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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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FXS Demographics

988 Shared Subjects

Demographic information as defined by Dr. Hessl's group from the Fragile X Project, MIND Institute, University of California, Davis
Clinical Assessments
Demographics
12/18/2012
fxs_demographics04
06/23/2017
View Change History
04
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subject_code
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query fmr1_status String 20 Required FMR1 DNA group Full Mutation; Mosaicism; Premutation Carrier; Unknown; Normal Range Fragile X Full Mutation=Individual has >200 CGG repeats in FMR1 gene. Status confirmed by blood test. This causes the FMR1 gene to shut down production of FMRP. The lack of FMRP causes fragile x syndrome; Fragile X Mosaicism; Fragile X Premutation Carrier= Individual has 55-200 CGG repeats in FMR1 gene. Status confirmed by blood test. He/She carries an unstable mutation of the gene that can expand in future generations; Unknown= Individual at risk for FMR1 mutation; Mutation status unknown; Normal Range=Individual has < 45 CGG repeats in FMR1 gene, which falls into the normal range. Status confirmed by blood test. Individual is related to someone with CGG repeat length >55 in FMR1 gene. genetic_mutation_status
Query phenotype String 200 Recommended Phenotype/diagnosis for the subject status_group
family_user_def_id String 20 Recommended Family Pedigree User-Defined ID
Query diag_group String 5 Required Enrollment diagnostic group of subject FX;CX;TD; TX; UX FX=Individual has >200 CGG repeats in FMR1 gene. Status confirmed by blood test. This causes the FMR1 gene to shut down production of FMRP. The lack of FMRP causes fragile x syndrome.CX=Individual has 55-200 CGG repeats in FMR1 gene. Status confirmed by blood test. He/She carries an unstable mutation of the gene that can expand in future generations.UX=Individual at risk for FMR1 mutation; Mutation status unknown.TX=Individual has < 45 CGG repeats in FMR1 gene, which falls into the normal range. Status confirmed by blood test. Individual is related to someone with CGG repeat length >55 in FMR1 gene
Query family_diag_group String 5 Required Enrollment diagnostic group of family FX = Fragile X Syndrome
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Query hh_income Integer Recommended Household income range of adult subject 1::6; 9 1 = Less than $20,000; 2 = $20,000 to $39,999; 3 = $40,000 to $59,999; 4 = $60,000 to $79,999; 5 = $80,000 to $99,999; 6 = $100,000 or more; 9 = Unknown
Query education_level Integer Recommended Highest level of education completed for adult subject 1::6; 9 1 = Grades 1 to 11; 2 = High school graduate or GED; 3 = Associate or technical degree; 4 = Bachelor's degree; 5 = Master's degree; 6 = Doctorate or equivalent professional degree; 9 = Unknown
Query marital_status Integer Recommended Marital status of adult subject 1::5;9 1 = Married; 2 = Divorced; 3 = Single or never married; 4 = Widow or widower; 5=Remarried; 9 = Unknown
Query iq Integer Recommended IQ score as defined by the completion of an appropriate assessement fsiq
iq_date Date Recommended Date that IQ test was given
iqtestname String 255 Recommended Name of IQ test given to participant
Query fxs_site_id Integer Recommended Fragile X project site1=UC Davis, 2=Stanford, 3=Rush, 4=Duke, 5=UNC, 6=Colorado, 7=Johns Hopkins, 8=Wisconsin, 9=Indiana, 10=Other 1 :: 10 1 = UC Davis; 2 = Stanford; 3 = Rush; 4 = Duke; 5 = UNC; 6 = Colorado; 7 = Johns Hopkins; 8 = Wisconsin; 9 = Indiana; 10 = Other
fxs_site_name_other String 50 Recommended Enter the site name if the code of 10 is used for the fxs_site_id data element to indicate a site that is not described with an id number
Query behavobs_handedness String 25 Recommended Handedness R;L; A;NYE; 999 R = Right-handed; L = Left-handed; A = Ambidextrous; NYE =not yet established; 999 = missing/refused handedness
resection String 100 Recommended Areas of the brain on which a surgical procedure performed after testing Indicates areas of the brain
path_chans String 100 Recommended Electrodes that were disregarded from analysis due to pathological activity
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.