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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Family Demographic Questionnaire

231 Shared Subjects

N/A
Clinical Assessments
Demographics
11/25/2019
femdemq01
11/26/2019
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported child_gender, gender
race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
child_race
otherrace String 100 Recommended specify other race The following questions are about you or the child's family. child_race_other
ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
child_ethnicity
health_insurance Integer Recommended What type of health insurance do you have? 0::3 0=Public Insurance (ex: Medicaid); 1=None/Self-Pay; 2=Private Insurance (Blue Cross Blue shield, Anthem, Cigna, etc); 3=Other child_insurance
participant_insurance_6f String 255 Recommended What type(s) of health insurance do you have? (Other, Specify) child_insurance_other
relationship Integer Recommended Relationship of respondent to individual 1::94;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker cg_relation
cg_educ Integer Recommended What is the highest level of school/education completed by the child's caregiver? 1::9 1=less than high school degree without GED; 2=GED; 3=high school degree; 4=some college; 5=associate's degree; 6=bachelor's degree; 7=some graduate work, 8=graduate degree; 9=N/A cg_education
cg_lang Integer Recommended What is the caregiver's preferred language? 1::8 1=English, 2=Spanish, 3=Vietnamese; 4=Arabic; 5=Haitan Creole; 6=Chinese; 7=Cape Verdean Creole; 8=Other
cg_lang_other String 50 Recommended Description of caregiver's preferred language if other
cg_lang_spk_fri Integer Recommended What langauge do you (cargiver) speak with most of your friends? 1::7 1=[language] all the time; 2=[language] most of the time; 3=[language] and english equaly; 4=english most of the time; 5=english all the time; 6=don't know; 7=refused
cg_lang_spk_fam Integer Recommended What langauge do you (cargiver) speak with most of your family? 1::7 1=[language] all the time; 2=[language] most of the time; 3=[language] and english equaly; 4=english most of the time; 5=english all the time; 6=don't know; 7=refused
cg_lang_think Integer Recommended In what langauge do you (caregiver) think? 1::7 1=[language] all the time; 2=[language] most of the time; 3=[language] and english equaly; 4=english most of the time; 5=english all the time; 6=don't know; 7=refused
cg_race Integer Recommended Please select the option below that best describes your [the parent's/guiardian's] race 1::8 1=White; 2= Black or African American; 3=Asian; 4=American Indian/Alaska Native; 5=Native Hawaiian or Other Pacific Islander; 6= Unknown/not reported; 7=Mixed race; 8=Other
cg_race_other String 50 Recommended Description of parent's/guardian's race if other
cg_ethnicity Integer Recommended Ethnicity of parent/guardian 0; 1 0=Non-Hispanic; 1=Hispanic
cg_country String 50 Recommended In what country were you (caregiver) born?
cg_insurance Integer Recommended caregiver's health insurance status 1::4 1=Private; 2=Public; 3=None/Self-pay; 4=Other
cg_insurance_other String 50 Recommended Description of caregiver's insurance if other
cg_employ Integer Recommended Are you (caregiver) employed 0; 1 0= No; 1= Yes
cg_emply_hours Integer Recommended How many hours does caregiver work
cg1_occupation String 100 Recommended Caregiver/Parent 1's Occupation cg_occupation
child_home Integer Recommended Besides the child in the study, how many other childre of your own live at home with you?
child1_gender String 10 Recommended Other Child in Household 1 Gender Male;Female;Other
child2_gender String 10 Recommended Other Child in Household 2 Gender Male;Female;Other
child3_gender String 10 Recommended Other Child in Household 3 Gender Male;Female;Other
child4_gender String 10 Recommended Other Child in Household 4 Gender Male;Female;Other
child5_gender String 10 Recommended Other Child in Household 5 Gender Male;Female;Other
child6_gender String 10 Recommended Other Child in Household 6 Gender Male;Female;Other
child7_gender String 10 Recommended Other Child in Household 7 Gender Male;Female
child8_gender Integer Recommended gender of child 8 0; 1 1=Male; 0=Female
child9_gender Integer Recommended gender of child 9 0; 1 1=Male; 0=Female
child10_gender Integer Recommended gender of child 10 0; 1 1=Male; 0=Female
child1_age String 100 Recommended Other Child in Household 1 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child2_age String 100 Recommended Other Child in Household 2 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child3_age String 100 Recommended Other Child in Household 3 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child4_age String 100 Recommended Other Child in Household 4 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child5_age String 100 Recommended Other Child in Household 5 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child6_age String 100 Recommended Other Child in Household 6 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child7_age String 100 Recommended Other Child in Household 7 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child8_age Integer Recommended age of child 8
child9_age Integer Recommended age of child 9
child10_age Integer Recommended age of child 10
child1_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child2_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child3_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child4_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child5_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child6_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child7_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child8_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child9_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child10_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.