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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

Collection - Use Existing Experiment
To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.
SelectExperiment IdExperiment NameExperiment Type
Created On
24HI-NGS_R1Omics02/16/2011
475MB1-10 (CHOP)Omics06/07/2016
490Illumina Infinium PsychArray BeadChip AssayOmics07/07/2016
501PharmacoBOLD Resting StatefMRI07/27/2016
506PVPREFOmics08/05/2016
509ABC-CT Resting v2EEG08/18/2016
13Comparison of FI expression in Autistic and Neurotypical Homo SapiensOmics12/28/2010
18AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics01/06/2011
22Stitching PCR SequencingOmics02/14/2011
26ASD_MethylationOmics03/01/2011
29Microarray family 03 (father, mother, sibling)Omics03/24/2011
37Standard paired-end sequencing of BCRsOmics04/19/2011
38Illumina Mate-Pair BCR sequencingOmics04/19/2011
39Custom Jumping LibrariesOmics04/19/2011
40Custom CapBPOmics04/19/2011
41ImmunofluorescenceOmics05/11/2011
43Autism brain sample genotyping, IlluminaOmics05/16/2011
47ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 SystemOmics08/01/2011
53AGRE Omni1-quadOmics10/11/2011
59AGP genotypingOmics04/03/2012
60Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controlsOmics06/23/2012
63Microemulsion PCR and Targeted Resequencing for Variant Detection in ASDOmics07/20/2012
76Whole Genome Sequencing in Autism FamiliesOmics01/03/2013
519RestingfMRI11/08/2016
90Genotyped IAN SamplesOmics07/09/2013
91NJLAGS Axiom Genotyping ArrayOmics07/16/2013
93AGP genotyping (CNV)Omics09/06/2013
106Longitudinal Sleep Study. H20 200. Channel set 2EEG11/07/2013
107Longitudinal Sleep Study. H20 200. Channel set 3EEG11/07/2013
108Longitudinal Sleep Study. AURA 200EEG11/07/2013
105Longitudinal Sleep Study. H20 200. Channel set 1EEG11/07/2013
109Longitudinal Sleep Study. AURA 400EEG11/07/2013
116Gene Expression Analysis WG-6Omics01/07/2014
131Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1Eye Tracking02/27/2014
132Jeste Lab UCLA ACEii: Animacy - Project 1Eye Tracking02/27/2014
133Jeste Lab UCLA ACEii: Mom Stranger - Project 2Eye Tracking02/27/2014
134Jeste Lab UCLA ACEii: Face Emotion - Project 3Eye Tracking02/27/2014
145AGRE/FMR1_Illumina.JHUOmics04/14/2014
146AGRE/MECP2_Sanger.JHUOmics04/14/2014
147AGRE/MECP2_Junior.JHUOmics04/14/2014
151Candidate Gene Identification in familial AutismOmics06/09/2014
152NJLAGS Whole Genome SequencingOmics07/01/2014
154Math Autism Study - Vinod MenonfMRI07/15/2014
155RestingfMRI07/25/2014
156SpeechfMRI07/25/2014
159EmotionfMRI07/25/2014
160syllable contrastEEG07/29/2014
167School-age naturalistic stimuliEye Tracking09/19/2014
44AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics06/27/2011
45Exome Sequencing of 20 Sporadic Cases of Autism Spectrum DisorderOmics07/15/2011
Collection - Add Experiment
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To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

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Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Children of Bipolar Parents: A High Risk Follow Up Study (also known as Bipolar Offspring Study - BIOS)
Boris Birmaher 
While bipolar disorder (BP) frequently begins in adolescence, an accurate diagnosis and appropriate treatment are frequently delayed, leading to increased morbidity and functional impairment. Thus it is imperative that we improve our ability to identify youth at high risk of disorder, and develop improved preventive and early intervention strategies. While numerous risk factors have been identified to predict the onset of bipolar spectrum disorder (BPSD) in at-risk youth, including depressive episodes and subthreshold manic symptoms, we do not yet have a strategy for integrating these findings to inform the prognosis of an individual. Improved prediction of the risk of BPSD onset would be extremely valuable clinically, in terms of psychoeducation, degree of monitoring, and treatment decisions. The proposed study aims to construct such a risk calculator in the Pittsburgh Bipolar Offspring Study (BIOS), the largest existing cohort of youth who are offspring of parents with BP. We extend recent work that identified independent and clinically significant dimensional predictors of BPSD, integrating these findings to inform the risk of individual conversion. We also take the next important step to assess the generalizability of our findings, beyond the BIOS cohort (recruited for genetic risk). To do this, we take advantage of the Longitudinal Assessment of Manic Symptoms (LAMS) Study, a cohort of behaviorally and emotionally dysregulated youth also at high risk of conversion to BPSD. We propose to assess the performance of the risk calculator in this more broadly recruited population in this multi-site study, thus assessing the external validity of our risk calculator, a crucial step prior to clinical implementation. While our risk calculator is based primarily on clinical rating scales, and we do not have neuroimaging or neurocognitive data on a sufficient number of individuals who subsequently converted to BPSD to integrate these items into a risk calculator, we take an initial step toward this goal. Namely, we assess correlations between risk score and extant neuroimaging findings, as well as neurocognitive domains. Future work will assess whether such tools might improve the performance of a risk calculator. Our team includes experts in child psychiatry, statistics, psychometrics, and, in particular, the implementation of risk calculators; thus we are well-poised to address the aims, and generate a risk calculator that has both clinical and research utility. Successful implementation of such a risk calculator addresses aims of the NIMH Strategic Plan, specifically providing a tool to help define the trajectories of mental illness and identifying prodromal symptoms that might identify individuals at high risk of conversion.
NIMH Data Archive
01/06/2016
Funding Completed
Close Out
No
$6,426,410.00
578
Loading Chart...
NIH - Extramural None

2336_submission17964_note.txt Other Supporting Documentation that participant 10032 had corrupted edat2 files for submission 17964 Qualified Researchers


R01MH060952-16 Children of Bipolar Parents: A High Risk Follow Up Study (also known as Bipolar Offspring Study - BIOS) 08/11/2016 05/31/2022 88 1538 UNIVERSITY OF PITTSBURGH AT PITTSBURGH $6,426,410.00

helpcenter.collection.general-tab

NDA Help Center

Collection - General Tab

Fields available for edit on the top portion of the page include:

  • Collection Title
  • Investigators
  • Collection Description
  • Collection Phase
  • Funding Source
  • Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

  • Pre-Enrollment: The default entry made when the NDA Collection is created.
  • Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
  • Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
  • Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
    • The Data Expected Subphase indicates that NDA expects more data will be submitted
    • The Closeout Subphase indicates the data submission is complete.
    • The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

  • This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
  • Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
  • When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

  • How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?
    During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
  • How do I know when a NDA Collection has been created?
    When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
  • Is a single grant number ever associated with more than one Collection?
    The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
  • Why is there sometimes more than one grant included in a Collection?
    In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

  • Administrator Privilege
    A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
  • Collection Owner
    Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
  • Collection Phase
    The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
    • Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
    • Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
    • Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
    • Funding Completed: A grant/project has reached the project end date.
  • Collection Title
    An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
  • Grant
    Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
  • Supporting Documentation
    Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
  • NIH Research Initiative
    NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
  • Permission Group
    Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
  • Planned Enrollment
    Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
  • Actual Enrollment
    Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
  • NDA Collection
    A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
  • Data Use Limitations
    Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
  • Total Subjects Shared
    The total number of unique subjects for whom data have been shared and are available for users with permission to access data.
IDNameCreated DateStatusType
705BIOS scans06/19/2017ApprovedfMRI
976BIOS PRISMA scans07/06/2018ApprovedfMRI
helpcenter.collection.experiments-tab

NDA Help Center

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

  • Can an Experiment be associated with more than one Collection?

    Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:

    1. Copy the experiment with intent for modifications.
    2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

  • Experiment Status
    An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
  • Experiment ID
    The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.
Affective Go-No Go Clinical Assessments 55
Affective Lability Scale Clinical Assessments 335
Aggression Questionnaire Clinical Assessments 396
An Interview with Collateral Informant About Offspring Clinical Assessments 72
Annett Handedness Inventory Clinical Assessments 55
BIOS Demographic Form Clinical Assessments 522
BIOS Screening Reports Clinical Assessments 99
BRIEF-Parent Clinical Assessments 55
Beck Depression Inventory Clinical Assessments 397
Cambridge Neuropsychological Tests Automated Battery Clinical Assessments 51
Child/Adolescent Symptom Inventory Clinical Assessments 55
Children's Affective Lability Scale Clinical Assessments 134
Children's Hostility Inventory Clinical Assessments 80
Conflict Behavior - Parent about Teen Clinical Assessments 82
Conflict Behavior - Teen about Parents Clinical Assessments 406
Demographics - Pittsburgh Clinical Assessments 226
Disruptive Behavior Disorders Rating Scale Clinical Assessments 82
Drug Screen Clinical Assessments 55
EAS Temperament Scale Clinical Assessments 82
Family Adaptability and Cohesion Evaluation Scales II Clinical Assessments 408
General Behavior Inventory Clinical Assessments 55
Guess of Diagnosis Clinical Assessments 510
Image Imaging 52
Kiddie-Sads Depression Clinical Assessments 520
Kiddie-Sads Mania Rating Scale Clinical Assessments 520
Kiddie-Sads-Present and Lifetime Version (K-SADS-PL) Clinical Assessments 99
Legal Involvement Form Clinical Assessments 89
Medications List Clinical Assessments 55
Mood Chronology for the SCID Clinical Assessments 55
Moods and Feelings Questionnaire Clinical Assessments 149
Morningness/Eveningness Questionnaire Clinical Assessments 329
Positive and Negative Affect Schedule (PANAS) Child Version Clinical Assessments 55
Psychological Functioning Form Clinical Assessments 99
Pubertal Development Scale Clinical Assessments 102
SCID II Personality Questionnaire Clinical Assessments 332
SCID Optional and Additional Diagnoses Clinical Assessments 125
School Sleep Habits Clinical Assessments 78
Screen for Child Anxiety Related Disorders (SCARED), Parent/Child Clinical Assessments 138
Sensation Seeking Scale - Form Clinical Assessments 6
Sensitivity to Punishment and Sensitivity to Reward Questionnaire Child Version Clinical Assessments 55
Sleep Timing Questionnaire Clinical Assessments 215
Stressful Life Events Schedule Clinical Assessments 316
Structured Clinical Interview for DSM-IV Clinical Assessments 432
Substance Use Questionnaire Clinical Assessments 55
Summary Lifetime Diagnoses Checklist Clinical Assessments 91
Swanson, Nolan and Pelham SNAP-IV Rating Scale Clinical Assessments 55
The Comprehensive Affect Testing System Clinical Assessments 54
helpcenter.collection.shared-data-tab

NDA Help Center

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

  • How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?
    To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
  • Can I get a supplement to share data from a completed research project?
    Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
  • Can I get a supplement to share data from a research project that is still ongoing?
    Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

  • Data Structure
    A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
  • Data Type
    A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
  • Shared
    The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
37558614Create StudySleep patterns among preschool offspring of parents with and without psychopathology: Association with the development of psychopathology in childhood.Bipolar disordersLevenson, Jessica C; Joseph, Heather M; Merranko, John; Hafeman, Danella M; Monk, Kelly; Goldstein, Benjamin I; Axelson, David; Sakolsky, Dara; Diler, Rasim S; Goldstein, Tina; Birmaher, BorisMarch 1, 2024Not Determined
37439358Create StudyComorbidity in pediatric bipolar disorder: An unmet challenge in need of treatment studies.Acta psychiatrica ScandinavicaGoldstein, Benjamin IAugust 1, 2023Not Determined
36577710Create StudyEarly indicators of bipolar risk in preschool offspring of parents with bipolar disorder.Journal of child psychology and psychiatry, and allied disciplinesHafeman, Danella M; Merranko, John; Joseph, Heather M; Goldstein, Tina R; Goldstein, Benjamin I; Levenson, Jessica; Axelson, David; Monk, Kelly; Sakolsky, Dara; Iyengar, Satish; Birmaher, BorisOctober 1, 2023Not Determined
36106505Create StudyShape analysis of subcortical structures in obsessive-compulsive disorder and the relationship with comorbid anxiety, depression, and medication use: A meta-analysis by the OCD Brain Imaging Consortium.Brain and behaviorFouche, Jean-Paul; Groenewold, Nynke A; Sevenoaks, Tatum; Heany, Sarah; Lochner, Christine; Alonso, Pino; Batistuzzo, Marcelo C; Cardoner, Narcis; Ching, Christopher R K; de Wit, Stella J; Gutman, Boris; Hoexter, Marcelo Q; Jahanshad, Neda; Kim, Minah; Kwon, Jun Soo; Mataix-Cols, David; Menchon, Jose M; Miguel, Euripedes C; Nakamae, Takashi; Phillips, Mary L; Pujol, Jesus; Sakai, Yuki; Yun, Je-Yeon; Soriano-Mas, Carles; Thompson, Paul M; Yamada, Kei; Veltman, Dick J; van den Heuvel, Odile A; Stein, Dan JOctober 1, 2022Not Determined
35491274Create StudyA Novel Insular/Orbital-Prelimbic Circuit That Prevents Persistent Avoidance in a Rodent Model of Compulsive Behavior.Biological psychiatryMartínez-Rivera, Freddyson J; Pérez-Torres, José; Velázquez-Díaz, Coraly D; Sánchez-Navarro, Marcos J; Huertas-Pérez, Carlos I; Diehl, Maria M; Phillips, Mary L; Haber, Suzanne N; Quirk, Gregory JJune 1, 2023Not Determined
35331820Create StudyWhite matter predictors of worsening of subthreshold hypomania severity in non-bipolar young adults parallel abnormalities in individuals with bipolar disorder.Journal of affective disordersSantos, João Paulo Lima; Versace, Amelia; Stiffler, Richelle S; Aslam, Haris A; Lockovich, Jeanette C; Bonar, Lisa; Bertocci, Michele; Iyengar, Satish; Bebko, Genna; Skeba, Alexander; Gill, Mary Kay; Monk, Kelly; Hickey, Mary Beth; Birmaher, Boris; Phillips, Mary LJune 1, 2022Not Determined
35319812Create StudyThe role of bipolar polygenic risk score in the familial transmission of bipolar disorder-An updated analysis.Bipolar disordersBirmaher, Boris; Merranko, John; Hafeman, Danella; Zwicker, Alyson; Goldstein, Benjamin; Axelson, David; Goldstein, Tina; Sakolsky, Dara; Diler, Rasim; Uher, RudolfJune 1, 2022Not Determined
34935868Create StudyRole of Polygenic Risk Score in the Familial Transmission of Bipolar Disorder in Youth.JAMA psychiatryBirmaher, Boris; Hafeman, Danella; Merranko, John; Zwicker, Alyson; Goldstein, Benjamin; Goldstein, Tina; Axelson, David; Monk, Kelly; Hickey, Mary Beth; Sakolsky, Dara; Iyengar, Satish; Diler, Rasim; Nimgaonkar, Vishwajit; Uher, RudolfFebruary 1, 2022Not Determined
34285367Create StudyDifferentiating white matter measures that protect against vs. predispose to bipolar disorder and other psychopathology in at-risk youth.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyRozovsky, Renata; Versace, Amelia; Bonar, Lisa K; Bertocci, Michele; Ladouceur, Cecile D; Fournier, Jay; Monk, Kelly; Abdul-Waalee, Halimah; Bebko, Genna; Hafeman, Danella; Sakolsky, Dara; Goldstein, Tina; Birmaher, Boris; Phillips, Mary LNovember 1, 2021Not Determined
33785405Create StudyA Longitudinal Study of Psychiatric Disorders in Offspring of Parents With Bipolar Disorder From Preschool to Adolescence.Journal of the American Academy of Child and Adolescent PsychiatryBirmaher, Boris; Merranko, John; Hafeman, Danella; Goldstein, Benjamin I; Diler, Rasim; Levenson, Jessica C; Monk, Kelly; Iyengar, Satish; Hickey, Mary Beth; Sakolsky, Dara; Axelson, David; Goldstein, TinaNovember 1, 2021Not Determined
33782511Create StudyNeural function during emotion regulation and future depressive symptoms in youth at risk for affective disorders.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyFournier, Jay C; Bertocci, Michele; Ladouceur, Cecile D; Bonar, Lisa; Monk, Kelly; Abdul-Waalee, Halimah; Versace, Amelia; Santos, João Paulo Lima; Iyengar, Satish; Birmaher, Boris; Phillips, Mary LJune 1, 2021Not Determined
32725849Create StudyWhat we learn about bipolar disorder from large-scale neuroimaging: Findings and future directions from the ENIGMA Bipolar Disorder Working Group.Human brain mappingChing, Christopher R K; Hibar, Derrek P; Gurholt, Tiril P; Nunes, Abraham; Thomopoulos, Sophia I; Abé, Christoph; Agartz, Ingrid; Brouwer, Rachel M; Cannon, Dara M; de Zwarte, Sonja M C; Eyler, Lisa T; Favre, Pauline; Hajek, Tomas; Haukvik, Unn K; Houenou, Josselin; Landén, Mikael; Lett, Tristram A; McDonald, Colm; Nabulsi, Leila; Patel, Yash; Pauling, Melissa E; Paus, Tomas; Radua, Joaquim; Soeiro-de-Souza, Marcio G; Tronchin, Giulia; van Haren, Neeltje E M; Vieta, Eduard; Walter, Henrik; Zeng, Ling-Li; Alda, Martin; Almeida, Jorge; Alnaes, Dag; Alonso-Lana, Silvia; Altimus, Cara; Bauer, Michael; Baune, Bernhard T; Bearden, Carrie E; Bellani, Marcella; Benedetti, Francesco; Berk, Michael; Bilderbeck, Amy C; Blumberg, Hilary P; Bøen, Erlend; Bollettini, Irene; Del Mar Bonnin, Caterina; Brambilla, Paolo; Canales-Rodríguez, Erick J; Caseras, Xavier; Dandash, Orwa; Dannlowski, Udo; Delvecchio, Giuseppe; Díaz-Zuluaga, Ana M; Dima, Danai; Duchesnay, Édouard; Elvsåshagen, Torbjørn; Fears, Scott C; Frangou, Sophia; Fullerton, Janice M; Glahn, David C; Goikolea, Jose M; Green, Melissa J; Grotegerd, Dominik; Gruber, Oliver; Haarman, Bartholomeus C M; Henry, Chantal; Howells, Fleur M; Ives-Deliperi, Victoria; Jansen, Andreas; Kircher, Tilo T J; Knöchel, Christian; Kramer, Bernd; Lafer, Beny; López-Jaramillo, Carlos; Machado-Vieira, Rodrigo; MacIntosh, Bradley J; Melloni, Elisa M T; Mitchell, Philip B; Nenadic, Igor; Nery, Fabiano; Nugent, Allison C; Oertel, Viola; Ophoff, Roel A; Ota, Miho; Overs, Bronwyn J; Pham, Daniel L; Phillips, Mary L; Pineda-Zapata, Julian A; Poletti, Sara; Polosan, Mircea; Pomarol-Clotet, Edith; Pouchon, Arnaud; Quidé, Yann; Rive, Maria M; Roberts, Gloria; Ruhe, Henricus G; Salvador, Raymond; Sarró, Salvador; Satterthwaite, Theodore D; Schene, Aart H; Sim, Kang; Soares, Jair C; Stäblein, Michael; Stein, Dan J; Tamnes, Christian K; Thomaidis, Georgios V; Upegui, Cristian Vargas; Veltman, Dick J; Wessa, Michèle; Westlye, Lars T; Whalley, Heather C; Wolf, Daniel H; Wu, Mon-Ju; Yatham, Lakshmi N; Zarate, Carlos A; Thompson, Paul M; Andreassen, Ole A; ENIGMA Bipolar Disorder Working GroupJanuary 1, 2022Not Determined
31830059Create StudyThe impact of familial risk and early life adversity on emotion and reward processing networks in youth at-risk for bipolar disorder.PloS oneHanford LC, Eckstrand K, Manelis A, Hafeman DM, Merranko J, Ladouceur CD, Graur S, Mccaffrey A, Monk K, Bonar LK, Hickey MB, Goldstein TR, Goldstein BI, Axelson D, Bebko G, Bertocci MA, Gill MK, Birmaher B, Phillips MLJanuary 2019Not Determined
31628415Create StudyClinical, cortical thickness and neural activity predictors of future affective lability in youth at risk for bipolar disorder: initial discovery and independent sample replication.Molecular psychiatryBertocci, Michele A; Hanford, Lindsay; Manelis, Anna; Iyengar, Satish; Youngstrom, Eric A; Gill, Mary Kay; Monk, Kelly; Versace, Amelia; Bonar, Lisa; Bebko, Genna; Ladouceur, Cecile D; Perlman, Susan B; Diler, Rasim; Horwitz, Sarah M; Arnold, L Eugene; Hafeman, Danella; Travis, Michael J; Kowatch, Robert; Holland, Scott K; Fristad, Mary A; Findling, Robert L; Birmaher, Boris; Phillips, Mary LDecember 2019Not Determined
30961832Create StudyNeural Markers That Distinguish Bipolar Disorder From Major Depressive Disorder: Moving Closer to a Reality.Biological psychiatry. Cognitive neuroscience and neuroimagingPhillips, Mary LApril 2019Not Determined
30851396Create StudyLongitudinal Associations Between Sleep Patterns and Psychiatric Symptom Severity in High-Risk and Community Comparison Youth.Journal of the American Academy of Child and Adolescent PsychiatrySoehner, Adriane M; Bertocci, Michele A; Levenson, Jessica C; Goldstein, Tina R; Rooks, Brian; Merranko, John; Hafeman, Danella; Diler, Rasim; Axelson, David; Goldstein, Benjamin I; Hickey, Mary Beth; Monk, Kelly; Phillips, Mary L; Birmaher, BorisJune 2019Not Determined
30768403Create StudyPsychotic-Like Experiences in Offspring of Parents With Bipolar Disorder and Community Controls: A Longitudinal Study.Journal of the American Academy of Child and Adolescent PsychiatryMendez I, Axelson D, Castro-Fornieles J, Hafeman D, Goldstein TR, Goldstein BI, Diler R, Borras R, Merranko J, Monk K, Hickey MB, Birmaher BMay 2019Not Determined
30768400Create StudyA Longitudinal Study of Family Functioning in Offspring of Parents Diagnosed With Bipolar Disorder.Journal of the American Academy of Child and Adolescent PsychiatryShalev, Amit; Merranko, John; Goldstein, Tina; Miklowitz, David J; Axelson, David; Goldstein, Benjamin I; Brent, David; Monk, Kelly; Hickey, Mary Beth; Hafeman, Danella M; Sakolsky, Dara; Diler, Rasim; Birmaher, BorisOctober 2019Not Determined
30755725Create StudyBaseline and follow-up activity and functional connectivity in reward neural circuitries in offspring at risk for bipolar disorder.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyAcuff, Heather E; Versace, Amelia; Bertocci, Michele A; Ladouceur, Cecile D; Hanford, Lindsay C; Manelis, Anna; Monk, Kelly; Bonar, Lisa; McCaffrey, Alicia; Goldstein, Benjamin I; Goldstein, Tina R; Sakolsky, Dara; Axelson, David; Birmaher, Boris; Phillips, Mary LAugust 2019Not Determined
30410014Create StudyIntrinsic functional connectivity correlates of person-level risk for bipolar disorder in offspring of affected parents.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyHafeman DM, Chase HW, Monk K, Bonar L, Hickey MB, Mccaffrey A, Graur S, Manelis A, Ladouceur CD, Merranko J, Axelson DA, Goldstein BI, Goldstein TR, Birmaher B, Phillips MLNovember 2018Relevant
30243195Create StudyWhite matter - emotion processing activity relationships in youth offspring of bipolar parents.Journal of affective disordersAcuff HE, Versace A, Bertocci MA, Hanford LC, Ladouceur CD, Manelis A, Monk K, Bonar L, Mccaffrey A, Goldstein BI, Goldstein TR, Sakolsky D, Axelson D, Birmaher B, Phillips MLJanuary 2019Relevant
30193355Create StudyAssociation of Neuroimaging Measures of Emotion Processing and Regulation Neural Circuitries With Symptoms of Bipolar Disorder in Offspring at Risk for Bipolar Disorder.JAMA psychiatryAcuff HE, Versace A, Bertocci MA, Ladouceur CD, Hanford LC, Manelis A, Monk K, Bonar L, Mccaffrey A, Goldstein BI, Goldstein TR, Sakolsky D, Axelson D, Birmaher B, Phillips ML, September 2018Not Determined
29795244Create StudyDiffusion imaging markers of bipolar versus general psychopathology risk in youth at-risk.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyVersace A, Ladouceur CD, Graur S, Acuff HE, Bonar LK, Monk K, Mccaffrey A, Yendiki A, Leemans A, Travis MJ, Diwadkar VA, Holland SK, Sunshine JL, Kowatch RA, Horwitz SM, Frazier TW, Arnold LE, Fristad MA, Youngstrom EA, Findling RL, Goldstein BI, Goldstein T, Axelson D, Birmaher B, Phillips MLMay 2018Not Relevant
28678992Create StudyAssessment of a Person-Level Risk Calculator to Predict New-Onset Bipolar Spectrum Disorder in Youth at Familial Risk.JAMA psychiatryHafeman, Danella M; Merranko, John; Goldstein, Tina R; Axelson, David; Goldstein, Benjamin I; Monk, Kelly; Hickey, Mary Beth; Sakolsky, Dara; Diler, Rasim; Iyengar, Satish; Brent, David A; Kupfer, David J; Kattan, Michael W; Birmaher, BorisAugust 2017Not Determined
28612977Create StudyCharacteristics of depression among offspring at high and low familial risk of bipolar disorder.Bipolar disordersDiler, Rasim Somer; Goldstein, Tina R; Hafeman, Danella; Rooks, Brian Thomas; Sakolsky, Dara; Goldstein, Benjamin I; Monk, Kelly; Hickey, Mary Beth; Axelson, David; Iyengar, Satish; Birmaher, BorisAugust 2017Not Determined
28359032Create StudyPsychometrics of the screen for adult anxiety related disorders (SCAARED)- A new scale for the assessment of DSM-5 anxiety disorders.Psychiatry researchAngulo, Melina; Rooks, Brian T; Gill, MaryKay; Goldstein, Tina; Sakolsky, Dara; Goldstein, Benjamin; Monk, Kelly; Hickey, Mary Beth; Diler, Rasim S; Hafeman, Danella; Merranko, John; Axelson, David; Birmaher, BorisJuly 2017Not Relevant
28315578Create StudyLongitudinal sleep phenotypes among offspring of bipolar parents and community controls.Journal of affective disordersLevenson, Jessica C; Soehner, Adriane; Rooks, Brian; Goldstein, Tina R; Diler, Rasim; Merranko, John; Axelson, David; Goldstein, Ben I; Brent, David A; Hafeman, Danella; Hickey, Mary Beth; Monk, Kelly; Sakolsky, Dara; Kupfer, David J; Birmaher, BorisJune 2017Not Relevant
28199068Create StudyThe Relationship Between Stressful Life Events and Axis I Diagnoses Among Adolescent Offspring of Probands With Bipolar and Non-Bipolar Psychiatric Disorders and Healthy Controls: The Pittsburgh Bipolar Offspring Study (BIOS).The Journal of clinical psychiatryPan LA, Goldstein TR, Rooks BT, Hickey M, Fan JY, Merranko J, Monk K, Diler RS, Sakolsky DJ, Hafeman D, Iyengar S, Goldstein B, Kupfer DJ, Axelson DA, Brent DA, Birmaher BMarch 2017Not Determined
27765159Create StudySex Differences and Personalized Psychiatric Care.Biological psychiatryEckstrand, Kristen L; Travis, Michael John; Forbes, Erika E; Phillips, Mary LouiseNovember 2016Not Determined
27442458Create StudyPreliminary investigation of the relationships between sleep duration, reward circuitry function, and mood dysregulation in youth offspring of parents with bipolar disorder.Journal of affective disordersSoehner, Adriane M; Bertocci, Michele A; Manelis, Anna; Bebko, Genna; Ladouceur, Cecile D; Graur, Simona; Monk, Kelly; Bonar, Lisa K; Hickey, Mary Beth; Axelson, David; Goldstein, Benjamin I; Goldstein, Tina R; Birmaher, Boris; Phillips, Mary LNovember 15, 2016Not Determined
27423424Create StudyCategorical and dimensional psychopathology in Dutch and US offspring of parents with bipolar disorder: A preliminary cross-national comparison.Journal of affective disordersMesman, Esther; Birmaher, Boris B; Goldstein, Benjamin I; Goldstein, Tina; Derks, Eske M; Vleeschouwer, Marloes; Hickey, Mary Beth; Axelson, David; Monk, Kelly; Diler, Rasim; Hafeman, Danella; Sakolsky, Dara J; Reichart, Catrien G; Wals, Marjolein; Verhulst, Frank C; Nolen, Willem A; Hillegers, Manon H JNovember 2016Not Relevant
27217146Create StudyCommon and distinct patterns of grey-matter volume alteration in major depression and bipolar disorder: evidence from voxel-based meta-analysis.Molecular psychiatryWise, T; Radua, J; Via, E; Cardoner, N; Abe, O; Adams, T M; Amico, F; Cheng, Y; Cole, J H; de Azevedo Marques Périco, C; Dickstein, D P; Farrow, T F D; Frodl, T; Wagner, G; Gotlib, I H; Gruber, O; Ham, B J; Job, D E; Kempton, M J; Kim, M J; Koolschijn, P C M P; Malhi, G S; Mataix-Cols, D; McIntosh, A M; Nugent, A C; O'Brien, J T; Pezzoli, S; Phillips, M L; Sachdev, P S; Salvadore, G; Selvaraj, S; Stanfield, A C; Thomas, A J; van Tol, M J; van der Wee, N J A; Veltman, D J; Young, A H; Fu, C H; Cleare, A J; Arnone, DOctober 2017Not Relevant
26892940Create StudyToward the Definition of a Bipolar Prodrome: Dimensional Predictors of Bipolar Spectrum Disorders in At-Risk Youths.The American journal of psychiatryHafeman, Danella M; Merranko, John; Axelson, David; Goldstein, Benjamin I; Goldstein, Tina; Monk, Kelly; Hickey, Mary Beth; Sakolsky, Dara; Diler, Rasim; Iyengar, Satish; Brent, David; Kupfer, David; Birmaher, BorisJuly 1, 2016Relevant
26724693Create StudyAltered neural function to happy faces in adolescents with and at risk for depression.Journal of affective disordersKerestes, Rebecca; Segreti, Anna Maria; Pan, Lisa A; Phillips, Mary L; Birmaher, Boris; Brent, David A; Ladouceur, Cecile DMarch 1, 2016Relevant
26349556Create StudyImpact of the glucocorticoid receptor BclI polymorphism on reward expectancy and prediction error related ventral striatal reactivity in depressed and healthy individuals.Journal of psychopharmacology (Oxford, England)Ham, Byung-Joo; Greenberg, Tsafrir; Chase, Henry W; Phillips, Mary LJanuary 2016Relevant
22115148Create StudyDifferential patterns of abnormal activity and connectivity in the amygdala-prefrontal circuitry in bipolar-I and bipolar-NOS youth.Journal of the American Academy of Child and Adolescent PsychiatryLadouceur, Cecile D; Farchione, Tiffany; Diwadkar, Vaibhav; Pruitt, Patrick; Radwan, Jacqueline; Axelson, David A; Birmaher, Boris; Phillips, Mary LDecember 2011Relevant
helpcenter.collection.publications-tab

NDA Help Center

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

  • How can I determine if a publication is relevant?
    Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
  • Where does the NDA get the publications?
    PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

  • Create Study
    A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
  • Not Determined Publication
    Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
  • Not Relevant Publication
    A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
  • PubMed
    PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
  • PubMed ID
    The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
  • Relevant Publication
    A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.
Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Research Subject and Pedigree info icon
79301/15/2018
0
Approved
To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.
Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
SNAP-IV Rating Scale info icon
14007/15/2017
55
Approved
Positive and Negative Affect Schedule info icon
14007/15/2017
55
Approved
Medical History info icon
79301/15/2018
99
Approved
Wechsler Abbreviated Scale of Intelligence (WASI) info icon
79301/15/2018
0
Approved
Child and Adolescent Symptom Inventory (CASI) info icon
14007/15/2017
55
Approved
Demographics info icon
79301/15/2018
522
Approved
Clinical Global Impression (CGI) info icon
79301/15/2018
0
Approved
Moods and Feelings Questionnaire info icon
79307/15/2017
149
Approved
Screen for Childhood Anxiety Related Emotional Disorders (SCARED) info icon
79307/15/2017
138
Approved
Structured Clinical Interview for DSM (SCID) info icon
79301/15/2018
432
Approved
Pubertal Development Scale (PDS) info icon
79307/15/2017
102
Approved
Kiddie-Sads (K-SADS) info icon
79301/15/2018
520
Approved
Handedness Form info icon
14007/15/2017
55
Approved
Behavior Rating Inventory of Executive Function (BRIEF) info icon
14007/15/2017
55
Approved
Medications List info icon
14007/15/2017
55
Approved
Substance Use Questionnaire info icon
14007/15/2017
55
Approved
Beck Depression Inventory info icon
79301/15/2018
397
Approved
Sensitivity to Punishment and Sensitivity to Reward Questionnaire info icon
14007/15/2017
55
Approved
Aggression Questionnaire info icon
79301/15/2018
396
Approved
Drug Screen info icon
14007/15/2017
55
Approved
Imaging (Structural, fMRI, DTI, PET, microscopy) info icon
14007/15/2017
52
Approved
Sensation Seeking Scale - Form info icon
14001/15/2018
6
Approved
Conflict Behavior - Parent about Teen info icon
79301/15/2018
82
Approved
Affective Lability Scale info icon
79307/15/2017
463
Approved
Family Adaptability and Cohesion Evaluation Scales info icon
79301/15/2018
408
Approved
Go-No Go Variant Task info icon
79307/15/2017
55
Approved
Guess of Diagnosis info icon
79301/15/2018
510
Approved
Conflict Behavior - Teen about Parents info icon
79301/15/2018
406
Approved
Disruptive Behavior Disorders Rating Scale info icon
79301/15/2018
82
Approved
EAS Temperament Scale info icon
79301/15/2018
82
Approved
SCIDII Questionnaire info icon
79301/15/2018
332
Approved
Affective Dysregulations Scale info icon
79301/15/2018
0
Approved
Children’s Hostility Inventory info icon
79301/15/2018
80
Approved
Legal Involvement Form info icon
79301/15/2018
89
Approved
Stressful Life Events Schedule info icon
79301/15/2018
316
Approved
Collateral Informant info icon
79301/15/2018
72
Approved
Psychological Functioning info icon
79301/15/2018
99
Approved
Smith Morningness/Eveningness Questionnaire info icon
79301/15/2018
329
Approved
School Sleep Habits info icon
79301/15/2018
78
Approved
Sleep Timing Questionnaire info icon
79301/15/2018
215
Approved
Suicide History info icon
79301/15/2018
0
Approved
Child and Adolescent Health Screen info icon
79301/15/2018
0
Approved
Adult Health Screen info icon
79301/15/2018
0
Approved
Comprehensive Affect Testing System info icon
14007/15/2017
54
Approved
General Behavior Inventory info icon
14007/15/2017
55
Approved
Cambridge Neuropsychological Tests Automated Battery (CANTAB) info icon
79307/15/2017
51
Approved
Structure not yet defined
No Status history for this Data Expected has been recorded yet
helpcenter.collection.data-expected-tab

NDA Help Center

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

  • Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
  • If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
  • Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

  • What is an NDA Data Structure?
    An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
  • What is the NDA Data Dictionary?
    The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

  • Analyzed Data
    Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
  • Data Item
    Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
  • Data Structure
    A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
  • Data Structure Category
    An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
  • Data Structure Group
    A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
  • Evaluated Data
    A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
  • Imaging Data
    Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
  • Initial Share Date
    Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
  • Initial Submission Date
    Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
  • Research Subject and Pedigree
    An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
  • Submission Cycle
    The NDA has two Submission Cycles per year - January 15 and July 15.
  • Submission Exemption
    An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
No records found.
helpcenter.collection.associated-studies-tab

NDA Help Center

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

  • How do I associate a study to my collection?
    Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

  • Associated Studies Tab
    A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.
Edit