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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

Collection - Use Existing Experiment
To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.
SelectExperiment IdExperiment NameExperiment Type
Created On
24HI-NGS_R1Omics02/16/2011
475MB1-10 (CHOP)Omics06/07/2016
490Illumina Infinium PsychArray BeadChip AssayOmics07/07/2016
501PharmacoBOLD Resting StatefMRI07/27/2016
506PVPREFOmics08/05/2016
509ABC-CT Resting v2EEG08/18/2016
13Comparison of FI expression in Autistic and Neurotypical Homo SapiensOmics12/28/2010
18AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics01/06/2011
22Stitching PCR SequencingOmics02/14/2011
26ASD_MethylationOmics03/01/2011
29Microarray family 03 (father, mother, sibling)Omics03/24/2011
37Standard paired-end sequencing of BCRsOmics04/19/2011
38Illumina Mate-Pair BCR sequencingOmics04/19/2011
39Custom Jumping LibrariesOmics04/19/2011
40Custom CapBPOmics04/19/2011
41ImmunofluorescenceOmics05/11/2011
43Autism brain sample genotyping, IlluminaOmics05/16/2011
47ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 SystemOmics08/01/2011
53AGRE Omni1-quadOmics10/11/2011
59AGP genotypingOmics04/03/2012
60Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controlsOmics06/23/2012
63Microemulsion PCR and Targeted Resequencing for Variant Detection in ASDOmics07/20/2012
76Whole Genome Sequencing in Autism FamiliesOmics01/03/2013
519RestingfMRI11/08/2016
90Genotyped IAN SamplesOmics07/09/2013
91NJLAGS Axiom Genotyping ArrayOmics07/16/2013
93AGP genotyping (CNV)Omics09/06/2013
106Longitudinal Sleep Study. H20 200. Channel set 2EEG11/07/2013
107Longitudinal Sleep Study. H20 200. Channel set 3EEG11/07/2013
108Longitudinal Sleep Study. AURA 200EEG11/07/2013
105Longitudinal Sleep Study. H20 200. Channel set 1EEG11/07/2013
109Longitudinal Sleep Study. AURA 400EEG11/07/2013
116Gene Expression Analysis WG-6Omics01/07/2014
131Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1Eye Tracking02/27/2014
132Jeste Lab UCLA ACEii: Animacy - Project 1Eye Tracking02/27/2014
133Jeste Lab UCLA ACEii: Mom Stranger - Project 2Eye Tracking02/27/2014
134Jeste Lab UCLA ACEii: Face Emotion - Project 3Eye Tracking02/27/2014
145AGRE/FMR1_Illumina.JHUOmics04/14/2014
146AGRE/MECP2_Sanger.JHUOmics04/14/2014
147AGRE/MECP2_Junior.JHUOmics04/14/2014
151Candidate Gene Identification in familial AutismOmics06/09/2014
152NJLAGS Whole Genome SequencingOmics07/01/2014
154Math Autism Study - Vinod MenonfMRI07/15/2014
155RestingfMRI07/25/2014
156SpeechfMRI07/25/2014
159EmotionfMRI07/25/2014
160syllable contrastEEG07/29/2014
167School-age naturalistic stimuliEye Tracking09/19/2014
44AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics06/27/2011
45Exome Sequencing of 20 Sporadic Cases of Autism Spectrum DisorderOmics07/15/2011
Collection - Add Experiment
Add Supporting Documentation
Select File

To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

Request Submission Exemption
Characters Remaining:
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The Data Expected list for this Collection shows some raw data as missing. Contact the NDA Help Desk with any questions.

Please confirm that you will not be enrolling any more subjects and that all raw data has been collected and submitted.

Collection Updated

Your Collection is now in Data Analysis phase and exempt from biannual submissions. Analyzed data is still expected prior to publication or no later than the project end date.

[CMS] Attention
[CMS] Please confirm that you will not be enrolling any more subjects and that all raw data has been collected and submitted.
[CMS] Error

[CMS]

Unable to change collection phase where targeted enrollment is less than 90%

Delete Submission Exemption
Are you sure you want to delete this submission exemption?
You have requested to move the sharing dates for the following assessments:
Data Expected Item Original Sharing Date New Sharing Date

Please provide a reason for this change, which will be sent to the Program Officers listed within this collection:

Explanation must be between 20 and 200 characters in length.

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Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Collaborative Programs of Excellence in Autism (CPEA)
Dawson, Geraldine; Loveland, Katherine; McMahon, William; Minshew, Nancy; Rodier, Patricia; Rogers, Sally; Sigman,Marian; Tager-Flusberg, Helen; Volkmar, Fred  
The CPEAs link 129 scientists from 23 universities in the United States, Canada, Britain, and five other countries, and more than 2,000 families of people with autism. The clinical data associated with the CPEAs are contained here.
NIMH Data Archive
10/04/2010
NIMH Repository & Genomics Resource (NRGR)
Funding Completed
Close Out
No
$25,632,732.00
7,205
Loading Chart...
NIH - Extramural None

CPEA_STAART_data_release_10182010.pdf Methods Overview of the CPEA/STAART Data Organization Qualified Researchers
CPEA_STAART_DATA_DICTIONARY.xlsx Other Data Definition of CPEA STAART Data Warehouse Qualified Researchers
assessment_to_Version_variable_mapping.xlsx Other Assessment to Version Variable Mapping Qualified Researchers


U19HD035469-01 NEUROBIOLOGIC AND COGNITIVE MECHANISMS OF AUTISM 06/01/1997 05/31/2002 Not Reported Not Reported MELLON PITTS CORPORATION (MPC CORP) $3,242,165.00
U19HD035476-01 UTAH AUTISM PROGRAM 06/01/1997 05/31/2002 Not Reported Not Reported UNIVERSITY OF UTAH $2,896,607.00
U19HD035482-01 NEUROBIOLOGY AND GENETICS OF AUTISM/RELATED CONDITIONS 06/01/1997 05/31/2002 Not Reported Not Reported YALE UNIVERSITY $5,119,913.00
U19HD035465-01 NEUROBIOLOGY AND GENETICS OF AUTISM 06/01/1997 05/31/2002 Not Reported Not Reported UNIVERSITY OF WASHINGTON $952,658.00
U19HD035468-01 DEFINITION AND DEVELOPMENT OF THE PHENOTYPE IN AUTISM 06/01/1997 05/31/2002 Not Reported Not Reported UNIVERSITY OF COLORADO DENVER $1,189,198.00
U19HD035470-01 DETERMINANTS OF SOCIAL COMMUNICATION SKILLS IN AUTISM 06/01/1997 08/31/2002 Not Reported Not Reported UNIVERSITY OF CALIFORNIA LOS ANGELES $1,209,889.00
U19DC03610-01 Language in Autism: Clinical and Basic Studies 08/01/1997 07/31/2007 Not Reported Not Reported $9,305,210.00
U19HD035466-01 GENOTYPE AND PHENOTYPE OF BRAINSTEM INJURY IN AUTISM 08/01/1998 05/31/2003 Not Reported Not Reported UNIVERSITY OF ROCHESTER $1,717,092.00

helpcenter.collection.general-tab

NDA Help Center

Collection - General Tab

Fields available for edit on the top portion of the page include:

  • Collection Title
  • Investigators
  • Collection Description
  • Collection Phase
  • Funding Source
  • Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

  • Pre-Enrollment: The default entry made when the NDA Collection is created.
  • Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
  • Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
  • Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
    • The Data Expected Subphase indicates that NDA expects more data will be submitted
    • The Closeout Subphase indicates the data submission is complete.
    • The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

  • This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
  • Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
  • When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

  • How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?
    During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
  • How do I know when a NDA Collection has been created?
    When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
  • Is a single grant number ever associated with more than one Collection?
    The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
  • Why is there sometimes more than one grant included in a Collection?
    In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

  • Administrator Privilege
    A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
  • Collection Owner
    Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
  • Collection Phase
    The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
    • Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
    • Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
    • Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
    • Funding Completed: A grant/project has reached the project end date.
  • Collection Title
    An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
  • Grant
    Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
  • Supporting Documentation
    Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
  • NIH Research Initiative
    NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
  • Permission Group
    Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
  • Planned Enrollment
    Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
  • Actual Enrollment
    Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
  • NDA Collection
    A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
  • Data Use Limitations
    Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
  • Total Subjects Shared
    The total number of unique subjects for whom data have been shared and are available for users with permission to access data.
IDNameCreated DateStatusType
No records found.
helpcenter.collection.experiments-tab

NDA Help Center

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

  • Can an Experiment be associated with more than one Collection?

    Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:

    1. Copy the experiment with intent for modifications.
    2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

  • Experiment Status
    An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
  • Experiment ID
    The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.
CPEA STAART ADI 1988 Clinical Assessments 4
CPEA STAART ADI 1990 Clinical Assessments 25
CPEA STAART ADI 1991 Toddler Clinical Assessments 24
CPEA STAART ADI 2003 Clinical Assessments 295
CPEA STAART ADI-R 2001 Clinical Assessments 9
CPEA STAART ADI-R 1993 Short Clinical Assessments 62
CPEA STAART ADI-R 1995 Long Clinical Assessments 2
CPEA STAART ADI-R 1995 Short Clinical Assessments 4
CPEA STAART ADI-R 1996 Short Clinical Assessments 103
CPEA STAART ADI-R 1997 Long Clinical Assessments 122
CPEA STAART ADI-R 1997 Short Clinical Assessments 105
CPEA STAART ADI-R 1998 Long Clinical Assessments 1762
CPEA STAART ADI-R 1999 Short Clinical Assessments 647
CPEA STAART ADI-R 2000 Clinical Assessments 76
CPEA STAART ADI-R SHORT Clinical Assessments 8
CPEA STAART ADI_R 1998 Short Clinical Assessments 231
CPEA STAART ADOS G Module 1 Clinical Assessments 728
CPEA STAART ADOS G Module 2 Clinical Assessments 436
CPEA STAART ADOS G Module 3 Clinical Assessments 587
CPEA STAART ADOS G Module 4 Clinical Assessments 292
CPEA STAART ADOS WPS Module 1 Clinical Assessments 405
CPEA STAART ADOS WPS Module 2 Clinical Assessments 284
CPEA STAART ADOS WPS Module 3 Clinical Assessments 779
CPEA STAART ADOS WPS Module 4 Clinical Assessments 281
CPEA STAART ADOS_PRE_PUBLISHED Clinical Assessments 6
CPEA STAART ANNETT HANDEDNESS Clinical Assessments 361
CPEA STAART Bayley Scales for Infant Development Clinical Assessments 1
CPEA STAART CELF Clinical Assessments 77
CPEA STAART CTOPP Ages 7 to 24 Clinical Assessments 358
CPEA STAART DEAN LATERALITY HANDEDNESS Clinical Assessments 90
CPEA STAART Edinburg Handedness Clinical Assessments 166
CPEA STAART General Variables Clinical Assessments 7205
CPEA STAART Leiter Scales Clinical Assessments 165
CPEA STAART MacArthur-Bates Words and Gestures Clinical Assessments 90
CPEA STAART MacArthur-Bates Words and Sentences Clinical Assessments 62
CPEA STAART Merill Palmer Clinical Assessments 170
CPEA STAART Mullen Clinical Assessments 921
CPEA STAART P-DAS Clinical Assessments 462
CPEA STAART PATIENT HISTORY Clinical Assessments 97
CPEA STAART PLS 3 Clinical Assessments 73
CPEA STAART PPVT Version 3 Clinical Assessments 280
CPEA STAART Reynell Clinical Assessments 2
CPEA STAART S-DAS Clinical Assessments 535
CPEA STAART SCQ Clinical Assessments 87
CPEA STAART Stanford Binet 4th Edition Clinical Assessments 193
CPEA STAART TELD 3 Clinical Assessments 22
CPEA STAART TOAL 3 Clinical Assessments 47
CPEA STAART TOLD I:2 Clinical Assessments 1
CPEA STAART TOLD I:3 Clinical Assessments 50
CPEA STAART TOLD P:2 Clinical Assessments 3
CPEA STAART TOLD P:3 Clinical Assessments 53
CPEA STAART Toal 2 Clinical Assessments 2
CPEA STAART Vineland I Clinical Assessments 2175
CPEA STAART WAIS 3 Clinical Assessments 1164
CPEA STAART WASI Clinical Assessments 1043
CPEA STAART WISC 3 Clinical Assessments 959
CPEA STAART WISC 4 Clinical Assessments 146
CPEA STAART WPPSI 4y0m to 7y3m Clinical Assessments 154
helpcenter.collection.shared-data-tab

NDA Help Center

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

  • How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?
    To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
  • Can I get a supplement to share data from a completed research project?
    Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
  • Can I get a supplement to share data from a research project that is still ongoing?
    Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

  • Data Structure
    A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
  • Data Type
    A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
  • Shared
    The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
36254470Create StudyBidding on the go: Links between walking, social actions, and caregiver responses in infant siblings of children with autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchCalabretta, Bianca T; Schneider, Joshua L; Iverson, Jana MDecember 1, 2022Not Determined
36180977Create StudyInfant locomotion shapes proximity to adults during everyday play in the U.S.Infancy : the official journal of the International Society on Infant StudiesChen, Qi; Schneider, Joshua L; West, Kelsey L; Iverson, Jana MMarch 1, 2023Not Determined
35690016Create StudyDisrupted functional connectivity of the primary auditory cortex in autism.Psychiatry research. NeuroimagingWilson, Katherine Conway; Kornisch, Myriam; Ikuta, ToshikazuAugust 1, 2022Not Determined
34873110Create StudyDisrupted functional connectivity between the nucleus accumbens and posterior cingulate cortex in autism spectrum disorder.NeuroreportPolk, MaryScott; Ikuta, ToshikazuJanuary 19, 2022Not Determined
32953403Create StudyBeery VMI and Brain Volumetric Relations in Autism Spectrum Disorder.Journal of pediatric neuropsychologyGreen, Ryan R; Bigler, Erin D; Froehlich, Alyson; Prigge, Molly B D; Zielinski, Brandon A; Travers, Brittany G; Anderson, Jeffrey S; Alexander, Andrew; Lange, Nicholas; Lainhart, Janet ESeptember 1, 2019Not Determined
32357104Create StudyDevelopmental Trajectories of Adaptive Behavior From Toddlerhood to Middle Childhood in Autism Spectrum Disorder.American journal on intellectual and developmental disabilitiesTomaszewski, Brianne; Hepburn, Susan; Blakeley-Smith, Audrey; Rogers, Sally JMay 1, 2020Not Determined
32140983Create StudySleep Problems and Trajectories of Restricted and Repetitive Behaviors in Children with Neurodevelopmental Disabilities.Journal of autism and developmental disordersMacDuffie, Katherine E; Munson, Jeffrey; Greenson, Jessica; Ward, Teresa M; Rogers, Sally J; Dawson, Geraldine; Estes, AnnetteNovember 1, 2020Not Determined
31136606Create StudyMotor performance in a shape sorter task: A longitudinal study from 14 to 36 months of age in children with an older sibling ASD.PloS oneTaffoni, Fabrizio; Focaroli, Valentina; Keller, Flavio; Iverson, Jana MarieJanuary 2019Not Determined
30350906Create StudyWord comprehension mediates the link between gesture and word production: Examining language development in infant siblings of children with autism spectrum disorder.Developmental scienceRoemer, Emily J; West, Kelsey L; Northrup, Jessie B; Iverson, Jana MMay 2019Not Determined
30079576Create StudyCoordination is key: Joint attention and vocalisation in infant siblings of children with Autism Spectrum Disorder.International journal of language & communication disordersHeymann, Perrine; Northrup, Jessie B; West, Kelsey L; Parladé, Meaghan V; Leezenbaum, Nina B; Iverson, Jana MSeptember 2018Not Determined
29703592Create StudyPersonalized Intrinsic Network Topography Mapping and Functional Connectivity Deficits in Autism Spectrum Disorder.Biological psychiatryDickie, Erin W; Ameis, Stephanie H; Shahab, Saba; Calarco, Navona; Smith, Dawn E; Miranda, Dayton; Viviano, Joseph D; Voineskos, Aristotle NAugust 2018Not Determined
29307494Create StudyThe Dynamic Landscape of Open Chromatin during Human Cortical Neurogenesis.Cellde la Torre-Ubieta, Luis; Stein, Jason L; Won, Hyejung; Opland, Carli K; Liang, Dan; Lu, Daning; Geschwind, Daniel HJanuary 2018Not Determined
29058782Create StudyThe Relation Between Walking and Language in Infant Siblings of Children With Autism Spectrum Disorder.Child developmentWest, Kelsey L; Leezenbaum, Nina B; Northrup, Jessie B; Iverson, Jana MMay 2019Not Determined
28900778Create StudyEarly Gesture and Vocabulary Development in Infant Siblings of Children with Autism Spectrum Disorder.Journal of autism and developmental disordersIverson, Jana M; Northrup, Jessie B; Leezenbaum, Nina B; Parladé, Meaghan V; Koterba, Erin A; West, Kelsey LJanuary 2018Not Determined
28889315Create StudyBrief Report: Executive Function as a Predictor of Academic Achievement in School-Aged Children with ASD.Journal of autism and developmental disordersSt John, Tanya; Dawson, Geraldine; Estes, AnnetteJanuary 2018Not Determined
28782371Create StudyPatterns of fixation during face recognition: Differences in autism across age.Autism : the international journal of research and practiceFedor J, Lynn A, Foran W, Dicicco-Bloom J, Luna B, O'Hearn KOctober 2018Not Determined
28635121Create StudyExposure to Sodium Valproate during Pregnancy: Facial Features and Signs of Autism.Birth defects researchStadelmaier, Rachel; Nasri, Hanah; Deutsch, Curtis K; Bauman, Margaret; Hunt, Anne; Stodgell, Christopher J; Adams, Jane; Holmes, Lewis BAugust 2017Not Determined
27748031Create StudyFunctional connectivity differences in autism during face and car recognition: underconnectivity and atypical age-related changes.Developmental scienceLynn, Andrew C; Padmanabhan, Aarthi; Simmonds, Daniel; Foran, William; Hallquist, Michael N; Luna, Beatriz; O'Hearn, KirstenJanuary 2018Not Determined
27314943Create StudyAssociations between gross motor and communicative development in at-risk infants.Infant behavior & developmentLeBarton, Eve Sauer; Iverson, Jana MAugust 2016Not Determined
27242630Create StudyPerformance of Motor Sequences in Children at Heightened vs. Low Risk for ASD: A Longitudinal Study from 18 to 36 Months of Age.Frontiers in psychologyFocaroli, Valentina; Taffoni, Fabrizio; Parsons, Shelby M; Keller, Flavio; Iverson, Jana MJanuary 2016Not Determined
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16911971Create StudyAssociation between restricted and repetitive behaviors and nonverbal IQ in children with autism spectrum disorders.Child neuropsychology : a journal on normal and abnormal development in childhood and adolescenceBishop SL, Richler J, Lord CAugust 2006Not Determined
16909311Create StudySpatial working memory deficits in autism.Journal of autism and developmental disordersSteele SD, Minshew NJ, Luna B, Sweeney JAApril 2007Not Determined
16897400Create StudyERP evidence of atypical face processing in young children with autism.Journal of autism and developmental disordersWebb, Sara J; Dawson, Geraldine; Bernier, Raphael; Panagiotides, HeraclesOctober 2006Not Determined
16880825Create StudyEvidence for multiple loci from a genome scan of autism kindreds.Molecular psychiatrySchellenberg GD, Dawson G, Sung YJ, Estes A, Munson J, Rosenthal E, Rothstein J, Flodman P, Smith M, Coon H, Leong L, Yu CE, Stodgell C, Rodier PM, Spence MA, Minshew N, McMahon WM, Wijsman EMNovember 2006Not Determined
16869373Create StudyEarly learning and adaptive behaviour in toddlers with Down syndrome: evidence for an emerging behavioural phenotype?Down''s syndrome, research and practice : the journal of the Sarah Duffen CentreFidler, Deborah J; Hepburn, Susan; Rogers, SallyJune 2006Not Determined
16863674Create StudyVolumetric alterations of the orbitofrontal cortex in autism.Progress in neuro-psychopharmacology & biological psychiatryGirgis RR, Minshew NJ, Melhem NM, Nutche JJ, Keshavan MS, Hardan AYJanuary 30, 2007Not Determined
16845578Create StudyEarly predictors of communication development in young children with autism spectrum disorder: joint attention, imitation, and toy play.Journal of autism and developmental disordersToth K, Munson J, Meltzoff AN, Dawson GNovember 2006Not Determined
16845576Create StudyTeaching young nonverbal children with autism useful speech: a pilot study of the Denver Model and PROMPT interventions.Journal of autism and developmental disordersRogers SJ, Hayden D, Hepburn S, Charlifue-Smith R, Hall T, Hayes ANovember 2006Not Determined
16844106Create StudyFrom single to multiple deficit models of developmental disorders.CognitionPennington BFSeptember 2006Not Determined
16839280Create StudyBrain basis of developmental change in visuospatial working memory.Journal of cognitive neuroscienceScherf, K Suzanne; Sweeney, John A; Luna, BeatrizJuly 2006Not Determined
16835247Create StudySentence comprehension in autism: thinking in pictures with decreased functional connectivity.Brain : a journal of neurologyKana RK, Keller TA, Cherkassky VL, Minshew NJ, Just MASeptember 2006Not Determined
16818868Create StudyGray and white matter brain chemistry in young children with autism.Archives of general psychiatryFriedman SD, Shaw DW, Artru AA, Dawson G, Petropoulos H, Dager SRJuly 2006Not Determined
16772313Create StudyFunctional and anatomical cortical underconnectivity in autism: evidence from an FMRI study of an executive function task and corpus callosum morphometry.Cerebral cortex (New York, N.Y. : 1991)Just, Marcel Adam; Cherkassky, Vladimir L; Keller, Timothy A; Kana, Rajesh K; Minshew, Nancy JApril 2007Not Determined
16754843Create StudyAutism from 2 to 9 years of age.Archives of general psychiatryLord C, Risi S, DiLavore PS, Shulman C, Thurm A, Pickles AJune 2006Not Determined
16731368Create StudyComparison of diffusion tensor imaging measurements at 3.0 T versus 1.5 T with and without parallel imaging.Neuroimaging clinics of North AmericaAlexander AL, Lee JE, Wu YC, Field ASMay 2006Not Determined
16729252Create StudyIs there a 'regressive phenotype' of Autism Spectrum Disorder associated with the measles-mumps-rubella vaccine? A CPEA Study.Journal of autism and developmental disordersRichler J, Luyster R, Risi S, Hsu WL, Dawson G, Bernier R, Dunn M, Hepburn S, Hyman SL, McMahon WM, Goudie-Nice J, Minshew N, Rogers S, Sigman M, Spence MA, Goldberg WA, Tager-Flusberg H, Volkmar FR, Lord CApril 2006Not Determined
16724005Create StudyVariation in ITGB3 is associated with whole-blood serotonin level and autism susceptibility.European journal of human genetics : EJHGWeiss LA, Kosova G, Delahanty RJ, Jiang L, Cook EH, Ober C, Sutcliffe JSAugust 2006Not Determined
16721604Create StudyITGB3 shows genetic and expression interaction with SLC6A4.Human geneticsWeiss LA, Ober C, Cook EHAugust 2006Not Determined
16712638Create StudyJoint attention and symbolic play in young children with autism: a randomized controlled intervention study.Journal of child psychology and psychiatry, and allied disciplinesKasari C, Freeman S, Paparella TJune 2006Not Determined
16685187Create StudyAutism and family home movies: a comprehensive review.Journal of developmental and behavioral pediatrics : JDBPPalomo R, Belinchón M, Ozonoff SApril 2006Not Determined
16685178Create StudyEarly medical history of children with autism spectrum disorders.Journal of developmental and behavioral pediatrics : JDBPNiehus R, Lord CApril 2006Not Determined
16685176Create StudyA two-year follow-up on risk status identified by the checklist for autism in toddlers.Journal of developmental and behavioral pediatrics : JDBPScambler DJ, Hepburn SL, Rogers SJApril 2006Not Determined
16650833Create StudyMaturation of executive function in autism.Biological psychiatryLuna B, Doll SK, Hegedus SJ, Minshew NJ, Sweeney JAFebruary 15, 2007Not Determined
16628481Create StudyUsing Carey Temperament Scales to assess behavioral style in children with autism spectrum disorders.Journal of autism and developmental disordersHepburn SL, Stone WLJuly 2006Not Determined
16609827Create StudyAn MRI study of minor physical anomalies in autism.Journal of autism and developmental disordersHardan AY, Keshavan MS, Sreedhar S, Vemulapalli M, Minshew NJJuly 2006Not Determined
16460219Create StudyThe profile of memory function in children with autism.NeuropsychologyWilliams DL, Goldstein G, Minshew NJJanuary 2006Not Determined
16451566Create StudyComparison of marker types and map assumptions using Markov chain Monte Carlo-based linkage analysis of COGA data.BMC geneticsSieh W, Basu S, Fu AQ, Rothstein JH, Scheet PA, Stewart WC, Sung YJ, Thompson EA, Wijsman EM2005Not Determined
16446308Create StudyGenomic and functional profiling of duplicated chromosome 15 cell lines reveal regulatory alterations in UBE3A-associated ubiquitin-proteasome pathway processes.Human molecular geneticsBaron CA, Tepper CG, Liu SY, Davis RR, Wang NJ, Schanen NC, Gregg JPMarch 15, 2006Not Determined
16419100Create StudyGenetic counseling and ethical issues for autism.American journal of medical genetics. Part C, Seminars in medical geneticsMcMahon WM, Baty BJ, Botkin JFebruary 15, 2006Not Determined
16419098Create StudyAdvances in autism neuroimaging research for the clinician and geneticist.American journal of medical genetics. Part C, Seminars in medical geneticsLainhart JEFebruary 15, 2006Not Determined
16419097Create StudyCurrent perspectives on the genetic analysis of autism.American journal of medical genetics. Part C, Seminars in medical geneticsCoon HFebruary 15, 2006Not Determined
16391490Create StudyEvidence for linkage on chromosome 3q25-27 in a large autism extended pedigree.Human heredityCoon H, Matsunami N, Stevens J, Miller J, Pingree C, Camp NJ, Thomas A, Krasny L, Lainhart J, Leppert MF, McMahon W2005Not Determined
16342186Create StudyComparison of single-nucleotide polymorphisms and microsatellite markers for linkage analysis in the COGA and simulated data sets for Genetic Analysis Workshop 14: Presentation Groups 1, 2, and 3.Genetic epidemiologyWilcox MA, Pugh EW, Zhang H, Zhong X, Levinson DF, Kennedy GC, Wijsman EM2005Not Determined
16313426Create StudyAnnotation: what do we know about sensory dysfunction in autism? A critical review of the empirical evidence.Journal of child psychology and psychiatry, and allied disciplinesRogers SJ, Ozonoff SDecember 2005Not Determined
16287700Create StudyParental report of the early development of children with regressive autism: the delays-plus-regression phenotype.Autism : the international journal of research and practiceOzonoff S, Williams BJ, Landa RDecember 2005Not Determined
16267641Create StudyVerbal and spatial working memory in autism.Journal of autism and developmental disordersWilliams DL, Goldstein G, Carpenter PA, Minshew NJDecember 2005Not Determined
16243544Create StudyApplication of Brodmann's area templates for ROI selection in white matter tractography studies.NeuroImageThottakara P, Lazar M, Johnson SC, Alexander ALFebruary 1, 2006Not Determined
16214219Create StudyOculomotor studies of cerebellar function in autism.Psychiatry researchNowinski, Caralynn V; Minshew, Nancy J; Luna, Beatriz; Takarae, Yukari; Sweeney, John ANovember 15, 2005Not Determined
16155899Create StudyAxial asymmetry of water diffusion in brain white matter.Magnetic resonance in medicineLazar M, Lee JH, Alexander ALOctober 2005Not Determined
16134033Create StudyPlanum temporale volume in children and adolescents with autism.Journal of autism and developmental disordersRojas DC, Camou SL, Reite ML, Rogers SJAugust 2005Not Determined
16103890Create StudyAutism and the serotonin transporter: the long and short of it.Molecular psychiatryDevlin B, Cook EH, Coon H, Dawson G, Grigorenko EL, McMahon W, Minshew N, Pauls D, Smith M, Spence MA, Rodier PM, Stodgell C, Schellenberg GD, CPEA Genetics NetworkDecember 2005Not Determined
16083393Create StudyEvidence-based assessment of autism spectrum disorders in children and adolescents.Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53Ozonoff S, Goodlin-Jones BL, Solomon MSeptember 2005Not Determined
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15977317Create StudyIntroduction: novel therapies in developmental disabilities--hope, reason, and evidence.Mental retardation and developmental disabilities research reviewsHyman SL, Levy SE2005Not Determined
15941367Create StudyNonverbal requesting and problem-solving by toddlers with down syndrome.American journal of mental retardation : AJMRFidler DJ, Philofsky A, Hepburn SL, Rogers SJJuly 2005Not Determined
15850743Create StudyCortical thickness analysis in autism with heat kernel smoothing.NeuroImageChung MK, Robbins SM, Dalton KM, Davidson RJ, Alexander AL, Evans ACMay 1, 2005Not Determined
15830612Create StudyPraxis skills in young children with Down syndrome, other developmental disabilities, and typically developing children.The American journal of occupational therapy : official publication of the American Occupational Therapy AssociationFidler, Deborah J; Hepburn, Susan L; Mankin, Galit; Rogers, Sally JMarch 2005Not Determined
15830322Create StudyCandidate-gene screening and association analysis at the autism-susceptibility locus on chromosome 16p: evidence of association at GRIN2A and ABAT.American journal of human geneticsBarnby, Gabrielle; Abbott, Aaron; Sykes, Nuala; Morris, Andrew; Weeks, Daniel E; Mott, Richard; Lamb, Janine; Bailey, Anthony J; Monaco, Anthony P; International Molecular Genetics Study of Autism ConsortiumJune 2005Not Determined
15823983Create StudyMemory and learning in children with 22q11.2 deletion syndrome: evidence for ventral and dorsal stream disruption?Child neuropsychology : a journal on normal and abnormal development in childhood and adolescenceLajiness-O'Neill RR, Beaulieu I, Titus JB, Asamoah A, Bigler ED, Bawle EV, Pollack RFebruary 2005Not Determined
15820632Create StudyAn event-related brain potential study of sentence comprehension in preschoolers: semantic and morphosyntactic processing.Brain research. Cognitive brain researchSilva-Pereyra J, Rivera-Gaxiola M, Kuhl PKMay 2005Not Determined
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15785229Create StudyFrontal and temporal morphometric findings on MRI in children after moderate to severe traumatic brain injury.Journal of neurotraumaWilde EA, Hunter JV, Newsome MR, Scheibel RS, Bigler ED, Johnson JL, Fearing MA, Cleavinger HB, Li X, Swank PR, Pedroza C, Roberson GS, Bachevalier J, Levin HSMarch 2005Not Determined
15782081Create StudyAn open-label trial of escitalopram in pervasive developmental disorders.Journal of the American Academy of Child and Adolescent PsychiatryOwley T, Walton L, Salt J, Guter SJ, Winnega M, Leventhal BL, Cook EHApril 2005Not Determined
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15749246Create StudyAutism associated with conditions characterized by developmental errors in early embryogenesis: a mini review.International journal of developmental neuroscience : the official journal of the International Society for Developmental NeuroscienceMiller, Marilyn T; Strömland, Kerstin; Ventura, Liana; Johansson, Maria; Bandim, Jose M; Gillberg, ChristopherApril 2005Not Determined
15749245Create StudyThe teratology of autism.International journal of developmental neuroscience : the official journal of the International Society for Developmental NeuroscienceArndt, Tara L; Stodgell, Christopher J; Rodier, Patricia MApril 2005Not Determined
15747750Create StudyAutism with ophthalmologic malformations: the plot thickens.Transactions of the American Ophthalmological SocietyMiller MT, Strömland K, Ventura L, Johansson M, Bandim JM, Gillberg C2004Not Determined
15722554Create StudyDifferences in gene expression between wild type and Hoxa1 knockout embryonic stem cells after retinoic acid treatment or leukemia inhibitory factor (LIF) removal.The Journal of biological chemistryMartinez-Ceballos, Eduardo; Chambon, Pierre; Gudas, Lorraine JApril 22, 2005Not Determined
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15652316Create StudyFunctional connectivity in an fMRI working memory task in high-functioning autism.NeuroImageKoshino H, Carpenter PA, Minshew NJ, Cherkassky VL, Keller TA, Just MAFebruary 1, 2005Not Determined
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15633180Create StudyCHARGE association in Sweden: malformations and functional deficits.American journal of medical genetics. Part AStrömland, Kerstin; Sjögreen, Lotta; Johansson, Maria; Ekman Joelsson, Britt-Marie; Miller, Marilyn; Danielsson, Susanna; Billstedt, Eva; Gillberg, Christopher; Jacobsson, Catharina; Norinder, Jan Andersson; Granström, GöstaMarch 15, 2005Not Determined
15628604Create StudyRelations among joint attention, amount of intervention and language gain in autism.Journal of autism and developmental disordersBono, Michael A; Daley, L Tamara; Sigman, MarianOctober 2004Not Determined
15627594Create StudyBootstrap white matter tractography (BOOT-TRAC).NeuroImageLazar M, Alexander ALJanuary 15, 2005Not Determined
15620811Create StudyImpaired memory for faces and social scenes in autism: clinical implications of memory dysfunction.Archives of clinical neuropsychology : the official journal of the National Academy of NeuropsychologistsWilliams DL, Goldstein G, Minshew NJJanuary 2005Not Determined
15596750Create StudyUnderdevelopment of the postural control system in autism.NeurologyMinshew, Nancy J; Sung, KiBum; Jones, Bobby L; Furman, Joseph MDecember 14, 2004Not Determined
15547804Create StudyGenetic investigation of quantitative traits related to autism: use of multivariate polygenic models with ascertainment adjustment.American journal of human geneticsSung, Yun Ju; Dawson, Geraldine; Munson, Jeffrey; Estes, Annette; Schellenberg, Gerard D; Wijsman, Ellen MJanuary 2005Not Determined
15542922Create StudyJoint oligogenic segregation and linkage analysis using bayesian Markov chain Monte Carlo methods.Molecular biotechnologyWijsman EM, Yu DNovember 2004Not Determined
15526234Create StudySex-specific genetic architecture of whole blood serotonin levels.American journal of human geneticsWeiss, Lauren A; Abney, Mark; Cook Jr, Edwin H; Ober, CaroleJanuary 2005Not Determined
15509622Create StudyPursuit eye movement deficits in autism.Brain : a journal of neurologyTakarae, Yukari; Minshew, Nancy J; Luna, Beatriz; Krisky, Christine M; Sweeney, John ADecember 2004Not Determined
15485354Create StudyAutism as a paradigmatic complex genetic disorder.Annual review of genomics and human geneticsVeenstra-Vanderweele J, Christian SL, Cook EH2004Not Determined
15465295Create StudyIncreased frontal cortical folding in autism: a preliminary MRI study.Psychiatry researchHardan AY, Jou RJ, Keshavan MS, Varma R, Minshew NJSeptember 15, 2004Not Determined
15369519Create StudyMaturation of cognitive processes from late childhood to adulthood.Child development. Luna, Beatriz; Garver, Krista E; Urban, Trinity A; Lazar, Nicole A; Sweeney, John ASeptember 2004Not Determined
15362172Create StudyDevelopmental regression in autism spectrum disorders.Mental retardation and developmental disabilities research reviewsRogers, Sally J2004Not Determined
15314136Create StudyOculomotor abnormalities parallel cerebellar histopathology in autism.Journal of neurology, neurosurgery, and psychiatryTakarae, Y; Minshew, N J; Luna, B; Sweeney, J ASeptember 2004Not Determined
15225337Create StudyRegression and word loss in autistic spectrum disorders.Journal of child psychology and psychiatry, and allied disciplinesLord, Catherine; Shulman, Cory; DiLavore, PamelaJuly 2004Not Determined
15197683Create StudyHigh-resolution molecular characterization of 15q11-q13 rearrangements by array comparative genomic hybridization (array CGH) with detection of gene dosage.American journal of human geneticsWang, Nicholas J; Liu, Dahai; Parokonny, Alexander S; Schanen, N CarolynAugust 2004Not Determined
15090875Create StudyEye movements in neurodevelopmental disorders.Current opinion in neurologySweeney, John A; Takarae, Yukari; Macmillan, Carol; Luna, Beatriz; Minshew, Nancy JFebruary 2004Not Determined
15072521Create StudyLinguistic and cognitive functioning and autism symptoms in young children with fragile X syndrome.American journal of mental retardation : AJMRPhilofsky A, Hepburn SL, Hayes A, Hagerman R, Rogers SJMay 2004Not Determined
15060202Create StudyEnvironmental causes of central nervous system maldevelopment.PediatricsRodier PMApril 2004Not Determined
14999173Create StudySubject selection and characterization in clinical trials in children with autism.CNS spectrumsScahill, Lawrence; Lord, CatherineJanuary 2004Not Determined
14979766Create StudyEarly social attention impairments in autism: social orienting, joint attention, and attention to distress.Developmental psychologyDawson G, Toth K, Abbott R, Osterling J, Munson J, Estes A, Liaw JMarch 2004Not Determined
14960295Create StudyAssociation between the HOXA1 A218G polymorphism and increased head circumference in patients with autism.Biological psychiatryConciatori M, Stodgell CJ, Hyman SL, O'Bara M, Militerni R, Bravaccio C, Trillo S, Montecchi F, Schneider C, Melmed R, Elia M, Crawford L, Spence SJ, Muscarella L, Guarnieri V, D'Agruma L, Quattrone A, Zelante L, Rabinowitz D, Pascucci T, Puglisi-Allegra S, Reichelt KL, Rodier PM, Persico AMFebruary 15, 2004Not Determined
14635171Create StudySummary of Group 8: Development and extension of linkage methods.Genetic epidemiologyWijsman EM2003Not Determined
14625235Create StudyTemporal lobe, autism, and macrocephaly.AJNR. American journal of neuroradiologyBigler, Erin D; Tate, David F; Neeley, E Shannon; Wolfson, Lara J; Miller, Michael J; Rice, Sara A; Cleavinger, Howard; Anderson, Carol; Coon, Hilary; Ozonoff, Sally; Johnson, Michael; Dinh, Elena; Lu, Jeff; Mc Mahon, William; Lainhart, Janet ENovember 2003Not Determined
14594334Create StudyAbnormal brain lateralization in high-functioning autism.Journal of autism and developmental disordersEscalante-Mead, Paul R; Minshew, Nancy J; Sweeney, John AOctober 2003Not Determined
12865381Create StudyIncreased rate of head growth during infancy in autism.JAMALainhart JEJuly 16, 2003Not Determined
12861072Create StudyForeign-language experience in infancy: effects of short-term exposure and social interaction on phonetic learning.Proceedings of the National Academy of Sciences of the United States of AmericaKuhl PK, Tsao FM, Liu HMJuly 22, 2003Not Determined
12846388Create StudySocial and cardiac responses of young children with autism.Autism : the international journal of research and practiceSigman M, Dissanayake C, Corona R, Espinosa MJune 2003Not Determined
12831120Create StudyImitation performance in toddlers with autism and those with other developmental disorders.Journal of child psychology and psychiatry, and allied disciplinesRogers, Sally J; Hepburn, Susan L; Stackhouse, Tracy; Wehner, ElizabethJuly 2003Not Determined
12822815Create StudyMotor performance and anatomic magnetic resonance imaging (MRI) of the basal ganglia in autism.Journal of child neurologyHardan AY, Kilpatrick M, Keshavan MS, Minshew NJMay 2003Not Determined
12668366Create StudyPsychiatric inpatient, outpatient, and medication utilization and costs among privately insured youths, 1997-2000.The American journal of psychiatryMartin A, Leslie DApril 2003Not Determined
12553588Create StudyEye movement abnormality suggestive of a spatial working memory deficit is present in parents of autistic probands.Journal of autism and developmental disordersKoczat, Dianne L; Rogers, Sally J; Pennington, Bruce F; Ross, Randal GDecember 2002Not Determined
12499111Create StudyA perceptual interference account of acquisition difficulties for non-native phonemes.CognitionIverson, Paul; Kuhl, Patricia K; Akahane-Yamada, Reiko; Diesch, Eugen; Tohkura, Yoh'ich; Kettermann, Andreas; Siebert, ClaudiaFebruary 2003Not Determined
12349873Create StudyConverging evidence for brain stem injury in autism.Development and psychopathologyRodier, Patricia M2002Not Determined
12297562Create StudyNeocortical system abnormalities in autism: an fMRI study of spatial working memory.NeurologyLuna, B; Minshew, N J; Garver, K E; Lazar, N A; Thulborn, K R; Eddy, W F; Sweeney, J ASeptember 24, 2002Not Determined
12147315Create StudySmaller left hemisphere planum temporale in adults with autistic disorder.Neuroscience lettersRojas, Donald C; Bawn, Susie D; Benkers, Tara L; Reite, Martin L; Rogers, Sally JAugust 16, 2002Not Determined
12146680Create StudyAbstract reasoning in autism: a dissociation between concept formation and concept identification.NeuropsychologyMinshew, Nancy J; Meyer, Jessica; Goldstein, GeraldJuly 2002Not Determined
12142935Create StudyAutism as a selective disorder of complex information processing and underdevelopment of neocortical systems.Molecular psychiatryMinshew NJ, Sweeney J, Luna B2002Not Determined
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12042174Create StudyDefining and quantifying the social phenotype in autism.The American journal of psychiatryKlin A, Jones W, Schultz R, Volkmar F, Cohen DJune 2002Not Determined
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11806691Create StudyThe pattern of intact and impaired memory functions in autism.Journal of child psychology and psychiatry, and allied disciplinesMinshew, N J; Goldstein, GNovember 2001Not Determined
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11427145Create StudyPervasive developmental disorders in young children.JAMAHyman, S L; Rodier, P M; Davidson, PJune 27, 2001Not Determined
11417608Create StudyBrain volume in autism.Journal of child neurologyHardan AY, Minshew NJ, Mallikarjuhn M, Keshavan MSJune 2001Not Determined
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Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

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  • How can I determine if a publication is relevant?
    Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
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Glossary

  • Create Study
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Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
No Mandatory Data Expected
To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.
Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
No Data Expected
Structure not yet defined
No Status history for this Data Expected has been recorded yet
helpcenter.collection.data-expected-tab

NDA Help Center

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

  • Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
  • If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
  • Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

  • What is an NDA Data Structure?
    An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
  • What is the NDA Data Dictionary?
    The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

  • Analyzed Data
    Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
  • Data Item
    Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
  • Data Structure
    A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
  • Data Structure Category
    An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
  • Data Structure Group
    A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
  • Evaluated Data
    A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
  • Imaging Data
    Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
  • Initial Share Date
    Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
  • Initial Submission Date
    Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
  • Research Subject and Pedigree
    An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
  • Submission Cycle
    The NDA has two Submission Cycles per year - January 15 and July 15.
  • Submission Exemption
    An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
Examining the validity of the use of ratio IQs in psychological assessments IQ tests are amongst the most used psychological assessments, both in research and clinical settings. For participants who cannot complete IQ tests normed for their age, ratio IQ scores (RIQ) are routinely computed and used as a proxy of IQ, especially in large research databases to avoid missing data points. However, because it has never been scientifically validated, this practice is questionable. In the era of big data, it is important to examine the validity of this widely used practice. In this paper, we use the case of autism to examine the differences between standard full-scale IQ (FSIQ) and RIQ. Data was extracted from four databases in which ages, FSIQ scores and subtests raw scores were available for autistic participants between 2 and 17 years old. The IQ tests included were the MSEL (N=12033), DAS-II early years (N=1270), DAS-II school age (N=2848), WISC-IV (N=471) and WISC-V (N=129). RIQs were computed for each participant as well as the discrepancy (DSC) between RIQ and FSIQ. We performed two linear regressions to respectively assess the effect of FSIQ and of age on the DSC for each IQ test, followed by additional analyses comparing age subgroups as well as FSIQ subgroups on DSC. Participants at the extremes of the FSIQ distribution tended to have a greater DSC than participants with average FSIQ. Furthermore, age significantly predicted the DSC, with RIQ superior to FSIQ for younger participants while the opposite was found for older participants. These results question the validity of this widely used alternative scoring method, especially for individuals at the extremes of the normal distribution, with whom RIQs are most often employed.1682/17423Secondary AnalysisShared
* Data not on individual level
helpcenter.collection.associated-studies-tab

NDA Help Center

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

  • How do I associate a study to my collection?
    Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

  • Associated Studies Tab
    A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.
Edit