No
dev_disturb_q56 String 20 Recommended Did the child remember things (e.g., where a favorite toy or object was kept or what happened in certain places, such as visits to the doctor)?
Yes; No
Query dev_disturb_rawscore Integer Required Developmental Disturbances Total 1::14
Query key_questions_q1 Integer Recommended At what age did the behavior first occur? Age in months
key_questions_q2 String 100 Recommended Does the behavior occur in all settings?
key_questions_q3 String 100 Recommended Could the behavior be the result of another handicapping condition?
key_questions_q3a String 100 Recommended If so, what condition(s)?
key_questions_q3b String 100 Recommended Have any evaluations been done to rule out the other condition?
key_questions_q3c String 100 Recommended What evaluations?
key_questions_q4 String 100 Recommended Who has evaluated the person and what were the results?
key_questions_q5 String 100 Recommended What assessment/evaluations have been done?
key_questions_q6 String 100 Recommended Are disturbances noted in all four areas of the definition for autism?
key_questions_q7 String 100 Recommended What areas of disturbance are most affected?
key_questions_q7a String 100 Recommended What are the symptoms?
key_questions_q8 String 100 Recommended How severe are the symptoms?
key_questions_q8a String 100 Recommended How do the symptoms interfere with normal functioning?
key_questions_q9 String 100 Recommended What information needs to be collected?
key_questions_q9a String 100 Recommended Who can supply the information?
key_questions_q10 String 100 Recommended What resources are available for further evaluation?
comments String 4,000 Recommended Comments about assessment
Query stereot_behav_ss Integer Required Stereotyped Behaviors. Standard Score 1::20
Query communication_ss Integer Required Communication. Standard Score 1::20;999 999 = Missing value
Query social_interact_ss Integer Required Social Interaction. Standard Score 1::20
Query dev_disturb_ss Integer Required Developmental. Standard Score 1::20
Query stereot_behav_perc Float Recommended Stereotyped Behaviors. Percentile
Query communication_perc Float Recommended Communication. Percentile
Query social_interact_perc Float Recommended Social Interaction. Percentile
Query dev_disturb_perc Float Recommended Developmental. Percentile
Query sum_ss Integer Required Sum of Standard Scores
Query aut_quotient_ss Integer Required Autism Quotient. Standard Score 0::200
Query aut_quotient_perc Float Recommended Autism Quotient. Percentile
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.