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Deep Brain Stimulation (DBS) Clinical Assessments

0 Shared Subjects

This assessment outlines the clinical neurology and neuropsychology variables that are considered for movement disorder patients to be eligible to obtain Deep Brain Stimulation (DBS) surgery.
Clinical Assessments
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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
clinicneur_hand Integer Recommended Dominant Hand of subject 0;1 0 = right handed; 1 = left handed handedness
clinicneur1 Integer Recommended Did patient have multiple neuropsychology visits? 0;1 0 = No; 1 = Yes
clinicneur2 Integer Recommended Reason for multiple neuropsychology visits 0::7 0 = patient did not have multiple neuropsychology appointments; 1 = pre and between (patient had a neuropsychology apt before DBS surgery and between a second DBS surgery (usually going from unilateral to bilateral or some other electrode revision)); 2 = pre and post (patient had a neuropsychology apt before DBS surgery and one after the DBS surgery/ies; 3 = multiple pre (patient had multiple neuropsychology apts before DBS surgery); 4 = multiple post (patient had multiple neuropsychology apts after DBS surgery/ies); 5 = multiple between (patient had multiple neuropsychology apts in between their DBS surgeries); 6 = pre between and post (patient had a neuropsychology apt before DBS surgery, in between, and after); 7 = between and post (patient had a neurpsychology apt between DBS surgeries and afterwards)
clinicneur3 Date Recommended Neuropsychology visit 1 date MM/DD/YYYY
clinicneur4 Date Recommended Neuropsychology visit 2 date MM/DD/YYYY
clinicneur5 Date Recommended Neuropsychology visit 3 date MM/DD/YYYY
clinicneur6 Date Recommended Deep Brain Stimulation (DBS) Surgery Phase 1 date MM/DD/YYYY
clinicneur7 Date Recommended Deep Brain Stimulation (DBS) Surgery Phase 2 date MM/DD/YYYY
clinicneur8 Integer Recommended Additional Psychiatry appointments? 0;1 0 = No; 1 = Yes
clinicneur9 Integer Recommended Confirmed diagnosis of Parkinson's Disease (PD)? 0;1 0 = No; 1 = Yes
clinicneur10 Integer Recommended Confirmed diagnosis of Essential Tremors (ET)? 0;1 0 = No; 1 = Yes
clinicneur11 Integer Recommended Diagnosis 0::10 0 = PD; 1 = ET; 2 = PD+ET; 3 = dystonia; 4 = OCD; 5 = Tourettes; 6 = OCD+Tourettes; 7 = Parkinsonism; 8 = Parkinsonism+dystonia; 9 = Unclear/other; 10 = corticobulbar degeneration
clinicneur12 Integer Recommended DBS1 Status 0::2 0 = N/A; 1 = Pre-surgery workup; 2 = post-surgery workup
clinicneur13 Integer Recommended DBS1 laterality 0;1;2;5 0 = Bilateral; 1 = unilateral left; 2 = unilateral right; 5 = N/A
clinicneur14 Integer Recommended Was DBS Surgery performed in stages or simulataneously? 0;1;5 0 = staged surgery; 1 = simultaneous surgery; 5 = N/A
clinicneur15 Integer Recommended Location of DBS stimulation placement 0::5 0 = STN;1 = Gpi; 2 = VIM; 3 = VC/VS; 4 = Gpi + VIM; 5 = N/A
clinicneur16 Integer Recommended PD diagnosis type 0::5 0 = Tremor; 1 = Akinetic Rigid; 2 = PIGD; 3 = Mixed Tremor; 4 = Mixed Rigid; 5 = N/A
clinicneur17 Integer Recommended PD diagnosis type consolidated form 0::3 0 = Tremor; 1 = Akinetic Rigid; 2 = PIGD; 3 = N/A
clinicneur18 Integer Recommended Disease duration in years 0::100 in years
clinicneur19 Date Recommended Date of most recent UPDRS score MM/DD/YYYY
clinicneur20 Integer Recommended Time between Neuropsychology appointment and DBS surgery 0;1;2;3;5 0 = 1-3 months; 1 = 3-6 months; 2 = 6-12 months; 3 = 12-24 months; 5 = N/A
clinicneur21 Integer Recommended On or off medication when undergoing UPDRS? 0;1;2;3;5 0 = off meds; 1 = on meds; 2 = partially off meds; 3 = unknown; 5 = N/A
clinicneur22 Integer Recommended On or off DBS stimulation when undergoing UPDRS? 0;1 0 = off DBS stimulation; 1 = on DBS stimulation
clinicneur23 Integer Recommended UPDRS Motor Total 0::199 Higher total is equal to more severe symptoms
clinicneur24 Integer Recommended Tremor Total 0::28
clinicneur25 Integer Recommended Right Tremor Total 0::12
clinicneur26 Integer Recommended Left Tremor Total 0::12
clinicneur27 Integer Recommended Tremor Lateralization 1;2 1 = right; 2 = left
clinicneur28 Integer Recommended Rigiditiy Total 0::20
clinicneur29 Integer Recommended Right Rigidity Total 0::10
clinicneur30 Integer Recommended Left Rigidity Total 0::10
clinicneur31 Integer Recommended Rigiditity Lateralization 1;2 1 = right; 2 = left
clinicneur32 Integer Recommended Bradykinesia? 1::4 1 = none; 2 = mild; 3 = moderate; 4 = marked
clinicneur33 Integer Recommended Dyskinesia? 0;1 0 = No; 1 = Yes
clinicneur34 Integer Recommended Disease severity 1::4 1 = minimal; 2 = moderate; 3 = severe; 4 = N/A
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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