NIMH Data Archive - Data

Genomics

Neuroimaging

Phenotype¹

New Trial
Clinical Trial

¹ Numbers reported are subjects by age

New Project
Grant/Project Number

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

Select	Experiment Id	Experiment Name	Experiment Type	Created On

24	HI-NGS_R1	Omics	02/16/2011
475	MB1-10 (CHOP)	Omics	06/07/2016
490	Discovery and CRISPR validation of genetic factors associated with antipsychotic-induced weight gain and cardiometabolic risk	Omics	07/07/2016
501	PharmacoBOLD Resting State	fMRI	07/27/2016
506	PVPREF	Omics	08/05/2016
509	ABC-CT Resting v2	EEG	08/18/2016
13	Comparison of FI expression in Autistic and Neurotypical Homo Sapiens	Omics	12/28/2010
18	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	01/06/2011
22	Stitching PCR Sequencing	Omics	02/14/2011
26	ASD_Methylation	Omics	03/01/2011
29	Microarray family 03 (father, mother, sibling)	Omics	03/24/2011
37	Standard paired-end sequencing of BCRs	Omics	04/19/2011
38	Illumina Mate-Pair BCR sequencing	Omics	04/19/2011
39	Custom Jumping Libraries	Omics	04/19/2011
40	Custom CapBP	Omics	04/19/2011
41	Immunofluorescence	Omics	05/11/2011
43	Autism brain sample genotyping, Illumina	Omics	05/16/2011
47	ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 System	Omics	08/01/2011
53	AGRE Omni1-quad	Omics	10/11/2011
59	AGP genotyping	Omics	04/03/2012
60	Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controls	Omics	06/23/2012
63	Microemulsion PCR and Targeted Resequencing for Variant Detection in ASD	Omics	07/20/2012
76	Whole Genome Sequencing in Autism Families	Omics	01/03/2013
519	Resting	fMRI	11/08/2016
90	Genotyped IAN Samples	Omics	07/09/2013
91	NJLAGS Axiom Genotyping Array	Omics	07/16/2013
93	AGP genotyping (CNV)	Omics	09/06/2013
106	Longitudinal Sleep Study. H20 200. Channel set 2	EEG	11/07/2013
107	Longitudinal Sleep Study. H20 200. Channel set 3	EEG	11/07/2013
108	Longitudinal Sleep Study. AURA 200	EEG	11/07/2013
105	Longitudinal Sleep Study. H20 200. Channel set 1	EEG	11/07/2013
109	Longitudinal Sleep Study. AURA 400	EEG	11/07/2013
116	Gene Expression Analysis WG-6	Omics	01/07/2014
131	Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1	Eye Tracking	02/27/2014
132	Jeste Lab UCLA ACEii: Animacy - Project 1	Eye Tracking	02/27/2014
133	Jeste Lab UCLA ACEii: Mom Stranger - Project 2	Eye Tracking	02/27/2014
134	Jeste Lab UCLA ACEii: Face Emotion - Project 3	Eye Tracking	02/27/2014
145	AGRE/FMR1_Illumina.JHU	Omics	04/14/2014
146	AGRE/MECP2_Sanger.JHU	Omics	04/14/2014
147	AGRE/MECP2_Junior.JHU	Omics	04/14/2014
151	Candidate Gene Identification in familial Autism	Omics	06/09/2014
152	NJLAGS Whole Genome Sequencing	Omics	07/01/2014
154	Math Autism Study - Vinod Menon	fMRI	07/15/2014
155	Resting	fMRI	07/25/2014
156	Speech	fMRI	07/25/2014
159	Emotion	fMRI	07/25/2014
160	syllable contrast	EEG	07/29/2014
167	School-age naturalistic stimuli	Eye Tracking	09/19/2014
44	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	06/27/2011
45	Exome Sequencing of 20 Sporadic Cases of Autism Spectrum Disorder	Omics	07/15/2011

Collection - Add Experiment

Add Supporting Documentation

Funding Source:
URL:

To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

Use/Modify Existing Data Structure

Request New Data Structure

Targeted Enrollment:

Initial Submission Date:

Initial Share Date:

Data Structure Search:

Data Structures:

Submit

Request Submission Exemption

Not Eligible

The Data Expected list for this Collection shows some raw data as missing. Contact the NDA Help Desk with any questions.

Please confirm that you will not be enrolling any more subjects and that all raw data has been collected and submitted.

Collection Updated

Your Collection is now in Data Analysis phase and exempt from biannual submissions. Analyzed data is still expected prior to publication or no later than the project end date.

[CMS] Error

[CMS]

Unable to change collection phase where targeted enrollment is less than 90%

You have requested to move the sharing dates for the following assessments:

Data Expected Item	Original Sharing Date	New Sharing Date

Please provide a reason for this change, which will be sent to the Program Officers listed within this collection:

Explanation must be between 20 and 200 characters in length.

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Multimodal Treatment Study of Children With ADHD #2155

General
Experiments (9)
Shared Data
Publications (0)
Associated Studies (3)

Collection Title	Collection Investigators	Collection Description
Collection Title:	Multimodal Treatment Study of Children With ADHD
Collection Investigators:	Howard Abikoff, Ph.D.; L. Eugene Arnold, M.D.; Claudia Buss, Ph.D.; C. Keith Conners, Ph.D.; Glen Elliott, M.D.; Jeffery Epstein, Ph.D.; Drew Erhardt, PhD; Karen Fleis; Psy.D.; Laurence L. Greenhill, M.D.; Jeffrey Halperin, Ph.D.; Lily Hechtman, M.D.; Stephen Hinshaw, Ph.D.; Kimberly Hoagwood, Ph.D.; Betsy Hoza, Ph.D.; Peter Jensen, M.D.; John March, MD; Daniel Mathalon, M.D., Ph.D.; Keith McBurnett, Ph.D.; Brooke Molina, Ph.D.; Desiree Murray, Ph.D.; Jeffrey Newcorn, M.D.; Elizabeth Owens, Ph.D.; William Pelham; Jr., Ph.D.; Bradley Peterson, M.D; Linda Pfiffner, Ph.D.; Steven Potkin, M.D.; Allen Song, Ph.D.; James M. Swanson, Ph.D.; Leanne Tamm, Ph.D.; Katerina Velanova, Ph.D.; Benedetto Vitiello, MD; Alan Vitolo, Ph.D.; Karen Wells, Ph.D.; Timothy Wigal, PhD
Collection Description:	This trial is a continuation of the Multimodal Treatment Study of Children with Attention Deficit Hyperactivity Disorder (MTA Study). Continuation Aim 1 is to track the persistence of intervention-related effects as the MTA sample matures into mid-adolescence, including subsequent mental-health and school-related service utilization patterns as a function of MTA treatment experience (treatment assignment) and outcome (degree of treatment success at 14 mo.). Aim 2 is to test specific hypotheses about predictors, mediators, and moderators of long-term outcome among children with ADHD (e.g., comorbidity; family functioning; cognitive skills; peer relations) that may influence adolescent functioning (either independent of or through initial treatment assignment and/or 14-month treatment outcomes); and to compare how these predictors, mediators, and moderators are similar or dissimilar within the normal comparison group. Aim 3 is to track the patterns of risk and protective factors (including their mediation or moderation by initial treatment assignment and/or outcome) involved in early and subsequent stages of developing substance-related disorders and antisocial behavior. Aim 4 is to examine the effect of initial treatment assignment and degree of treatment success on later academic performance, achievement, school conduct, tendency to drop out, and other adverse school outcomes.In the original MTA design, patients were randomly assigned to 1 of 4 treatment conditions: (1) medication only; (2) psychosocial only; (3) combined (medication and psychosocial); or (4) Assessment-and-Referral condition. All but the latter were treated intensively for 14 months, with assessments for all subjects at baseline, 3, 9, 14, and 24 months. The original MTA design thus provides short-term (10 months post-treatment) follow-up at 24 months. This continuation extends the follow-up to assessments at 36, 60, and 84 months after treatment. Note:8/7/2015: DISCP & DISCY 6yr to 16yr scored data have anomalies and are being rescored.
Data Repository:	NIMH Data Archive
Permission Group:
Collection Creation Date:	03/31/2015
Collection Phase:	Funding Completed
Collection Sub-Phase:	Close Out
Blinded Clinical Trial:	No
Subjects Shared:	868
Collection DOI:	10.15154/14wr-s979

{"values":[]}

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Funding Sources:

Funding Source Name	Funding Source URL
NIH - Contract	None

Supporting Documentation:

File Name	File Type	Description	Audience
MTA_Assessment_Schedule.xlsx	Methods	Assessments Schedule	Qualified Researchers
MTA_Overview.pdf	Background	Overview	Qualified Researchers
MTA_Protocol_mod.pdf	Analysis Protocol	Protocol	Qualified Researchers
MTA_PUB_Database_and_Documentation_Summary.pdf	Other	Database and Documentation Summary	Qualified Researchers
Derived Variables.zip	Results	Derived Variables	Qualified Researchers
NDCT Dictionary to MTA Instruments.pdf	Other	NDCT Dictionary to MTA Instruments	Qualified Researchers
List of MTA grants.docx	Background	List of participating projects	General Public
https://osf.io/xbkgh/	Publication	All MTA publications	Qualified Researchers

Grant Information:

Clinical Trials:

Brief Summary	Status	Clinical Trial ID	Study ID	Principal Investigator	Start Date	End Date
This trial is a continuation of the Multimodal Treatment Study of Children with Attention Deficit Hyperactivity Disorder (MTA Study). Continuation Aim 1 is to track the persistence of intervention-related effects as the MTA sample matures into mid-adolescence, including subsequent mental-health and school-related service utilization patterns as a function of MTA treatment experience (treatment assignment) and outcome (degree of treatment success at 14 mo.). Aim 2 is to test specific hypotheses about predictors, mediators, and moderators of long-term outcome among children with ADHD (e.g., comorbidity; family functioning; cognitive skills; peer relations) that may influence adolescent functioning (either independent of or through initial treatment assignment and/or 14-month treatment outcomes); and to compare how these predictors, mediators, and moderators are similar or dissimilar within the normal comparison group. Aim 3 is to track the patterns of risk and protective factors (including their mediation or moderation by initial treatment assignment and/or outcome) involved in early and subsequent stages of developing substance-related disorders and antisocial behavior. Aim 4 is to examine the effect of initial treatment assignment and degree of treatment success on later academic performance, achievement, school conduct, tendency to drop out, and other adverse school outcomes. In the original MTA design, patients were randomly assigned to 1 of 4 treatment conditions: (1) medication only; (2) psychosocial only; (3) combined (medication and psychosocial); or (4) Assessment-and-Referral condition. All but the latter were treated intensively for 14 months, with assessments for all subjects at baseline, 3, 9, 14, and 24 months. The original MTA design thus provides short-term (10 months post-treatment) follow-up at 24 months. This continuation extends the follow-up to assessments at 36, 60, and 84 months after treatment. A child may be eligible for this study if he/she: Is 7 - 9 years old, and has Attention Deficit Hyperactivity Disorder (ADHD).	Completed	NCT00000388	U01MH050453	Howard B. Abikoff, PhD	September 1998	November 1999

helpcenter.collection.general-tab

Collection - General Tab

Fields available for edit on the top portion of the page include:

Collection Title
Investigators
Collection Description
Collection Phase
Funding Source
Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

Pre-Enrollment: The default entry made when the NDA Collection is created.
Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
- The Data Expected Subphase indicates that NDA expects more data will be submitted
- The Closeout Subphase indicates the data submission is complete.
- The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?

During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
How do I know when a NDA Collection has been created?

When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
Is a single grant number ever associated with more than one Collection?

The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
Why is there sometimes more than one grant included in a Collection?

In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

Administrator Privilege

A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
Collection Owner

Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
Collection Phase
The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
- Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
- Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
- Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
- Funding Completed: A grant/project has reached the project end date.
Collection Title

An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
Grant

Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
Supporting Documentation

Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
NIH Research Initiative

NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
Permission Group

Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
Planned Enrollment

Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
Actual Enrollment

Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
NDA Collection

A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
Data Use Limitations

Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
Total Subjects Shared

The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

Contact NDA Help Desk

ID	Name	Created Date	Status	Type
381	GNG1and2 SIEMENS	10/06/2015	Approved	fMRI
382	GNG1and2 GE Discovery	10/06/2015	Approved	fMRI
383	GNG1and2 GE Signa HDxt	10/06/2015	Approved	fMRI
384	GNG3and4 SIEMENS	10/06/2015	Approved	fMRI
385	GNG3and4 GE Discovery	10/06/2015	Approved	fMRI
386	GNG3and4 GE Signa HDxt	10/06/2015	Approved	fMRI
387	restFA77 SIEMENS	10/06/2015	Approved	fMRI
388	restFA77 GE Discovery	10/06/2015	Approved	fMRI
389	restFA77 GE Signa HDxt	10/06/2015	Approved	fMRI

helpcenter.collection.experiments-tab

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

Can an Experiment be associated with more than one Collection?
Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:
1. Copy the experiment with intent for modifications.
2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

Experiment Status

An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
Experiment ID

The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.

Contact NDA Help Desk

Shared Data:

Title	Type	Number of Subjects
Adult Impairment Rating Scale	Clinical Assessments	759
Aggression and Conduct Problems Scale	Clinical Assessments	864
Alabama Parenting Questionnaire	Clinical Assessments	868
Beck Anxiety Inventory	Clinical Assessments	463
Beck Depression Inventory	Clinical Assessments	868
COPE	Clinical Assessments	864
Cannabis Withdrawal Scale	Clinical Assessments	128
Chicago Youth Development Study Community Scale	Clinical Assessments	795
Child Behavior Checklist (CBCL) 6-18	Clinical Assessments	865
Child Depression Inventory (CDI)	Clinical Assessments	868
Child Organization Hyperactivity Index	Clinical Assessments	805
Child School Information	Clinical Assessments	779
Classroom Observation Code	Clinical Assessments	868
Coddington Life Events Scale	Clinical Assessments	569
Columbia Impairment Scale (CIS) Parent Reported	Clinical Assessments	861
Columbia Impairment Scale (CIS) Youth Reported	Clinical Assessments	465
Conduct Problems Scale	Clinical Assessments	807
Conners 3	Clinical Assessments	108
Conners Adolescent Self-Report	Clinical Assessments	814
Conners Adult ADHD Rating Scales	Clinical Assessments	846
Conners Continuous Performance Test	Clinical Assessments	748
Conners Parent Rating Scales Revised (CPRS) 2002	Clinical Assessments	865
Conners Teacher Rating Scales - Revised (CTRS-R)	Clinical Assessments	860
Consumer Satisfaction Questionnaire	Clinical Assessments	403
Continuous Performance Test	Clinical Assessments	128
Delis-Kaplan Executive Function System	Clinical Assessments	128
Demographics Form. Clinical Trials	Clinical Assessments	798
Diagnoses and Symptoms. DSM IV, Part I	Clinical Assessments	868
Diagnoses and Symptoms. DSM IV, Part II	Clinical Assessments	185
Diagnoses and Symptoms. DSM IV, Part III	Clinical Assessments	185
Diagnoses and Symptoms. DSM IV, Part IV	Clinical Assessments	185
Diagnoses and Symptoms. DSM IV, Part V	Clinical Assessments	799
Diagnoses and Symptoms. DSM IV, Part VI	Clinical Assessments	794
Diagnoses and Symptoms. DSM IV, Part VII	Clinical Assessments	793
Diagnostic Interview Schedule for Children version 2.3: Anxiety Disorders	Clinical Assessments	868
Diagnostic Interview Schedule for Children version 4.0: Anxiety Disorders	Clinical Assessments	793
Diagnostic Interview Schedule for Children: Alcohol and Substance Abuse Disorder	Clinical Assessments	868
Diagnostic Interview Schedule for Children: Disruptive Behavior Disorders	Clinical Assessments	868
Diagnostic Interview Schedule for Children: Miscellaneous Disorders	Clinical Assessments	868
Diagnostic Interview Schedule for Children: Mood Disorders	Clinical Assessments	793
Diagnostic Interview Schedule for Children: Schizophrenia	Clinical Assessments	793
Dishion Social Acceptance Scale	Clinical Assessments	806
Drinking History	Clinical Assessments	853
Driving Behavior Questionnaire	Clinical Assessments	799
Dyadic Adjustment Scale	Clinical Assessments	672
Eating Disorder Inventory -3	Clinical Assessments	745
Edinburgh Handedness Inventory	Clinical Assessments	128
End of Treatment Debriefing Flow and Recommendations	Clinical Assessments	433
Expectations Questionnaire	Clinical Assessments	842
FreeSurfer Volumetrix	Imaging	122
General Life Functioning	Clinical Assessments	743
Harter's Self-Concept Measures. Adolescent and Child Version	Clinical Assessments	814
Harter's Self-Concept Measures. Parent and Teacher Version	Clinical Assessments	815
Harter's Self-Concept Measures. Teacher of Adolescent Version	Clinical Assessments	653
Harter's Self-Concept Measures. Young Adult and Parent of Young Adult Version	Clinical Assessments	758
Health Insurance Questionnaire	Clinical Assessments	747
Health Questionnaire	Clinical Assessments	762
Home Situations Questionnaire	Clinical Assessments	842
Homework Problems Checklist	Clinical Assessments	863
Hopkins Verbal Learning Test - Revised	Clinical Assessments	128
Image	Imaging	129
Imaging_qa	Imaging	92
Inventory of Small Life Events	Clinical Assessments	840
Iowa Gambling Task	Clinical Assessments	128
Justice Involvement Questionnaire	Clinical Assessments	740
Kiddie Post Traumatic Stress Scale	Clinical Assessments	804
Leisure Activities Questionnaire	Clinical Assessments	714
Life Events Survey	Clinical Assessments	797
Loeber Parenting Scale	Clinical Assessments	743
Maintenance Medication and Related Data	Clinical Assessments	290
Maternal Cigarette and Alcohol Use	Clinical Assessments	773
Michigan Alcohol Screening Test	Clinical Assessments	775
Military and Work History	Clinical Assessments	740
Multidimensional Anxiety Scale for Children Parent and Self	Clinical Assessments	868
NEO Five-Factor Inventory Form S Adult	Clinical Assessments	768
Neighborhood Efficacy Scale	Clinical Assessments	747
Network of Relationship Inventory	Clinical Assessments	736
Nicotine Withdrawal Scale	Clinical Assessments	128
On Tme Management, Organization, and Planning	Clinical Assessments	651
Paced Auditory Serial Addition Test	Clinical Assessments	128
Parent Child Interaction	Clinical Assessments	579
Parent/Child Relationship Questionnaire	Clinical Assessments	868
Parental Involvement	Clinical Assessments	692
Parenting Stress Index (4th Edition)	Clinical Assessments	866
Parents Knowledge of Behavioral Principles	Clinical Assessments	862
Peer Delinquency Scale	Clinical Assessments	745
Peer Substance Use	Clinical Assessments	834
Peer Tolerance of Substance Use	Clinical Assessments	835
Physical Examination	Clinical Assessments	868
Psychosis Screener and Follow Up Diagnostic Impression	Clinical Assessments	785
Randomization - Debriefing and Perceived Satisfaction with Assignment	Clinical Assessments	579
Reading Attitudes	Clinical Assessments	717
Report Card Data	Clinical Assessments	868
School History and Master Form	Clinical Assessments	868
Self-Reported Antisocial Behavior	Clinical Assessments	868
Self-Reported Delinquency	Clinical Assessments	786
Sensation Seeking Scale - Form	Clinical Assessments	765
Services for Children & Adolescents	Clinical Assessments	579
Side Effects	Clinical Assessments	747
Social Skills Rating System	Clinical Assessments	868
Social Skills Rating System - Grades 7-12 Parent	Clinical Assessments	749
Social Support Questionnaire	Clinical Assessments	862
Sociometry	Clinical Assessments	594
South Oaks Gambling Screen	Clinical Assessments	736
Structured Clinical Interview for DSM-IV	Clinical Assessments	844
Substance Use Questionnaire	Clinical Assessments	836
Substance Use Recency Questionnaire	Clinical Assessments	128
Supplemental Inattentive and Positive Items Rating Scale	Clinical Assessments	108
Swanson, Nolan and Pelham SNAP-IV Rating Scale	Clinical Assessments	868
Tanner Sexual Maturity Scale	Clinical Assessments	762
Teacher Report Form (Achenbach)	Clinical Assessments	859
Teacher Satisfaction Scale	Clinical Assessments	321
Temperament and Character Inventory	Clinical Assessments	479
Trail Making Test, Child and Adult	Clinical Assessments	128
Vital Signs	Clinical Assessments	839
Wechsler Adult Intelligence Scale Fourth Edition [part 1]	Clinical Assessments	221
Wechsler Individual Achievement Test Third Edition. Part II	Clinical Assessments	868
Wechsler Intelligence Scale for Children III	Clinical Assessments	861
Wender Utah Scale	Clinical Assessments	572
Wide Range Achievement Test 3 (WRAT3)	Clinical Assessments	868
Wisconsin Personality Disorders Inventory - IV	Clinical Assessments	637
Working Alliance Scale	Clinical Assessments	334
Yale Global Severity Tic Scale	Clinical Assessments	578

helpcenter.collection.shared-data-tab

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?

To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
Can I get a supplement to share data from a completed research project?

Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
Can I get a supplement to share data from a research project that is still ongoing?

Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Type

A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
Shared

The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed ID	Study	Title	Journal	Authors	Date	Status
No records found.

helpcenter.collection.publications-tab

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

How can I determine if a publication is relevant?

Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
Where does the NDA get the publications?

PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

Create Study

A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
Not Determined Publication

Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
Not Relevant Publication

A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
PubMed

PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
PubMed ID

The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
Relevant Publication

A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

Contact NDA Help Desk

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameFilter by Study Name	DOIFilter by DOI	AbstractFilter by Abstract	Collection/Study SubjectsFilter by Collection/Study Subjects	Data UsageFilter by Data Usage	StateFilter by State
Longitudinal trajectories of attention/deficit hyperactivity disorder diagnoses	10.15154/1527795	Objective: Attention deficit/hyperactivity disorder (ADHD) is mostly conceptualized as an early-onset neurodevelopmental disorder, in which symptoms decrease steadily into adulthood or remain stable. A recent study following a clinical cohort over 16 years challenged this view, reporting that for most with ADHD, diagnostic status widely fluctuates with age. Here we ask if such a ‘fluctuating’ ADHD subgroup is present in other population-based and clinic-based cohorts. Methods: We examined individual-level diagnostic trajectories in the population-based Adolescent Brain Cognitive Development (ABCD: N = 9735), as well as the Neurobehavioral Clinical Research (NCR: N = 258) and Nathan Kline Institute-Rockland (NKI-Rockland: N = 149) cohorts. All participants had three or more assessments spanning different age windows. Subjects were categorized into five ADHD developmental subgroups: fluctuant (defined by showing at least two switches between meeting and not meeting ADHD criteria) remitting, persisting, emerging and never affected. Results: Fluctuant subgroups were found in all cohorts, making up 29% of subjects with ADHD in the ABCD cohort. Discussion: We provide further evidence in three cohorts for the existence of a fluctuant ADHD subgroup, albeit in a minority of cases. This suggests that a subgroup of individuals with ADHD show a natural history more akin to a relapsing-remitting mood disorders than the symptomatic stability or gradual change implicit in the concept of a neurodevelopmental disorder.	798/12669	Secondary Analysis	Shared
Verbal Learning Harmonization	10.15154/zb4d-s646	Motivation: Auditory verbal learning tasks (AVLTs) are a core component of neuropsychological assessment, but the variety of AVLTs in common use makes it difficult to compare scores across instruments. This limits integration of research findings. The objective of this study was to derive and disseminate crosswalks that directly equate raw scores across common AVLTs. Methods: A large, international repository of raw AVLT data was compiled, and a multisite mega study analysis was conducted. Empirical Bayes harmonization was used to isolate and remove site effects, followed by linear models which adjusted for covariates, including age, sex, education, and race/ethnicity. After corrections, a continuous item response theory (IRT) model was then used to estimate each individual subject’s latent verbal learning ability while accounting for different item difficulties. Results: We aggregated raw data from studies of clinical samples and healthy controls from around the world that measured at least one verbal learning task. After applying exclusion criteria, the final sample was comprised of N = 10,505 individuals with and without history of traumatic brain injury from 53 studies above the age of 16 years who were tested on the California Verbal Learning Test (CVLT), Rey Auditory Verbal Learning Test (RAVLT), or the Hopkins Verbal Learning Test-Revised (HVLT). Harmonization significantly reduced inter-site variance by 37% while preserving covariate effects for further study. The effects of age, sex, and education on scores were reported and were found to be consistent across all AVLTs. Crosswalks were created by linking scores of individuals with the same verbal learning ability across AVLTs. The derived conversions agreed with held-out data of dually-administered tests. Conclusion: This study reports the co-calibration and validation of methods to harmonize raw scores across three common verbal learning instruments. Moreover, we developed a free online tool for cross-assessment raw score conversion. These methods address longstanding data compatibility issues for AVLTs, and offer perspectives on how large-scale data harmonization initiatives can increase the robustness and reproducibility of research and findings across the behavioral sciences.	128/3745	Secondary Analysis	Shared
Sex and Pubertal Status Moderate the Association Between ADHD and Depression Symptoms: An Examination From Preadolescence Through Late Adolescence	10.15154/1519027	Objective: This study examines the effects of sex and pubertal status on the association between attention-deficit/hyperactivity disorder (ADHD) and depression symptoms in preadolescence through late adolescence. Methods: Participants were 472 youth from the Multimodal Treatment Study of Children With ADHD. The study sample included 308 youth with DSM-IV ADHD, recruited from 1993 through 1996, and 164 comparison youth who were recruited approximately 2 years later. Self-reported depression symptoms from the Children’s Depression Inventory and pubertal status from the Tanner Self-Report Scale were collected, along with combined parent-teacher reports of ADHD. Regression analyses examined the impact of ADHD, sex, pubertal status, and their interactions on total depression symptoms and related subscales (ie, negative mood, interpersonal problems, ineffectiveness, anhedonia, and negative self-esteem) in preadolescence. Next, path models examined associations between ADHD, sex, and pubertal status on depression symptoms into middle and late adolescence. Results: In preadolescence, significant ADHD × sex × puberty interactions emerged for total depression symptoms and anhedonia (P < .05). Higher levels of ADHD severity were associated with higher levels of depression in early maturing girls and later maturing boys. Effects appear to be driven by anhedonia. Longitudinal effects emerged showing that total depression symptoms and anhedonia in preadolescence predicted levels of each respective outcome into late adolescence. Conclusions: Sex and pubertal status meaningfully impact the association between ADHD and depression symptoms in youth and should be considered in future work and treatment.	472/472	Secondary Analysis	Shared

* Data not on individual level

helpcenter.collection.associated-studies-tab

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

How do I associate a study to my collection?

Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

Associated Studies Tab

A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

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