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Family Demographic Questionnaire

0 Shared Subjects

N/A
Clinical Assessments
Demographics
11/25/2019
femdemq01
11/26/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported child_gender, gender
race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
child_race
otherrace String 100 Recommended specify other race The following questions are about you or the child's family. child_race_other
ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
child_ethnicity
health_insurance Integer Recommended What type of health insurance do you have? 0::3 0=Public Insurance (ex: Medicaid); 1=None/Self-Pay; 2=Private Insurance (Blue Cross Blue shield, Anthem, Cigna, etc); 3=Other child_insurance
participant_insurance_6f String 255 Recommended What type(s) of health insurance do you have? (Other, Specify) child_insurance_other
relationship Integer Recommended Relationship of respondent to individual 1::94;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker cg_relation
cg_educ Integer Recommended What is the highest level of school/education completed by the child's caregiver? 1::9 1=less than high school degree without GED; 2=GED; 3=high school degree; 4=some college; 5=associate's degree; 6=bachelor's degree; 7=some graduate work, 8=graduate degree; 9=N/A cg_education
cg_lang Integer Recommended What is the caregiver's preferred language? 1::8 1=English, 2=Spanish, 3=Vietnamese; 4=Arabic; 5=Haitan Creole; 6=Chinese; 7=Cape Verdean Creole; 8=Other
cg_lang_other String 50 Recommended Description of caregiver's preferred language if other
cg_lang_spk_fri Integer Recommended What langauge do you (cargiver) speak with most of your friends? 1::7 1=[language] all the time; 2=[language] most of the time; 3=[language] and english equaly; 4=english most of the time; 5=english all the time; 6=don't know; 7=refused
cg_lang_spk_fam Integer Recommended What langauge do you (cargiver) speak with most of your family? 1::7 1=[language] all the time; 2=[language] most of the time; 3=[language] and english equaly; 4=english most of the time; 5=english all the time; 6=don't know; 7=refused
cg_lang_think Integer Recommended In what langauge do you (caregiver) think? 1::7 1=[language] all the time; 2=[language] most of the time; 3=[language] and english equaly; 4=english most of the time; 5=english all the time; 6=don't know; 7=refused
cg_race Integer Recommended Please select the option below that best describes your [the parent's/guiardian's] race 1::8 1=White; 2= Black or African American; 3=Asian; 4=American Indian/Alaska Native; 5=Native Hawaiian or Other Pacific Islander; 6= Unknown/not reported; 7=Mixed race; 8=Other
cg_race_other String 50 Recommended Description of parent's/guardian's race if other
cg_ethnicity Integer Recommended Ethnicity of parent/guardian 0; 1 0=Non-Hispanic; 1=Hispanic
cg_country String 50 Recommended In what country were you (caregiver) born?
cg_insurance Integer Recommended caregiver's health insurance status 1::4 1=Private; 2=Public; 3=None/Self-pay; 4=Other
cg_insurance_other String 50 Recommended Description of caregiver's insurance if other
cg_employ Integer Recommended Are you (caregiver) employed 0; 1 0= No; 1= Yes
cg_emply_hours Integer Recommended How many hours does caregiver work
cg1_occupation String 100 Recommended Caregiver/Parent 1's Occupation cg_occupation
child_home Integer Recommended Besides the child in the study, how many other childre of your own live at home with you?
child1_gender String 10 Recommended Other Child in Household 1 Gender Male;Female;Other
child2_gender String 10 Recommended Other Child in Household 2 Gender Male;Female;Other
child3_gender String 10 Recommended Other Child in Household 3 Gender Male;Female;Other
child4_gender String 10 Recommended Other Child in Household 4 Gender Male;Female;Other
child5_gender String 10 Recommended Other Child in Household 5 Gender Male;Female;Other
child6_gender String 10 Recommended Other Child in Household 6 Gender Male;Female;Other
child7_gender String 10 Recommended Other Child in Household 7 Gender Male;Female
child8_gender Integer Recommended gender of child 8 0; 1 1=Male; 0=Female
child9_gender Integer Recommended gender of child 9 0; 1 1=Male; 0=Female
child10_gender Integer Recommended gender of child 10 0; 1 1=Male; 0=Female
child1_age String 100 Recommended Other Child in Household 1 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child2_age String 100 Recommended Other Child in Household 2 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child3_age String 100 Recommended Other Child in Household 3 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child4_age String 100 Recommended Other Child in Household 4 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child5_age String 100 Recommended Other Child in Household 5 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child6_age String 100 Recommended Other Child in Household 6 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child7_age String 100 Recommended Other Child in Household 7 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child8_age Integer Recommended age of child 8
child9_age Integer Recommended age of child 9
child10_age Integer Recommended age of child 10
child1_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child2_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child3_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child4_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child5_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child6_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child7_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child8_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child9_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
child10_services Integer Recommended Has this child previously received behavioral health services (for example: in home therapy, seen a psychologist/psychiatrist, has an IEP in school) 0; 1 0= No; 1= Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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