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Deep Brain Stimulation (DBS) Clinical Assessments

44 Shared Subjects

This assessment outlines the clinical neurology and neuropsychology variables that are considered for movement disorder patients to be eligible to obtain Deep Brain Stimulation (DBS) surgery.
Clinical Assessments
Diagnostic
06/07/2021
dbsclin01
07/02/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
clinicneur_hand Integer Recommended Dominant Hand of subject 0;1 0 = right handed; 1 = left handed handedness
clinicneur1 Integer Recommended Did patient have multiple neuropsychology visits? 0;1 0 = No; 1 = Yes
clinicneur2 Integer Recommended Reason for multiple neuropsychology visits 0::7 0 = patient did not have multiple neuropsychology appointments; 1 = pre and between (patient had a neuropsychology apt before DBS surgery and between a second DBS surgery (usually going from unilateral to bilateral or some other electrode revision)); 2 = pre and post (patient had a neuropsychology apt before DBS surgery and one after the DBS surgery/ies; 3 = multiple pre (patient had multiple neuropsychology apts before DBS surgery); 4 = multiple post (patient had multiple neuropsychology apts after DBS surgery/ies); 5 = multiple between (patient had multiple neuropsychology apts in between their DBS surgeries); 6 = pre between and post (patient had a neuropsychology apt before DBS surgery, in between, and after); 7 = between and post (patient had a neurpsychology apt between DBS surgeries and afterwards)
clinicneur3 Date Recommended Neuropsychology visit 1 date MM/DD/YYYY
clinicneur4 Date Recommended Neuropsychology visit 2 date MM/DD/YYYY
clinicneur5 Date Recommended Neuropsychology visit 3 date MM/DD/YYYY
clinicneur6 Date Recommended Deep Brain Stimulation (DBS) Surgery Phase 1 date MM/DD/YYYY
clinicneur7 Date Recommended Deep Brain Stimulation (DBS) Surgery Phase 2 date MM/DD/YYYY
clinicneur8 Integer Recommended Additional Psychiatry appointments? 0;1 0 = No; 1 = Yes
clinicneur9 Integer Recommended Confirmed diagnosis of Parkinson's Disease (PD)? 0;1 0 = No; 1 = Yes
clinicneur10 Integer Recommended Confirmed diagnosis of Essential Tremors (ET)? 0;1 0 = No; 1 = Yes
clinicneur11 Integer Recommended Diagnosis 0::10 0 = PD; 1 = ET; 2 = PD+ET; 3 = dystonia; 4 = OCD; 5 = Tourettes; 6 = OCD+Tourettes; 7 = Parkinsonism; 8 = Parkinsonism+dystonia; 9 = Unclear/other; 10 = corticobulbar degeneration
clinicneur12 Integer Recommended DBS1 Status 0::2 0 = N/A; 1 = Pre-surgery workup; 2 = post-surgery workup
clinicneur13 Integer Recommended DBS1 laterality 0;1;2;5 0 = Bilateral; 1 = unilateral left; 2 = unilateral right; 5 = N/A
clinicneur14 Integer Recommended Was DBS Surgery performed in stages or simulataneously? 0;1;5 0 = staged surgery; 1 = simultaneous surgery; 5 = N/A
clinicneur15 Integer Recommended Location of DBS stimulation placement 0::5 0 = STN;1 = Gpi; 2 = VIM; 3 = VC/VS; 4 = Gpi + VIM; 5 = N/A
clinicneur16 Integer Recommended PD diagnosis type 0::5 0 = Tremor; 1 = Akinetic Rigid; 2 = PIGD; 3 = Mixed Tremor; 4 = Mixed Rigid; 5 = N/A
clinicneur17 Integer Recommended PD diagnosis type consolidated form 0::3 0 = Tremor; 1 = Akinetic Rigid; 2 = PIGD; 3 = N/A
clinicneur18 Integer Recommended Disease duration in years 0::100 in years
clinicneur19 Date Recommended Date of most recent UPDRS score MM/DD/YYYY
clinicneur20 Integer Recommended Time between Neuropsychology appointment and DBS surgery 0;1;2;3;5 0 = 1-3 months; 1 = 3-6 months; 2 = 6-12 months; 3 = 12-24 months; 5 = N/A
clinicneur21 Integer Recommended On or off medication when undergoing UPDRS? 0;1;2;3;5 0 = off meds; 1 = on meds; 2 = partially off meds; 3 = unknown; 5 = N/A
clinicneur22 Integer Recommended On or off DBS stimulation when undergoing UPDRS? 0;1 0 = off DBS stimulation; 1 = on DBS stimulation
clinicneur23 Integer Recommended UPDRS Motor Total 0::199 Higher total is equal to more severe symptoms
clinicneur24 Integer Recommended Tremor Total 0::28
clinicneur25 Integer Recommended Right Tremor Total 0::12
clinicneur26 Integer Recommended Left Tremor Total 0::12
clinicneur27 Integer Recommended Tremor Lateralization 1;2 1 = right; 2 = left
clinicneur28 Integer Recommended Rigiditiy Total 0::20
clinicneur29 Integer Recommended Right Rigidity Total 0::10
clinicneur30 Integer Recommended Left Rigidity Total 0::10
clinicneur31 Integer Recommended Rigiditity Lateralization 1;2 1 = right; 2 = left
clinicneur32 Integer Recommended Bradykinesia? 1::4 1 = none; 2 = mild; 3 = moderate; 4 = marked
clinicneur33 Integer Recommended Dyskinesia? 0;1 0 = No; 1 = Yes
clinicneur34 Integer Recommended Disease severity 1::4 1 = minimal; 2 = moderate; 3 = severe; 4 = N/A
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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