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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

Collection - Use Existing Experiment
To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.
SelectExperiment IdExperiment NameExperiment Type
Created On
24HI-NGS_R1Omics02/16/2011
475MB1-10 (CHOP)Omics06/07/2016
490Illumina Infinium PsychArray BeadChip AssayOmics07/07/2016
501PharmacoBOLD Resting StatefMRI07/27/2016
506PVPREFOmics08/05/2016
509ABC-CT Resting v2EEG08/18/2016
13Comparison of FI expression in Autistic and Neurotypical Homo SapiensOmics12/28/2010
18AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics01/06/2011
22Stitching PCR SequencingOmics02/14/2011
26ASD_MethylationOmics03/01/2011
29Microarray family 03 (father, mother, sibling)Omics03/24/2011
37Standard paired-end sequencing of BCRsOmics04/19/2011
38Illumina Mate-Pair BCR sequencingOmics04/19/2011
39Custom Jumping LibrariesOmics04/19/2011
40Custom CapBPOmics04/19/2011
41ImmunofluorescenceOmics05/11/2011
43Autism brain sample genotyping, IlluminaOmics05/16/2011
47ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 SystemOmics08/01/2011
53AGRE Omni1-quadOmics10/11/2011
59AGP genotypingOmics04/03/2012
60Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controlsOmics06/23/2012
63Microemulsion PCR and Targeted Resequencing for Variant Detection in ASDOmics07/20/2012
76Whole Genome Sequencing in Autism FamiliesOmics01/03/2013
519RestingfMRI11/08/2016
90Genotyped IAN SamplesOmics07/09/2013
91NJLAGS Axiom Genotyping ArrayOmics07/16/2013
93AGP genotyping (CNV)Omics09/06/2013
106Longitudinal Sleep Study. H20 200. Channel set 2EEG11/07/2013
107Longitudinal Sleep Study. H20 200. Channel set 3EEG11/07/2013
108Longitudinal Sleep Study. AURA 200EEG11/07/2013
105Longitudinal Sleep Study. H20 200. Channel set 1EEG11/07/2013
109Longitudinal Sleep Study. AURA 400EEG11/07/2013
116Gene Expression Analysis WG-6Omics01/07/2014
131Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1Eye Tracking02/27/2014
132Jeste Lab UCLA ACEii: Animacy - Project 1Eye Tracking02/27/2014
133Jeste Lab UCLA ACEii: Mom Stranger - Project 2Eye Tracking02/27/2014
134Jeste Lab UCLA ACEii: Face Emotion - Project 3Eye Tracking02/27/2014
145AGRE/FMR1_Illumina.JHUOmics04/14/2014
146AGRE/MECP2_Sanger.JHUOmics04/14/2014
147AGRE/MECP2_Junior.JHUOmics04/14/2014
151Candidate Gene Identification in familial AutismOmics06/09/2014
152NJLAGS Whole Genome SequencingOmics07/01/2014
154Math Autism Study - Vinod MenonfMRI07/15/2014
155RestingfMRI07/25/2014
156SpeechfMRI07/25/2014
159EmotionfMRI07/25/2014
160syllable contrastEEG07/29/2014
167School-age naturalistic stimuliEye Tracking09/19/2014
44AGRE/Broad Affymetrix 5.0 Genotype ExperimentOmics06/27/2011
45Exome Sequencing of 20 Sporadic Cases of Autism Spectrum DisorderOmics07/15/2011
Collection - Add Experiment
Add Supporting Documentation
Select File

To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

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Your Collection is now in Data Analysis phase and exempt from biannual submissions. Analyzed data is still expected prior to publication or no later than the project end date.

[CMS] Attention
[CMS] Please confirm that you will not be enrolling any more subjects and that all raw data has been collected and submitted.
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[CMS]

Unable to change collection phase where targeted enrollment is less than 90%

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Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Neurobehavioral Research on Infants at Risk for SLI and Autism
Helen Tager-flusberg 
The specific aims of the research are (1) to identify markers that distinguish between infants at risk for SLI or ASD and low risk controls; (2) to identify the predictors of later SLI and ASD diagnoses (at 36 months of age) from measures collected between 6 and 12 months of age; and (3) to compare developmental trajectories of key language and related social/cognitive measures between 6 and 36 months in infants with and without clinical outcomes. These aims will be pursued in a longitudinal prospective design following infants from 6 to 36 months of age. Data will be collected on language and social perception using behavioral, eye-tracking and neurophysiological measures as well as general measures of cognitive and brain development (head circumference; EEG).
NIMH Data Archive
01/27/2012
Funding Completed
Close Out
No
$2,419,195.00
32
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NIH - Extramural None



R01DC010290-01 Neurobehavioral Research on Infants at Risk for SLI and Autism 07/01/2009 06/30/2014 250 284 BOSTON UNIVERSITY (CHARLES RIVER CAMPUS) $2,419,195.00

helpcenter.collection.general-tab

NDA Help Center

Collection - General Tab

Fields available for edit on the top portion of the page include:

  • Collection Title
  • Investigators
  • Collection Description
  • Collection Phase
  • Funding Source
  • Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

  • Pre-Enrollment: The default entry made when the NDA Collection is created.
  • Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
  • Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
  • Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
    • The Data Expected Subphase indicates that NDA expects more data will be submitted
    • The Closeout Subphase indicates the data submission is complete.
    • The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

  • This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
  • Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
  • When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

  • How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?
    During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
  • How do I know when a NDA Collection has been created?
    When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
  • Is a single grant number ever associated with more than one Collection?
    The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
  • Why is there sometimes more than one grant included in a Collection?
    In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

  • Administrator Privilege
    A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
  • Collection Owner
    Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
  • Collection Phase
    The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
    • Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
    • Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
    • Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
    • Funding Completed: A grant/project has reached the project end date.
  • Collection Title
    An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
  • Grant
    Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
  • Supporting Documentation
    Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
  • NIH Research Initiative
    NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
  • Permission Group
    Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
  • Planned Enrollment
    Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
  • Actual Enrollment
    Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
  • NDA Collection
    A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
  • Data Use Limitations
    Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
  • Total Subjects Shared
    The total number of unique subjects for whom data have been shared and are available for users with permission to access data.
IDNameCreated DateStatusType
No records found.
helpcenter.collection.experiments-tab

NDA Help Center

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

  • Can an Experiment be associated with more than one Collection?

    Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:

    1. Copy the experiment with intent for modifications.
    2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

  • Experiment Status
    An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
  • Experiment ID
    The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.
Aberrant Behavior Checklist (ABC) - Community Clinical Assessments 31
Adapted ADOS Module 1 Clinical Assessments 16
Adapted ADOS Module 2 Clinical Assessments 1
Autism Diagnostic Observation Schedule (ADOS) - Module 4 Clinical Assessments 2
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 2
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 2
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 6
BU Demographics Clinical Assessments 31
BU Medical Form Clinical Assessments 30
Dean Handedness Inventory Clinical Assessments 30
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 31
Ravens Coloured Progressive Matrices (CPM) Clinical Assessments 32
Repetitive Behavior Scales - Early Childhood Supplement Clinical Assessments 31
Research Subject Clinical Assessments 31
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 29
helpcenter.collection.shared-data-tab

NDA Help Center

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

  • How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?
    To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
  • Can I get a supplement to share data from a completed research project?
    Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
  • Can I get a supplement to share data from a research project that is still ongoing?
    Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

  • Data Structure
    A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
  • Data Type
    A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
  • Shared
    The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
39173846Create StudyAlterations in aperiodic and periodic EEG activity in young children with Down syndrome.Neurobiology of diseaseGeiger, McKena; Hurewitz, Sophie R; Pawlowski, Katherine; Baumer, Nicole T; Wilkinson, Carol LOctober 1, 2024Not Determined
39011552Create StudyFamilial Recurrence of Autism: Updates From the Baby Siblings Research Consortium.PediatricsOzonoff, Sally; Young, Gregory S; Bradshaw, Jessica; Charman, Tony; Chawarska, Katarzyna; Iverson, Jana M; Klaiman, Cheryl; Landa, Rebecca J; McDonald, Nicole; Messinger, Daniel; Schmidt, Rebecca J; Wilkinson, Carol L; Zwaigenbaum, LonnieAugust 1, 2024Not Determined
38987558Create StudyDevelopmental trajectories of EEG aperiodic and periodic components in children 2-44 months of age.Nature communicationsWilkinson, Carol L; Yankowitz, Lisa D; Chao, Jerry Y; Gutiérrez, Rodrigo; Rhoades, Jeff L; Shinnar, Shlomo; Purdon, Patrick L; Nelson, Charles AJuly 10, 2024Not Determined
38978564Create StudyResting state EEG in young children with Tuberous Sclerosis Complex.Research squareClements, Caitlin C; Engelstad, Anne-Michelle; Wilkinson, Carol L; Hyde, Carly; Hartney, Megan; Simmons, Alexandra; Tager-Flusberg, Helen; Jeste, Shafali; Nelson, Charles AJune 27, 2024Not Determined
38853932Create StudyPrediction of chronological age from resting-state EEG power in the first three years of life.medRxiv : the preprint server for health sciencesAn, Winko W; Bhowmik, Aprotim C; Nelson, Charles A; Wilkinson, Carol LJune 1, 2024Not Determined
38607475Create StudyResting Frontal Gamma Power is Associated with Both Expressive Language and Non-verbal Cognitive Abilities in Young Autistic Children.Journal of autism and developmental disordersMukerji, Cora E; Wilson 3rd, John S; Wilkinson, Carol L; Krol, Manon A; Nelson, Charles A; Tager-Flusberg, HelenApril 12, 2024Not Determined
38313269Create StudyEvaluating early EEG correlates of restricted and repetitive behaviors for toddlers with or without autism.Research squareChung, Haerin; Wilkinson, Carol L; Job Said, Alex; Tager-Flusberg, Helen; Nelson, Charles AJanuary 18, 2024Not Determined
37790544Create StudyDevelopmental trajectories of EEG aperiodic and periodic power: Implications for understanding the timing of thalamocortical development during infancy.Research squareWilkinson, Carol L; Yankowitz, Lisa; Chao, Jerry Y; Gutiérrez, Rodrigo; Rhoades, Jeff L; Shinnar, Shlomo; Purdon, Patrick L; Nelson, Charles ASeptember 18, 2023Not Determined
37546863Create StudyDevelopmental trajectories of EEG aperiodic and periodic components: Implications for understanding thalamocortical development during infancy.bioRxiv : the preprint server for biologyWilkinson, Carol L; Yankowitz, Lisa; Chao, Jerry Y; Gutiérrez, Rodrigo; Rhoades, Jeff L; Shinnar, Shlomo; Purdon, Patrick L; Nelson, Charles AMarch 9, 2024Not Determined
37262938Create StudyAssociations between EEG trajectories, family income, and cognitive abilities over the first two years of life.Developmental cognitive neuroscienceWilkinson, Carol L; Pierce, Lara J; Sideridis, Georgios; Wade, Mark; Nelson, Charles AJune 1, 2023Not Determined
36933374Create StudyAssociations between attentional biases to fearful faces and social-emotional development in infants with and without an older sibling with autism.Infant behavior & developmentWagner, Jennifer B; Keehn, Brandon; Tager-Flusberg, Helen; Nelson, Charles AMay 1, 2023Not Determined
36336205Create StudyIn Context: A Developmental Model of Reward Processing, With Implications for Autism and Sensitive Periods.Journal of the American Academy of Child and Adolescent PsychiatryClements, Caitlin C; Ascunce, Karina; Nelson, Charles ANovember 1, 2023Not Determined
35652157Create StudyEarly predictors of language skills at 3 years of age vary based on diagnostic outcome: A baby siblings research consortium study.Autism research : official journal of the International Society for Autism ResearchPecukonis, Meredith; Young, Gregory S; Brian, Jessica; Charman, Tony; Chawarska, Katarzyna; Elsabbagh, Mayada; Iverson, Jana M; Jeste, Shafali; Landa, Rebecca; Messinger, Daniel S; Schwichtenberg, A J; Webb, Sara Jane; Zwaigenbaum, Lonnie; Tager-Flusberg, HelenJuly 1, 2022Not Determined
35624989Create StudyNeuroimaging Techniques as Descriptive and Diagnostic Tools for Infants at Risk for Autism Spectrum Disorder: A Systematic Review.Brain sciencesAyoub, Maria J; Keegan, Laura; Tager-Flusberg, Helen; Gill, Simone VMay 5, 2022Not Determined
35155817Create StudyHow do minimally verbal children and adolescents with autism spectrum disorder use communicative gestures to complement their spoken language abilities?Autism & developmental language impairmentsLa Valle, Chelsea; Chenausky, Karen; Tager-Flusberg, HelenJanuary 1, 2021Not Determined
35021990Create StudyNeural correlates of face processing associated with development of social communication in 12-month infants with familial risk of autism spectrum disorder.Journal of neurodevelopmental disordersGlauser, Joshua; Wilkinson, Carol L; Gabard-Durnam, Laurel J; Choi, Boin; Tager-Flusberg, Helen; Nelson, Charles AJanuary 12, 2022Not Determined
34847887Create StudyPrediction of autism spectrum disorder diagnosis using nonlinear measures of language-related EEG at 6 and 12 months.Journal of neurodevelopmental disordersPeck, Fleming C; Gabard-Durnam, Laurel J; Wilkinson, Carol L; Bosl, William; Tager-Flusberg, Helen; Nelson, Charles ANovember 30, 2021Not Determined
34185234Create StudyParental Language Input Predicts Neuroscillatory Patterns Associated with Language Development in Toddlers at Risk of Autism.Journal of autism and developmental disordersRomeo, Rachel R; Choi, Boin; Gabard-Durnam, Laurel J; Wilkinson, Carol L; Levin, April R; Rowe, Meredith L; Tager-Flusberg, Helen; Nelson 3rd, Charles AJune 1, 2022Not Determined
33792804Create StudyBrief Report: Parents'' Declarative Use of Deictic Gestures Predict Vocabulary Development in Infants at High and Low Risk for Autism Spectrum Disorder.Journal of autism and developmental disordersChoi, Boin; Castelbaum, Lauren; McKechnie, Riley; Rowe, Meredith L; Nelson, Charles A; Tager-Flusberg, HelenFebruary 1, 2022Not Determined
33632320Create StudyIncreased aperiodic gamma power in young boys with Fragile X Syndrome is associated with better language ability.Molecular autismWilkinson, Carol L; Nelson, Charles AFebruary 25, 2021Not Determined
33420647Create StudyA Longitudinal Study of Parent Gestures, Infant Responsiveness, and Vocabulary Development in Infants at Risk for Autism Spectrum Disorder.Journal of autism and developmental disordersChoi, Boin; Shah, Priyanka; Rowe, Meredith L; Nelson, Charles A; Tager-Flusberg, HelenNovember 1, 2021Not Determined
33338817Create StudyExploring the relation between brain response to speech at 6-months and language outcomes at 24-months in infants at high and low risk for autism spectrum disorder: A preliminary functional near-infrared spectroscopy study.Developmental cognitive neurosciencePecukonis, Meredith; Perdue, Katherine L; Wong, Jillian; Tager-Flusberg, Helen; Nelson, Charles AFebruary 1, 2021Not Determined
32656537Create StudyUse of longitudinal EEG measures in estimating language development in infants with and without familial risk for autism spectrum disorder.Neurobiology of language (Cambridge, Mass.)Wilkinson, Carol L; Gabard-Durnam, Laurel J; Kapur, Kush; Tager-Flusberg, Helen; Levin, April R; Nelson, Charles AJanuary 2020Not Determined
32640168Create StudyFunctional Near-Infrared Spectroscopy in the Study of Speech and Language Impairment Across the Life Span: A Systematic Review.American journal of speech-language pathologyButler, Lindsay K; Kiran, Swathi; Tager-Flusberg, HelenAugust 4, 2020Not Determined
32003131Create StudyReciprocal Influences Between Parent Input and Child Language Skills in Dyads Involving High- and Low-Risk Infants for Autism Spectrum Disorder.Autism research : official journal of the International Society for Autism ResearchChoi, Boin; Nelson, Charles A; Rowe, Meredith L; Tager-Flusberg, HelenJuly 1, 2020Not Determined
31754946Create StudyCaregiver Touch-Speech Communication and Infant Responses in 12-Month-Olds at High Risk for Autism Spectrum Disorder.Journal of autism and developmental disordersKadlaskar, Girija; Seidl, Amanda; Tager-Flusberg, Helen; Nelson, Charles A; Keehn, BrandonMarch 2020Not Determined
31589284Create StudyDevelopmental Trajectories of Infants With Multiplex Family Risk for Autism: A Baby Siblings Research Consortium Study.JAMA neurologyMcDonald, Nicole M; Senturk, Damla; Scheffler, Aaron; Brian, Jessica A; Carver, Leslie J; Charman, Tony; Chawarska, Katarzyna; Curtin, Suzanne; Hertz-Piccioto, Irva; Jones, Emily J H; Klin, Ami; Landa, Rebecca; Messinger, Daniel S; Ozonoff, Sally; Stone, Wendy L; Tager-Flusberg, Helen; Webb, Sara Jane; Young, Gregory; Zwaigenbaum, Lonnie; Jeste, Shafali SJanuary 2020Not Determined
31519897Create StudyLongitudinal EEG power in the first postnatal year differentiates autism outcomes.Nature communicationsGabard-Durnam, Laurel J; Wilkinson, Carol; Kapur, Kush; Tager-Flusberg, Helen; Levin, April R; Nelson, Charles ASeptember 2019Not Determined
31355652Create StudyAttentional bias to fearful faces in infants at high risk for autism spectrum disorder.Emotion (Washington, D.C.)Wagner, Jennifer B; Keehn, Brandon; Tager-Flusberg, Helen; Nelson, Charles ASeptember 2020Not Determined
31119899Create StudyReduced frontal gamma power at 24 months is associated with better expressive language in toddlers at risk for autism.Autism research : official journal of the International Society for Autism ResearchWilkinson, Carol L; Levin, April R; Gabard-Durnam, Laurel J; Tager-Flusberg, Helen; Nelson, Charles AAugust 2019Not Determined
31016672Create StudyAtypical Response to Caregiver Touch in Infants at High Risk for Autism Spectrum Disorder.Journal of autism and developmental disordersKadlaskar, Girija; Seidl, Amanda; Tager-Flusberg, Helen; Nelson, Charles A; Keehn, BrandonJuly 2019Not Determined
30877417Create StudyGesture Development, Caregiver Responsiveness, and Language and Diagnostic Outcomes in Infants at High and Low Risk for Autism.Journal of autism and developmental disordersChoi, Boin; Shah, Priyanka; Rowe, Meredith L; Nelson, Charles A; Tager-Flusberg, HelenJuly 2020Not Determined
30628809Create StudyEarly motor abilities in infants at heightened versus low risk for ASD: A Baby Siblings Research Consortium (BSRC) study.Journal of abnormal psychologyIverson, Jana M; Shic, Frederick; Wall, Carla A; Chawarska, Katarzyna; Curtin, Suzanne; Estes, Annette; Gardner, Judith M; Hutman, Ted; Landa, Rebecca J; Levin, April R; Libertus, Klaus; Messinger, Daniel S; Nelson, Charles A; Ozonoff, Sally; Sacrey, Lori-Ann R; Sheperd, Kelly; Stone, Wendy L; Tager-Flusberg, Helen B; Wolff, Jason J; Yirmiya, Nurit; Young, Gregory SJanuary 2019Not Determined
30131667Create StudyBEAPP: The Batch Electroencephalography Automated Processing Platform.Frontiers in neuroscienceLevin, April R; Méndez Leal, Adriana S; Gabard-Durnam, Laurel J; O'Leary, Heather MJanuary 2018Not Determined
29717196Create StudyEEG Analytics for Early Detection of Autism Spectrum Disorder: A data-driven approach.Scientific reportsBosl, William J; Tager-Flusberg, Helen; Nelson, Charles AMay 2018Not Determined
29649977Create StudyDevelopment of fine motor skills is associated with expressive language outcomes in infants at high and low risk for autism spectrum disorder.Journal of neurodevelopmental disordersChoi, Boin; Leech, Kathryn A; Tager-Flusberg, Helen; Nelson, Charles AApril 12, 2018Not Determined
29456277Create StudyDifferential Attention to Faces in Infant Siblings of Children with Autism Spectrum Disorder and Associations with Later Social and Language Ability.International journal of behavioral developmentWagner, Jennifer B; Luyster, Rhiannon J; Moustapha, Hana; Tager-Flusberg, Helen; Nelson, Charles AJanuary 2018Not Determined
28922545Create StudyNeural responses to linguistic stimuli in children with and without autism spectrum disorder.The European journal of neuroscienceFinch, Kayla H; Tager-Flusberg, Helen; Nelson, Charles AMarch 2018Not Determined
28903722Create StudyEEG power at 3 months in infants at high familial risk for autism.Journal of neurodevelopmental disordersLevin AR, Varcin KJ, O'Leary HM, Tager-Flusberg H, Nelson CASeptember 2017Not Determined
28688078Create StudyDifferences in Neural Correlates of Speech Perception in 3 Month Olds at High and Low Risk for Autism Spectrum Disorder.Journal of autism and developmental disordersEdwards, Laura A; Wagner, Jennifer B; Tager-Flusberg, Helen; Nelson, Charles AOctober 1, 2017Not Determined
28384664Create StudyVocalization Rate and Consonant Production in Toddlers at High and Low Risk for Autism.Journal of speech, language, and hearing research : JSLHRChenausky K, Nelson C, Tager-Flusberg HApril 2017Not Determined
28339140Create StudyAcquisition of voice onset time in toddlers at high and low risk for autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchChenausky K, Tager-Flusberg HJuly 2017Not Determined
28174606Create StudyLateralization of ERPs to speech and handedness in the early development of Autism Spectrum Disorder.Journal of neurodevelopmental disordersFinch KH, Seery AM, Talbott MR, Nelson CA, Tager-Flusberg HJanuary 2017Not Determined
27829034Create StudyAuditory-Motor Mapping Training: Comparing the Effects of a Novel Speech Treatment to a Control Treatment for Minimally Verbal Children with Autism.PloS oneChenausky, Karen; Norton, Andrea; Tager-Flusberg, Helen; Schlaug, GottfriedJanuary 2016Not Determined
27616938Create StudyGreater Pupil Size in Response to Emotional Faces as an Early Marker of Social-Communicative Difficulties in Infants at High Risk for Autism.Infancy : the official journal of the International Society on Infant StudiesWagner, Jennifer B; Luyster, Rhiannon J; Tager-Flusberg, Helen; Nelson, Charles ASeptember 2016Not Determined
27417857Create StudyNon-ASD outcomes at 36 months in siblings at familial risk for autism spectrum disorder (ASD): A baby siblings research consortium (BSRC) study.Autism research : official journal of the International Society for Autism ResearchCharman, Tony; Young, Gregory S; Brian, Jessica; Carter, Alice; Carver, Leslie J; Chawarska, Katarzyna; Curtin, Suzanne; Dobkins, Karen; Elsabbagh, Mayada; Georgiades, Stelios; Hertz-Picciotto, Irva; Hutman, Ted; Iverson, Jana M; Jones, Emily J; Landa, Rebecca; Macari, Suzanne; Messinger, Daniel S; Nelson, Charles A; Ozonoff, Sally; Saulnier, Celine; Stone, Wendy L; Tager-Flusberg, Helen; Webb, Sara Jane; Yirmiya, Nurit; Zwaigenbaum, LonnieJanuary 2017Not Determined
27358719Create StudyCommentary: sex difference differences? A reply to Constantino.Molecular autismMessinger, Daniel S; Young, Gregory S; Webb, Sara Jane; Ozonoff, Sally; Bryson, Susan E; Carter, Alice; Carver, Leslie; Charman, Tony; Chawarska, Katarzyna; Curtin, Suzanne; Dobkins, Karen; Hertz-Picciotto, Irva; Hutman, Ted; Iverson, Jana M; Landa, Rebecca; Nelson, Charles A; Stone, Wendy L; Tager-Flusberg, Helen; Zwaigenbaum, Lonnie2016Not Relevant
26953849Create StudyA developmental neuroscience approach to the search for biomarkers in autism spectrum disorder.Current opinion in neurologyVarcin, Kandice J; Nelson 3rd, Charles AApril 2016Not Relevant
26502110Create StudyRisk Factors Associated With Language in Autism Spectrum Disorder: Clues to Underlying Mechanisms.Journal of speech, language, and hearing research : JSLHRTager-Flusberg HFebruary 2016Not Relevant
26478642Create StudyThe role of early visual attention in social development.International journal of behavioral developmentWagner JB, Luyster RJ, Yim JY, Tager-Flusberg H, Nelson CAMarch 1, 2013Not Determined
26476738Create StudyLanguage Differences at 12 Months in Infants Who Develop Autism Spectrum Disorder.Journal of autism and developmental disordersLazenby DC, Sideridis GD, Huntington N, Prante M, Dale PS, Curtin S, Henkel L, Iverson JM, Carver L, Dobkins K, Akshoomoff N, Tagavi D, Nelson CA, Tager-Flusberg HMarch 2016Not Determined
26408635Create StudyComparing methods for assessing receptive language skills in minimally verbal children and adolescents with autism spectrum disorders.Autism : the international journal of research and practicePlesa Skwerer D, Jordan SE, Brukilacchio BH, Tager-Flusberg HJuly 2016Not Determined
26335733Create StudyDefining language impairments in a subgroup of children with autism spectrum disorder.Science China. Life sciencesTager-Flusberg, HelenOctober 2015Not Determined
26174704Create StudyMaternal Vocal Feedback to 9-Month-Old Infant Siblings of Children with ASD.Autism research : official journal of the International Society for Autism ResearchTalbott MR, Nelson CA, Tager-Flusberg HJuly 14, 2015Not Determined
26109246Create StudyEye-tracking measurements of language processing: developmental differences in children at high risk for ASD.Journal of autism and developmental disordersChita-Tegmark M, Arunachalam S, Nelson CA, Tager-Flusberg HOctober 2015Not Determined
26088664Create StudyShortened Telomeres in Families With a Propensity to Autism.Journal of the American Academy of Child and Adolescent PsychiatryNelson CA, Varcin KJ, Coman NK, DeVivo I, Tager-Flusberg HJuly 2015Not Determined
26045943Create StudyEarly sex differences are not autism-specific: A Baby Siblings Research Consortium (BSRC) study.Molecular autismMessinger, Daniel S; Young, Gregory S; Webb, Sara Jane; Ozonoff, Sally; Bryson, Susan E; Carter, Alice; Carver, Leslie; Charman, Tony; Chawarska, Katarzyna; Curtin, Suzanne; Dobkins, Karen; Hertz-Picciotto, Irva; Hutman, Ted; Iverson, Jana M; Landa, Rebecca; Nelson, Charles A; Stone, Wendy L; Tager-Flusberg, Helen; Zwaigenbaum, LonnieJanuary 2015Not Determined
25813603Create StudyInhibition-Based Biomarkers for Autism Spectrum Disorder.Neurotherapeutics : the journal of the American Society for Experimental NeuroTherapeuticsLevin, April R; Nelson, Charles AJuly 2015Not Determined
25808162Create StudyAtypical hemispheric specialization for faces in infants at risk for autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchKeehn B, Vogel-Farley V, Tager-Flusberg H, Nelson CAApril 2015Not Determined
25703030Create StudyDiary Reports of Concerns in Mothers of Infant Siblings of Children with Autism Across the First Year of Life.Journal of autism and developmental disordersTalbott, Meagan R; Nelson, Charles A; Tager-Flusberg, HelenJuly 2015Not Determined
25457930Create Study18-month predictors of later outcomes in younger siblings of children with autism spectrum disorder: a baby siblings research consortium study.Journal of the American Academy of Child and Adolescent PsychiatryChawarska, Katarzyna; Shic, Frederick; Macari, Suzanne; Campbell, Daniel J; Brian, Jessica; Landa, Rebecca; Hutman, Ted; Nelson, Charles A; Ozonoff, Sally; Tager-Flusberg, Helen; Young, Gregory S; Zwaigenbaum, Lonnie; Cohen, Ira L; Charman, Tony; Messinger, Daniel S; Klin, Ami; Johnson, Scott; Bryson, SusanDecember 2014Not Determined
25140874Create StudyFunctional connectivity in the first year of life in infants at risk for autism spectrum disorder: an EEG study.PloS oneRighi, Giulia; Tierney, Adrienne L; Tager-Flusberg, Helen; Nelson, Charles A2014Not Determined
24353165Create StudyAssessing the minimally verbal school-aged child with autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchKasari C, Brady N, Lord C, Tager-Flusberg HDecember 2013Not Relevant
24183618Create StudyNeural measures of social attention across the first years of life: characterizing typical development and markers of autism risk.Developmental cognitive neuroscienceLuyster RJ, Powell C, Tager-Flusberg H, Nelson CAApril 2014Not Determined
24128733Create StudyThe use of near-infrared spectroscopy in the study of typical and atypical development.NeuroImageVanderwert RE, Nelson CAJanuary 15, 2014Not Determined
24124067Create StudyMinimally verbal school-aged children with autism spectrum disorder: the neglected end of the spectrum.Autism research : official journal of the International Society for Autism ResearchTager-Flusberg H, Kasari CDecember 2013Not Determined
23989937Create StudyAlpha asymmetry in infants at risk for autism spectrum disorders.Journal of autism and developmental disordersGabard-Durnam, Laurel; Tierney, Adrienne L; Vogel-Farley, Vanessa; Tager-Flusberg, Helen; Nelson, Charles AFebruary 2015Not Determined
23975145Create StudyGuidelines and best practices for electrophysiological data collection, analysis and reporting in autism.Journal of autism and developmental disordersWebb, Sara Jane; Bernier, Raphael; Henderson, Heather A; Johnson, Mark H; Jones, Emily J H; Lerner, Matthew D; McPartland, James C; Nelson, Charles A; Rojas, Donald C; Townsend, Jeanne; Westerfield, MarissaFebruary 2015Not Relevant
23964223Create StudyFunctional connectivity in the first year of life in infants at-risk for autism: a preliminary near-infrared spectroscopy study.Frontiers in human neuroscienceKeehn, Brandon; Wagner, Jennifer B; Tager-Flusberg, Helen; Nelson, Charles A2013Not Determined
23585026Create StudyMaternal gesture use and language development in infant siblings of children with autism spectrum disorder.Journal of autism and developmental disordersTalbott, Meagan R; Nelson, Charles A; Tager-Flusberg, HelenJanuary 2015Not Determined
23576966Create StudyNeural processing of facial identity and emotion in infants at high-risk for autism spectrum disorders.Frontiers in human neuroscienceFox, Sharon E; Wagner, Jennifer B; Shrock, Christine L; Tager-Flusberg, Helen; Nelson, Charles A2013Not Determined
23452686Create StudyBeyond autism: a baby siblings research consortium study of high-risk children at three years of age.Journal of the American Academy of Child and Adolescent PsychiatryMessinger, Daniel; Young, Gregory S; Ozonoff, Sally; Dobkins, Karen; Carter, Alice; Zwaigenbaum, Lonnie; Landa, Rebecca J; Charman, Tony; Stone, Wendy L; Constantino, John N; Hutman, Ted; Carver, Leslie J; Bryson, Susan; Iverson, Jana M; Strauss, Mark S; Rogers, Sally J; Sigman, MarianMarch 2013Not Determined
23445896Create StudyBrain functional networks in syndromic and non-syndromic autism: a graph theoretical study of EEG connectivity.BMC medicinePeters JM, Taquet M, Vega C, Jeste SS, Fernández IS, Tan J, Nelson CA, Sahin M, Warfield SK2013Not Determined
23362034Create StudyIdentifying early-risk markers and developmental trajectories for language impairment in neurodevelopmental disorders.Developmental disabilities research reviewsLuyster RJ, Seery A, Talbott MR, Tager-Flusberg H2011Not Determined
23287023Create StudyAtypical lateralization of ERP response to native and non-native speech in infants at risk for autism spectrum disorder.Developmental cognitive neuroscienceSeery AM, Vogel-Farley V, Tager-Flusberg H, Nelson CAJuly 2013Not Determined
22745707Create StudyDevelopmental trajectories of resting EEG power: an endophenotype of autism spectrum disorder.PloS oneTierney, Adrienne L; Gabard-Durnam, Laurel; Vogel-Farley, Vanessa; Tager-Flusberg, Helen; Nelson, Charles A2012Not Determined
22661408Create StudyImpaired language pathways in tuberous sclerosis complex patients with autism spectrum disorders.Cerebral cortex (New York, N.Y. : 1991)Lewis WW, Sahin M, Scherrer B, Peters JM, Suarez RO, Vogel-Farley VK, Jeste SS, Gregas MC, Prabhu SP, Nelson CA, Warfield SKJuly 2013Not Determined
22365458Create StudyFacing autism: eye tracking paves the way to underlying mechanisms.Journal of the American Academy of Child and Adolescent PsychiatryNelson CAMarch 2012Not Determined
22142677Create StudyLoss of white matter microstructural integrity is associated with adverse neurological outcome in tuberous sclerosis complex.Academic radiologyPeters, Jurriaan M; Sahin, Mustafa; Vogel-Farley, Vanessa K; Jeste, Shafali S; Nelson 3rd, Charles A; Gregas, Matthew C; Prabhu, Sanjay P; Scherrer, Benoit; Warfield, Simon KJanuary 2012Not Determined
21970828Create StudyCommon neurological co-morbidities in autism spectrum disorders.Current opinion in pediatricsMaski, Kiran P; Jeste, Shafali S; Spence, Sarah JDecember 2011Not Determined
21844053Create StudyRecurrence risk for autism spectrum disorders: a Baby Siblings Research Consortium study.PediatricsOzonoff, Sally; Young, Gregory S; Carter, Alice; Messinger, Daniel; Yirmiya, Nurit; Zwaigenbaum, Lonnie; Bryson, Susan; Carver, Leslie J; Constantino, John N; Dobkins, Karen; Hutman, Ted; Iverson, Jana M; Landa, Rebecca; Rogers, Sally J; Sigman, Marian; Stone, Wendy LSeptember 2011Not Determined
21811483Create StudyNeural processing of repetition and non-repetition grammars in 7- and 9-month-old infants.Frontiers in psychologyWagner, Jennifer B; Fox, Sharon E; Tager-Flusberg, Helen; Nelson, Charles A2011Not Determined
21442325Create StudyNeural correlates of familiar and unfamiliar face processing in infants at risk for autism spectrum disorders.Brain topographyLuyster RJ, Wagner JB, Vogel-Farley V, Tager-Flusberg H, Nelson CAOctober 2011Not Determined
21342500Create StudyEEG complexity as a biomarker for autism spectrum disorder risk.BMC medicineBosl W, Tierney A, Tager-Flusberg H, Nelson C2011Not Determined
20800990Create StudyThe origins of social impairments in autism spectrum disorder: studies of infants at risk.Neural networks : the official journal of the International Neural Network SocietyTager-Flusberg, HelenJanuary 2010Not Determined
helpcenter.collection.publications-tab

NDA Help Center

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

  • How can I determine if a publication is relevant?
    Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
  • Where does the NDA get the publications?
    PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

  • Create Study
    A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
  • Not Determined Publication
    Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
  • Not Relevant Publication
    A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
  • PubMed
    PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
  • PubMed ID
    The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
  • Relevant Publication
    A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.
Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Research Subject and Pedigree info icon
4001/15/2013
31
Approved
To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.
Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Ravens Coloured Progressive Matrices (CPM) info icon
4001/15/2013
32
Approved
ABC Community info icon
4001/15/2013
31
Approved
ADOS info icon
4001/15/2013
28
Approved
Medical History info icon
4001/15/2013
30
Approved
Demographics info icon
4001/15/2013
31
Approved
Peabody Picture Vocabulary Test, Fourth Edition info icon
4001/15/2013
31
Approved
Repetitive Behavior Scale - Revised (RBS-R) info icon
4001/15/2013
31
Approved
Handedness Form info icon
4001/15/2013
30
Approved
Vineland (Parent and Caregiver) info icon
4001/15/2013
29
Approved
Structure not yet defined
No Status history for this Data Expected has been recorded yet
helpcenter.collection.data-expected-tab

NDA Help Center

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

  • Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
  • If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
  • Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

  • What is an NDA Data Structure?
    An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
  • What is the NDA Data Dictionary?
    The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

  • Analyzed Data
    Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
  • Data Item
    Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
  • Data Structure
    A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
  • Data Structure Category
    An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
  • Data Structure Group
    A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
  • Evaluated Data
    A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
  • Imaging Data
    Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
  • Initial Share Date
    Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
  • Initial Submission Date
    Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
  • Research Subject and Pedigree
    An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
  • Submission Cycle
    The NDA has two Submission Cycles per year - January 15 and July 15.
  • Submission Exemption
    An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
Examining Diagnostic Trends and Gender Differences in the ADOS-IIApproximately 3–4 boys for every girl meet the clinical criteria for autism in studies of community diagnostic patterns and studies of autism using samples of convenience. However, girls with autism have been hypothesized to be underdiagnosed, possibly because they may present with differing symptom profiles as compared to boys. This secondary data analysis used the National Database of Autism Research (NDAR) to examine how gender and symptom profiles are associated with one another in a gold standard assessment of autism symptoms, the Autism Diagnostic Observation Schedule II (ADOS-II; Lord, C., Luyster, R., Guthrie, W., & Pickles A. (2012a). Patterns of developmental trajectories in toddlers with autism spectrum disorder. Journal of Consulting and Clinical Psychology, 80(3):477–489. https://doi.org/10.1037/a0027214. Epub 2012 Apr 16. PMID: 22506796, PMCID: PMC3365612). ADOS-II scores from 6183 children ages 6–14 years from 78 different studies in the NDAR indicated that gender was a significant predictor of total algorithm, restrictive and repetitive behavioral, and social communicative difficulties composite severity scores. These findings suggest that gender differences in ADOS scores are common in many samples and may reflect on current diagnostic practices.7/5615Secondary AnalysisShared
Gender Differences: Confirmatory Factor Analysis of the ADOS-IIPurpose Recent research has suggested that autism may present differently in girls compared to boys, encouraging the exploration of a sex-differential diagnostic criteria. Gender differences in diagnostic assessments have been shown on the ADOS-II, such that, on average, females score significantly lower than males on all scales and are less likely to show atypicality on most items related to social communicative difficulties. Yet, gender differences in the latent structure of instruments like the ADOS-II have not been examined systematically. Methods As such, this secondary data analysis examined 4,100 youth diagnosed with autism (Mage = 9.9, 813 female & 3287 male) examined item response trends by gender on the ADOS-II Module 3. Results Multi-Group Confirmatory Factor Analysis results show that the factor loadings of four ADOS-II items differ across the genders. One SCD item and one RRB item are strongly related to the latent factor in the female group, while two RRB items have larger factor loadings in the male group. Conclusion The assumption of an identical latent factor structure for the ADOS-II Module 3 for males and females might not be justifiable. Possible diagnostic implications are discussed.7/5615Secondary AnalysisShared
Prognostic early snapshot stratification of autism based on adaptive functioningA major goal of precision medicine is to predict prognosis based on individualized information at the earliest possible points in development. Using early snapshots of adaptive functioning and unsupervised data- driven discovery methods, we uncover highly stable early autism subtypes that yield information relevant to later prognosis. Data from the National Institute of Mental Health Data Archive (NDA) (n = 1,098) was used to uncover three early subtypes (<72 months) that generalize with 96% accuracy. Outcome data from NDA (n = 2,561; mean age, 13 years) also reproducibly clusters into three subtypes with 99% generalization accuracy. Early snapshot subtypes predict developmental trajectories in non-verbal cognitive, language and motor domains and are predictive of membership in different adaptive functioning outcome subtypes. Robust and prognosis- relevant subtyping of autism based on early snapshots of adaptive functioning may aid future research work via prediction of these subtypes with our reproducible stratification model.29/3517Secondary AnalysisShared
Investigating autism etiology and heterogeneity by decision tree algorithmAutism spectrum disorder (ASD) is a neurodevelopmental disorder that causes deficits in cognition, communication and social skills. ASD, however, is a highly heterogeneous disorder. This heterogeneity has made identifying the etiology of ASD a particularly difficult challenge, as patients exhibit a wide spectrum of symptoms without any unifying genetic or environmental factors to account for the disorder. For better understanding of ASD, it is paramount to identify potential genetic and environmental risk factors that are comorbid with it. Identifying such factors is of great importance to determine potential causes for the disorder, and understand its heterogeneity. Existing large-scale datasets offer an opportunity for computer scientists to undertake this task by utilizing machine learning to reliably and efficiently obtain insight about potential ASD risk factors, which would in turn assist in guiding research in the field. In this study, decision tree algorithms were utilized to analyze related factors in datasets obtained from the National Database for Autism Research (NDAR) consisting of nearly 3000 individuals. We were able to identify 15 medical conditions that were highly associated with ASD diagnoses in patients; furthermore, we extended our analysis to the family medical history of patients and we report six potentially hereditary medical conditions associated with ASD. Associations reported had a 90% accuracy. Meanwhile, gender comparisons highlighted conditions that were unique to each gender and others that overlapped. Those findings were validated by the academic literature, thus opening the way for new directions for the use of decision tree algorithms to further understand the etiology of autism. 8/3382Secondary AnalysisShared
* Data not on individual level
helpcenter.collection.associated-studies-tab

NDA Help Center

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

  • How do I associate a study to my collection?
    Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

  • Associated Studies Tab
    A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.
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