|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
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gender |
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dmis1 |
Integer |
|
Recommended |
Parent: We negotiated. / Child: My parent and I negotiated. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis2 |
Integer |
|
Recommended |
Parent: We argued. / Child: My parent and I argued. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis3 |
Integer |
|
Recommended |
Parent: We brainstormed about what to do. / Child: My parent and I brainstormed about what to do. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis4 |
Integer |
|
Recommended |
Parent: We agreed about what to do. / Child: My parent and I agreed about what to do. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis5 |
Integer |
|
Recommended |
Parent: I explained different options about what to do. / Child: My parent explained different different choices about what to do. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis6 |
Integer |
|
Recommended |
Parent: I asked my child if he/she had any questions. / Child: My parent asked me if I had any questions. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis7 |
Integer |
|
Recommended |
Parent: I was quiet during the discussion. / Child: My parent was quiet during the discussion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis8 |
Integer |
|
Recommended |
Parent: I tried to teach my child about something related to the illness / Child: My parent tried to teach me about something related to the illness. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis9 |
Integer |
|
Recommended |
Parent: I gave my child options to choose from. / Child: My parent gave me options to choose from. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis10 |
Integer |
|
Recommended |
Parent: I suggested ideas or gave advice. / Child: My parent suggested ideas or gave advice. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis11 |
Integer |
|
Recommended |
Parent: I expressed my opinion. / Child: My parent expressed his/her opinion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis12 |
Integer |
|
Recommended |
Parent: I gave my child information. / Child: My parent gave me information. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis13 |
Integer |
|
Recommended |
Parent: I kept my opinion to myself. / Child: My parent kept his/her opinion to himself/herself. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis14 |
Integer |
|
Recommended |
Parent: I asked my child if he/she had any ideas about what to do. / Child: My parent asked me if I had any ideas about what to do. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis15 |
Integer |
|
Recommended |
Parent: I asked my child for his/her opinion. / Child: My parent asked me for my opinion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis16 |
Integer |
|
Recommended |
Parent: I told my child that his/her opinion was important. / Child: My parent told me that my opinion was important. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
|
dmis17 |
Integer |
|
Recommended |
Parent: I listened to what my child had to say. / Child: My parent listened to what I had to say. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
|
dmis18 |
Integer |
|
Recommended |
Parent: I was distracted during the discussion. / Child: My parent was distracted during the discussion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
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dmis19 |
Integer |
|
Recommended |
Parent: I asked my child for information. / Child: My parent asked me for information. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
|
dmis20 |
Integer |
|
Recommended |
Parent: I gave my child feedback about how he/she has been taking care of his/her illness. / Child: My parent gave me feedback about how I have been taking care of my illness |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis21 |
Integer |
|
Recommended |
Parent: My child suggested ideas. / Child: I suggested ideas. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis22 |
Integer |
|
Recommended |
Parent: My child was quiet during the discussion. / Child: I was quiet during the discussion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis23 |
Integer |
|
Recommended |
Parent: My child expressed an opinion. / Child: I expressed an opinion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis24 |
Integer |
|
Recommended |
Parent: My child asked me for information. / Child: I asked my parent for information. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
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dmis25 |
Integer |
|
Recommended |
Parent: My child was distracted during the discussion / Child: I was distracted during the discussion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
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dmis26 |
Integer |
|
Recommended |
Parent: My child asked for my advice or opinion. / I asked for my parent's advice or opinion. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
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dmis27 |
Integer |
|
Recommended |
Parent: My child asked questions. / Child: I asked questions. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
|
dmis28 |
Integer |
|
Recommended |
Parent: My child listened to what I had to say. / I listened to what my parent had to say. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
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dmis29 |
Integer |
|
Recommended |
Parent: My child gave me information. / Child: I gave my parent information. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
|
dmis30 |
Integer |
|
Recommended |
Parent: My child kept his/her opinion to him/herself. / Child: I kept my opinion to myself. |
1::4
|
1= Not at all; 2= A little bit; 3= A moderate amount; 4= A lot
|
|
|
dmis_chdec |
Integer |
|
Recommended |
Child made a decision |
0;1
|
0= No; 1= Yes
|
|
|
dmis_prdec |
Integer |
|
Recommended |
Parent made a decision |
0;1
|
0= No; 1= Yes
|
|
|
dmis_btdec |
Integer |
|
Recommended |
Parent and child made a decision together |
0;1
|
0= No; 1= Yes
|
|
|
dmis_f1 |
Float |
|
Recommended |
DMIS Child seek mean |
1::4
|
mean
|
|
|
dmis_f2 |
Float |
|
Recommended |
DMIS Parent express mean |
1::4
|
mean
|
|
|
dmis_f3 |
Float |
|
Recommended |
DMIS Joint/ options mean |
1::4
|
mean
|
|
|
dmis_f4 |
Float |
|
Recommended |
DMIS Child express mean |
1::4
|
mean
|
|
|
dmis_f5 |
Float |
|
Recommended |
DMIS Parent seek mean |
1::4
|
mean
|
|
|
dmis_mean |
Float |
|
Recommended |
DMIS All items mean |
1::4
|
mean
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
diagnosis_notes |
String |
1,000
|
Recommended |
Notes regarding diagnosis |
|
|
|