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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Inventory of Statements about Self-Injury

465 Shared Subjects

N/A
Clinical Assessments
Self-Harm
07/19/2017
isas01
07/18/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query isas_1cut Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Cutting
Query isas_1scrat Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Severe Scratching
Query isas_1bit Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Biting
Query isas_1bang Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Banging or Hitting Self
Query isas_1burn Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Burning
Query isas_1inter Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Interfering w/ Wound Healing (e.g., picking scabs)
Query isas_1carv Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Carving
Query isas_1rub Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Rubbing skin against rough surface
Query isas_1pinc Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Pinching
Query isas_1stik Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Sticking self with needles
Query isas_1pull Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Pulling Hair
Query isas_1swal Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Swallowing Dangerous Substances
Query isas_1oth Integer Recommended Please estimate the number of times in your life you have intentionally (i.e., on purpose) performed each type of non-suicidal self-harm (e.g., 0, 10, 100, 500): Other
Query isas_1othnum Integer Recommended Number of times self-harm was intentionally performed
isas_s1q2 String 50 Recommended If you feel that you have a main form of self-harm, write in one of the behavior(s) from above that you consider to be your main form of self-harm.
Query isas_s1q3a Integer Recommended At what age did you: First harm yourself? years
isas_s1q3b Date Recommended Most recently harm yourself? (approximate date - month/date/year) MM/DD/YYYY
Query isas_s1q4 Integer Recommended Do you experience physical pain during self-harm? 0::2 1 = Yes; 2 = Sometimes; 0 = No
Query isas_s1q5 Integer Recommended When you self-harm, are you alone? 0::2 1 = Yes; 2 = Sometimes; 0 = No
Query isas_s1q6 Integer Recommended Typically, how much time elapses from the time you have the urge to self-harm until you act on the urge? 1 :: 6 1 = < 1 hour; 2 = 1-3 hours; 3 = 3-6 hours; 4 = 6-12 hours; 5 = 12-24 hours; 6 = > 1 day
Query isas_s1q7 Integer Recommended Do/did you want to stop self-harming? 0;1 1 = Yes; 0 = No
Query isas_s2q1 Integer Recommended When I self-harm, I am calming myself down 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q2 Integer Recommended When I self-harm, I am creating a boundary between myself and others 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q3 Integer Recommended When I self-harm, I am punishing myself 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q4 Integer Recommended When I self-harm, I am giving myself a way to care for myself (by attending to the wound) 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q5 Integer Recommended When I self-harm, I am causing pain so I will stop feeling numb 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q6 Integer Recommended When I self-harm, I am avoiding the impulse to attempt suicide 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q7 Integer Recommended When I self-harm, I am doing something to generate excitement and exhilaration 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q8 Integer Recommended When I self-harm, I am bonding with peers 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q9 Integer Recommended When I self-harm, I am letting others know the extent of my emotional pain 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q10 Integer Recommended When I self-harm, I am seeing if I can stand the pain 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q11 Integer Recommended When I self-harm, I am creating a physical sign that I feel awful 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q12 Integer Recommended When I self-harm, I am getting back at someone 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q13 Integer Recommended When I self-harm, I am ensuring that I am self-sufficient 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q14 Integer Recommended When I self-harm, I am releasing emotional pressure that has built up inside of me 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q15 Integer Recommended When I self-harm, I am demonstrating that I am separate from other people 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q16 Integer Recommended When I self-harm, I am expressing anger towards myself for being worthless or stupid 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q17 Integer Recommended When I self-harm, I am creating a physical injury that is easier to care for than my emotional distress 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q18 Integer Recommended When I self-harm, I am trying to feel something (as opposed to nothing) even if it is physical pain 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q19 Integer Recommended When I self-harm, I am responding to suicidal thoughts without actually attempting suicide 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q20 Integer Recommended When I self-harm, I am entertaining myself or others by doing something extreme 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q21 Integer Recommended When I self-harm, I am fitting in with others 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q22 Integer Recommended When I self-harm, I am seeking care or help from others 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q23 Integer Recommended When I self-harm, I am demonstrating I am tough or strong 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q24 Integer Recommended When I self-harm, I am proving to myself that my emotional pain is real 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q25 Integer Recommended When I self-harm, I am getting revenge against others 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q26 Integer Recommended When I self-harm, I am demonstrating that I do not need to rely on others for help 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q27 Integer Recommended When I self-harm, I am reducing anxiety, frustration, anger, or other overwhelming emotions 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q28 Integer Recommended When I self-harm, I am establishing a barrier between myself and others 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q29 Integer Recommended When I self-harm, I am reacting to feeling unhappy with myself or disgusted with myself 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q30 Integer Recommended When I self-harm, I am allowing myself to focus on treating the injury, which can be gratifying ?or satisfying 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q31 Integer Recommended When I self-harm, I am making sure I am still alive when I didn't feel real 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q32 Integer Recommended When I self-harm, I am putting a stop to suicidal thoughts 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q33 Integer Recommended When I self-harm, I am pushing my limits in a manner akin to skydiving or other extreme activities 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q34 Integer Recommended When I self-harm, I am creating a sign of friendship or kinship with friends or loved ones 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q35 Integer Recommended When I self-harm, I am keeping a loved one from leaving or abandoning me. 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q36 Integer Recommended When I self-harm, I am proving I can take the physical pain. 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q37 Integer Recommended When I self-harm, I am signifying the emotional distress I'm experiencing 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q38 Integer Recommended When I self-harm, I am trying to hurt someone close to me 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
Query isas_s2q39 Integer Recommended When I self-harm, I am establishing that I am autonomous/independent 1 :: 3 1 = The statement is not relevant for you at all; 2 = The statement is somewhat relevant for you; 3 = The statement is very relevant for you
isas_opt1 String 400 Optional In the text box below, please list any statements that you feel would be more accurate for you than the ones listed above:
isas_opt2 String 400 Optional In the text box below, please list any statements that you feel should be added to the above list, even if they do not necessarily apply to you:
Query isas_scale1 Float Recommended Affect Regulation Scale 0::6
Query isas_scale2 Float Recommended Interpersonal Boundaries Scale 0::6
Query isas_scale3 Float Recommended Self-Punishment Scale 0::6
Query isas_scale4 Float Recommended Self-Care Scale 0::6
Query isas_scale5 Float Recommended Anti-Dissociation/ Feeling-Generation Scale 0::6
Query isas_scale6 Float Recommended Anti-Suicide Scale 0::6
Query isas_scale7 Float Recommended Sensation-Seeking Scale 0::6
Query isas_scale8 Float Recommended Peer-Bonding Scale 0::6
Query isas_scale9 Float Recommended Interpersonal Influence Scale 0::6
Query isas_scale10 Float Recommended Toughness Scale 0::6
Query isas_scale11 Float Recommended Marking Distress Scale 0::6
Query isas_scale12 Float Recommended Revenge Scale 0::6
Query isas_scale13 Float Recommended Autonomy Scale 0::6
timept Integer Recommended Time Point 888 = not applicable; 999 = missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.