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Developmental Assessment of Children from Spanish Speaking Families Phone Screening

49 Shared Subjects

Developmental Assessment of Children from Spanish Speaking Families Phone Screening
Clinical Assessments
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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
study_info String 250 Recommended How did you learn about study
Query brochure Integer Recommended Did you receive a brochure with information about the study 0;1 0=No; 1=Yes
Query bio_parent Integer Recommended Are you a biological parent to the child 0;1; -99; 88; 77 0=No; 1=Yes; -99= N/A ; 88= Missing ; 77= Refused
Query early_dev_parent Integer Recommended Have you been a parent to the child during his/her early development between the ages of 0 and 4. 0;1 0=No; 1=Yes
Query ethnic_group String 255 Recommended Ethnic group
Query lang_raised String 150 Recommended What language were you raised with?
Query spoken_lang Integer Recommended Are you more comfortable speaking 1::3 1=more comfortable speaking Spanish than English; 2=equally comfortable speaking Spanish and English; 3=more comfortable speaking English than Spanish
Query span_level Integer Recommended How well do you feel you speak Spanish 1::4 1=poor; 2=fair; 3=good; 4= excellent
Query child_age Integer Recommended how old is your child; months 0 :: 1200
Query livewith Integer Recommended Does this child currently live with you? 0;1 0=No; 1=Yes
Query devass Integer Recommended Has your child had a developmental assessment by a doctor or psychologist, for example at the uic family clinics? 0::2 0 = No; 1-Yes; 2= Don't know
primary_diagnosis String 200 Recommended Primary diagnosis of subject
Query aut_diag Integer Required Autism-related diagnosis 1::4;999 1 = Autism; 2 = Autism Spectrum Disorder; 3 = Asperger syndrome; 4 = PDD-NOS
Query diag_ageatdiag Integer Recommended Age at diagnosis(in months)
0 :: 1200
Query diagnosis_autism_madeby String 100 Recommended If the participant has been diagnosed with autism, who gave this diagnosis?
Query mr_diagnosis Integer Recommended Mental Retardation: Formal diagnosis 0;1;-7;-8;-9 0 = No; 1 = Yes; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply
Query mrdiag_madeby String 100 Recommended Where did you receive the diagnosis. Intellectual Disability/Mental Retardation
Query mrdiag_age Integer Recommended How old was your child when he/she received the diagnosis? Intellectual Disability/Mental Retardation
Query cfmh_chd_devdelay Integer Recommended Does (did) the Child have a Developmental Delay? 1;0 0 = No; 1 = Yes
Query dddiag_madeby String 100 Recommended Where did you receive the diagnosis. Developmental Delay
Query dddiag_age Integer Recommended How old was your child when he/she received the diagnosis? Developmental Delay
Query ds_diag Integer Recommended Down Syndrome diagnosis 0;1 0=No; 1=Yes
Query dsdiag_madeby String 100 Recommended Where did you receive the diagnosis. Down Syndrome
Query dsdiag_age Integer Recommended How old was your child when he/she received the diagnosis? Down Syndrome
Query cfmh_chd_cerpalsy Integer Required Has she/he ever been to a doctor for any of these things…Cerebral Palsy /Parálisis Cerebral 1;0;999 0 = No; 1 = Yes //Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.
cpdiag_madeby String 100 Recommended Where did you receive the diagnosis. Cerebral Palsy
Query cpdiag_age Integer Recommended How old was your child when he/she received the diagnosis? Cerebral Palsy
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.