NIMH Data Archive - Data

Genomics

Neuroimaging

Phenotype¹

New Trial
Clinical Trial

¹ Numbers reported are subjects by age

New Project
Grant/Project Number

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

Select	Experiment Id	Experiment Name	Experiment Type	Created On

24	HI-NGS_R1	Omics	02/16/2011
475	MB1-10 (CHOP)	Omics	06/07/2016
490	Illumina Infinium PsychArray BeadChip Assay	Omics	07/07/2016
501	PharmacoBOLD Resting State	fMRI	07/27/2016
506	PVPREF	Omics	08/05/2016
509	ABC-CT Resting v2	EEG	08/18/2016
13	Comparison of FI expression in Autistic and Neurotypical Homo Sapiens	Omics	12/28/2010
18	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	01/06/2011
22	Stitching PCR Sequencing	Omics	02/14/2011
26	ASD_Methylation	Omics	03/01/2011
29	Microarray family 03 (father, mother, sibling)	Omics	03/24/2011
37	Standard paired-end sequencing of BCRs	Omics	04/19/2011
38	Illumina Mate-Pair BCR sequencing	Omics	04/19/2011
39	Custom Jumping Libraries	Omics	04/19/2011
40	Custom CapBP	Omics	04/19/2011
41	Immunofluorescence	Omics	05/11/2011
43	Autism brain sample genotyping, Illumina	Omics	05/16/2011
47	ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 System	Omics	08/01/2011
53	AGRE Omni1-quad	Omics	10/11/2011
59	AGP genotyping	Omics	04/03/2012
60	Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controls	Omics	06/23/2012
63	Microemulsion PCR and Targeted Resequencing for Variant Detection in ASD	Omics	07/20/2012
76	Whole Genome Sequencing in Autism Families	Omics	01/03/2013
519	Resting	fMRI	11/08/2016
90	Genotyped IAN Samples	Omics	07/09/2013
91	NJLAGS Axiom Genotyping Array	Omics	07/16/2013
93	AGP genotyping (CNV)	Omics	09/06/2013
106	Longitudinal Sleep Study. H20 200. Channel set 2	EEG	11/07/2013
107	Longitudinal Sleep Study. H20 200. Channel set 3	EEG	11/07/2013
108	Longitudinal Sleep Study. AURA 200	EEG	11/07/2013
105	Longitudinal Sleep Study. H20 200. Channel set 1	EEG	11/07/2013
109	Longitudinal Sleep Study. AURA 400	EEG	11/07/2013
116	Gene Expression Analysis WG-6	Omics	01/07/2014
131	Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1	Eye Tracking	02/27/2014
132	Jeste Lab UCLA ACEii: Animacy - Project 1	Eye Tracking	02/27/2014
133	Jeste Lab UCLA ACEii: Mom Stranger - Project 2	Eye Tracking	02/27/2014
134	Jeste Lab UCLA ACEii: Face Emotion - Project 3	Eye Tracking	02/27/2014
145	AGRE/FMR1_Illumina.JHU	Omics	04/14/2014
146	AGRE/MECP2_Sanger.JHU	Omics	04/14/2014
147	AGRE/MECP2_Junior.JHU	Omics	04/14/2014
151	Candidate Gene Identification in familial Autism	Omics	06/09/2014
152	NJLAGS Whole Genome Sequencing	Omics	07/01/2014
154	Math Autism Study - Vinod Menon	fMRI	07/15/2014
155	Resting	fMRI	07/25/2014
156	Speech	fMRI	07/25/2014
159	Emotion	fMRI	07/25/2014
160	syllable contrast	EEG	07/29/2014
167	School-age naturalistic stimuli	Eye Tracking	09/19/2014
44	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	06/27/2011
45	Exome Sequencing of 20 Sporadic Cases of Autism Spectrum Disorder	Omics	07/15/2011

Collection - Add Experiment

Add Supporting Documentation

Funding Source:
URL:

To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

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Please confirm that you will not be enrolling any more subjects and that all raw data has been collected and submitted.

Collection Updated

Your Collection is now in Data Analysis phase and exempt from biannual submissions. Analyzed data is still expected prior to publication or no later than the project end date.

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[CMS]

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You have requested to move the sharing dates for the following assessments:

Data Expected Item	Original Sharing Date	New Sharing Date

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Multimodal Developmental Neurogenetics of Females with ASD #2804

General
Experiments (7)
Shared Data
Publications (65)
Data Expected (35)
Associated Studies (2)

Collection Title	Collection Investigators	Collection Description
Collection Title:	Multimodal Developmental Neurogenetics of Females with ASD
Collection Investigators:	Kevin Pelphrey
Collection Description:	Autism Spectrum Disorder (ASD) disproportionately affects males over females, possibly because of a Female Protective Effect (FPE). Characterizing the FPE may help us to understand and treat ASD in both sexes. Our Network has contributed to understanding sex differences in ASD at the levels of gene structure and expression, neural dynamics, brain function and connectivity. We have curated an unprecedented sex-balanced, age-, IQ- and severity-matched cohort of cognitively-able school-age, and with ASD, age- and IQ-matched typically developing (TD) children and unaffected siblings (US). At T1, we conducted behavioral phenotyping and measured key neural systems at the levels of brain structure, connectivity, function and temporal dynamics. Genotyping, whole-genome sequencing and gene expression analyses are underway. We now seek to pursue an extraordinary opportunity to assess our participants again (T2) as they make the transition through adolescence and into young adulthood. Our field has failed to generate a sufficient knowledge base to help optimize this transition for people living with ASD and their families. We will leverage the expertise of our Network to identify sex differences in ASD longitudinal brain development during this important transition. We will clarify both temporal and spatial characteristics of developing social perception, emotion regulation, reward and implicit language learning circuits, in addition to neural mechanisms for sensory habituation, creating dimensional, multi- level neural signatures of brain development. We will bridge DNA sequence and brain development and relate neural signatures to behavior and genetics to predict real-world functioning in young adulthood. We will combine multiple levels of biology and endophenotypes-SNVs, CNVs, clinical measures, pubertal status, presence of seizures/epilepsy, sex hormones and multimodal, longitudinal measures of brain development-into one framework using an Integrated Weighted Gene Coexpression Network Analysis (iWGCNA). Finally, we will extend our T1 systems-biology approach through a collaboration with ASD self-advocates/participants to evaluate the experiential validity of our findings. The proposed research marks the start of a new era in which advanced multimodal neuroimaging and genetic analyses will evolve into an integral part of a translational research chain. Novel behavioral treatment and pharmacotherapies for ASD may be further developed in adolescence and young adulthood with the tremendous benefit of directly and more precisely assessing impairment and change in neural circuits. By providing information about distinct, sex/gender-based developmental pathways in ASD, this study will identify if intervention/prevention strategies should include sex-based modifications.
Data Repository:	NIMH Data Archive
Permission Group:
Collection Creation Date:	10/31/2017
NIH Research Initiative:	NIMH Repository & Genomics Resource (NRGR)
Collection Phase:	Enrolling
Blinded Clinical Trial:	No
Total Funded Amount:	$14,239,915.00
Subjects Shared:	213

{"values":[]}

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Funding Sources:

Funding Source Name	Funding Source URL
NIH - Extramural	None

Supporting Documentation:

Grant Information:

Project Number	Project Title	Start Date	End Date	Planned Enrollment	Actual Enrollment	Organization	Funds Obligated
R01MH100028-06	Multimodal Developmental Neurogenetics of Females with ASD	09/07/2017	06/30/2027	625	224	UNIVERSITY OF VIRGINIA	$14,239,915.00

Clinical Trials:

helpcenter.collection.general-tab

Collection - General Tab

Fields available for edit on the top portion of the page include:

Collection Title
Investigators
Collection Description
Collection Phase
Funding Source
Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

Pre-Enrollment: The default entry made when the NDA Collection is created.
Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
- The Data Expected Subphase indicates that NDA expects more data will be submitted
- The Closeout Subphase indicates the data submission is complete.
- The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?

During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
How do I know when a NDA Collection has been created?

When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
Is a single grant number ever associated with more than one Collection?

The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
Why is there sometimes more than one grant included in a Collection?

In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

Administrator Privilege

A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
Collection Owner

Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
Collection Phase
The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
- Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
- Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
- Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
- Funding Completed: A grant/project has reached the project end date.
Collection Title

An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
Grant

Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
Supporting Documentation

Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
NIH Research Initiative

NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
Permission Group

Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
Planned Enrollment

Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
Actual Enrollment

Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
NDA Collection

A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
Data Use Limitations

Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
Total Subjects Shared

The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

Contact NDA Help Desk

ID	Name	Created Date	Status	Type
364	Biopoint fMRI	08/04/2015	Approved	fMRI
366	Faces fMRI	08/06/2015	Approved	fMRI
367	Language fMRI	08/06/2015	Approved	fMRI
368	Resting State fMRI	08/06/2015	Approved	fMRI
369	Social Reward fMRI	08/06/2015	Approved	fMRI
485	GENDAAR Word Segmentation EEG Resting, Exposure, and Test Phase	06/20/2016	Approved	EEG
516	ACE_genomics	11/04/2016	Approved	Omics

helpcenter.collection.experiments-tab

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

Can an Experiment be associated with more than one Collection?
Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:
1. Copy the experiment with intent for modifications.
2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

Experiment Status

An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
Experiment ID

The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.

Contact NDA Help Desk

Shared Data:

Title	Type	Number of Subjects
Adult Behavior Check List	Clinical Assessments	97
Adult Self Report	Clinical Assessments	103
Anticipatory and Consummatory Interpersonal Pleasure Scale-Adolescent	Clinical Assessments	158
Behavioral Inhibition Scale/Behavioral Activation Scale	Clinical Assessments	156
Child Behavior Checklist (CBCL) 6-18	Clinical Assessments	76
Child Eating Behavior Questionnaire	Clinical Assessments	93
Demographics	Clinical Assessments	198
Edinburgh Handedness Inventory	Clinical Assessments	198
Munich ChronoType Questionnaire	Clinical Assessments	68
Pediatric Quality of Life Inventory	Clinical Assessments	88
Pittsburgh Sleep Quality Index	Clinical Assessments	89
Pubertal Development Scale	Clinical Assessments	202
Reading the Mind in the Eyes Task (RMET)	Clinical Assessments	166
Repetitive Behavior Scale - Revised (RBS-R)	Clinical Assessments	1
Research Subject	Clinical Assessments	213
SRS-2. Adult, Preschool and School Age	Clinical Assessments	93
Screen for Child Anxiety Related Disorders (SCARED), Parent/Child	Clinical Assessments	197
Sensory Profile Adult	Clinical Assessments	192
Social Responsiveness Scale (SRS)	Clinical Assessments	161
Social Responsiveness Scale (SRS) - Adult/Self Version	Clinical Assessments	106
The Social Attribution Task-Multiple Choice	Clinical Assessments	166
Toronto Alexithymia Scale	Clinical Assessments	136
UPPS Impulsive Behavior Scale	Clinical Assessments	118
WHO Quality of Life	Clinical Assessments	102
Youth Self Report	Clinical Assessments	81

helpcenter.collection.shared-data-tab

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?

To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
Can I get a supplement to share data from a completed research project?

Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
Can I get a supplement to share data from a research project that is still ongoing?

Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Type

A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
Shared

The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

Contact NDA Help Desk

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed ID	Study	Title	Journal	Authors	Date	Status
38630783	Create Study	Conduction velocity, G-ratio, and extracellular water as microstructural characteristics of autism spectrum disorder.	PloS one	Newman, Benjamin T; Jacokes, Zachary; Venkadesh, Siva; Webb, Sara J; Kleinhans, Natalia M; McPartland, James C; Druzgal, T Jason; Pelphrey, Kevin A; Van Horn, John Darrell; GENDAAR Research Consortium	January 1, 2024	Not Determined
38587289	Create Study	Gender, assigned sex at birth, and gender diversity: Windows into diagnostic timing disparities in autism.	Autism : the international journal of research and practice	McQuaid, Goldie A; Ratto, Allison B; Jack, Allison; Khuu, Alexis; Smith, Jessica V; Duane, Sean C; Clawson, Ann; Lee, Nancy Raitano; Verbalis, Alyssa; Pelphrey, Kevin A; Kenworthy, Lauren; Wallace, Gregory L; Strang, John F	April 8, 2024	Not Determined
37860899	Create Study	Pubertal maturation and timing effects on resting state electroencephalography in autistic and comparison youth.	Developmental psychobiology	Rea, Hannah M; Clawson, Ann; Hudac, Caitlin M; Santhosh, Megha; Bernier, Raphael A; Earl, Rachel K; Pelphrey, Kevin A; Webb, Sara Jane; Neuhaus, Emily; GENDAAR Consortium	November 1, 2023	Not Determined
37840458	Create Study	Shared and distinct biological mechanisms for anxiety and sensory over-responsivity in youth with autism versus anxiety disorders.	Journal of neuroscience research	Cummings, Kaitlin K; Jung, Jiwon; Zbozinek, Tomislav D; Wilhelm, Frank H; Dapretto, Mirella; Craske, Michelle G; Bookheimer, Susan Y; Green, Shulamite A	January 1, 2024	Not Determined
37817282	Create Study	Age-related changes in neural responses to sensory stimulation in autism: a cross-sectional study.	Molecular autism	Cakar, Melis E; Cummings, Kaitlin K; Bookheimer, Susan Y; Dapretto, Mirella; Green, Shulamite A	October 11, 2023	Not Determined
37776030	Create Study	Frontal EEG alpha asymmetry in youth with autism: Sex differences and social-emotional correlates.	Autism research : official journal of the International Society for Autism Research	Neuhaus, Emily; Santhosh, Megha; Kresse, Anna; Aylward, Elizabeth; Bernier, Raphael; Bookheimer, Susan; Jeste, Shafali; Jack, Allison; McPartland, James C; Naples, Adam; Van Horn, John D; Pelphrey, Kevin; Webb, Sara Jane; ACE GENDAAR Network	December 1, 2023	Not Determined
37734257	Create Study	Epigenetic modification of the oxytocin receptor gene is associated with child-parent neural synchrony during competition.	Developmental cognitive neuroscience	Marzoratti, Analia; Liu, Megan E; Krol, Kathleen M; Sjobeck, Gus R; Lipscomb, Daniel J; Hofkens, Tara L; Boker, Steven M; Pelphrey, Kevin A; Connelly, Jessica J; Evans, Tanya M	October 1, 2023	Not Determined
37546913	Create Study	Conduction Velocity, G-ratio, and Extracellular Water as Microstructural Characteristics of Autism Spectrum Disorder.	bioRxiv : the preprint server for biology	Newman, Benjamin T; Jacokes, Zachary; Venkadesh, Siva; Webb, Sara J; Kleinhans, Natalia M; McPartland, James C; Druzgal, T Jason; Pelphrey, Kevin A; Van Horn, John Darrell; GENDAAR Research Consortium	February 14, 2024	Not Determined
37005061	Create Study	Associations between thalamocortical functional connectivity and sensory over-responsivity in infants at high likelihood for ASD.	Cerebral cortex (New York, N.Y. : 1991)	Wagner, Lauren; Banchik, Megan; Okada, Nana J; McDonald, Nicole; Jeste, Shafali S; Bookheimer, Susan Y; Green, Shulamite A; Dapretto, Mirella	June 8, 2023	Not Determined
36716136	Create Study	The Gender Self-Report: A multidimensional gender characterization tool for gender-diverse and cisgender youth and adults.	The American psychologist	Strang, John F; Wallace, Gregory L; Michaelson, Jacob J; Fischbach, Abigail L; Thomas, Taylor R; Jack, Allison; Shen, Jerry; Chen, Diane; Freeman, Andrew; Knauss, Megan; Corbett, Blythe A; Kenworthy, Lauren; Tishelman, Amy C; Willing, Laura; McQuaid, Goldie A; Nelson, Eric E; Toomey, Russell B; McGuire, Jenifer K; Fish, Jessica N; Leibowitz, Scott F; Nahata, Leena; Anthony, Laura G; Slesaransky-Poe, Graciela; D'Angelo, Lawrence; Clawson, Ann; Song, Amber D; Grannis, Connor; Sadikova, Eleonora; Pelphrey, Kevin A; Gendaar Consortium; Mancilla, Michael; McClellan, Lucy S; Csumitta, Kelsey D; Winchenbach, Molly R; Jilla, Amrita; Alemi, Farrokh; Yang, Ji Seung	October 1, 2023	Not Determined
35916246	Create Study	Leveraging technology to make parent training more accessible: Randomized trial of in-person versus online executive function training for parents of autistic children.	Autism : the international journal of research and practice	Kenworthy, Lauren; Childress, Deb; Armour, Anna Chelsea; Verbalis, Alyssa; Zhang, Anqing; Troxel, Mary; Handsman, Rebecca; Kocher, Kelly; Myrick, Yetta; Werner, Monica; Alexander, Katie C; Cannon, Lynn; Anthony, Laura G	April 1, 2023	Not Determined
35868485	Create Study	Cingulate-Prefrontal Connectivity During Dynamic Cognitive Control Mediates Association Between p Factor and Adaptive Functioning in a Transdiagnostic Pediatric Sample.	Biological psychiatry. Cognitive neuroscience and neuroimaging	Kaminski, Adam; You, Xiaozhen; Flaharty, Kathryn; Jeppsen, Charlotte; Li, Sufang; Merchant, Junaid S; Berl, Madison M; Kenworthy, Lauren; Vaidya, Chandan J	February 1, 2023	Not Determined
35451672	Create Study	Sex Differences on the ADOS-2.	Journal of autism and developmental disorders	Rea, Hannah M; Øien, Roald A; Shic, Frederick; Webb, Sara Jane; Ratto, Allison B	July 1, 2023	Not Determined
34690348	Create Study	Large-scale functional brain networks of maladaptive childhood aggression identified by connectome-based predictive modeling.	Molecular psychiatry	Ibrahim, Karim; Noble, Stephanie; He, George; Lacadie, Cheryl; Crowley, Michael J; McCarthy, Gregory; Scheinost, Dustin; Sukhodolsky, Denis G	February 1, 2022	Not Determined
34556059	Create Study	Effects of sensory distraction and salience priming on emotion identification in autism: an fMRI study.	Journal of neurodevelopmental disorders	Patterson, Genevieve; Cummings, Kaitlin K; Jung, Jiwon; Okada, Nana J; Tottenham, Nim; Bookheimer, Susan Y; Dapretto, Mirella; Green, Shulamite A	September 23, 2021	Not Determined
34517813	Create Study	Resting state EEG in youth with ASD: age, sex, and relation to phenotype.	Journal of neurodevelopmental disorders	Neuhaus, Emily; Lowry, Sarah J; Santhosh, Megha; Kresse, Anna; Edwards, Laura A; Keller, Jack; Libsack, Erin J; Kang, Veronica Y; Naples, Adam; Jack, Allison; Jeste, Shafali; McPartland, James C; Aylward, Elizabeth; Bernier, Raphael; Bookheimer, Susan; Dapretto, Mirella; Van Horn, John D; Pelphrey, Kevin; Webb, Sara Jane; The ACE GENDAAR Network	September 13, 2021	Not Determined
34422224	Create Study	ESTIMATING REPRODUCIBLE FUNCTIONAL NETWORKS ASSOCIATED WITH TASK DYNAMICS USING UNSUPERVISED LSTMS.	Proceedings. IEEE International Symposium on Biomedical Imaging	Dvornek, Nicha C; Ventola, Pamela; Duncan, James S	April 1, 2020	Not Determined
34308439	Create Study	Efficient Shapley Explanation For Features Importance Estimation Under Uncertainty.	Medical image computing and computer-assisted intervention : MICCAI ... International Conference on Medical Image Computing and Computer-Assisted Intervention	Li, Xiaoxiao; Zhou, Yuan; Dvornek, Nicha C; Gu, Yufeng; Ventola, Pamela; Duncan, James S	January 1, 2020	Not Determined
34308438	Create Study	Demographic-Guided Attention in Recurrent Neural Networks for Modeling Neuropathophysiological Heterogeneity.	Machine learning in medical imaging. MLMI (Workshop)	Dvornek, Nicha C; Li, Xiaoxiao; Zhuang, Juntang; Ventola, Pamela; Duncan, James S	January 1, 2020	Not Determined
34238038	Create Study	Adding the missing voice: How self-report of autistic youth self-report on an executive functioning rating scale compares to parent report and that of youth with attention deficit hyperactivity disorder or neurotypical development.	Autism : the international journal of research and practice	Kenworthy, Lauren; Verbalis, Alyssa; Bascom, Julia; daVanport, Sharon; Strang, John F; Pugliese, Cara; Freeman, Andrew; Jeppsen, Charlotte; Armour, Anna C; Jost, Geneva; Hardy, Kristina; Wallace, Gregory L	February 1, 2022	Not Determined
34050743	Create Study	Impact of autism genetic risk on brain connectivity: a mechanism for the female protective effect.	Brain : a journal of neurology	Lawrence, Katherine E; Hernandez, Leanna M; Fuster, Emily; Padgaonkar, Namita T; Patterson, Genevieve; Jung, Jiwon; Okada, Nana J; Lowe, Jennifer K; Hoekstra, Jackson N; Jack, Allison; Aylward, Elizabeth; Gaab, Nadine; Van Horn, John D; Bernier, Raphael A; McPartland, James C; Webb, Sara J; Pelphrey, Kevin A; Green, Shulamite A; Bookheimer, Susan Y; Geschwind, Daniel H; Dapretto, Mirella; GENDAAR Consortium	March 29, 2022	Not Determined
34043128	Create Study	Looking Back at the Next 40 Years of ASD Neuroscience Research.	Journal of autism and developmental disorders	McPartland, James C; Lerner, Matthew D; Bhat, Anjana; Clarkson, Tessa; Jack, Allison; Koohsari, Sheida; Matuskey, David; McQuaid, Goldie A; Su, Wan-Chun; Trevisan, Dominic A	December 1, 2021	Not Determined
33860292	Create Study	A neurogenetic analysis of female autism.	Brain : a journal of neurology	Jack, Allison; Sullivan, Catherine A W; Aylward, Elizabeth; Bookheimer, Susan Y; Dapretto, Mirella; Gaab, Nadine; Van Horn, John D; Eilbott, Jeffrey; Jacokes, Zachary; Torgerson, Carinna M; Bernier, Raphael A; Geschwind, Daniel H; McPartland, James C; Nelson, Charles A; Webb, Sara J; Pelphrey, Kevin A; Gupta, Abha R; GENDAAR Consortium	July 28, 2021	Not Determined
33715473	Create Study	The gap between IQ and adaptive functioning in autism spectrum disorder: Disentangling diagnostic and sex differences.	Autism : the international journal of research and practice	McQuaid, Goldie A; Pelphrey, Kevin A; Bookheimer, Susan Y; Dapretto, Mirella; Webb, Sara J; Bernier, Raphael A; McPartland, James C; Van Horn, John D; Wallace, Gregory L	August 1, 2021	Not Determined
33682042	Create Study	Language and Aggressive Behaviors in Male and Female Youth with Autism Spectrum Disorder.	Journal of autism and developmental disorders	Neuhaus, Emily; Kang, Veronica Youn; Kresse, Anna; Corrigan, Sarah; Aylward, Elizabeth; Bernier, Raphael; Bookheimer, Susan; Dapretto, Mirella; Jack, Allison; Jeste, Shafali; McPartland, James C; Van Horn, John D; Pelphrey, Kevin; Webb, Sara Jane; ACE GENDAAR Consortium	January 1, 2022	Not Determined
33677261	Create Study	Neuropsychiatric disease classification using functional connectomics - results of the connectomics in neuroimaging transfer learning challenge.	Medical image analysis	Schirmer, Markus D; Venkataraman, Archana; Rekik, Islem; Kim, Minjeong; Mostofsky, Stewart H; Nebel, Mary Beth; Rosch, Keri; Seymour, Karen; Crocetti, Deana; Irzan, Hassna; Hütel, Michael; Ourselin, Sebastien; Marlow, Neil; Melbourne, Andrew; Levchenko, Egor; Zhou, Shuo; Kunda, Mwiza; Lu, Haiping; Dvornek, Nicha C; Zhuang, Juntang; Pinto, Gideon; Samal, Sandip; Zhang, Jennings; Bernal-Rusiel, Jorge L; Pienaar, Rudolph; Chung, Ai Wern	May 1, 2021	Not Determined
33587311	Create Study	Associations between physiological and neural measures of sensory reactivity in youth with autism.	Journal of child psychology and psychiatry, and allied disciplines	Jung, Jiwon; Zbozinek, Tomislav D; Cummings, Kaitlin K; Wilhelm, Frank H; Dapretto, Mirella; Craske, Michelle G; Bookheimer, Susan Y; Green, Shulamite A	October 1, 2021	Not Determined
33442839	Create Study	Parent Emotion Socialization in Children with Autism Spectrum Disorder and Co-Occurring Anxiety.	Research on child and adolescent psychopathology	Jordan, Rebecca; Kalvin, Carla B; Ibrahim, Karim; Sukhodolsky, Denis G	January 1, 2021	Not Determined
33436538	Create Study	Sensory over-responsivity is related to GABAergic inhibition in thalamocortical circuits.	Translational psychiatry	Wood, Emily T; Cummings, Kaitlin K; Jung, Jiwon; Patterson, Genevieve; Okada, Nana; Guo, Jia; O'Neill, Joseph; Dapretto, Mirella; Bookheimer, Susan Y; Green, Shulamite A	January 12, 2021	Not Determined
33385281	Create Study	Conducting CBT for Anxiety in Children with Autism Spectrum Disorder During COVID-19 Pandemic.	Journal of autism and developmental disorders	Kalvin, Carla B; Jordan, Rebecca P; Rowley, Sonia N; Weis, Anna; Wood, Karen S; Wood, Jeffrey J; Ibrahim, Karim; Sukhodolsky, Denis G	November 1, 2021	Not Determined
33274604	Create Study	Do Biological Sex and Early Developmental Milestones Predict the Age of First Concerns and Eventual Diagnosis in Autism Spectrum Disorder?	Autism research : official journal of the International Society for Autism Research	Harrop, Clare; Libsack, Erin; Bernier, Raphael; Dapretto, Mirella; Jack, Allison; McPartland, James C; Van Horn, John D; Webb, Sara J; Pelphrey, Kevin; GENDAAR Consortium	January 1, 2021	Not Determined
33082616	Create Study	Graph Embedding Using Infomax for ASD Classification and Brain Functional Difference Detection.	Proceedings of SPIE--the International Society for Optical Engineering	Li, Xiaoxiao; Dvornek, Nicha C; Zhuang, Juntang; Ventola, Pamela; Duncan, James	February 1, 2020	Not Determined
33043324	Create Study	Pooling Regularized Graph Neural Network for fMRI Biomarker Analysis.	Medical image computing and computer-assisted intervention : MICCAI ... International Conference on Medical Image Computing and Computer-Assisted Intervention	Li, Xiaoxiao; Zhou, Yuan; Dvornek, Nicha C; Zhang, Muhan; Zhuang, Juntang; Ventola, Pamela; Duncan, James S	October 1, 2020	Not Determined
32929890	Create Study	Social Motivation Across Multiple Measures: Caregiver-Report of Children with Autism Spectrum Disorder.	Autism research : official journal of the International Society for Autism Research	Neuhaus, Emily; Bernier, Raphael A; Webb, Sara J	February 1, 2021	Not Determined
32863862	Create Study	Parent-Child Concordance on the Pubertal Development Scale in Typically Developing and Autistic Youth.	Research in autism spectrum disorders	Clawson, Ann; Strang, John F; Wallace, Gregory L; Gomez-Lobo, Veronica; Jack, Allison; Webb, Sara J; Pelphrey, Kevin A	September 2020	Not Determined
32860348	Create Study	Sex Differences in Salience Network Connectivity and its Relationship to Sensory Over-Responsivity in Youth with Autism Spectrum Disorder.	Autism research : official journal of the International Society for Autism Research	Cummings, Kaitlin K; Lawrence, Katherine E; Hernandez, Leanna M; Wood, Emily T; Bookheimer, Susan Y; Dapretto, Mirella; Green, Shulamite A	September 2020	Not Determined
32734421	Create Study	Assessing Irritability in Children with Autism Spectrum Disorder Using the Affective Reactivity Index.	Journal of autism and developmental disorders	Kalvin, Carla B; Gladstone, Theresa R; Jordan, Rebecca; Rowley, Sonia; Marsh, Carolyn L; Ibrahim, Karim; Sukhodolsky, Denis G	May 1, 2021	Not Determined
32716854	Create Study	Sex Differences in Internalizing Symptoms and Amygdala Functional Connectivity in Neurotypical Youth.	Developmental cognitive neuroscience	Padgaonkar, N T; Lawrence, K E; Hernandez, L M; Green, S A; Galván, A; Dapretto, M	August 1, 2020	Not Determined
32679533	Create Study	Multi-site fMRI analysis using privacy-preserving federated learning and domain adaptation: ABIDE results.	Medical image analysis	Li, Xiaoxiao; Gu, Yufeng; Dvornek, Nicha; Staib, Lawrence H; Ventola, Pamela; Duncan, James S	October 1, 2020	Not Determined
32553786	Create Study	Editorial: Taking the Next Step Towards Validating Social Processes From the Research Domain Criteria.	Journal of the American Academy of Child and Adolescent Psychiatry	Wallace, Gregory L; Yerys, Benjamin E	November 1, 2020	Not Determined
32488083	Create Study	Neural responsivity to social rewards in autistic female youth.	Translational psychiatry	Lawrence, Katherine E; Hernandez, Leanna M; Eilbott, Jeffrey; Jack, Allison; Aylward, Elizabeth; Gaab, Nadine; Van Horn, John D; Bernier, Raphael A; Geschwind, Daniel H; McPartland, James C; Nelson, Charles A; Webb, Sara J; Pelphrey, Kevin A; Bookheimer, Susan Y; Dapretto, Mirella; GENDAAR Consortium	June 2020	Not Determined
32350530	Create Study	Sex Differences in Functional Connectivity of the Salience, Default Mode, and Central Executive Networks in Youth with ASD.	Cerebral cortex (New York, N.Y. : 1991)	Lawrence, Katherine E; Hernandez, Leanna M; Bowman, Hilary C; Padgaonkar, Namita T; Fuster, Emily; Jack, Allison; Aylward, Elizabeth; Gaab, Nadine; Van Horn, John D; Bernier, Raphael A; Geschwind, Daniel H; McPartland, James C; Nelson, Charles A; Webb, Sara J; Pelphrey, Kevin A; Green, Shulamite A; Bookheimer, Susan Y; Dapretto, Mirella; GENDAAR Consortium	July 2020	Not Determined
32274471	Create Study	Invertible Network for Classification and Biomarker Selection for ASD.	Medical image computing and computer-assisted intervention : MICCAI ... International Conference on Medical Image Computing and Computer-Assisted Intervention	Zhuang, Juntang; Dvornek, Nicha C; Li, Xiaoxiao; Ventola, Pamela; Duncan, James S	October 2019	Not Determined
32274470	Create Study	Jointly Discriminative and Generative Recurrent Neural Networks for Learning from fMRI.	Machine learning in medical imaging. MLMI (Workshop)	Dvornek, Nicha C; Li, Xiaoxiao; Zhuang, Juntang; Duncan, James S	October 2019	Not Determined
32178755	Create Study	Preliminary Psychometrics for the Executive Function Challenge Task: A Novel, "Hot" Flexibility, and Planning Task for Youth.	Journal of the International Neuropsychological Society : JINS	Kenworthy, Lauren; Freeman, Andrew; Ratto, Allison; Dudley, Katerina; Powell, Kelly K; Pugliese, Cara E; Strang, John F; Verbalis, Alyssa; Anthony, Laura G	August 1, 2020	Not Determined
32144044	Create Study	Fixel-Based Diffusion Magnetic Resonance Imaging Reveals Novel Associations Between White Matter Microstructure and Childhood Aggressive Behavior.	Biological psychiatry. Cognitive neuroscience and neuroimaging	Grazioplene, Rachael; Tseng, Wan-Ling; Cimino, Kimberly; Kalvin, Carla; Ibrahim, Karim; Pelphrey, Kevin A; Sukhodolsky, Denis G	May 2020	Not Determined
32127526	Create Study	Imaging-genetics of sex differences in ASD: distinct effects of OXTR variants on brain connectivity.	Translational psychiatry	Hernandez, Leanna M; Lawrence, Katherine E; Padgaonkar, N Tanya; Inada, Marisa; Hoekstra, Jackson N; Lowe, Jennifer K; Eilbott, Jeffrey; Jack, Allison; Aylward, Elizabeth; Gaab, Nadine; Van Horn, John D; Bernier, Raphael A; McPartland, James C; Webb, Sara J; Pelphrey, Kevin A; Green, Shulamite A; Geschwind, Daniel H; Bookheimer, Susan Y; Dapretto, Mirella; GENDAAR Consortium	March 2020	Not Determined
31955916	Create Study	Reconciling Dimensional and Categorical Models of Autism Heterogeneity: A Brain Connectomics and Behavioral Study.	Biological psychiatry	Tang, Siyi; Sun, Nanbo; Floris, Dorothea L; Zhang, Xiuming; Di Martino, Adriana; Yeo, B T Thomas	June 15, 2020	Not Determined
31643143	Create Study	Discrepancies between parent and child ratings of anxiety in children with autism spectrum disorder.	Autism research : official journal of the International Society for Autism Research	Kalvin, Carla B; Marsh, Carolyn L; Ibrahim, Karim; Gladstone, Theresa R; Woodward, Diana; Grantz, Heidi; Ventola, Pamela; Sukhodolsky, Denis G	January 1, 2020	Not Determined
31509248	Create Study	Data-driven identification of subtypes of executive function across typical development, attention deficit hyperactivity disorder, and autism spectrum disorders.	Journal of child psychology and psychiatry, and allied disciplines	Vaidya, Chandan J; You, Xiaozhen; Mostofsky, Stewart; Pereira, Francisco; Berl, Madison M; Kenworthy, Lauren	January 1, 2020	Not Determined
31390873	Create Study	Anxiety in 3- to 7-year-old children with autism spectrum disorder seeking treatment for disruptive behavior.	Autism : the international journal of research and practice	Sukhodolsky, Denis G; Lecavalier, Luc; Johnson, Cynthia; Smith, Tristram; Swiezy, Naomi; Bearss, Karen; Kalvin, Carla B; Scahill, Lawrence	February 1, 2020	Not Determined
31347307	Create Study	Altered Neural Connectivity in Females, But Not Males with Autism: Preliminary Evidence for the Female Protective Effect from a Quality-Controlled Diffusion Tensor Imaging Study.	Autism research : official journal of the International Society for Autism Research	Lei, Jiedi; Lecarie, Emma; Jurayj, Jane; Boland, Sarah; Sukhodolsky, Denis G; Ventola, Pamela; Pelphrey, Kevin A; Jou, Roger J	October 2019	Not Determined
31230465	Create Study	Distinct Patterns of Neural Habituation and Generalization in Children and Adolescents With Autism With Low and High Sensory Overresponsivity.	The American journal of psychiatry	Green, Shulamite A; Hernandez, Leanna; Lawrence, Katherine E; Liu, Janelle; Tsang, Tawny; Yeargin, Jillian; Cummings, Kaitlin; Laugeson, Elizabeth; Dapretto, Mirella; Bookheimer, Susan Y	December 2019	Not Determined
31144231	Create Study	Anger Rumination is Associated with Restricted and Repetitive Behaviors in Children with Autism Spectrum Disorder.	Journal of autism and developmental disorders	Ibrahim, Karim; Kalvin, Carla; Marsh, Carolyn L; Anzano, Anthony; Gorynova, Lyudmila; Cimino, Kimberly; Sukhodolsky, Denis G	September 1, 2019	Not Determined
30979647	Create Study	Reduced Amygdala-Prefrontal Functional Connectivity in Children With Autism Spectrum Disorder and Co-occurring Disruptive Behavior.	Biological psychiatry. Cognitive neuroscience and neuroimaging	Ibrahim, Karim; Eilbott, Jeffrey A; Ventola, Pamela; He, George; Pelphrey, Kevin A; McCarthy, Gregory; Sukhodolsky, Denis G	December 1, 2019	Not Determined
30957732	Create Study	Linking social motivation with social skill: The role of emotion dysregulation in autism spectrum disorder.	Development and psychopathology	Neuhaus, Emily; Webb, Sara J; Bernier, Raphael A	August 1, 2019	Not Determined
30901538	Create Study	Defining the Genetic, Genomic, Cellular, and Diagnostic Architectures of Psychiatric Disorders.	Cell	Sullivan, Patrick F; Geschwind, Daniel H	March 2019	Not Determined
30873514	Create Study	Learning Generalizable Recurrent Neural Networks from Small Task-fMRI Datasets.	Medical image computing and computer-assisted intervention : MICCAI ... International Conference on Medical Image Computing and Computer-Assisted Intervention	Dvornek NC, Yang D, Ventola P, Duncan JS	September 2018	Not Determined
30534065	Create Study	Support Vector Machines, Multidimensional Scaling and Magnetic Resonance Imaging Reveal Structural Brain Abnormalities Associated With the Interaction Between Autism Spectrum Disorder and Sex.	Frontiers in computational neuroscience	Irimia, Andrei; Lei, Xiaoyu; Torgerson, Carinna M; Jacokes, Zachary J; Abe, Sumiko; Van Horn, John D	January 1, 2018	Not Determined
29962977	Create Study	Corrigendum: Resting-State Functional Connectivity in Autism Spectrum Disorders: A Review.	Frontiers in psychiatry	Hull, Jocelyn V; Dokovna, Lisa B; Jacokes, Zachary J; Torgerson, Carinna M; Irimia, Andrei; Van Horn, John Darrell; GENDAAR Research Consortium	January 2018	Not Determined
29550506	Create Study	Early enhanced processing and delayed habituation to deviance sounds in autism spectrum disorder.	Brain and cognition	Hudac, Caitlin M; DesChamps, Trent D; Arnett, Anne B; Cairney, Brianna E; Ma, Ruqian; Webb, Sara Jane; Bernier, Raphael A	June 2018	Not Determined
29517857	Create Study	Neural mechanisms of behavioral change in young adults with high-functioning autism receiving virtual reality social cognition training: A pilot study.	Autism research : official journal of the International Society for Autism Research	Yang, Y J Daniel; Allen, Tandra; Abdullahi, Sebiha M; Pelphrey, Kevin A; Volkmar, Fred R; Chapman, Sandra B	May 2018	Not Determined
29333196	Create Study	Brief report: Reduced anxiety following Pivotal Response Treatment in young children with Autism Spectrum Disorder.	Research in autism spectrum disorders	Lei, Jiedi; Sukhodolsky, Denis G; Abdullahi, Sebiha M; Braconnier, Megan L; Ventola, Pamela	November 2017	Not Determined
29255008	Create Study	A Computational Account of Optimizing Social Predictions Reveals That Adolescents Are Conservative Learners in Social Contexts.	The Journal of neuroscience : the official journal of the Society for Neuroscience	Rosenblau, Gabriela; Korn, Christoph W; Pelphrey, Kevin A	January 2018	Not Determined
29251835	Create Study	Child and family characteristics moderate agreement between caregiver and clinician report of autism symptoms.	Autism research : official journal of the International Society for Autism Research	Neuhaus, Emily; Beauchaine, Theodore P; Bernier, Raphael A; Webb, Sara J	March 2018	Not Determined

helpcenter.collection.publications-tab

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

How can I determine if a publication is relevant?

Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
Where does the NDA get the publications?

PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

Create Study

A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
Not Determined Publication

Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
Not Relevant Publication

A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
PubMed

PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
PubMed ID

The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
Relevant Publication

A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

Contact NDA Help Desk

Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
Research Subject and Pedigree	500	07/15/2018	307	11/15/2018	213	Approved

To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.

Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
Genomics/omics	500	07/15/2018	0	01/15/2021	0	Approved
ADOS	200	07/15/2018	0	01/15/2021	0	Approved
ADI-R	200	07/15/2018	0	01/15/2021	0	Approved
Reading the Mind in the Eyes	500	07/15/2018	236	01/15/2021	166	Approved
Medical History	500	07/15/2018	0	01/15/2021	0	Approved
Social Responsiveness Scale (SRS)	500	07/15/2018	278	01/15/2021	198	Approved
Genetic Test	500	07/15/2018	0	01/15/2021	0	Approved
Social Communication Questionnaire (SCQ)	500	07/15/2018	0	01/15/2021	0	Approved
Broad Autism Phenotype Questionnaire (BAPQ)	500	07/15/2018	0	01/15/2021	0	Approved
Demographics	500	07/15/2018	278	01/15/2021	198	Approved
Child Behavior Checklist (CBCL)	500	07/18/2018	104	01/15/2021	76	Approved
Quality of Life Assessment	500	07/15/2018	261	01/15/2021	190	Approved
Screen for Childhood Anxiety Related Emotional Disorders (SCARED)	500	07/15/2018	272	01/15/2021	197	Approved
Social Attribution Task Multiple Choice (SAT-MC)	500	07/15/2018	235	01/15/2021	166	Approved
Pubertal Development Scale (PDS)	500	07/15/2018	282	01/15/2021	202	Approved
DAS-II: Differential Ability Scales	500	07/15/2018	0	01/15/2021	0	Approved
Repetitive Behavior Scale - Revised (RBS-R)	500	07/15/2018	59	01/15/2021	1	Approved
Physical Exam	162	07/18/2018	275	01/15/2021	198	Approved
Adult Behavior Checklist (ABCL)	500	07/15/2018	118	01/15/2021	97	Approved
Sensory Profile	500	07/15/2018	263	01/15/2021	192	Approved
Behavior Rating Inventory of Executive Function (BRIEF)	500	07/15/2018	0	01/15/2021	0	Approved
Pittsburgh Sleep Quality Index	200	07/15/2018	119	01/15/2021	89	Approved
Clinical Evaluation of Language Fundamentals (CELF)	500	07/15/2018	0	01/15/2021	0	Approved
Youth Self Report	500	07/15/2018	107	01/15/2021	81	Approved
Vineland (Parent and Caregiver)	500	07/15/2018	0	01/15/2021	0	Approved
Adult Self Report	500	07/15/2018	135	01/15/2021	103	Approved
Imaging (Structural, fMRI, DTI, PET, microscopy)	500	07/15/2018	158	01/15/2021	0	Approved
Anticipatory and Consummatory Interpersonal Pleasure Scale-Adolescent	200	07/15/2018	225	01/15/2021	158	Approved
UPPS Impulsive Behavior Scale	200	07/15/2018	118	01/15/2021	118	Approved
Behavioral Inhibition Scale/Behavioral Activation Scale	200	07/15/2018	221	01/15/2021	156	Approved
EEG Subject	500	07/15/2018	0	01/15/2021	0	Approved
Munich ChronoType Questionnaire	200	07/15/2018	101	01/15/2021	68	Approved
Toronto Alexithymia Scale	110	07/18/2018	184	01/15/2021	136	Approved
Child Eating Behavior Questionnaire (CEBQ)	500	07/15/2018	134	01/15/2021	93	Approved

Structure not yet defined

No Status history for this Data Expected has been recorded yet

helpcenter.collection.data-expected-tab

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

What is an NDA Data Structure?

An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
What is the NDA Data Dictionary?

The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

Analyzed Data

Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
Data Item

Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Structure Category

An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
Data Structure Group

A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
Evaluated Data

A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
Imaging Data

Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
Initial Share Date

Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
Initial Submission Date

Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
Research Subject and Pedigree

An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
Submission Cycle

The NDA has two Submission Cycles per year - January 15 and July 15.
Submission Exemption

An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameFilter by Study Name	AbstractFilter by Abstract	Collection/Study SubjectsFilter by Collection/Study Subjects	Data UsageFilter by Data Usage	StateFilter by State
Development of EEG dynamics throughout the lifespan	Combining data from across several datasets available on the NIMH data repository, multiple metrics of EEG dynamics were examined in a large cross sectional sample of healthy participants from across the lifespan. The goal was to examine changes in brain dynamics that occur across development.	99/551	Secondary Analysis	Shared
Cortico-Basal Ganglia Brain Structure and Links to Restricted, Repetitive Behavior in Autism Spectrum Disorder	Restricted repetitive behavior (RRB) is one of two criteria domains required for the diagnosis of autism spectrum disorder (ASD). Neuroimaging is widely used to study brain alterations associated with ASD and the domain of social and communication deficits, but there has been less work regarding alterations associated with RRB. In this study we utilized neuroimaging data available from the National Database for Autism Research to assess volume in the basal ganglia and cerebellum, as well as microstructure in basal ganglia and cerebellar white matter tracts in ASD. We also investigated whether these measures differed between males and females with ASD, and how these factors correlated with clinical measures of RRB from the same individuals. We found that individuals with ASD had significant differences in free-water corrected fractional anisotropy (FAT) and free-water in cortico-basal ganglia white matter tracts, but that these measures did not differ between males versus females with ASD. Moreover, both FAT and free-water in these tracts were significantly correlated with measures of RRB. Despite no differences in volumetric measures in basal ganglia and cerebellum, these findings suggest the links between RRB and brain structure are within specific cortico-basal ganglia white matter tracts.	50/192	Secondary Analysis	Shared

* Data not on individual level

helpcenter.collection.associated-studies-tab

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

How do I associate a study to my collection?

Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

Associated Studies Tab

A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

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