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Demographic Information

0 Shared Subjects

N/A
Clinical Assessments
Demographics
12/17/2019
demo_info01
08/16/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project record_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY demo_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
otherrace String 100 Recommended specify other race The following questions are about you or the child's family. race_other
demo_resp_status Integer Recommended respondent's marital status 1::13 1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer; 12= Engaged; 13=Civil union
times_marr Integer Recommended How many times have you married? married_number_times
widowed Integer Recommended Have you ever been widowed? 0 :: 1 0= no; 1 = yes
numchild Integer Recommended number of children number_children
living_arrangements Integer Recommended What are your current living arrangements? 1 :: 7 1= Alone; 2= With partner, not legally married; 3= With spouse and/or children; 4= With parents or adult children; 5= With siblings or other relatives; 6= With friends/ roommates; 7= In a residential treatment facility
country_origin String 100 Recommended Country of Origin birth_country
ssbcmp00 Integer Recommended Complications or difficulties during birth 0;1 0= No; 1= Yes birth_complications
dem_47_a String 150 Recommended What kind of birth complications? birth_complications_desc
ccc2english Integer Recommended Does the subject speak English as a primary language? 0;1;-9 0 = No; 1 = Yes; -9 = Missing value english_primary_lang
eng_first Integer Recommended Is English your first language? 0;1 0 = No; 1 = Yes english_first
bilingual Integer Recommended Raised bilingual? 0 :: 1 0= no; 1 = yes
demo_first_lang_other String 200 Recommended If other language, please specify bilingual_lang
father_eth_main Integer Recommended biological father's main ethnic group 1::16 1=Anglo-Saxon; 2=Northern European; 3=West European; 4=East European,Slavic; 5=Russian; 6=Mediterranean; 7=Ashkenazi Jew; 8=Sephardic Jew; 9=Hispanic,not Puerto Rican; 10=Puerto Rican Hispanic; 11=Mexican Hispanic; 12=Asian; 13=Arab; 14=Native/Alaskan American; 15=African American,not Hispanic Org; 16=Other
father_other_race String 35 Recommended Father Other race (please specify): father_ethnicity_spec
mother_eth_main Integer Recommended biological mother's main ethnic group 1::16 1=Anglo-Saxon 2=Northern European 3=West European 4=East European,Slavic 5=Russian 6=Mediterranean 7=Ashkenazi Jew 8=Sephardic Jew 9=Hispanic,not Puerto Rican 10=Puerto Rican Hispanic 11=Mexican Hispanic 12=Asian 13=Arab 14=Native/Alaskan American 15=African American,not Hispanic Org 16=Other
mother_other_race String 50 Recommended Mother Other race (please specify): mother_ethnicity_spec
educat Float Recommended Number of years in formal education 999=Unknown/Missing years_education
subject_education Integer Recommended Subject's highest completed grade/degree 1 :: 9 1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
father_educat Integer Recommended Father's highest completed grade/degree 1 :: 9 1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
mother_educat Integer Recommended Mother's highest completed grade/degree 1 :: 9 1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
spouse_education Integer Recommended Spouse's highest completed grade/degree 1 :: 9 1= 7th grade or less; 2= Between 7th and 9th grade; 3= Between 10th and 12th grade; 4= High school graduate (includes GED); 5= Partial college (includes business school, vocational/technical, RN); 6= 4 year college/university graduate; 7= Graduate degree (M.A., Ph.D., M.D., J.D., etc.); 9= Unknown
subject_work_status Integer Recommended Subject's usual work status 1 :: 99 1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
curr_employ_stsp String 1,000 Recommended We would like to know about what you do --are you working now, looking for work, retired, keeping house, a student, or what? Other (Specify) PX011301_Current_Employment_Status_Specify subject_work_other
father_work_status Integer Recommended Father's usual work status 1 :: 99 1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
employment_father_other String 50 Recommended Which of the following best describes the current employment status of the child's father (if Other selected) father_work_other2_722
mother_work_status Integer Recommended Mother's usual work status 1 :: 99 1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
employment_mother_other String 50 Recommended Which of the following best describes the current employment status of the child's mother (if Other selected) mother_work_other
spouse_work_status Integer Recommended Spouse's usual work status 1 :: 99 1= Full time (40 hrs/week or more); 2= Half-time (approximately 20 hours/week); 3= Quarter time (approximately 10 hours/week); 4= Unemployed; 5= Retired; 6= Homemaker; 7= Student; 8= Volunteer work --full time; 9= Volunteer work --part time; 10= Disabled; 11= Never worked at least 30% time; 12= Other (specify); 99= Unknown
spouse_work_other String 50 Recommended Specify spouse other work status
soc_class_father Integer Recommended Social Class: father's current or longest held occupation 1 :: 99 1=Families of wealth, education, top-rank social privilege; 2=Families in which the adults hold college or advanced degrees, in professional or high-rank managerial positions; 3=Small businessmen, white-collar and skilled workers, high school graduates; 4=Semi-skilled workers, laborers education below secondary level; 5=Unskilled and semi-skilled workers, elementary education; 9=Unknown
soc_class_mother Integer Recommended Social Class: mother's current or longest held occupation 1 :: 99 1=Families of wealth, education, top-rank social privilege; 2=Families in which the adults hold college or advanced degrees, in professional or high-rank managerial positions; 3=Small businessmen, white-collar and skilled workers, high school graduates; 4=Semi-skilled workers, laborers education below secondary level; 5=Unskilled and semi-skilled workers, elementary education; 9=Unknown
not_work_past_month Integer Recommended Have you been working or going to school in the past month? 0 :: 1 0= no; 1 = yes
occupation_unemployed_length Integer Recommended What is the current length of your [patient's] unemployment? Approximate months unemployed_length
present_occupation Integer Recommended Present Occupation 1::26;99 1 = Executive, administrative, and managerial occupations; 2 = Professional specialty occupations; 3 = Writers, artists, entertainers, and athletes; 4 = Technicians and related support occupations; 5 = Sales occupations; 6 = Administrative support occupations, including clerical; 7 = Private household occupations; 8 = Protective service occupations; 9 = Service occupations except protective and private household; 10 = Farm operators and managers; 11 = Other farming, forestry, and fishing occupations; 12 = Mechanics and repairers, construction trades, extractive occupations, precision production occupations; 13 = Machine operators, assemblers, and inspectors; 14 = Transportation and material-moving occupations; 15 = Handlers, equipment cleaners, helpers, and laborers; 16 = Armed Services; 17 = Disabled; 18 = Housewife / homemaker; 19 = Never worked; 20 = Full time student; 21 = Unemployed; 22 = Retired; 23 = Business; 24 = Public Employee; 25 = Private Employee; 26 = Informal Work; 99 = Unknown
responsjob Integer Recommended The most responsible job ever held 1::21 1=Executive; 2=Professional; 3=Writers; 4=Technicians; 5=Sales Occupations; 6=Administrative Supporter; 7=Private Household; 8=Protective Service; 9=Service;10=Farm Operators 11=Other Farming 12=Mechanics 13=Machine Operators 14=Transportation 15=Handlers 16=Armed Services 17=Disabled 18=Housewife 19=Student 20=Full time student 21=Unemployed/Retired most_respon_job
household_head_occ Integer Recommended Head of household's most responsible occupation 1 :: 99 1 = Executive, administrative, and managerial occupations; 2 = Professional specialty occupations; 3 = Writers, artists, entertainers, and athletes; 4 = Technicians and related support occupations; 5 = Sales occupations; 6 = Administrative support occupations, including clerical; 7 = Private household occupations; 8 = Protective service occupations; 9 = Service occupations except protective and private household; 10 = Farm operators and managers; 11 = Other farming, forestry, and fishing occupations; 12 = Mechanics and repairers, construction trades, extractive occupations, precision production occupations; 13 = Machine operators, assemblers, and inspectors; 14 = Transportation and material-moving occupations; 15 = Handlers, equipment cleaners, helpers, and laborers; 16 = Armed Services; 17 = Disabled; 18 = Housewife / homemaker; 19 = Never worked; 20 = Full time student; 21 = Unemployed; 22 = Retired; 99 = Unknown
participant_soc_class Integer Recommended Social Class of Participant 1 :: 9 1= Situation of wealth education, top-rank social prestige; 2= College or advanced degree, professional or high-rank managerial position; 3= Small businessman, white-collar and skilled worker, high school graduate; 4= Semi-skilled worker, laborer, education below secondary level; 5= Unskilled and semi-skilled worker, elementary education; 9= Unknown
ann_income Integer Recommended Annual Income 1 :: 7 1= Under $10,000; 2= $10,000 - $20,000; 3= $20,000 - $30,000; 4= $30,000 - $50,000; 5= $50,000 - $95,000; 6= $95,000 and up; 7= unknown
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data demo_notes
member_id Integer Recommended Cognition and Brain Lab - Member ID 10; 21::59; 60 10=control; 60 = proband; 21 = mother; 22 = father; 31-39 = sisters; 41-49 = brothers; 51-59 = offspring
family_id1 Integer Recommended Cognition and Brain Lab - Family ID Range: 0001-2000; Individuals from the same family have the same family ID
prelim_dx String 200 Recommended PHCP/PENS2 - Preliminary Diagnosis
socio_demo17a String 100 Recommended If the response is Yes: List the illnesses
socio_demo18 Integer Recommended How would you rate your overall physical health ? excellent, good, fair, or poor? 1 :: 5 1= Excellent; 2= Good; 3= Fair; 4= Poor; 5= Other
socio_demo19 Integer Recommended How would you rate your overall mental health ? excellent, good, fair, or poor? 1 :: 5 1= Excellent; 2= Good; 3= Fair; 4= Poor; 5= Other
socio_demo7 Integer Recommended Have you read anything about mental illness up until now? 0;1;99 0= No; 1= Yes; 99= Does Not Know, Does Not Response
socio_demo10 Integer Recommended Do you have children (biological or not biological)? 0;1;99 0= No; 1= Yes; 99= Does Not Know, Does Not Response
socio_demo12 Integer Recommended How many people, aside from you, live in your household?
socio_demo15 Integer Recommended Considering all your income from employment and from all sources of everyone in your household, which best describes your income before taxes last month? 1 :: 8 1= Less than de 2,000 DOP/mes; 2= 2,000 to 4,999 DOP/mes; 3= 5,000 to 8,999 DOP/mes; 4= 9,000 to 12,999 DOP/mes; 5= 13,000 to 17,999 DOP/mes; 6= 18,000 to 24,999 DOP/mes; 7= 25,000 to 35,999 DOP/mes; 8= 36,000 or more DOP/mes
socio_demo16 Integer Recommended Has your total income changed since March 2020 (i.e. as a result of the coronavirus pandemic)? 0;1;99 0= No; 1= Yes; 99= Other
socio_demo16a String 4,000 Recommended If the response is Yes: Can you describe this change?
socio_demo17 Integer Recommended Do you have any chronic illnesses, such as diabetes, hypertension, or asthma at this time? 0;1;99 0= No; 1= Yes; 99= Does Not Know, Does Not Response
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

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