|
|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
record_id |
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
demo_date |
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
age |
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
|
race |
String |
30
|
Recommended |
Race of study subject |
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
|
|
|
|
|
otherrace |
String |
100
|
Recommended |
specify other race |
|
The following questions are about you or the child's family.
|
race_other |
|
|
demo_resp_status |
Integer |
|
Recommended |
respondent's marital status |
1::13
|
1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer; 12= Engaged; 13=Civil union
|
|
|
|
times_marr |
Integer |
|
Recommended |
How many times have you married? |
|
|
married_number_times |
|
|
widowed |
Integer |
|
Recommended |
Have you ever been widowed? |
0 :: 1
|
0= no; 1 = yes
|
|
|
|
numchild |
Integer |
|
Recommended |
number of children |
|
|
number_children |
|
|
living_arrangements |
Integer |
|
Recommended |
What are your current living arrangements? |
1 :: 7
|
1= Alone; 2= With partner, not legally married; 3= With spouse and/or children; 4= With parents or adult children; 5= With siblings or other relatives; 6= With friends/ roommates; 7= In a residential treatment facility
|
|
|
|
country_origin |
String |
100
|
Recommended |
Country of Origin |
|
|
birth_country |
|
|
ssbcmp00 |
Integer |
|
Recommended |
Complications or difficulties during birth |
0;1
|
0= No; 1= Yes
|
birth_complications |
|
|
dem_47_a |
String |
150
|
Recommended |
What kind of birth complications? |
|
|
birth_complications_desc |
|
|
ccc2english |
Integer |
|
Recommended |
Does the subject speak English as a primary language? |
0;1;-9
|
0 = No; 1 = Yes; -9 = Missing value
|
english_primary_lang |
|
|
eng_first |
Integer |
|
Recommended |
Is English your first language? |
0;1;999
|
0 = No; 1 = Yes; 999 = Prefer not to respond
|
english_first |
|
|
bilingual |
Integer |
|
Recommended |
Raised bilingual? |
0 :: 1
|
0= no; 1 = yes
|
|
|
|
demo_first_lang_other |
String |
200
|
Recommended |
If other language, please specify |
|
|
bilingual_lang |
|
|
father_eth_main |
Integer |
|
Recommended |
biological father's main ethnic group |
1::16
|
1=Anglo-Saxon; 2=Northern European; 3=West European; 4=East European,Slavic; 5=Russian; 6=Mediterranean; 7=Ashkenazi Jew; 8=Sephardic Jew; 9=Hispanic,not Puerto Rican; 10=Puerto Rican Hispanic; 11=Mexican Hispanic; 12=Asian; 13=Arab; 14=Native/Alaskan American; 15=African American,not Hispanic Org; 16=Other
|
|
|
|
father_other_race |
String |
35
|
Recommended |
Father Other race (please specify): |
|
|
father_ethnicity_spec |
|
|
mother_eth_main |
Integer |
|
Recommended |
biological mother's main ethnic group |
1::16
|
1=Anglo-Saxon 2=Northern European 3=West European 4=East European,Slavic 5=Russian 6=Mediterranean 7=Ashkenazi Jew 8=Sephardic Jew 9=Hispanic,not Puerto Rican 10=Puerto Rican Hispanic 11=Mexican Hispanic 12=Asian 13=Arab 14=Native/Alaskan American 15=African American,not Hispanic Org 16=Other
|
|
|
|
mother_other_race |
String |
50
|
Recommended |
Mother Other race (please specify): |
|
|
mother_ethnicity_spec |
|
|
educat |
Float |
|
Recommended |
Number of years in formal education |
|
999=Unknown/Missing
|
years_education |
|
|
subject_education |
Integer |
|
Recommended |
Subject's highest completed grade/degree |
1 :: 9
|
1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
|
|
|
|
father_educat |
Integer |
|
Recommended |
Father's highest completed grade/degree |
1 :: 9
|
1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
|
|
|
|
mother_educat |
Integer |
|
Recommended |
Mother's highest completed grade/degree |
1 :: 9
|
1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
|
|
|
|
spouse_education |
Integer |
|
Recommended |
Spouse's highest completed grade/degree |
1 :: 9
|
1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
|
|
|
|
subject_work_status |
Integer |
|
Recommended |
Subject's usual work status |
1 :: 99
|
1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
|
|
|
|
curr_employ_stsp |
String |
1,000
|
Recommended |
We would like to know about what you do --are you working now, looking for work, retired, keeping house, a student, or what? Other (Specify) PX011301_Current_Employment_Status_Specify |
|
|
subject_work_other |
|
|
father_work_status |
Integer |
|
Recommended |
Father's usual work status |
1 :: 99
|
1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
|
|
|
|
employment_father_other |
String |
50
|
Recommended |
Which of the following best describes the current employment status of the child's father (if Other selected) |
|
|
father_work_other2_722 |
|
|
mother_work_status |
Integer |
|
Recommended |
Mother's usual work status |
1 :: 99
|
1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
|
|
|
|
employment_mother_other |
String |
50
|
Recommended |
Which of the following best describes the current employment status of the child's mother (if Other selected) |
|
|
mother_work_other |
|
|
spouse_work_status |
Integer |
|
Recommended |
Spouse's usual work status |
1 :: 99
|
1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
|
|
|
|
spouse_work_other |
String |
50
|
Recommended |
Specify spouse other work status |
|
|
|
|
|
soc_class_father |
Integer |
|
Recommended |
Social Class: father's current or longest held occupation |
1 :: 99
|
1=Families of wealth, education, top-rank social privilege; 2=Families in which the adults hold college or advanced degrees, in professional or high-rank managerial positions; 3=Small businessmen, white-collar and skilled workers, high school graduates; 4=Semi-skilled workers, laborers education below secondary level; 5=Unskilled and semi-skilled workers, elementary education; 9=Unknown
|
|
|
|
soc_class_mother |
Integer |
|
Recommended |
Social Class: mother's current or longest held occupation |
1 :: 99
|
1=Families of wealth, education, top-rank social privilege; 2=Families in which the adults hold college or advanced degrees, in professional or high-rank managerial positions; 3=Small businessmen, white-collar and skilled workers, high school graduates; 4=Semi-skilled workers, laborers education below secondary level; 5=Unskilled and semi-skilled workers, elementary education; 9=Unknown
|
|
|
|
not_work_past_month |
Integer |
|
Recommended |
Have you been working or going to school in the past month? |
0 :: 1
|
0= no; 1 = yes
|
|
|
|
occupation_unemployed_length |
Integer |
|
Recommended |
What is the current length of your [patient's] unemployment? |
|
Approximate months
|
unemployed_length |
|
|
present_occupation |
Integer |
|
Recommended |
Present Occupation |
1::26;99
|
1 = Executive, administrative, and managerial occupations; 2 = Professional specialty occupations; 3 = Writers, artists, entertainers, and athletes; 4 = Technicians and related support occupations; 5 = Sales occupations; 6 = Administrative support occupations, including clerical; 7 = Private household occupations; 8 = Protective service occupations; 9 = Service occupations except protective and private household; 10 = Farm operators and managers; 11 = Other farming, forestry, and fishing occupations; 12 = Mechanics and repairers, construction trades, extractive occupations, precision production occupations; 13 = Machine operators, assemblers, and inspectors; 14 = Transportation and material-moving occupations; 15 = Handlers, equipment cleaners, helpers, and laborers; 16 = Armed Services; 17 = Disabled; 18 = Housewife / homemaker; 19 = Never worked; 20 = Full time student; 21 = Unemployed; 22 = Retired; 23 = Business; 24 = Public Employee; 25 = Private Employee; 26 = Informal Work; 99 = Unknown
|
|
|
|
responsjob |
Integer |
|
Recommended |
The most responsible job ever held |
1::21
|
1=Executive; 2=Professional; 3=Writers; 4=Technicians; 5=Sales Occupations; 6=Administrative Supporter; 7=Private Household; 8=Protective Service; 9=Service;10=Farm Operators 11=Other Farming 12=Mechanics 13=Machine Operators 14=Transportation 15=Handlers 16=Armed Services 17=Disabled 18=Housewife 19=Student
20=Full time student 21=Unemployed/Retired
|
most_respon_job |
|
|
household_head_occ |
Integer |
|
Recommended |
Head of household's most responsible occupation |
1 :: 99
|
1 = Executive, administrative, and managerial occupations; 2 = Professional specialty occupations; 3 = Writers, artists, entertainers, and athletes; 4 = Technicians and related support occupations;
5 = Sales occupations; 6 = Administrative support occupations, including clerical; 7 = Private household occupations; 8 = Protective service occupations; 9 = Service occupations except protective and private household; 10 = Farm operators and managers; 11 = Other farming, forestry, and fishing occupations; 12 = Mechanics and repairers, construction trades, extractive occupations, precision production occupations; 13 = Machine operators, assemblers, and inspectors; 14 = Transportation and material-moving occupations; 15 = Handlers, equipment cleaners, helpers, and laborers; 16 = Armed Services; 17 = Disabled; 18 = Housewife / homemaker; 19 = Never worked; 20 = Full time student; 21 = Unemployed; 22 = Retired; 99 = Unknown
|
|
|
|
participant_soc_class |
Integer |
|
Recommended |
Social Class of Participant |
1 :: 9
|
1= Situation of wealth education, top-rank social prestige; 2= College or advanced degree, professional or high-rank managerial position; 3= Small businessman, white-collar and skilled worker, high school graduate; 4= Semi-skilled worker, laborer, education below secondary level; 5= Unskilled and semi-skilled worker, elementary education; 9= Unknown
|
|
|
|
ann_income |
Integer |
|
Recommended |
Annual Income |
1 :: 7
|
1= Under $10,000; 2= $10,000 - $20,000; 3= $20,000 - $30,000; 4= $30,000 - $50,000; 5= $50,000 - $95,000; 6= $95,000 and up; 7= unknown
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
demo_notes |
|
|
member_id |
Integer |
|
Recommended |
Cognition and Brain Lab - Member ID |
10; 21::59; 60
|
10=control; 60 = proband; 21 = mother; 22 = father; 31-39 = sisters; 41-49 = brothers; 51-59 = offspring
|
|
|
|
family_id1 |
Integer |
|
Recommended |
Cognition and Brain Lab - Family ID |
|
Range: 0001-2000; Individuals from the same family have the same family ID
|
|
|
|
prelim_dx |
String |
200
|
Recommended |
PHCP/PENS2 - Preliminary Diagnosis |
|
|
|
|
|
socio_demo17a |
String |
100
|
Recommended |
If the response is Yes: List the illnesses |
|
|
|
|
|
socio_demo18 |
Integer |
|
Recommended |
How would you rate your overall physical health ? excellent, good, fair, or poor? |
1 :: 5
|
1= Excellent; 2= Good; 3= Fair; 4= Poor; 5= Other
|
|
|
|
socio_demo19 |
Integer |
|
Recommended |
How would you rate your overall mental health ? excellent, good, fair, or poor? |
1 :: 5
|
1= Excellent; 2= Good; 3= Fair; 4= Poor; 5= Other
|
|
|
|
socio_demo7 |
Integer |
|
Recommended |
Have you read anything about mental illness up until now? |
0;1;99
|
0= No; 1= Yes; 99= Does Not Know, Does Not Response
|
|
|
|
socio_demo10 |
Integer |
|
Recommended |
Do you have children (biological or not biological)? |
0;1;99
|
0= No; 1= Yes; 99= Does Not Know, Does Not Response
|
|
|
|
socio_demo12 |
Integer |
|
Recommended |
How many people, aside from you, live in your household? |
|
|
|
|
|
socio_demo15 |
Integer |
|
Recommended |
Considering all your income from employment and from all sources of everyone in your household, which best describes your income before taxes last month? |
1 :: 8
|
1= Less than de 2,000 DOP/mes; 2= 2,000 to 4,999 DOP/mes; 3= 5,000 to 8,999 DOP/mes; 4= 9,000 to 12,999 DOP/mes; 5= 13,000 to 17,999 DOP/mes; 6= 18,000 to 24,999 DOP/mes; 7= 25,000 to 35,999 DOP/mes; 8= 36,000 or more DOP/mes
|
|
|
|
socio_demo16 |
Integer |
|
Recommended |
Has your total income changed since March 2020 (i.e. as a result of the coronavirus pandemic)? |
0;1;99
|
0= No; 1= Yes; 99= Other
|
|
|
|
socio_demo16a |
String |
4,000
|
Recommended |
If the response is Yes: Can you describe this change? |
|
|
|
|
|
socio_demo17 |
Integer |
|
Recommended |
Do you have any chronic illnesses, such as diabetes, hypertension, or asthma at this time? |
0;1;99
|
0= No; 1= Yes; 99= Does Not Know, Does Not Response
|
|
