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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Global Functioning Scales

gfs

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
gfsr_1IntegerRecommendedDo you have friends?0;10=No; 1=Yes
gfsr_2IntegerRecommendedAre they casual or close friends0;10=No; 1=Yes
gfsr_3IntegerRecommendedIf only casual - are they school or work friends only0;10=No; 1=Yes
gfsr_4String25RecommendedIf close - how long have you been close friends
gfsr_5IntegerRecommendedDo you share personal things with each other0;10=No; 1=Yes
gfsr_6String25RecommendedHow often do you see friends
gfsr_7IntegerRecommendedDo you see them outside of work/school0;10=No; 1=Yes
gfsr_8String25RecommendedWhen was the last time you saw one of your friends outside of work/school
gfsr_9IntegerRecommendedDo you usually initiate contact or activities with friends or do they typically call or invite you0;10=No; 1=Yes
gfsr_10IntegerRecommendedDo you ever avoid contact with friends0;10=No; 1=Yes
gfsr_11IntegerRecommendedDo you ever have problems/falling outs with friends0;10=No; 1=Yes
gfsr_12IntegerRecommendedArguments or fights0;10=No; 1=Yes
gfsr_13String25RecommendedHow are they typically resolved
gfsr_14IntegerRecommendedAre you dating or interested in dating0;10=No; 1=Yes
gfsr_15IntegerRecommendedDo you spend time with family members (at home)0;10=No; 1=Yes
gfsr_16String25RecommendedHow often do you comunicate with them
gfsr_17IntegerRecommendedDo you ever avoid contact with family members0;10=No; 1=Yes
gf_social_scaleIntegerRecommendedGlobal Functioning: Social Scale score0::101=Extreme social isolation; 2=Inability to function socially; 3=Marginal ability to function socially; 4=Major impairment in social and interpersonal functioning; 5=Serious impairment in social/interpersonal functioning; 6=Moderate impairment in social/interpersonal functioning; 7=Mild problems in social/interpersonal functioning; 8=Good social/interpersonal functioning; 9=Above average social/interpersonal functioning; 10=Superior social/interpersonal functioninggf_social_scale_current
gf_social_lowIntegerRecommendedGlobal Functioning: Social Scale low score (past year)0::101=Extreme social isolation; 2=Inability to function socially; 3=Marginal ability to function socially; 4=Major impairment in social and interpersonal functioning; 5=Serious impairment in social/interpersonal functioning; 6=Moderate impairment in social/interpersonal functioning; 7=Mild problems in social/interpersonal functioning; 8=Good social/interpersonal functioning; 9=Above average social/interpersonal functioning; 10=Superior social/interpersonal functioning
gf_social_highIntegerRecommendedGlobal Functioning: Social Scale High score (past year)0::101=Extreme social isolation; 2=Inability to function socially; 3=Marginal ability to function socially; 4=Major impairment in social and interpersonal functioning; 5=Serious impairment in social/interpersonal functioning; 6=Moderate impairment in social/interpersonal functioning; 7=Mild problems in social/interpersonal functioning; 8=Good social/interpersonal functioning; 9=Above average social/interpersonal functioning; 10=Superior social/interpersonal functioning
gf_primaryroleIntegerRecommendedPrimary role used for this rating1::41=School; 2=Work; 3=Homemaker; 4=Part-time school + Part-time workgfsr_18
gfsr_19String25RecommendedWhere do you work? What are your job responsibilities?
hworkedIntegerRecommendedAbout how many hours a week do/did you usually work?999 = Missinggfsr_20
gfsr_21String25RecommendedHow long have you been at your current job
gfsr_22IntegerRecommendedHave you had any recent changes in your job status0;10=No; 1=Yes
gfsr_23IntegerRecommendedDo you usually need assistance or regular supervision at work0;10=No; 1=Yes
gfsr_24String25RecommendedHow often do you need extra help at work
gfsr_25IntegerRecommendedAre there any tasks that you are not able to do alone at work0;10=No; 1=Yes
gfsr_26IntegerRecommendedat workDo you ever have trouble keeping up0;10=No; 1=Yes
gfsr_27IntegerRecommendedAre you able to catch up if you fall behind at work0;10=No; 1=Yes
gfsr_28IntegerRecommendedHave you received any comments (positive or negative) or formal reviews regarding your performance at work0;10=No; 1=Yes
gfsr_29IntegerRecommendedHave others pointed out things that you've done well or poorly. At work0;10=No; 1=Yes
gfsr_30IntegerRecommendedWhat type of school do you attend1::31=general education; 2= non-public school; 3=residential/hospital
gfsr_31IntegerRecommendedHave you ever been in special education classes or other non-general education classes0;10=No; 1=Yes
gfsr_32String25RecommendedHow long have you been at this school
gfsr_33IntegerRecommendedHave you had any recent changes in your school placement0;10=No; 1=Yes
gfsr_34IntegerRecommendedDo you receive any extra help or accomodations in your classes0;10=No; 1=Yes
gfsr_35IntegerRecommendedDo you receive tutoring or extra help in school or after school0;10=No; 1=Yes
gfsr_36IntegerRecommendedDo you receive extra time to take tests or are you able to leave the classroom to take tests in a quiet place0;10=No; 1=Yes
gfsr_37IntegerRecommendedDo you have trouble keeping up with your coursework0;10=No; 1=Yes
gfsr_38IntegerRecommendedAre you able to catch up if you fall behind, school0;10=No; 1=Yes
gfsr_39IntegerRecommendedHow are your grades? Are you failing any classes0;10=No; 1=Yes
gfsr_40String25RecommendedWhat are your responsibilities around the house or for the family
gfsr_41String25RecommendedHow long have you been in charge of the home
gfsr_42FloatRecommendedHow many hours per week do you spend working on household tasks
gfsr_43IntegerRecommendedAre you able to keep up with the demands of your household0;10=No; 1=Yes
gfsr_44IntegerRecommendedHousehold. Do you ever fall behind0;10=No; 1=Yes
gfsr_45IntegerRecommendedFall behind in household tasks. If so, are you able to catch up or do you need others' help0;10=No; 1=Yes
gfsr_46IntegerRecommendedAre you avoiding any tasks at home0;10=No; 1=Yes
gfsr_47IntegerRecommendedDo you need regular assistance or supervision for any tasks within the home0;10=No; 1=Yes
gfsr_48IntegerRecommendedHave you received any comments (positive or negative) regarding your performance at home0;10=No; 1=Yes
gfsr_49IntegerRecommendedHave others pointed out things that you've done well or poorly. Housework0;10=No; 1=Yes
gf_role_highIntegerRecommendedGlobal Functioning: Role Scale High score (past year)0::101=Extreme role dysfunction; 2=Inability to function; 3=Marginal ability to function; 4=Major impairment in role functioning; 5=Serious impairment in role functioning; 6=Moderate impairment in role functioning; 7=Mild Impairment in role functioning; 8=Good role functioning; 9=Above average role functioning; 10=Superior role functioning
gf_role_lowIntegerRecommendedGlobal Functioning: Role Scale Low score (past year)0::101=Extreme role dysfunction; 2=Inability to function; 3=Marginal ability to function; 4=Major impairment in role functioning; 5=Serious impairment in role functioning; 6=Moderate impairment in role functioning; 7=Mild Impairment in role functioning; 8=Good role functioning; 9=Above average role functioning; 10=Superior role functioning
gf_role_scoleIntegerRecommendedGlobal Functioning: Role Scale score0::101=Extreme role dysfunction; 2=Inability to function; 3=Marginal ability to function; 4=Major impairment in role functioning; 5=Serious impairment in role functioning; 6=Moderate impairment in role functioning; 7=Mild Impairment in role functioning; 8=Good role functioning; 9=Above average role functioning; 10=Superior role functioninggf_role_scale_current
sofas_currscoreIntegerRecommendedSOFAS (Social and Occupational Functioning Assessment Scale) current score0::1000-10=Persistent inability to maintain minimal personal hygiene, unable to function without harming self or others without considerable external support; 11-20=Occasionally fails to maintain minimal personal hygiene. Unable to function independently; 21-30=Inability to function in almost all areas; 31-40=Major impairment in several areas such as work, school, or housework if a housewife/househusband, family relationships; 41-50=Serious impairment with work, school, or housework if a housewife; 51-60=Moderate difficulty in social, work, or school functioning; 61-70=Some difficulty in social, occupational, or school functioning; 71-80=No more than slight impairment in social, work, or school functioning; 81-90=Good functioning in all areas, occupationally and socially effective; 91-100=Superior functioning in a wide range of activities
sofas_highscoreIntegerRecommendedSOFAS (Social and Occupational Functioning Assessment Scale) Highest score in past year0::100
sofas_lowscoreIntegerRecommendedSOFAS (Social and Occupational Functioning Assessment Scale) Lowest score in past year0::100
visitString50RecommendedVisit name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: gfs01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.