NDA Help Center

Collection - General Tab

Fields available for edit on the top portion of the page include:

  • Collection Title
  • Investigators
  • Collection Description
  • Collection Phase
  • Funding Source
  • Clinical Trials

Collection Status: The visibility status of an NDA Collection.  Collection Status can be Shared or Private.  Collections in Shared status are visible to all users and can be searched in the NDA Query Tool. Private Collections are not visible to NDA users.  The Status of an NDA Collection only affects the visibility of information about the Collection (metadata) and does not relate to the status of the record-level research data in the NDA Collection.

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.
 

  • Pre-Enrollment: The default entry made when the NDA Collection is created.
     
  • Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
     
  • Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection.  The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
     
  • Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
     
    • The Data Expected Subphase indicates that NDA expects more data will be submitted
    • The Closeout Subphase indicates the data submission is complete.
    • The Sharing Not Met Subphase indicates that data submission was not completed as expected. 

Blinded Clinical Trial Status:

  • This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial.  When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
     
  • Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
     
  • When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/about/sharing-regimen.html), the embargo on Data Expected information is released.
     

Funding Source

The organization(s) responsible for providing the funding is listed here. 

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program  Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only. 

Grant Information 

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH. 

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials. 

Frequently Asked Questions

  • When a Collection is created by NDA staff and marked as Shared, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.

  • During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.

  • The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.

  • In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

  • Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.

  • A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users. 

  • Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.

  • The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different.  Collection users with Administrative Privileges are encouraged to edit the Collection Phase.  The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page.  This field is sortable alphabetically in ascending or descending order. Collection Phase options include: 

    • Pre-Enrollment:  A grant/project has started, but has not yet enrolled subjects.
    • Enrolling:  A grant/project has begun enrolling subjects.  Data submission is likely ongoing at this point.
    • Data Analysis:  A grant/project has completed enrolling subjects and has completed all data submissions.
    • Funding Completed:  A grant/project has reached the project end date.
  • The Collection State indicates whether the Collection is viewable and searchable.  Collections can be either Private, Shared, or an Ongoing Study.  A Collection that is shared does not necessarily have shared data as the Collection State and state of data are independent of each other.  This field can be edited by Collection users with Administrative Privileges and the Program Officer as listed in eRA (for NIH funded grants). Changes must be saved by clicking the Save button at the bottom of the page.

  • An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.

  • Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.

  • Provides the grant number(s) for the grant(s) associated with the Collection.  The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.

  • A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims. 

  • NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements. 

  • Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.

  • Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.

  • Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.  

  • The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

NDA Help Center

Collection - Shared Data Tab

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

 

Frequently Asked Questions

  • To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection.  Alternatively, you may review an NDA Study Attribution Report available on the General tab.  

  • Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.

  • Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges.  Please contact a program staff member at the appropriate funding institution for more information.

Glossary

  • A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure

  • A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.

  • The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared.  A Shared NDA Collection or NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account.  A Shared Collection or NDA Study does not necessarily mean that data submitted to the Collection or used in the NDA Study have been shared as this is independently determined.  Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions.  Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared, but will only be viewable and accessible if the Collection is Shared.

NDA Help Center

fMRi

fMRI stands for functional magnetic resonance imaging. fMRI tests measure blood flow, providing detailed functional images of the brain or body. 

Acquisition
The Acquisition parameters needed for an experiment include the following:

The name of the experiment is required. Please be concise and specific as possible.
Following experiment name, selection boxes are provided for the Equipment, Software, or other items specific to the experiment type. At least one selection is required for each. If NDAR does not have the appropriate listing, select Add New to add the information provided. Following the selection boxes, provide additional information may be required depending on the experiment type. Any required items are denoted by an asterisk (*).

Block/Event Design
At least one block/event is required. Note that any fields denoted with an asterisk (*) are required. All data must be devoid of personally identifiable data, including the contents of any files attached to the experiment.

Note: To simplify the definition of multiple events, we provide an Import from XML function. This function supports importing data from all three experiment sections (Acquisition, Block/Event Design, and Post Processing), at this time files cannot be uploaded from XML A test format is provided here and our XML Schema Definition (xsd) can be found here.

Post Processing
If you have completed any post-processing on your data, please choose 'Yes' for Has Postprocessing? If not, select 'No'. Depending on this selection the remaining post-processing fields will be enabled (some of which will be required). If you are initially providing data you can select 'No', then return to the experiment to add post-processing steps at a later date when the data are being provided.

Please provide information about post-processing manipulations, i.e. artifact detection algorithms, segmentation used for post data collection, items denoted with an asterisk (*) are required.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Collection - Submissions Tab

Users with permission to access Shared data in the Collection’s assigned Permission Group may use this tab. 

Here, you can:

  • Review your uploads to your Collection, monitor their status, and download them individually to verify their contents.
  • Download individual datasets as a secondary user of the data approved for access.
  • Identify and download datasets containing errors identified by NDA's QA/QC process for review and resolution.
  • Report suspected or discovered Personally Identifiable Information in a submission via the Actions column.

Frequently Asked Questions

Glossary

  • The default view of Datasets within a Collection's Submission tab.

  • A Submission Loading Status on a Collection's Submission Tab that indicates that an issue has prevented the successful loading of the submission.  Users should contact the NDA Help Desk for assistance at NDAHelp@mail.nih.gov.

  • The NDA has two Submission Cycles per year - January 15 and July 15.

  • An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.  

  • The unique and sequentially assigned ID for a submission (e.g. a discrete upload via the Validation and Upload Tool), which may contain any number of datafiles, Data Structures and/or Data Types, regardless of the Submission Loading Status. A single submission may be divided into multiple Datasets, which are based on Data Type.

  • The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

  • The total number of unique subjects for whom data have been submitted, which includes data in both a Private State and a Shared State.

NDA Help Center

Collection - Publications Tab

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab. 

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column. 

 

Frequently Asked Questions

  • Publications are considered relevant to a collection when the data shared is directly related to the project or collection.

  • PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM). 

Glossary

  • A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.

  • Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.

  • A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.

  • PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.

  • The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.  

  • A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

NDA Help Center

EEG

EEG stands for electroencencephalogram and is a test used to measure electrical activity in the brain.

Acquisition
The Acquisition parameters needed for an experiment include the following:

Name of the experiment is required. Please be concise and specific as possible.
Following experiment name, selection boxes are provided for the Equipment, Software, or other items specific to experiment type. At least one selection is required for each. If NDAR does not have the appropriate listing, select Add New to add the information provided. Following the selection boxes, provide additional information may be required depending on experiment type. Any required items are denoted by an asterisk (*).

Block/Event Design
At least one block/event is required. Note that any fields denoted with an asterisk (*) are required. All data must be devoid of personally identifiable data, including the contents of any files attached to the experiment.

Note: To simplify definition of multiple events, we provide an Import from XML function. This function supports importing data from all three experiment sections (Acquisition, Block/Event Design, and Post Processing), at this time files cannot be uploaded from XML A test format is provided here and our XML Schema Definition (xsd) can be found here.

Post Processing
If you have completed any post processing on your data, please choose 'Yes' for Has Postprocessing? If not, select 'No'. Depending on this selection the remaining post processing fields will be enabled (some of which will be required). If you are initially providing data you can select 'No', then return to the experiment to add post processing steps at a later date when the data are being provided.

Please provide information about post-processing manipulations, i.e. artifact detection algorithms, segmentation used for post data collection, items denoted with an asterisk (*) are required.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Contributing researchers just getting started on their project will need to define this list by adding all of the items they are collecting under their grant and setting their schedule according to the NDA Data Sharing Regimen. If you fall into this category, you can begin by clicking "add new Data Expected" and selecting which data structures you will be using, saving the page after each change, or requesting new structures by adding and naming a new item, providing any materials NDA Data Dictionary Curators can use to help define your structure. For more information see the tutorial on creating Data Expected.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

  • Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
  • If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
  • Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

 

Frequently Asked Questions

  • An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.

  • The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

  • Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.

  • Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.

  • A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure

  • An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).

  • A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more. 

  • A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database.  Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.

  • Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.

  • Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.

  • Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.

  • An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.

  • The NDA has two Submission Cycles per year - January 15 and July 15.

  • An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.  

NDA Help Center

Collection - Permissions Tab

Collection Owners, Program Officers, and users with Administrator privileges may view this tab.

The available permission groups include:

  • Query: This read-only access is generally for NIH Program Officers
  • Submission: This will grant read access and allow the user to upload data and create experiment definitions. This is for the typical contributing personnel member.
  • Administrator: In addition to the access provided to Query and Submission users, Admins can also edit the Collection itself, create or edit the Data Expected list, and edit user permissions. This access is for the PI, data managers, and anyone they wish to delegate this to.

The PI has a special designation as the Collection Owner in addition to administrator access.

Frequently Asked Questions

  • Collection Owners and Admins may assign Collection Privileges to anyone.

  • Yes, you can assign various Privileges to other users with an NDA account.

  • If you are the Collection Owner or have Admin privileges, you can view and make changes to the list of individuals who have access to the Collection on the Collection's Permissions tab.  Information on users who have access to data Shared in your Collection because they were granted access to a Permission Group is not available.

  • Staff/collaborators who are working submitting data to the Collection, checking the quality of the data, and/or analyzing data should have access for the duration of the project until all data have been submitted, NDA Studies have been created for data used in publications, and/or a collaborative relationship with the user exists.  

  • The individual listed as an Investigator on the General tab of the NDA Collection will generally be able to provide a user access to the NDA Collection.  Additional users may also have this ability if granted Administrator access to an NDA Collection; however, these users are not viewable unless your account has access to the NDA Collection.  Given this, it is best to contact the Investigator to request access to the Collection.

  • Privileges that can be assigned to a user include:
    Submission allows a user to submit data to Collection
    Query allows the user to download data from Collection even when in a Private state
    Admin is both the Submission and Query Privilege + the ability to give privileges to other users.

  • You may have staff who are working on the submission of data or other activities associated with data sharing such as the definition of the Data Expected list or NDA Experiment creation.  Also, many projects have multiple performance sites and wish to share data among the site PIs.  Submitting to the NDA facilitates access by all investigators working on a project even before data have been shared with other users.  You can control who gets access to data while in a Private state.

Glossary

  • A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users. 

  • Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.

NDA Help Center

Eye Tracking

EyeTracking tests follow the movement of the eye. The visual trajectory or focus can help determine predictions and assist in diagnoses. 

Acquisition
The Acquisition parameters needed for an experiment include the following:

The name of the experiment is required. Please be concise and specific as possible.
Following experiment name, selection boxes are provided for the Equipment, Software, or other items specific to the experiment type. At least one selection is required for each. If NDAR does not have the appropriate listing, select Add New to add the information provided. Following the selection boxes, provide additional information may be required depending on the experiment type. Any required items are denoted by an asterisk (*).

Block/Event Design
At least one block/event is required. Note that any fields denoted with an asterisk (*) are required. All data must be devoid of personally identifiable data, including the contents of any files attached to the experiment.

Note: To simplify the definition of multiple events, we provide an Import from XML function. This function supports importing data from all three experiment sections (Acquisition, Block/Event Design, and Post Processing), at this time files cannot be uploaded from XML A test format is provided here and our XML Schema Definition (xsd) can be found here.

Post Processing
If you have completed any post-processing on your data, please choose 'Yes' for Has Postprocessing? If not, select 'No'. Depending on this selection the remaining post-processing fields will be enabled (some of which will be required). If you are initially providing data you can select 'No', then return to the experiment to add post-processing steps at a later date when the data are being provided.

Please provide information about post-processing manipulations, i.e. artifact detection algorithms, segmentation used for post data collection, items denoted with an asterisk (*) are required.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Collection - Experiments Tab

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

  • Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:

    1. Copy the experiment with intent for modifications.  
    2. Associate the experiment to the collection. No modifications can be made to the experiment.

     

Glossary

  • An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.

  • The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.

NDA Help Center

Omics

Omics is a collective group of technologies, related to a field of study in Biology such as Genomics or proteomics. 

Experiment Parameters

To define an Omics experiment, provide a meaningful name and select a single molecule. The standard molecules are listed. However, if you are doing proteomic or environmental experiments, simply “Add New” and the new selection will be created. Only one value for molecule is permitted.

Next the technology (box 2) associated with the molecule will be presented along with its application. Again, only one selection is possible. If you wish to see all of NDAR’s options for any one box, Select “Show All”.

Platform

Continue to select the Platform (box 3).

Extraction

Next, the Extraction Protocol (box 4) and Kits (box 5) are presented based upon the Molecule selected and the Processing Protocol (box 6) and Kits (box 7) are presented based upon the Molecule and Technology Application (Box 1 and 2)

Processing

Note that for each of these (boxes 4, 5, 6, and 7) multiple selections are possible.

Additional Information

Lastly, the Software (box 8) and Equipment (box 9) is expected.

 

Once saved, the experiment will be associated with the Collection and by using the returned Experiment_ID, the NDA makes it possible to associate the experiment meta data directly with the data from the experiment.

Frequently Asked Questions

Glossary

  • This button will add all selections to the Filter Cart. 

  • This button will allow you to copy all of the Experiment details as a template for a new experiment. 

  • Adds all data from the current selections in a Collection or NDA Study to the Filter Cart.

  • This button will allow you to return to the Experiments tab. 

NDA Help Center

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner. 

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data. 

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public. 

Frequently Asked Questions

  • Studies are associated to the Collection automatically when the data is defined in the Study. 

Glossary

  • A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

SelectExperiment IdExperiment NameExperiment Type
Created On
24HI-NGS_R1Omics02/16/2011
475MB1-10 (CHOP)Omics06/07/2016
490Illumina Infinium PsychArray BeadChip AssayOmics07/07/2016
501PharmacoBOLD Resting StatefMRI07/27/2016
506PVPREFOmics08/05/2016
509ABC-CT Resting v2EEG08/18/2016
13Comparison of FI expression in Autistic and Neurotypical Homo SapiensOmics12/28/2010
18AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics01/06/2011
22Stitching PCR SequencingOmics02/14/2011
26ASD_MethylationOmics03/01/2011
29Microarray family 03 (father, mother, sibling)Omics03/24/2011
37Standard paired-end sequencing of BCRsOmics04/19/2011
38Illumina Mate-Pair BCR sequencingOmics04/19/2011
39Custom Jumping LibrariesOmics04/19/2011
40Custom CapBPOmics04/19/2011
41ImmunofluorescenceOmics05/11/2011
43Autism brain sample genotyping, IlluminaOmics05/16/2011
47ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 SystemOmics08/01/2011
53AGRE Omni1-quadOmics10/11/2011
59AGP genotypingOmics04/03/2012
60Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controlsOmics06/23/2012
63Microemulsion PCR and Targeted Resequencing for Variant Detection in ASDOmics07/20/2012
76Whole Genome Sequencing in Autism FamiliesOmics01/03/2013
519RestingfMRI11/08/2016
90Genotyped IAN SamplesOmics07/09/2013
91NJLAGS Axiom Genotyping ArrayOmics07/16/2013
93AGP genotyping (CNV)Omics09/06/2013
106Longitudinal Sleep Study. H20 200. Channel set 2EEG11/07/2013
107Longitudinal Sleep Study. H20 200. Channel set 3EEG11/07/2013
108Longitudinal Sleep Study. AURA 200EEG11/07/2013
105Longitudinal Sleep Study. H20 200. Channel set 1EEG11/07/2013
109Longitudinal Sleep Study. AURA 400EEG11/07/2013
116Gene Expression Analysis WG-6Omics01/07/2014
131Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1Eye Tracking02/27/2014
132Jeste Lab UCLA ACEii: Animacy - Project 1Eye Tracking02/27/2014
133Jeste Lab UCLA ACEii: Mom Stranger - Project 2Eye Tracking02/27/2014
134Jeste Lab UCLA ACEii: Face Emotion - Project 3Eye Tracking02/27/2014
145AGRE/FMR1_Illumina.JHUOmics04/14/2014
146AGRE/MECP2_Sanger.JHUOmics04/14/2014
147AGRE/MECP2_Junior.JHUOmics04/14/2014
151Candidate Gene Identification in familial AutismOmics06/09/2014
152NJLAGS Whole Genome SequencingOmics07/01/2014
154Math Autism Study - Vinod MenonfMRI07/15/2014
155RestingfMRI07/25/2014
156SpeechfMRI07/25/2014
159EmotionfMRI07/25/2014
160syllable contrastEEG07/29/2014
167School-age naturalistic stimuliEye Tracking09/19/2014
44AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics06/27/2011
45Exome Sequencing of 20 Sporadic Cases of Autism Spectrum DisorderOmics07/15/2011
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Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Consortium for Neuropsychiatric Phenomics
Robert M Bilder 
The Consortium for Neuropsychiatric Phenomics advances the NIH Roadmap Initiative by assembling a transdisciplinary research team of the future to address major unsolved challenges in research on neuropsychiatric disorders. The CNP leverages the new discipline of phenomics the systematic study of phenotypes on a genome-wide scale by integrating basic, clinical and information sciences. Neuropsychiatric disorders have enormous public health significance, and there is currently a broad chasm between the basic and clinical research strategies used to study these disorders. The CNP breaks down artificial boundaries between psychiatric syndromes by studying important neuropsychological phenotypes that cut across diagnostic groups, and bridges basic and clinical sciences by studying these phenotypes across different species. The ultimate goals of the CNP are to facilitate discovery of the genetic and environmental bases of variation in psychological and neural system phenotypes, to elucidate the mechanisms that link the human genome to complex psychological syndromes, and to foster breakthroughs in the development of novel treatments for neuropsychiatric disorders.
NIMH Data Archive
09/19/2016
Funding Completed
Close Out
Shared
No
$5,804,557.00
1,662
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NIH - Extramural None


PL1MH083271-01 Human Translational Applications Core 09/29/2007 06/30/2013 4600 1417 UNIVERSITY OF CALIFORNIA LOS ANGELES $5,804,557.00

helpcenter.collection.general-tab

NDA Help Center

Collection - General Tab

Fields available for edit on the top portion of the page include:

  • Collection Title
  • Investigators
  • Collection Description
  • Collection Phase
  • Funding Source
  • Clinical Trials

Collection Status: The visibility status of an NDA Collection. Collection Status can be Shared or Private. Collections in Shared status are visible to all users and can be searched in the NDA Query Tool. Private Collections are not visible to NDA users. The Status of an NDA Collection only affects the visibility of information about the Collection (metadata) and does not relate to the status of the record-level research data in the NDA Collection.

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

  • Pre-Enrollment: The default entry made when the NDA Collection is created.
  • Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
  • Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
  • Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
    • The Data Expected Subphase indicates that NDA expects more data will be submitted
    • The Closeout Subphase indicates the data submission is complete.
    • The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

  • This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
  • Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
  • When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/about/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those withAdministrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the optionis also available tolimit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project capturedby the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

  • How do I know when a NDA Collection has been created???
    When a Collection is created by NDA staff and marked as Shared, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
  • How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?
    During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
  • Is a single grant number ever associated with more than one Collection?
    The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.

Glossary

  • Actual Enrollment
    Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
IDNameCreated DateStatusType
1602CNPGeneticData09/14/2020ApprovedOmics

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

ADHD Symptom Checklist Clinical Assessments 200
Adult ADHD Self-Report Scale Screener Clinical Assessments 1555
Balloon Analogue Risk Task Clinical Assessments 1195
Barratt Impulsivity Scale Clinical Assessments 1223
Brief Psychiatric Rating Scale Clinical Assessments 190
California Verbal Learning Test Part 1 Clinical Assessments 1220
Chapman Scales of Psychosis Proneness Clinical Assessments 1223
Color Reading Interference (Stroop) Clinical Assessments 1205
Color Shape Cued Task Switching Clinical Assessments 1205
Color Trail Making Test Clinical Assessments 1220
Continuous Performance Test Clinical Assessments 1207
Delay Discounting Task Clinical Assessments 1206
Delis-Kaplan Executive Function System Clinical Assessments 1569
Demographics Clinical Assessments 1662
Deterministic Reversal Learning Pilot Clinical Assessments 548
Dickman Impulsivity Inventory Clinical Assessments 1223
Drug Screen Clinical Assessments 1451
Eckblad and Chapman's Hypomanic Personality Scale Clinical Assessments 1223
Edinburgh Handedness Inventory Clinical Assessments 1554
Eysenck Scale for Impulsiveness, Venturesomeness and Empathy Clinical Assessments 1223
Genomics Sample Genomics 1079
Genomics Subject Genomics 1079
Golden and Meehl's Seven MMPI Items Selected by Taxonomic Method Clinical Assessments 1223
Hamilton Rating Scale for Depression Clinical Assessments 192
Health Questionnaire Clinical Assessments 1554
Height and Weight Clinical Assessments 1343
LA2K Color Deficiency Test Clinical Assessments 1344
Longitudinal Interval Evaluation Clinical Assessments 241
Maintenance and Manipulation Task Clinical Assessments 1190
Medications Clinical Assessments 241
Modified ADHD Screener Clinical Assessments 856
Multidimensional Personality Questionnaire Clinical Assessments 1223
Multimodal Attention Task Imaging 1206
Munich ChronoType Questionnaire Clinical Assessments 1223
Probabilistic Selection and Reversal Learning Task Clinical Assessments 1203
Remember-Know Task Clinical Assessments 1180
Research Subject Clinical Assessments 1662
Scale for Traits that Increase Risk for Bipolar II Disorder Clinical Assessments 1223
Scales for the Assessment of Positive/Negative Symptoms Clinical Assessments 134
Scene Recognition Clinical Assessments 1206
Stop Signal Reaction Time Clinical Assessments 1206
Structured Clinical Interview for DSM-IV Clinical Assessments 1445
Symptom Checklist-90-Revised Clinical Assessments 1554
Temperament and Character Inventory Clinical Assessments 1223
Traumatic Brain Injury Clinical Assessments 965
Verbal Capacity Clinical Assessments 1212
Vital Signs Clinical Assessments 1355
Wechsler Adult Intelligence Scale Fourth Edition [part 1] Clinical Assessments 1220
Wechsler Memory Scale, Fourth Edition (WMS-IV) Clinical Assessments 1220
Young Mania Rating Scale Clinical Assessments 193

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
34184812Create StudyNonlinear manifold learning in functional magnetic resonance imaging uncovers a low-dimensional space of brain dynamics.Human brain mappingGao, Siyuan; Mishne, Gal; Scheinost, DustinOctober 1, 2021Not Determined
34035472Create StudyIdentifying nootropic drug targets via large-scale cognitive GWAS and transcriptomics.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyLam, Max; Chen, Chia-Yen; Ge, Tian; Xia, Yan; Hill, David W; Trampush, Joey W; Yu, Jin; Knowles, Emma; Davies, Gail; Stahl, Eli A; Huckins, Laura; Liewald, David C; Djurovic, Srdjan; Melle, Ingrid; Christoforou, Andrea; Reinvang, Ivar; DeRosse, Pamela; Lundervold, Astri J; Steen, Vidar M; Espeseth, Thomas; Räikkönen, Katri; Widen, Elisabeth; Palotie, Aarno; Eriksson, Johan G; Giegling, Ina; Konte, Bettina; Hartmann, Annette M; Roussos, Panos; Giakoumaki, Stella; Burdick, Katherine E; Payton, Antony; Ollier, William; Chiba-Falek, Ornit; Koltai, Deborah C; Need, Anna C; Cirulli, Elizabeth T; Voineskos, Aristotle N; Stefanis, Nikos C; Avramopoulos, Dimitrios; Hatzimanolis, Alex; Smyrnis, Nikolaos; Bilder, Robert M; Freimer, Nelson B; Cannon, Tyrone D; London, Edythe; Poldrack, Russell A; Sabb, Fred W; Congdon, Eliza; Conley, Emily Drabant; Scult, Matthew A; Dickinson, Dwight; Straub, Richard E; Donohoe, Gary; Morris, Derek; Corvin, Aiden; Gill, Michael; Hariri, Ahmad R; Weinberger, Daniel R; Pendleton, Neil; Bitsios, Panos; Rujescu, Dan; Lahti, Jari; Le Hellard, Stephanie; Keller, Matthew C; Andreassen, Ole A; Deary, Ian J; Glahn, David C; Huang, Hailiang; Liu, Chunyu; Malhotra, Anil K; Lencz, ToddSeptember 1, 2021Not Determined
33188830Create StudyShared and distinct white matter abnormalities in schizophrenia and bipolar disorder.Progress in neuro-psychopharmacology & biological psychiatryJoo, Sung Woo; Kim, Harin; Jo, Young Tak; Yoon, Woon; Kim, Yangsik; Lee, JungsunJune 8, 2021Not Determined
33107431Create StudyDistinct hierarchical alterations of intrinsic neural timescales account for different manifestations of psychosis.eLifeWengler, Kenneth; Goldberg, Andrew T; Chahine, George; Horga, GuillermoOctober 27, 2020Not Determined
33077750Create StudyMutations associated with neuropsychiatric conditions delineate functional brain connectivity dimensions contributing to autism and schizophrenia.Nature communicationsMoreau, Clara A; Urchs, Sebastian G W; Kuldeep, Kumar; Orban, Pierre; Schramm, Catherine; Dumas, Guillaume; Labbe, Aurélie; Huguet, Guillaume; Douard, Elise; Quirion, Pierre-Olivier; Lin, Amy; Kushan, Leila; Grot, Stephanie; Luck, David; Mendrek, Adrianna; Potvin, Stephane; Stip, Emmanuel; Bourgeron, Thomas; Evans, Alan C; Bearden, Carrie E; Bellec, Pierre; Jacquemont, SebastienOctober 19, 2020Not Determined
32859549Create StudyBrain Age Prediction Reveals Aberrant Brain White Matter in Schizophrenia and Bipolar Disorder: A Multisample Diffusion Tensor Imaging Study.Biological psychiatry. Cognitive neuroscience and neuroimagingTønnesen, Siren; Kaufmann, Tobias; de Lange, Ann-Marie G; Richard, Geneviève; Doan, Nhat Trung; Alnæs, Dag; van der Meer, Dennis; Rokicki, Jaroslav; Moberget, Torgeir; Maximov, Ivan I; Agartz, Ingrid; Aminoff, Sofie R; Beck, Dani; Barch, Deanna M; Beresniewicz, Justyna; Cervenka, Simon; Fatouros-Bergman, Helena; Craven, Alexander R; Flyckt, Lena; Gurholt, Tiril P; Haukvik, Unn K; Hugdahl, Kenneth; Johnsen, Erik; Jönsson, Erik G; Karolinska Schizophrenia Project; Kolskår, Knut K; Kroken, Rune Andreas; Lagerberg, Trine V; Løberg, Else-Marie; Nordvik, Jan Egil; Sanders, Anne-Marthe; Ulrichsen, Kristine; Andreassen, Ole A; Westlye, Lars TDecember 1, 2020Not Determined
32474754Create StudyHemodynamic latency is associated with reduced intelligence across the lifespan: an fMRI DCM study of aging, cerebrovascular integrity, and cognitive ability.Brain structure & functionAnderson, Ariana E; Diaz-Santos, Mirella; Frei, Spencer; Dang, Bianca H; Kaur, Pashmeen; Lyden, Patrick; Buxton, Richard; Douglas, Pamela K; Bilder, Robert M; Esfandiari, Mahtash; Friston, Karl J; Nookala, Usha; Bookheimer, Susan YJuly 2020Not Determined
32320123Create StudyFrom a deep learning model back to the brain-Identifying regional predictors and their relation to aging.Human brain mappingLevakov, Gidon; Rosenthal, Gideon; Shelef, Ilan; Raviv, Tammy Riklin; Avidan, GaliaAugust 2020Not Determined
30710873Create StudyReduced higher dimensional temporal dynamism in neurofibromatosis type 1.NeuroImage. ClinicalMennigen E, Schuette P, Vajdi A, Pacheco L, Rosser T, Bearden CEJanuary 2019Not Determined
29942086Create StudyGenome-wide association meta-analysis in 269,867 individuals identifies new genetic and functional links to intelligence.Nature geneticsSavage, Jeanne E; Jansen, Philip R; Stringer, Sven; Watanabe, Kyoko; Bryois, Julien; de Leeuw, Christiaan A; Nagel, Mats; Awasthi, Swapnil; Barr, Peter B; Coleman, Jonathan R I; Grasby, Katrina L; Hammerschlag, Anke R; Kaminski, Jakob A; Karlsson, Robert; Krapohl, Eva; Lam, Max; Nygaard, Marianne; Reynolds, Chandra A; Trampush, Joey W; Young, Hannah; Zabaneh, Delilah; Hägg, Sara; Hansell, Narelle K; Karlsson, Ida K; Linnarsson, Sten; Montgomery, Grant W; Muñoz-Manchado, Ana B; Quinlan, Erin B; Schumann, Gunter; Skene, Nathan G; Webb, Bradley T; White, Tonya; Arking, Dan E; Avramopoulos, Dimitrios; Bilder, Robert M; Bitsios, Panos; Burdick, Katherine E; Cannon, Tyrone D; Chiba-Falek, Ornit; Christoforou, Andrea; Cirulli, Elizabeth T; Congdon, Eliza; Corvin, Aiden; Davies, Gail; Deary, Ian J; DeRosse, Pamela; Dickinson, Dwight; Djurovic, Srdjan; Donohoe, Gary; Conley, Emily Drabant; Eriksson, Johan G; Espeseth, Thomas; Freimer, Nelson A; Giakoumaki, Stella; Giegling, Ina; Gill, Michael; Glahn, David C; Hariri, Ahmad R; Hatzimanolis, Alex; Keller, Matthew C; Knowles, Emma; Koltai, Deborah; Konte, Bettina; Lahti, Jari; Le Hellard, Stephanie; Lencz, Todd; Liewald, David C; London, Edythe; Lundervold, Astri J; Malhotra, Anil K; Melle, Ingrid; Morris, Derek; Need, Anna C; Ollier, William; Palotie, Aarno; Payton, Antony; Pendleton, Neil; Poldrack, Russell A; Räikkönen, Katri; Reinvang, Ivar; Roussos, Panos; Rujescu, Dan; Sabb, Fred W; Scult, Matthew A; Smeland, Olav B; Smyrnis, Nikolaos; Starr, John M; Steen, Vidar M; Stefanis, Nikos C; Straub, Richard E; Sundet, Kjetil; Tiemeier, Henning; Voineskos, Aristotle N; Weinberger, Daniel R; Widen, Elisabeth; Yu, Jin; Abecasis, Goncalo; Andreassen, Ole A; Breen, Gerome; Christiansen, Lene; Debrabant, Birgit; Dick, Danielle M; Heinz, Andreas; Hjerling-Leffler, Jens; Ikram, M Arfan; Kendler, Kenneth S; Martin, Nicholas G; Medland, Sarah E; Pedersen, Nancy L; Plomin, Robert; Polderman, Tinca J C; Ripke, Stephan; van der Sluis, Sophie; Sullivan, Patrick F; Vrieze, Scott I; Wright, Margaret J; Posthuma, DanielleJuly 2018Not Determined
29534239Create StudyMultivariate Pattern Analysis of Genotype-Phenotype Relationships in Schizophrenia.Schizophrenia bulletinZheutlin AB, Chekroud AM, Polimanti R, Gelernter J, Sabb FW, Bilder RM, Freimer N, London ED, Hultman CM, Cannon TDAugust 2018Not Determined
29420822Create StudyBifactor Modeling of the Positive and Negative Syndrome Scale: Generalized Psychosis Spans Schizoaffective, Bipolar, and Schizophrenia Diagnoses.Schizophrenia bulletinAnderson AE, Marder S, Reise SP, Savitz A, Salvadore G, Fu DJ, Li Q, Turkoz I, Han C, Bilder RMOctober 2018Not Determined
29186694Create StudyLarge-Scale Cognitive GWAS Meta-Analysis Reveals Tissue-Specific Neural Expression and Potential Nootropic Drug Targets.Cell reportsLam, Max; Trampush, Joey W; Yu, Jin; Knowles, Emma; Davies, Gail; Liewald, David C; Starr, John M; Djurovic, Srdjan; Melle, Ingrid; Sundet, Kjetil; Christoforou, Andrea; Reinvang, Ivar; DeRosse, Pamela; Lundervold, Astri J; Steen, Vidar M; Espeseth, Thomas; Räikkönen, Katri; Widen, Elisabeth; Palotie, Aarno; Eriksson, Johan G; Giegling, Ina; Konte, Bettina; Roussos, Panos; Giakoumaki, Stella; Burdick, Katherine E; Payton, Antony; Ollier, William; Chiba-Falek, Ornit; Attix, Deborah K; Need, Anna C; Cirulli, Elizabeth T; Voineskos, Aristotle N; Stefanis, Nikos C; Avramopoulos, Dimitrios; Hatzimanolis, Alex; Arking, Dan E; Smyrnis, Nikolaos; Bilder, Robert M; Freimer, Nelson A; Cannon, Tyrone D; London, Edythe; Poldrack, Russell A; Sabb, Fred W; Congdon, Eliza; Conley, Emily Drabant; Scult, Matthew A; Dickinson, Dwight; Straub, Richard E; Donohoe, Gary; Morris, Derek; Corvin, Aiden; Gill, Michael; Hariri, Ahmad R; Weinberger, Daniel R; Pendleton, Neil; Bitsios, Panos; Rujescu, Dan; Lahti, Jari; Le Hellard, Stephanie; Keller, Matthew C; Andreassen, Ole A; Deary, Ian J; Glahn, David C; Malhotra, Anil K; Lencz, ToddNovember 2017Not Determined
29152222Create StudyPreprocessed Consortium for Neuropsychiatric Phenomics dataset.F1000ResearchGorgolewski, Krzysztof J; Durnez, Joke; Poldrack, Russell AJanuary 1, 2017Not Determined
28899614Create StudyMeasuring pathology using the PANSS across diagnoses: Inconsistency of the positive symptom domain across schizophrenia, schizoaffective, and bipolar disorder.Psychiatry researchAnderson AE, Mansolf M, Reise SP, Savitz A, Salvadore G, Li Q, Bilder RMDecember 2017Not Relevant
28725547Create StudySpatial working memory in neurofibromatosis 1: Altered neural activity and functional connectivity.NeuroImage. ClinicalIbrahim AFA, Montojo CA, Haut KM, Karlsgodt KH, Hansen L, Congdon E, Rosser T, Bilder RM, Silva AJ, Bearden CEJanuary 2017Relevant
28601499Create StudyMultisite generalizability of schizophrenia diagnosis classification based on functional brain connectivity.Schizophrenia researchOrban, Pierre; Dansereau, Christian; Desbois, Laurence; Mongeau-Pérusse, Violaine; Giguère, Charles-Édouard; Nguyen, Hien; Mendrek, Adrianna; Stip, Emmanuel; Bellec, PierreFebruary 2018Not Determined
28507318Create StudyCerebellar volume and cerebellocerebral structural covariance in schizophrenia: a multisite mega-analysis of 983 patients and 1349 healthy controls.Molecular psychiatryMoberget, T; Doan, N T; Alnæs, D; Kaufmann, T; Córdova-Palomera, A; Lagerberg, T V; Diedrichsen, J; Schwarz, E; Zink, M; Eisenacher, S; Kirsch, P; Jönsson, E G; Fatouros-Bergman, H; Flyckt, L; KaSP; Pergola, G; Quarto, T; Bertolino, A; Barch, D; Meyer-Lindenberg, A; Agartz, I; Andreassen, O A; Westlye, L TJune 2018Not Determined
28093568Create StudyGWAS meta-analysis reveals novel loci and genetic correlates for general cognitive function: a report from the COGENT consortium.Molecular psychiatryTrampush, J W; Yang, M L Z; Yu, J; Knowles, E; Davies, G; Liewald, D C; Starr, J M; Djurovic, S; Melle, I; Sundet, K; Christoforou, A; Reinvang, I; DeRosse, P; Lundervold, A J; Steen, V M; Espeseth, T; Räikkönen, K; Widen, E; Palotie, A; Eriksson, J G; Giegling, I; Konte, B; Roussos, P; Giakoumaki, S; Burdick, K E; Payton, A; Ollier, W; Horan, M; Chiba-Falek, O; Attix, D K; Need, A C; Cirulli, E T; Voineskos, A N; Stefanis, N C; Avramopoulos, D; Hatzimanolis, A; Arking, D E; Smyrnis, N; Bilder, R M; Freimer, N A; Cannon, T D; London, E; Poldrack, R A; Sabb, F W; Congdon, E; Conley, E D; Scult, M A; Dickinson, D; Straub, R E; Donohoe, G; Morris, D; Corvin, A; Gill, M; Hariri, A R; Weinberger, D R; Pendleton, N; Bitsios, P; Rujescu, D; Lahti, J; Le Hellard, S; Keller, M C; Andreassen, O A; Deary, I J; Glahn, D C; Malhotra, A K; Lencz, TMarch 2017Not Relevant
27922632Create StudyA phenome-wide examination of neural and cognitive function.Scientific dataPoldrack RA, Congdon E, Triplett W, Gorgolewski KJ, Karlsgodt KH, Mumford JA, Sabb FW, Freimer NB, London ED, Cannon TD, Bilder RMDecember 2016Not Determined
27919751Create StudyLess head motion during MRI under task than resting-state conditions.NeuroImageHuijbers, Willem; Van Dijk, Koene R A; Boenniger, Meta M; Stirnberg, Rüdiger; Breteler, Monique M BFebruary 15, 2017Not Determined
26609875Create StudyIteration of Partially Specified Target Matrices: Applications in Exploratory and Bayesian Confirmatory Factor Analysis.Multivariate behavioral researchMoore TM, Reise SP, Depaoli S, Haviland MGJanuary 2015Not Relevant
26509118Create StudyNeural mechanisms of response inhibition and impulsivity in 22q11.2 deletion carriers and idiopathic attention deficit hyperactivity disorder.NeuroImage. ClinicalMontojo, C A; Congdon, E; Hwang, L; Jalbrzikowski, M; Kushan, L; Vesagas, T K; Jonas, R K; Ventura, J; Bilder, R M; Bearden, C EJanuary 1, 2015Not Determined
26299707Create StudyMemory systems in schizophrenia: Modularity is preserved but deficits are generalized.Schizophrenia researchHaut KM, Karlsgodt KH, Bilder RM, Congdon E, Freimer NB, London ED, Sabb FW, Ventura J, Cannon TDOctober 2015Not Determined
25878272Create StudyStriatal D1- and D2-type dopamine receptors are linked to motor response inhibition in human subjects.The Journal of neuroscience : the official journal of the Society for NeuroscienceRobertson CL, Ishibashi K, Mandelkern MA, Brown AK, Ghahremani DG, Sabb F, Bilder R, Cannon T, Borg J, London EDApril 2015Not Determined
25613662Create StudySparse factors for the positive and negative syndrome scale: which symptoms and stage of illness?Psychiatry researchAnderson A, Wilcox M, Savitz A, Chung H, Li Q, Salvadore G, Wang D, Nuamah I, Riese SP, Bilder RMFebruary 2015Not Determined
25076977Create StudyMapping Mental Function to Brain Structure: How Can Cognitive Neuroimaging Succeed?Perspectives on psychological science : a journal of the Association for Psychological SciencePoldrack RANovember 2010Not Relevant
24754812Create StudyWomen are more sensitive than men to prior trial events on the Stop-signal task.British journal of psychology (London, England : 1953)Thakkar KN, Congdon E, Poldrack RA, Sabb FW, London ED, Cannon TD, Bilder RMMay 2014Not Determined
24650325Create StudyPhenX RISING: real world implementation and sharing of PhenX measures.BMC medical genomicsMccarty CA, Huggins W, Aiello AE, Bilder RM, Hariri A, Jernigan TL, Newman E, Sanghera DK, Strauman TJ, Zeng Y, Ramos EM, Junkins HA, January 2014Not Relevant
24581734Create StudyNeural activation during response inhibition in adult attention-deficit/hyperactivity disorder: preliminary findings on the effects of medication and symptom severity.Psychiatry researchCongdon E, Altshuler LL, Mumford JA, Karlsgodt KH, Sabb FW, Ventura J, Mcgough JJ, London ED, Cannon TD, Bilder RM, Poldrack RAApril 2014Not Determined
24567911Create StudyDisrupted working memory circuitry and psychotic symptoms in 22q11.2 deletion syndrome.NeuroImage. ClinicalMontojo CA, Ibrahim A, Karlsgodt KH, Chow C, Hilton AE, Jonas RK, Vesagas TK, Bearden CEJanuary 1, 2014Not Determined
24550270Create StudyPredicting risky choices from brain activity patterns.Proceedings of the National Academy of Sciences of the United States of AmericaHelfinstein SM, Schonberg T, Congdon E, Karlsgodt KH, Mumford JA, Sabb FW, Cannon TD, London ED, Bilder RM, Poldrack RAFebruary 2014Not Determined
24405185Create StudyDecomposing decision components in the stop-signal task: a model-based approach to individual differences in inhibitory control.Journal of cognitive neuroscienceWhite CN, Congdon E, Mumford JA, Karlsgodt KH, Sabb FW, Freimer NB, London ED, Cannon TD, Bilder RM, Poldrack RAAugust 2014Not Determined
24177988Create StudyNeural substrates of inhibitory control deficits in 22q11.2 deletion syndrome.Cerebral cortex (New York, N.Y. : 1991)Montojo CA, Jalbrzikowski M, Congdon E, Domicoli S, Chow C, Dawson C, Karlsgodt KH, Bilder RM, Bearden CEApril 2015Not Determined
24137106Create StudyDifferences in neural activation as a function of risk-taking task parameters.Frontiers in neuroscienceCongdon, Eliza; Bato, Angelica A; Schonberg, Tom; Mumford, Jeanette A; Karlsgodt, Katherine H; Sabb, Fred W; London, Edythe D; Cannon, Tyrone D; Bilder, Robert M; Poldrack, Russell AJanuary 1, 2013Not Determined
23912681Create StudyDefault mode network connectivity and reciprocal social behavior in 22q11.2 deletion syndrome.Social cognitive and affective neuroscienceSchreiner MJ, Karlsgodt KH, Uddin LQ, Chow C, Congdon E, Jalbrzikowski M, Bearden CESeptember 2014Not Determined
23647123Create StudyMultilevel models from biology to psychology: mission impossible?Journal of abnormal psychologyBilder RM, Howe AG, Howe AS, Sabb FWAugust 2013Not Relevant
23544402Create StudyThe Barratt Impulsiveness Scale-11: reassessment of its structure in a community sample.Psychological assessmentReise SP, Moore TM, Sabb FW, Brown AK, London EDJune 2013Not Determined
22608616Create StudyResearch methods: cognitive neuropsychological methods.Handbook of clinical neurologyClark L, Boxer O, Sahakian BJ, Bilder RMJanuary 2012Not Relevant
22363308Create StudyMeasurement and reliability of response inhibition.Frontiers in psychologyCongdon, Eliza; Mumford, Jeanette A; Cohen, Jessica R; Galvan, Adriana; Canli, Turhan; Poldrack, Russell AJanuary 1, 2012Not Determined
22051208Create StudyAcute modafinil effects on attention and inhibitory control in methamphetamine-dependent humans.Journal of studies on alcohol and drugsDean AC, Sevak RJ, Monterosso JR, Hellemann G, Sugar CA, London EDNovember 2011Not Determined
21922006Create StudyThe cognitive atlas: toward a knowledge foundation for cognitive neuroscience.Frontiers in neuroinformaticsPoldrack, Russell A; Kittur, Aniket; Kalar, Donald; Miller, Eric; Seppa, Christian; Gil, Yolanda; Parker, D Stott; Sabb, Fred W; Bilder, Robert MJanuary 2011Not Relevant
21816658Create StudyThe genetics of cognitive impairment in schizophrenia: a phenomic perspective.Trends in cognitive sciencesBilder RM, Howe A, Novak N, Sabb FW, Parker DSSeptember 2011Not Relevant
21289606Create StudyEffect of modafinil on learning and task-related brain activity in methamphetamine-dependent and healthy individuals.Neuropsychopharmacology : official publication of the American College of NeuropsychopharmacologyGhahremani DG, Tabibnia G, Monterosso J, Hellemann G, Poldrack RA, London EDApril 2011Not Determined
21092355Create StudyNeuropsychology 3.0: evidence-based science and practice.Journal of the International Neuropsychological Society : JINSBilder RMJanuary 2011Not Relevant
20955930Create StudyNeurocognitive phenotypes and genetic dissection of disorders of brain and behavior.NeuronCongdon E, Poldrack RA, Freimer NBOctober 2010Not Relevant
20600962Create StudyEngagement of large-scale networks is related to individual differences in inhibitory control.NeuroImageCongdon, Eliza; Mumford, Jeanette A; Cohen, Jessica R; Galvan, Adriana; Aron, Adam R; Xue, Gui; Miller, Eric; Poldrack, Russell ANovember 2010Not Determined
20553896Create StudyDetecting network modules in fMRI time series: a weighted network analysis approach.NeuroImageMumford JA, Horvath S, Oldham MC, Langfelder P, Geschwind DH, Poldrack RAOctober 2010Not Determined
19915091Create StudyNeural components underlying behavioral flexibility in human reversal learning.Cerebral cortex (New York, N.Y. : 1991)Ghahremani DG, Monterosso J, Jentsch JD, Bilder RM, Poldrack RAAugust 2010Not Determined
19883493Create StudyDecoding the large-scale structure of brain function by classifying mental States across individuals.Psychological sciencePoldrack RA, Halchenko YO, Hanson SJNovember 2009Not Relevant
19680816Create StudyThe neuropsychology of schizophrenia circa 2009.Neuropsychology reviewBilder RMSeptember 2009Not Relevant
19634038Create StudyCognitive ontologies for neuropsychiatric phenomics research.Cognitive neuropsychiatryBilder RM, Sabb FW, Parker DS, Kalar D, Chu WW, Fox J, Freimer NB, Poldrack RAJanuary 2009Not Relevant
19463958Create StudySimple group fMRI modeling and inference.NeuroImageMumford, Jeanette A; Nichols, ThomasOctober 2009Not Relevant
19344640Create StudyPhenomics: the systematic study of phenotypes on a genome-wide scale.NeuroscienceBilder RM, Sabb FW, Cannon TD, London ED, Jentsch JD, Parker DS, Poldrack RA, Evans C, Freimer NBNovember 2009Not Relevant
19041348Create StudyFunctional MRI at the crossroads.International journal of psychophysiology : official journal of the International Organization of PsychophysiologyVan Horn JD, Poldrack RAJuly 2009Not Relevant
18267152Create StudyPhenomics: building scaffolds for biological hypotheses in the post-genomic era.Biological psychiatryBilder RMMarch 2008Not Relevant

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
28725547Create StudySpatial working memory in neurofibromatosis 1: Altered neural activity and functional connectivity.NeuroImage. ClinicalIbrahim AFA, Montojo CA, Haut KM, Karlsgodt KH, Hansen L, Congdon E, Rosser T, Bilder RM, Silva AJ, Bearden CEJanuary 2017

You can use "Add New Data Expected" to add exsiting structures and create your project's list. However, this is also the method you can use to request new structures be created for your project. When adding the Data Expected item, if the structure already exists you can locate it and specify your dates and enrollment. To add a new structure and request it be defined in the Data Dictionary, select Upload Definition and attach the definition or material needed to create it, including manual, codebooks, forms, etc. If you have multiple files, please upload a zipped archive containing them all.

Expected dates should be selected based on the standard Data Sharing Regimen and are restricted to within date ranges based on the project start and end dates.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Genomics/omics info icon
2,00009/14/2020
1,079
Approved
Delis-Kaplan Executive Function System (D-KEFS) info icon
1,20001/15/2017
1,569
Approved
Mania Rating Scale info icon
10001/15/2017
193
Approved
Demographics info icon
1,20001/15/2017
1,662
Approved
Vital Signs Assessment info icon
1,20001/15/2017
1,355
Approved
Structured Clinical Interview for DSM (SCID) info icon
1,20001/15/2017
1,445
Approved
Scales for the Assessment of Positive/Negative Symptoms info icon
10001/15/2017
134
Approved
Wechsler Adult Intelligence Scale info icon
1,20001/15/2019
1,220
Approved
Medications info icon
10001/15/2017
241
Approved
Symptom Checklist-90-Revised info icon
1,20001/15/2017
1,554
Approved
Physical Exam info icon
1,20001/15/2017
1,557
Approved
Research Subject and Pedigree info icon
1,20001/15/2017
1,662
Approved
Brief Psychiatric Rating Scale info icon
10001/15/2017
190
Approved
Chapman Scales of Psychosis Proneness info icon
1,20001/15/2017
1,223
Approved
Auditory Verbal Learning Task info icon
1,20001/15/2019
1,220
Approved
Eysenck Scale for Impulsiveness, Venturesomeness and Empathy info icon
1,20001/15/2017
1,223
Approved
Balloon Analogue Risk Task info icon
1,19501/15/2017
1,195
Approved
Temperament and Character Inventory info icon
1,20001/15/2017
1,223
Approved
Wechsler Memory Scale, Fourth Edition (WMS-IV) info icon
1,20001/15/2019
1,220
Approved
Health Questionnaire info icon
1,55401/15/2017
1,554
Approved
ADHD Rating Scale info icon
40001/15/2017
200
Approved
Cognitive Data info icon
1,20601/15/2017
1,206
Approved
Golden Meehls Seven MMPI Items Selected by Taxonomic Method info icon
1,20001/15/2017
1,223
Approved
Hamilton Rating Scale for Depression info icon
10001/15/2017
192
Approved
Color Reading Interference (Stroop) info icon
1,20501/15/2017
1,205
Approved
Drug Screen info icon
1,20001/15/2017
1,451
Approved
Barratt Impulsivity Scale info icon
1,20001/15/2017
1,223
Approved
Stop Signal Reaction Time info icon
1,20601/15/2017
1,206
Approved
Delay Discounting Task info icon
1,20601/15/2017
1,206
Approved
Continuous Performance Test info icon
1,20701/15/2017
1,207
Approved
Color Deficiency Test info icon
10001/15/2017
1,344
Approved
Dickman Impulsivity Inventory info icon
1,20001/15/2017
1,223
Approved
Eckblad and Chapman's Hypomanic Personality Scale info icon
1,20001/15/2017
1,223
Approved
Modified ADHD Screener info icon
10001/15/2017
856
Approved
Munich ChronoType Questionnaire info icon
1,20001/15/2017
1,223
Approved
Adult ADHD Self-Report Scale info icon
1,20001/15/2017
1,555
Approved
Scale for Traits that Increase Risk for Bipolar II Disorder info icon
1,20001/15/2017
1,223
Approved
Traumatic Brain Injury info icon
10001/15/2017
965
Approved
Multidimensional Personality Questionnaire info icon
1,20001/15/2017
1,223
Approved
Color Trail Making Test info icon
1,22001/15/2017
1,220
Approved
Deterministic Reversal Learning Test info icon
10001/15/2017
548
Approved
Probabilistic Selection and Reversal Learning Task info icon
10001/15/2017
1,203
Approved
Scene Recognition info icon
10001/15/2017
1,206
Approved
Color Shape Cued Task Switching info icon
10001/15/2017
1,205
Approved
Maintenance and Manipulation Task info icon
10001/15/2017
1,190
Approved
Verbal Capacity info icon
10001/15/2017
1,212
Approved
Remember-Know Task info icon
1,18001/15/2017
1,180
Approved
Longitudinal Interval Evaluation info icon
24001/15/2019
241
Approved
Spanish Vocabulary info icon
24001/15/2019
0
Approved
Structure not yet defined
No Status history for this Data Expected has been recorded yet

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
No records found.
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