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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Internet Support Group

150 Shared Subjects

Clinical Assessments
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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
visit String 50 Recommended Visit name tpid
session_id String 20 Recommended session ID/screening ID
isg_expected_discussions Integer Recommended Expected to find: Discussions with other participants 0;1 0=No; 1=Yes expected_discussions
isg_expected_advice Integer Recommended Expected to find: Advice from experts/ physicians 0;1 0=No; 1=Yes expected_advice
isg_expected_resource Integer Recommended Expected to find: Access to more resources 0;1 0=No; 1=Yes expected_resource
isg_expected_research Integer Recommended Expected to find: Information about research 0;1 0=No; 1=Yes expected_research
isg_expected_tips Integer Recommended Expected to find: Self-management tips for mood and anxiety 0;1 0=No; 1=Yes expected_tips
isg_other_spec Integer Recommended Expected to find: Other; specify 0;1 0=No; 1=Yes other_spec
isg_no_expectations Integer Recommended Expected to find: I had no expectations 0;1 0=No; 1=Yes no_expectations
isg_helpful_following Integer Recommended Find helpful: Following discussion boards 0;1 0=No; 1=Yes helpful_following
isg_helpful_responses Integer Recommended Find helpful: Responses to my own posts/ comments 0;1 0=No; 1=Yes helpful_responses
isg_helpful_resource Integer Recommended Find helpful: Links to resources 0;1 0=No; 1=Yes helpful_resource
isg_helpful_advice Integer Recommended Find helpful: Expert Advice 0;1 0=No; 1=Yes helpful_advice
isg_helpful_news Integer Recommended Find helpful: News updates 0;1 0=No; 1=Yes helpful_news
isg_helpful_email Integer Recommended Find helpful: Weekly emails 0;1 0=No; 1=Yes helpful_email
isg_helpful_multimedia Integer Recommended Find helpful: Multimedia and videos 0;1 0=No; 1=Yes helpful_multimedia
isg_helpful_spec Integer Recommended Find helpful: Other; specify 0;1 0=No; 1=Yes helpful_spec
isg_helpful_none Integer Recommended Find helpful: None 0;1 0=No; 1=Yes helpful_none
isg_feel_connected Integer Recommended Log on to: Feel connected with people who can understand my condition 0;1 0=No; 1=Yes feel_connected
isg_seek_advice Integer Recommended Log on to: Seek advice 0;1 0=No; 1=Yes seek_advice
isg_help_others Integer Recommended Log on to: Help others 0;1 0=No; 1=Yes help_others
isg_look_responses Integer Recommended Log on to: Look for responses on my posts/ comment 0;1 0=No; 1=Yes look_responses
isg_check_email Integer Recommended Log on to: Check out content of emails Chris sent 0;1 0=No; 1=Yes check_email
isg_get_recognition Integer Recommended Log on to: Get recognition for participation 0;1 0=No; 1=Yes get_recognition
isg_win_contest Integer Recommended Log on to: Win a contest 0;1 0=No; 1=Yes win_contest
isg_log_spec Integer Recommended Log on to: Other; Specify 0;1 0=No; 1=Yes log_spec
isg_interactions Integer Recommended Did you think that you could discuss certain issues more openly than in face-to-face interactions? 1::5 1= Yes, I completely agree that I could discuss my problems more openly; 2= Yes, I somewhat agree that I could discuss my problems more openly; 3= I think it made no difference that it was anonymous; 4= No, I somewhat disagree that I could discuss my problems more openly; 5= No, I definitely disagree that I could discuss my problems more openly interactions
isg_mood_symptoms Integer Recommended Did you think that logging in/engaging in the ISG was helpful in managing your mood symptoms? 1::6 1= A lot; 2= Somewhat; 3= A little; 4= Not at all; 5= No, it worsened my mood symptoms; 6= I did not have any mood symptoms mood_symptoms
isg_anxiety_symptoms Integer Recommended Did you think that logging in/ engaging in the ISG was helpful in managing your anxiety symptoms? 1::6 1= A lot; 2= Somewhat; 3= A little; 4= Not at all; 5= No, it worsened my anxiety symptoms; 6= I did not have any anxiety symptoms anxiety_symptoms
isg_logins Integer Recommended Number of internet support group logins
isg_posts Integer Recommended Number of internet support group posts
isg_comments Integer Recommended Number of internet support group comments
version_form String 100 Recommended Form used/assessment name formid
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.