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Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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BARC Pediatric ACE and other Determinants of Health Questionnaire

278 Shared Subjects

Adverse Childhood Experiences ACEs are defined as traumatic events occurring before age 18. Screenings have potential value in identifying children experiencing toxic stress and the physical and mental health conditions associated with it such as asthma, ADHD and anxiety. https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0208088
Clinical Assessments
Questionnaire; Trauma
10/28/2021
pace01
08/08/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
barc_pace_1 Integer Recommended Has your child ever lived with a parent/caregiver who went to jail/prison? 0;1 0=No; 1=Yes
barc_pace_2 Integer Recommended Do you think your child ever felt unsupported, unloved and/or unprotected? 0;1 0=No; 1=Yes
barc_pace_3 Integer Recommended Has your child ever lived with a parent/caregiver who had mental health issues? (for example, depression, schizophrenia, bipolar disorder, PTSD, or an anxiety disorder) 0;1 0=No; 1=Yes
barc_pace_4 Integer Recommended Has a parent/caregiver ever insulted, humiliated, or put down your child? 0;1 0=No; 1=Yes
barc_pace_5 Integer Recommended Has the child''s biological parent or any caregiver ever had, or currently has a problem with too much alcohol, street drugs or prescription medications use? 0;1 0=No; 1=Yes
barc_pace_6 Integer Recommended Has your child ever lacked appropriate care by any caregiver (for example, not being protected from unsafe situations, or not cared for when sick or injured even when the resources were available)? 0;1 0=No; 1=Yes
barc_pace_7 Integer Recommended Has your child ever seen or heard a parent/caregiver being screamed at, sworn at, insulted or humiliated by another adult? 0;1 0=No; 1=Yes; Conditional question: OR (see barc_pace_8) Please note, some questions have more than one part separated by ''OR.'' If any part of the question is answered ''Yes,'' then the answer to the entire question is ''Yes''
barc_pace_8 Integer Recommended Has your child ever seen or heard a parent/caregiver being slapped, kicked, punched beaten up or hurt with a weapon? 0;1 0=No; 1=Yes; Conditional question: OR (see barc_pace_7) Please note, some questions have more than one part separated by ''OR.'' If any part of the question is answered ''Yes,'' then the answer to the entire question is ''Yes''
barc_pace_9 Integer Recommended Has any adult in the household often or very often pushed, grabbed, slapped or thrown something at your child? 0;1 0=No; 1=Yes; Conditional question: OR (see barc_pace_10, barc_pace_11) Please note, some questions have more than one part separated by ''OR.'' If any part of the question is answered ''Yes,'' then the answer to the entire question is ''Yes''
barc_pace_10 Integer Recommended Has any adult in the household ever hit your child so hard that your child had marks or was injured? 0;1 0=No; 1=Yes; Conditional question: OR (see barc_pace_9, barc_pace_11) Please note, some questions have more than one part separated by ''OR.'' If any part of the question is answered ''Yes,'' then the answer to the entire question is ''Yes''
barc_pace_11 Integer Recommended Has any adult in the household ever threatened your child or acted in a way that made your child afraid that they might be hurt? 0;1 0=No; 1=Yes; Conditional question: OR (see barc_pace_9, barc_pace_10) Please note, some questions have more than one part separated by ''OR.'' If any part of the question is answered ''Yes,'' then the answer to the entire question is ''Yes''
barc_pace_12 Integer Recommended Has your child ever experienced sexual abuse? For example, anyone touched your child or asked your child to touch that person in a way that was unwanted, or made your child feel uncomfortable, or anyone ever attempted or actually had oral, anal, or vaginal sex with your child? 0;1 0=No; 1=Yes
barc_pace_13 Integer Recommended Have there ever been significant changes in the relationship status of the child''s caregiver(s)? For example, a parent/caregiver got a divorce or separated, or a romantic partner moved in or out? 0;1 0=No; 1=Yes
barc_pace_y1 Integer Recommended Write the total number of Yeses in this first section here: score 3+ denote risk First section include all questions barc_pace_1 to barc_pace_13
barc_pace_14 Integer Recommended Has your child ever seen, heard, or been a victim of violence in your neighborhood, community or school? (for example, targeted bullying, assault or other violent actions, war or terrorism) 0;1 0=No; 1=Yes
barc_pace_15 Integer Recommended Has your child experienced discrimination (for example being hassled or made to feel inferior or excluded because of their race, ethnicity, gender identity, sexual orientation, religion, learning differences, or disabilities)? 0;1 0=No; 1=Yes
barc_pace_16 Integer Recommended Has your child ever had problems with housing (for example being homeless, not having a stable place to live, moved more than two times in a six-month period, faced eviction or foreclosure, or had to live with multiple families or family members)? 0;1 0=No; 1=Yes
barc_pace_17 Integer Recommended Have you ever worried that your child did not have enough food to eat or that the food for your child would run out before you could buy more? 0;1 0=No; 1=Yes
barc_pace_18 Integer Recommended Has your child ever been separated from their parent or caregiver due to foster care, or immigration? 0;1 0=No; 1=Yes
barc_pace_19 Integer Recommended Has your child ever lived with a parent/caregiver who had a serious physical illness or disability? 0;1 0=No; 1=Yes
barc_pace_20 Integer Recommended Has your child ever lived with a parent or caregiver who died? 0;1 0=No; 1=Yes
barc_pace_y2 Integer Recommended Write the total number of Yeses in this second section here: This section II is not scored. Second section include all questions from barc_pace_14 to barc_pace_20
csaq477a Integer Recommended As a child or adolescent (16 years or younger), had you ever been pressured,?forced or intimidated into doing something sexually (for example, sexual fondling, oral sex, penetration with a finger or object, or intercourse) that you did not want to do? 1::4 1=Yes; 2=No; 3=I dont know; 4=Rather not say
csaq477b Integer Recommended As a child or adolescent (16 years or younger), had you ever been pressured,?forced or intimidated into doing something sexually (for example, sexual fondling, oral sex, penetration with a finger or object, or intercourse) that you did not want to do? If yes, how old were you when this first happened?
csaq477c Integer Recommended As a child or adolescent (16 years or younger), had you ever been pressured,?forced or intimidated into doing something sexually (for example, sexual fondling, oral sex, penetration with a finger or object, or intercourse) that you did not want to do? If yes, how frequently did this occur? 1::3 1=It happened one time; 2=It happened more than once; 3=Rather not say
csaq477d Integer Recommended As a child or adolescent (16 years or younger), had you ever been pressured,?forced or intimidated into doing something sexually (for example, sexual fondling, oral sex, penetration with a finger or object, or intercourse) that you did not want to do? If yes, how upsetting was the experience(s)? 1::4 1=Not at all; 2=Mildly; 3=Moderately; 4=Extremely
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.